Treatment

MAPS Conference For Doctors Who Want to Help Children With Special Needs

MAPS Fall ConferenceIn 2023, the Medical Academy of Pediatric Special Needs is training medical professionals to provide care, value and respect in treatment. Ask your medical provider to consider attending the Fall conference.  What could be more important? Share with your pediatrician, ask him or her if they think they have enough resources to help their flood of chronically ill young patients. Most will say, "no." The question is, how many are willing to go this extra mile? Ask and keep asking.  The conference is coming up fast. Even if it's too late to attend, you can share the info with your provider. Start the conversation. And keep talking.

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Medical professionals who attend the MAPS functional and translational medicine conferences will get an opportunity to avail world-class special needs education during our 3 day event. This CME conference will help prepare health professionals to effectively treat their patients suffering from neurodevelopmental disorders. Health conditions such as Autism Spectrum Disorder (ASD), Attention Deficit Hyperactivity Disorder (ADHD), cerebral palsy, Lyme Disease, Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and many more will be discussed over the course of the conference. Attendees will learn all about the latest developments in medical research and technology that could help them provide better care to special needs children and their families.

Learn more here.

### From Skyhorse Publishing

The War On Ivermectin Yellow CoverThe War on Ivermectin: The Medicine that Saved Millions and Could Have Ended the Pandemic

#1 Seller in Forensic Medicine

By Pierre Kory Dr. (Author), Jenna McCarthy (Author)

Big Pharma and health agencies cry, “Don’t take ivermectin!” A media storm follows. Why then, does the science say the opposite?” Ivermectin is a dirty word in the media. It doesn’t work. It’s a deadly horse dewormer. Prescribe or promote it and you’ll be called a right-wing quack, be banned from social media, or lose your license to practice medicine. And yet, entire countries wiped out the virus with it, and more than ninety-five studies now show it to be unequivocally effective in preventing and treating Covid-19. If it didn’t work, why was there a coordinated global campaign to cancel it? What’s the truth about this decades-old, Nobel Prize-winning medication? The War on Ivermectin is the personal and professional narrative of Dr. Pierre Kory and his crusade to recommend a safe, inexpensive, generic medicine as the key to ending the pandemic.


Vax Unvax Book Cover Vax-Unvax: Let the Science Speak (Children’s Health Defense) Hardcover – Illustrated, August 15, 2023 by Robert F. Kennedy Jr. (Author), Brian Hooker (Author)

Based on over one hundred studies in the peer-reviewed literature that consider vaccinated versus unvaccinated populations. Each of these studies is analyzed and put in context of the difference in health outcomes of vaccinated versus unvaccinated infants, children, and adults. Given the massive push to vaccinate the entire global population, this book is timely and necessary for individuals to make informed choices for themselves and their families.

href="https://amzn.to/45chiPo" rel="noopener" target="_blank">at Amazon.</

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The MAPS 2023 Functional and Translational Medicine Conference

MAPS Fall Conference
Many AofA readers remember the days of DAN! doctors, brave men and women who took on the lonely challenge of treating the medical issues in children with autism. In 2023, the Medical Academy of Pediatric Special Needs is training medical professionals to provide care, value and respect in treatment. Ask your medical provide to consider attending the Fall conference.

Medical professionals who attend the MAPS functional and translational medicine conferences will get an opportunity to avail world-class special needs education during our 3 day event. This CME conference will help prepare health professionals to effectively treat their patients suffering from neurodevelopmental disorders. Health conditions such as Autism Spectrum Disorder (ASD), Attention Deficit Hyperactivity Disorder (ADHD), cerebral palsy, Lyme Disease, Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) and many more will be discussed over the course of the conference. Attendees will learn all about the latest developments in medical research and technology that could help them provide better care to special needs children and their families.

Learn more here.

### From Skyhorse Publishing

The War On Ivermectin Yellow CoverThe War on Ivermectin: The Medicine that Saved Millions and Could Have Ended the Pandemic

#1 Seller in Forensic Medicine

By Pierre Kory Dr. (Author), Jenna McCarthy (Author)

Big Pharma and health agencies cry, “Don’t take ivermectin!” A media storm follows. Why then, does the science say the opposite?” Ivermectin is a dirty word in the media. It doesn’t work. It’s a deadly horse dewormer. Prescribe or promote it and you’ll be called a right-wing quack, be banned from social media, or lose your license to practice medicine. And yet, entire countries wiped out the virus with it, and more than ninety-five studies now show it to be unequivocally effective in preventing and treating Covid-19. If it didn’t work, why was there a coordinated global campaign to cancel it? What’s the truth about this decades-old, Nobel Prize-winning medication? The War on Ivermectin is the personal and professional narrative of Dr. Pierre Kory and his crusade to recommend a safe, inexpensive, generic medicine as the key to ending the pandemic.


Vax Unvax Book Cover Vax-Unvax: Let the Science Speak (Children’s Health Defense) Hardcover – Illustrated, August 15, 2023 by Robert F. Kennedy Jr. (Author), Brian Hooker (Author)

Based on over one hundred studies in the peer-reviewed literature that consider vaccinated versus unvaccinated populations. Each of these studies is analyzed and put in context of the difference in health outcomes of vaccinated versus unvaccinated infants, children, and adults. Given the massive push to vaccinate the entire global population, this book is timely and necessary for individuals to make informed choices for themselves and their families.

href="https://amzn.to/45chiPo" rel="noopener" target="_blank">at Amazon.</

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Medical Academy of Pediatric Special Needs Fellowship

MAPS logoNote: Many years ago, my daughters' pediatrician expressed frustration that her toolbox for autism was "empty." MAPS provides education to physicians specifically for children with complex special needs.  Share their info at your next pediatric visit, your doctor might surprise you with his or her interest. Let's hope.

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Since 2012, MAPS has been dedicated to healing complex issues in our pediatric population such as ADHD, ASD, neurodevelopmental delays, asthma, autoimmunity, gut issues, immune dysfunction, and many other chronic pediatric conditions. The level of mastery that MAPS fellows (FMAPS) achieve in the field of complex pediatric conditions makes them among the best-prepared practitioners in this field.

MAPS is the only CME accredited pediatric Fellowship in the country. We offer a dedicated program to empower practitioners with an online portal, alongside two in person conferences annually. The information and knowledge you will gain from our education will allow you to better serve your patients, offering a more positive outcome for them and their families.

Continue reading "Medical Academy of Pediatric Special Needs Fellowship" »


5 Free Tickets Autism Symposium that Covers Functional Medicine, Communication, Workforce and More!

5F382E5E-8FC5-457F-870D-F179B72FD8BEWe have 5 free registration codes to the Ahkil Autism Foundation symposium on April 17 - 19 that covers many bases, so to speak. Including Spelling2Communicate, biomedical treatments, the unique perspective  of Temple Grandin, MNRI reflex OT and more. It’s affordable and it’s online. The organizers have given us 5 free registrations. Leave a comment with your email in the email field, 1st five get the free code. Learn more and register here. Speakers include:

Dr. Temple Grandin
Professor, Author and Leading animal welfare expert

Dr. Svetlana Masgutova, Ph.D.
MNRI® Creator and Founder

James Neuenschwander, MD
FMAPS, President MAPS

Don't miss out on the Virtual Global Neurodiverse Symposium 2023! Gain valuable insights and resources in Functional Medicine, Education, Communication, Brain Development, and Workforce from world-renowned speakers and bonus presentations. Plus, your registration includes membership to the AAF Neurodiversity Community platform, where you can connect with experts and fellow caregivers, and seek advice from specialists.


Learn more and register here.

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FREE on the Kindle app

Lies My Gov't Told Me: And the Better Future Coming (Children’s Health Defense) By Dr. Robert Malone

Governments intentionally weaponized fear to mold behavior. The media smeared anyone who objected to the narrative. FREE on the Kindle app



Cause Unknown 

By Edward Dowd

What is causing this historic spike in deaths among younger people? What is causing the shift from the elderly to younger people?


SPELLERS has documented a miracle

Spellers The MovieWe're pleased to share this emotional review of Spellers, The Movie, by Levi Quackenboss. Subscribe to the Substack here.

SPELLERS has documented a miracle

For my friend, JB Handley, and his champion speller, Jamie.

I know you all will ask when and where you can see this life-changing film. I’ve heard rumors that it’s launching April 2nd, on World Autism Day. Stay tuned, I’ll let you know how see it. In the meantime, follow the SPELLERS Instagram and sign up for the SPELLERS mailing list for news.

When the opening scenes of SPELLERS began, for a moment I doubted that I would make it through the film that day. JB Handley has been many things to me in our seven-year friendship. A force. A shield. A contributor, a voice, a friend. A big, strong, soft-hearted human in need. A ray of hope who needs an occasional spiritual pep talk to make it through a dark day. I haven't met JB's son, Jamie, but I've said a few words to him when JB puts our calls on speaker. JB tells me about Jamie's big smile as he listens. Jamie is autistic and doesn't talk, and he's been that way since he was a toddler.

The film opens with another young man, Cade Larson, filled with joy, cruising past the camera on a surfboard.

I've had the pleasure of spending several days with Cade, over a couple of trips. My children have sat with him at the dinner table, munching on tater tots at the country club near his Minnesota home. Cade is also autistic and has echolalia but otherwise doesn't speak. While he helplessly repeats everything said to him, you know he means "yes" with the enthusiasm he infuses into his echos. Yes, he wants all of us to go on the boat. Yes, he wants two orders of tater tots for dinner tonight. No, he doesn't want the dogs around.

Continue reading "SPELLERS has documented a miracle" »


When Treatment Is Shunned

Dr nassCure has been a dirty word in autism for decades. We've been carefully taught that there is no cure for autism. Treatments are only therapeutic and rarely medical. And to want a cure is to hate your child. We've seen a similar conflict during the Covid years. If you're an old timer in the biomedical autism world, you'll remember that Lupron was suggested as a treatment for high mercury to lower aggression and some of the worst autism symptoms.  In 2010, Disability Scoop called it a "Chemical castration drug,"and said What’s more they are highlighting the risks that Lupron can bring patients including heart problems, stunted growth and impotence..."  Meanwhile, and unbeknownst to most of us, The Kaiser Family Foundation gushed over the use of  Lupron as a godsend for the mental health of transgender adolescents: ...in 2008 that the Endocrine Society approved puberty suppressors as a treatment for transgender adolescents as young as 12 years old. The Society..declared that the intervention appears to be safe and effective. In 2011 the World Professional Association for Transgender Health (WPATH), also issued Standards of Care for the treatment of patients with gender dysphoria, which include puberty suppression. There are few reported side effects to this off-label use of sex hormone suppressors.

Now look at this parallel with Covid and Dr. Meryl Nass - who was sanctioned for treating patients.

How a false hydroxychloroquine narrative was created, and much more

By Dr. Meryl Nass

It is remarkable that a large series of events taking place over the past months produced a unified message about hydroxychloroquine (HCQ), and produced similar policies about the drug in the US, Canada, Australia, NZ and western Europe. The message is that generic, inexpensive hydroxychloroquine (costing only $1.00 to produce a full course) is dangerous and should not be used to treat a potentially fatal disease, Covid-19, for which there are no (other) reliable treatments.

Hydroxychloroquine has been used safely for 65 years in many millions of patients. And so the message was crafted that the drug is safe for its other uses, but dangerous when used for Covid-19. It doesn't make sense, but it seems to have worked. Read the full article here.

Click through the covers to read more & place an order. Your purchase helps support our mission. Thank God hardcover and paperback books have not completely disappeared, the gas engine of the reading world. Read. Cherish. Share. Thank you.


Continue reading "When Treatment Is Shunned" »


Autism One Returns August 18 - 21

AO Back to the basics
Autism One was a more than a conference in its hey day, it was yearly retreat where autism parents could meet, greet, learn, eat, drink (mmm hmmm) and be merry in good company.  Most of us knew each other from Yahoo groups. The conference returns next week.  As you may recall, Ed Arranga passed away earlier this year, a huge loss for the community. We met Robert Kennedy, Jr. for the first time at Autism One, astounded that he understood our topics and was willing to stick his neck out for our kids. We watched film debuts. We met celebrities. We dodged neurodiverse spies and spiteful journalists. Ah... good times.  We old timers can forget that parents are STILL getting the gut punch diagnosis, at an ever quickening pace. Let's share what we know with them in the hopes they will strive to do more than the basics.

Learn more about the conference HERE.

AutismOne is a nonprofit organization dedicated to all that is autism.

AutismOne is here to support a parent when you are searching questions about autism, medicine, nutrition, schooling, social skills, recreation, and more. AutismOne has access to a variety of resources to connect you with, whether they are doctors, specialists, or parents, who have successfully experienced improvements. Or AutismOne can simply listen. We are all in this together. AutismOne knows you love your loved one whether young or old.

From AutismOne: SUPPORT AND EDUCATION FOR PARENTS.

www.AutismOne.org


Join the TACA Autism Action Month Virtual Conference April 8-9

TACA autism Action conferenceApril 8-9!

REGISTER HERE!

TACA's Autism Action Month Conference is an entirely new offering for TACA families. This virtual opportunity will include presentations from experts, followed up with “take action workshops,” to help families implement what they learn. On the TACA Connect platform, families will be able to access resources, download presentation slides, and interact with other families going through the autism journey. Walk away with bite-sized action steps, a plan for your children, and the empowerment to act with confidence.

TACA's Autism Action Month Conference will feature 2 tracks of presentations from an incredible line-up of experts, covering all stages and aspects of the autism journey, including:

Featuring
2 tracks
Challening Behaviors
IEPs and Advocacy
Complex Medical Issues
Therapies
Legal Planning
Research
Life After High School
Communication & AAC

You’ll come away from the conference with new information, strategies, and resources to help maximize your child’s potential and improve their quality of life.  Click HERE to learn much more!


Hair and Autism

Angela Moore Hair tie
Familiar Ponytail Holder, Ladies?

From Safeminds.org. How many readers used hair tests for heavy metals a decade or more ago?

January 31, 2022
StrandDx Analyzes the Levels of Chemicals in a Strand of Hair

Decades into America’s surge of autism cases, diagnosing the neurodevelopmental disorder still relies on behavioral observations made by an experienced professional. This diagnostic process can take several months to complete. Currently, the average age of autism diagnosis is approximately 4 years old. However, that may all change due to a new product called StrandDx by Linus Biotechnology Inc. According to the co-founder and Chief Scientific Officer of the company, Manish Arora, the product analyzes the levels of chemicals in a strand of a child’s hair to determine a temporal sequence of their “exposome.” The exposome shows the child’s cumulative environmental exposures and how they regulate certain essential nutrients. Arora states, “The measure suggests how a person’s physiology responds to their environment, which can predict their chances of having autism.” The intended use of StrandDx will extend to patients from birth to 21 years. The test will assess the “likelihood of ASD” in children from birth to 18 months old, and will aid in diagnosis of ASD in patients aged 18 months to 21 years. Arora and the company’s other co-founders believe their product is a major step forward in precision medicine for autism and feel it could be a major improvement for deploying individualized early intervention.   Source:Safeminds  StrandDx Analyzes the Levels of Chemicals in a Strand of Hair


AAP Further Divorces Itself from Treating Children with Autism

FF60DDCC-9B90-4407-894F-79972FD95A9BThe American Academy of Pediatrics has never embraced or even feigned curiosity for medically treating autism to improve childrens' lives. In fact, they have actively worked against families desperate to help their kids. For decades. Below, Safeminds reports that they have distanced themselves even further, denying medical testing for metals, mold and other environmental exposures. This is a travesty. The AAP toolkit has two things in it - psych meds and referrals to early intervention or school. The doors seemed to have fully closed on the era of autism as a diagnosis that needs any attention. What a sin. AAP - Vaccinate. Medicate. Abdicate.

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Association Claims No Need for Metal, Mineral, or Environmental Toxin Assessments

The American Academy of Pediatrics’ Council on Environmental Health has urged pediatricians and families across the country to stop using several clinical tests for children with autism and other related disabilities. This recommendation, among others, is included within a broader campaign called “Choosing Wisely,” which encourages evidence-based health care that is considered truly necessary and does not duplicate or harm. The American Academy of Pediatrics (AAP) now believes that urine testing of children with autistic behaviors for metals or minerals is unnecessary. They also frown upon analyzing hair for environmental toxins for the same cohort of children. Additionally the AAP has called for the cessation of chelation challenge urinary analyses for children with suspected lead poisoning. Mold sensitivity testing was also in the organization’s crosshairs. They feel it should only be reserved for children displaying distinct allergy and asthma symptoms. Furthermore, the campaign’s recommendations indicate that, in most cases, pediatricians should not use measurements of environmental chemicals in blood or urine to make clinical decisions. A spokesperson for the AAP’s Council on Environmental Health stated that tests or treatments claiming to diagnose childhood diseases based on chemical measurements may be misleading or based on a false premise and believes that parents should rely on pediatricians to address concerns about chemical exposures.

Original Article


TACA Presents Spelling 2 Communicate

Sp2C_Vossler_may2021_bnr
You may have heard about Spelling 2 Communicate, a letterboard system. JB Handley's book Underestimated An Autism Miracle shares his son's amazing journey from a classroom for the intellectually disabled to the stars. TACA has an online tutorial running through the end of the month. We expect a rain out Memorial Day here in Connecticut - a perfect chance to see if S2C might be appropriate for your preverbal or newly verbal child of any age.
 
Register Here.


revitaPOP B12 Lollipops Closing Their Business

RevitaPOP_grid_6My goodness, how time flies. How many AofA readers remember the launch of the B12 revitaPOP at Autism One? They have announced the end of their road, and are closing out their remaining inventory. The pops gave a terrific "ping" of focus and energy and tasted great. In 2021, we are so separate from one another, the biomed community that thrived and supported each other closely has been replaced by Facebook's tenuous connections. The old Yahoo groups are gone. The very "thing" joined us as a family because of the harm it caused is now the savior of the world. It's a sharp kick in the gut. The old timers are now... fossils, this dinosaur included, who is revitaPOOPED out.

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After 14 Years It's time to wrap up revitaPOP. The current inventory is expiring and will not be refreshed. All product has been tested and is still meeting full standards of new product. This is our final sale until the inventory is gone. 34.99 for each set of 3 bags. (3 for the price of 1) Please feel free to stock up and use them as long as you'd like.
 
We are so grateful for have served this amazing community. We thank all of our customers, all of you for the many years of support, all of your thank you notes and pictures. Thank you from the bottom of our hearts! We love you.

TACA Is Hosting a Monthlong Virtual Autism Conference

TACA Conference 2020Virtual learning isn't just for the kids!  October 1 - 21. 2020

REGISTRATION NOW OPEN

The National TACA Autism Conference - Virtual will include educational presentations on research, treatment options, therapies and more, accessible to you via video lecture portal. Presentations cover all aspects and levels of the autism journey including topics of diet and nutrition, therapies, beginner and advanced medical treatments, IEP, navigating adulthood, and much more.
What can you expect at this Virtual Conference


Safeminds Reports: New Technique Could Help Many Disorders Including Autism

Safeminds 2018 logoNew from Safeminds:

Scientists from the University of Sheffield and University College London have made a breakthrough in understanding the formation of the enteric nervous system (ENS) of the gastrointestinal (GI) system. Dysfunction of the ENS is linked to a wide range of conditions such as Parkinson’s, Hirschprung’s disease and autism. The scientists were able to generate enteric neurons in the lab using human pluripotent stem cells and successfully implant them into mice engineered to lack an ENS. The neurons took hold in the mouse GI tract and became functional. The findings pave the way for new regenerative treatments for GI diseases in humans.  Read more here.


Safeminds on AB-2004 from Axial Biotherapeutics

Microbiome7Note: Our Teresa Conrick has written about the microbiome and possible treatments that could help the autism community for several years. You can read her body of work here.  During this quarantine, seems we could all benefit if the drug indeed reduces irritability, anxiety and social withdrawal.  Stay well. Stay safe.

From Safeminds:

April 09, 2020 Axial Biotherapeutics Drug Passes Safety Test, May Reduce Irritability, Anxiety, Social Withdrawal

Results of a novel microbial-inspired drug study look promising at reducing the core symptoms of autism. Adolescents with the condition had lowered scores on irritability, anxiety and social withdrawal while on the medication. 

The drug, called AB-2004, works on the gut-brain axis. Communication between the bacteria in the gut and the brain impacts the way the brain develops and functions as well as behavior. The composition of the bacteria and other organisms of the autistic gut microbiome differs from those without the disorder.

AB-2004 removes harmful metabolites such as 4-EPS from the gastrointestinal (GI) tract that are generated from certain kinds of gut bacteria. These metabolites can create a leaky gut allowing harmful substances to enter the bloodstream and then the brain, affecting brain function. This could lead to symptoms of autism

In this just-completed early phase human clinical trial, Axial reports the study met the primary endpoints of safety and tolerability with no drug-related adverse events noted. Adherence to the three-times-per-day dosing regimen was greater than 90%. The drug can be administered by mouth. 

Significant reductions in plasma and urinary levels of several key microbial metabolites were observed, which indicate that AB-2004 is positively acting on the lining of the gastrointestinal tract. On the behavioral outcomes, Axial reported that –

  • Significant improvements in irritability scores based on the Aberrant Behavior Checklist were observed, particularly in subjects with more severe baseline scores.
  • Significant improvement in anxiety based on the Pediatric Anxiety Rating Scale were observed in subjects with more severe baseline scores.
  • Improvements in social withdrawal scores based on the Aberrant Behavior Checklist were observed, particularly in subjects with more severe baseline scores.

Twenty-six teenagers with autism were part of the study, which was an open-label design without a control group. Treatment lasted for 8 weeks. The study was conducted in Australia.

In an earlier study by Axial using an animal model of autism, AB-2004 “demonstrated the ability to repair leaky gut and improve repetitive behavior, anxiety, and ASD-related sensorimotor gating deficits by removing key microbial metabolites” in a mouse with autistic-like features.

Last year researchers at Arizona State University reported that Microbiota Transfer Therapy (MTT) using healthy, neurotypical donors led to long term improvements in autism-associated symptoms in children with the disorder. These researchers are now enrolling adults with autism for a clinical trial of MTT.   Read more at Safeminds here.


Autism Education Summit

Aes 2018
This Autism Education Summit is a conference for parents, professionals, and caregivers showcasing how implementing a holistic approach and treating the whole individual can ease the medical conditions and behavioral symptoms common in children, adolescents, and young adults with autism spectrum disorders (ASD). 

This Autism Education Summit (AES) is a conference bringing together over 700 parents, medical professionals, and educators, showcasing how implementing a holistic approach and treating autism as whole body disorder can ease the medical conditions and behavioral symptoms common in children, adolescents, and young adults with autism. 

Come, join our community, learn from some the best experts in functional medicine, and imbibe on hope. 

We'll see you in Dallas! 

 


25 Health Experts Reveal How Simple Changes in Nutrition are Dramatically Improving the Lives of people with Autism, ADHD, and Related Disorders

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Science continues to lead us to the GUT as a first line of defense for treating the behaviors and symptoms of autism. Our Teresa Conrick has written extensively on the Microbiome and its impact on "mental health." You can find her articles here. We're pleased to share this announcement for a nutrition based online seminar from Julie Matthews. 

Let's face it - most of us live like shuts-ins much of the time. We're home with our kids or taking them to therapies and schools.  Getting to conferences is often impossible.  With this seminar, you can pop in earbuds and learn while you go about your day.  Thanks t0 Julie for inviting us to share the info!

Experts teaching you will include Dr. Martha Herbert from Harvard, Chef Pete Evans, and Dr. David Berger.

Learn more and register here.  
 
Host: Julie Matthews, CNC

Certified Nutrition Consultant and Educator

Julie Matthews is a leading expert, since 2002 on the science and application of therapeutic diets and nutrition for autism. Her award winning book, Nourishing Hope for Autism, help parents and practitioners make food and nutrition choices that improve symptoms. She founded Nourishing Hope and BioIndividual Nutrition Institute to further the practice of customized therapeutic diet and nutrition.

Julie has curated the leading researchers, medical doctors, and nutrition professionals to present the science, clinical results, and steps that can be taken right away. They will reveal the scientific connections between what children eat and varied symptoms of autism. You'll discover which body systems are routinely affected in autism and what the science says about using food and nutrition to help. Find out which foods negatively affect learning, behavior and mood, along with which approaches can help. Learn how and why you must individualize based on your child’s unique needs. Read Julie's bio here

10 Day Autism & Sensory Processing Disorder Online Summit

Autism Summit June 2018A unique online event for parents that will help you identify opportunities to help your child.  June 11 - 20.

Having a child with Autism, ADHD or Sensory Processing Disorder is challenging. Figuring out what to do to help them is just as challenging. Join us for 10 days of eye-opening information into the root causes of your child’s neurological dysfunction. Imagine learning about what may have caused their symptoms and how to address them with nutrition, biomedical and leverage the power of positive neuroplasticity to improve function, health, and their lives.

Autism & Sensory Processing Disorder Summit


Team GR's Dr. Jared Skowron On A Simple Autism Treatment - Magnificent Magnesium

GR deserve treatment profile squareNOTE We suggest you bookmark the Generation Rescue blog as a great resource.

Team GR:
Magnesium is a essential mineral we keep in our supplement cabinet. How critical is it for individuals with autism? We brought in one of our supplement experts, Jared Skowron, ND, to help us crack down the importance of taking magnesium!

Magnesium — Don’t Forget About Me!

Written by Dr. Jared Skowron

Sometimes, we forget about the old things; the classics, the foundations, like magnesium. We get excited about new things in the hopes of finding the magic bullet. Sometimes when we get wrapped up in all things new, we lose sight of pillars of importance. We must remember the foundations of health and illness: Genetics, Nutrition, Toxicity.

Where to Begin

Where do we start our journey? In the past or in the present? Looking into the future? Do we first reflect on our health and life today, or reach back into our old photo albums of sepia stained square polaroids? I think today, I’m in the mood to rewind the clock 80 years….

I found an article from Berkeley Medical School published around 1937. This was an animal study analyzing symptoms of magnesium deficiency in the diet, especially related to calcium levels and Vitamin B2 levels (which they used to call Vitamin G back in the day). What interests me is the understanding of nutrition at that time. Here’s a couple quotes:

“A fixed value cannot be given for the minimum requirement of a given element. The amount required will be found to vary with varying conditions of life,…and also in relation to the intake of other components of the diet.”

“A high content of calcium in the diet increases the severity of magnesium deficiency and raises the amount necessary to meet the minimal magnesium requirements.”

Even back then, insights were given to individuality. I listen to so many parents who want to know the perfect dose, the exact number, and frankly it depends on your child. The need varies based on the individual’s health and genetics. While 100mg is right for some, 400mg is right for others. We must follow the response to a therapy individually.  Read more here.


Autism, Learn To Live With It.

White-flagNOTE: Seems like since Mrs. Wright's death last year, Autism Speaks has changed its mission from "It's time to listen," to "It's time to give up." What a sin. Let's live with autism. Cancer. Alzheimers. Diabetes. MD. Raise money and live with it. Disgusting in the extreme.

By Ginger Taylor, MS

Just saw a new Autism Speaks commercial. The message...

"Learn to live with it."

I kid you not. 

(Let's just skip past the horrid imagery of a child with autism on a boat in the water with no supervision for the sake of time and trauma.)

For the few people who don't see a problem with this or understand why so many of us are so angry, please contrast compare two possible positions here.  The first has been espoused by our community for more than a decade, the second is espoused by Autism Speaks.

1. Autism is preventable and medically treatable.

2. Autism, learn to live with it.

The first is accurate and appropriate, as there are medical treatments for people diagnosed with autism that will alleviate the symptoms of autism (some of which are life threatening...  re: children in a boat in the water with no supervision). This will make their lives better without them having to spend hours and weeks and years combating a terribly debilitating condition. If there is medical treatment available for a debilitating condition, is ethical to tell people that there is medical treatment available for their debilitating condition.

Continue reading "Autism, Learn To Live With It." »


Autism Research Institute Presents Research Updates: Immunological Issues in ASD - Gestational Influences, with Dr. Judy Van de Water

ARI 50Autism Research Institute is presenting a Webinar tomorrow, 4/12 titled:  Immunological Issues in ASD - Gestational Influences. Register here. From ARI:

Join Judy Van de Water, PhD to learn about gestational influences on neurodevelopment.

Dr. Van de Water joined the faculty in the Department of Internal Medicine at the University of California, Davis in 1999. In 2000, she also joined the faculty of the newly formed UC Davis M.I.N.D. Institute when she began her research on the immunobiology of autism. Dr. Van de Water’s laboratory pursues research programs pertaining to autoimmune and clinical immune-based disorders including the biological aspects of autism spectrum disorders. The application of Dr. Van de Water’s immunopathology background has been instrumental in the dissection of the immune anomalies noted in some individuals with autism, and in the differentiation of various autism behavioral phenotypes at a biological level. Most notable of these is the investigation of the maternal immune system as it relates to autism spectrum disorders, with particular emphasis on the presence of highly specific maternal autoantibodies to fetal brain proteins.

Continue reading "Autism Research Institute Presents Research Updates: Immunological Issues in ASD - Gestational Influences, with Dr. Judy Van de Water" »


Generation Rescue Personifies ACTION with Rescue Grant Medical AutismTreatment

GR Rescue Grant
Our friends at Generation Rescue are changing the lives of individuals with autism every single day. And that means changing life for entire families, for the better.  I especially love that the grants are not limited to youngsters. Many of us have older kids, my oldest is 22. And they can still benefit greatly from treatment. Thank you to Jenny McCarthy and the entire GR team. XOX

Rescue Family Grants provide autism treatment to families in financial need. The grant provides financial support, products and services for auditory listening therapy, dietary intervention training, dietary supplements, two doctor visits, and lab testing. To date, more than 700 individuals have participated in the program and report a better quality of life and improvement in speech, language, behavior, health and wellness, and social interaction. The grant is available to individuals of all ages who meet the eligibility criteria below. 

To see if you qualify for a Rescue Grant, which provides medical treatment for autism, click here.

 


Blood Test that Predicts Autism has Implications for Treatment and Prevention.

TACA actionNOTE: We excerpted this article by Lisa Ackerman of TACA. Please visit and bookmark TACA as a top resource for your loved one with autism's well being, growth, safety and success.

A recent study demonstrated that a blood test might be able to differentiate children with autism spectrum disorder (ASD) from typically developing children.1 The study examined one carbon metabolism and its related pathways. These pathways are of the upmost importance in ASD and are essential for many critical processes in the cells of the body, including methylation which regulates turning genes on and off, producing the precursors to genetic material and producing the major antioxidant in the body known as glutathione.2

This news is not really new, however the dataset’s potential predictive ability is intriguing. Over a decade ago, Dr. Jill James, demonstrated that children with ASD have abnormal one carbon metabolism and suggested that these metabolic markers define an endophenotype (subgroup) of children with ASD.3  Furthermore, Dr. James demonstrated that several common variations in genes which provide the instructions for cellular proteins and enzymes result in an increase in the risk of developing ASD with these variations interacting in complex ways.3  This suggests several “kinks” in these metabolic pathways may add up to predispose a child to develop ASD.

Continue reading "Blood Test that Predicts Autism has Implications for Treatment and Prevention." »


Register for The Autism Education Summit for just $49!

We're excited to share this offer from our friends at Generation Rescue!

Registration (for all three days) for the Autism Education Summit is just $49 until Sunday! 

PLUS, when you register this weekend, you’ll also be entered to win a complete set of the BIORAY Kids line of natural detox products. 

Just use promo code: AGEOFAUTISM at autismeducationsummit.com


Therapy House LLC Clinical Trial Enrolling Participants in Pittsburgh for IonCleanse

IonCleanseMany our of friends are using the IonCleanse system from A Major Difference.  If you are near Pittsburgh, PA, and have a child age 3 - 7, you can enroll the child in a clinical trial.

CLINICAL PROTOCOL  # SAIRB-16-0010
Measuring the effects of the IonCleanse® by AMD on children with autism spectrum disorders
Sponsored by A Major Difference, Inc.

1.    Study Synopsis
A Major Difference, Inc. (“AMD”)1 in partnership the Therapy House, LLC,2 have created an investigational study looking into the efficacy of using the IonCleanse® by AMD total body detoxification system for children with Autism Spectrum Disorders (“ASD”).  The study is a prospective study that will be using a currently marketed product in treatment of symptoms of ASD in children.   There will be no costs incurred by participants in the trial.  
This study is planned and budgeted for 60 days and 30 children. Children who meet the inclusion criteria will be randomly selected either to receive the therapy (described next) or to be entered into the control group and receive no therapy. The group will be split evenly. For those receiving therapy, they will use the IonCleanse system for the recommended time and frequencies (based primarily on age). All participants will be evaluated pre and post by professional occupational therapists who will utilize the Battelle Developmental Inventory, Second Edition3 and the Sensory Profile 24 as the measure for gauging effectiveness. Complete details are in IonCleanse Clinical Trial Information File.


Arizona State U Autism Treatment Effectiveness Survey

ASU logoAutism Treatment Effectiveness Survey

You are invited to evaluate the effectiveness of treatments for autism. Those include medications, nutritional supplements, diets, therapies, and education.

Our goal is to learn which treatments are most effective.   Survey results will be posted on our website. The information can then be used by families and clinicians to help those with autism.

For more information, go to http://autism.asu.edu

Thank you for your consideration!

Sincerely,

Prof. James B. Adams, Ph.D.

Director, ASU Autism/Asperger’s Research Program


Autism Research Institute Presents Webinar of Medical Problems in Children With Autism

ARI logo FebWednesday, July 29th, 1:00 - 2:00pm EDT:

Medical Issues in Autism

Part 1 of a two-part series: Dr. Mumper provides an evidence-based overview of medical problems often found in children with autism, so that parents and clinicians can collaborate on assessments and treatment strategies.

Learn more here.

REGISTER HERE
 
Dr. Mumper received her M.D. from the Medical College of Virginia and is board-certified in pediatrics. Prior to joining ARI as Medical Director for five years, she held a clinical faculty appointment at the University of Virginia for sixteen years. In 2000, Dr. Mumper founded Advocates for Children, her general pediatrics practice. Advocates for Families is designed to care for children with autism. In 2007 Dr. Mumper founded The Rimland Center in Virginia, to mentor clinicians and conduct clinical research.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Autism Education Summit: Dallas, Texas Offers Two Medical Tracks for Parents

Banner-H

There's still time to plan your trip to Dallas, Texas for the inaugural Autism Education Summit.  There are two medical tracks; one for parents who are new to treatment, the other for parents with experience under their belts.

 Join friends old and new at The beautiful Fairmount hotel in the heart of downtown Dallas  - share your experience and take home medical expertise for your loved one on the spectrum.

Registration is only $79 and includes:

Access To All Summit Lectures

Complimentary Coffee and Tea Throughout the Event

Gift Bag with Products, Conference Program Guide and Vendor Coupons

Admission to the Friday Night Welcome Party and the Saturday Night Spectacular Event! Includes one alcoholic drink per event.

Regular Registration - July 1 - October 16, 2014 $79 for one person, $139 for two people

Onsite Registration - This rate begins on October 17, 2014. $99 for one person, $199 for two people

The Summit is created by parents (that's the "experience") and physicians you've known and trusted for years (that's the medical expertise.)    You'll recognize the companies who are helping to bring you this event too.

Sponsors AES

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.




Win Enhansa Curcumin Supplement from Lee Silsby

Enhansa


Congrats to Michael Bailey, Brooke Gorham, Real Tanner's Dad and Andrea Keller.

Contest is closed. Thank you.


###

Our generous sponsor Lee Silsby is offering four free bottles of Enhansa to AofA readers.  Choose from 150 mg 150 cap bottle or Enhansa REPAIR anti-inflammatory support, 60 cap bottle.

Enhansa is a proprietary blend of curcuminoids derived from the rhizomes of Curcuma longa (Curcumin). It is the specific ratio of curcuminoids, along with the specialized method of extraction, which allows for the unique benefits of Enhansa as compared to other Curcumin products.

Some of the positive results have been mentioned in a recent 20-patient study on Enhansa and concurred by hundreds of practitioners that prescribe it on a daily basis to their patients. Take a look at some testimonials here.

Enhansa has been tested to be very low in oxalates and phenols. Each batch of Enhansa is tested for heavy metal content. The results of the testing show that most heavy metals are below the detectable limit, and those that are detectable exist at extremely low concentrations.

 A large and growing body of research has been dedicated to the study of plant polyphenols and their anti-inflammatory properties. The findings have been very promising so far. As a result of this, Lee Silsby Compounding Pharmacy has developed Enhansa-Repair™, a proprietary blend of specialized extracts that aims to harness the significant potential of plant polyphenols to alter the inflammatory response.* Each ingredient used in Enhansa-Repair™ was chosen based on the following criteria:

A large body of research on the anti-inflammatory effects of the plant
A long history of medicinal use in humans, with low side-effect profile
The extraction process must yield an extract with high potency, absorption, purity, and standardization


Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

Meet Top Autism Treatment Docs At the Autism Education Summit In Dallas

Banner-H

We're blessed in the autism biomedical community to have a range of choices in conferences. Old friends gather in the Windy City each Spring, on the sunny West Coast of Florida each November and now, in Dallas, Texas beginning this October with the inaugural Autism Education Summit.  You'll see plenty of familiar faces and meet new friends and providers dedicated to helping every person on the spectrum achieve the best health and functioning.

Here's the schedule.  Here is the current list of speakers including AofA's Mark Blaxill (stay tuned for more.)

Register with a friend or partner to save. (See registration rates below) Better yet - take advantage of the special group rate savings for TEN attendees who register together. This rate is for any group of ten and includes special bonus recognition at the conference. What a great way to acknowledge a local organization, school program, town support group or even a local treatment center in your area! Email info@autismeducationsummit for more info about creating your own group.

Join the Age of Autism team at The beautiful Fairmount hotel in the heart of downtown Dallas - meet old friends, make new friends - share your experience and take home medical expertise for your loved one on the spectrum.

Registration includes:

Access To All Summit Lectures

Complimentary Coffee and Tea Throughout the Event

Gift Bag with Products, Conference Program Guide and Vendor Coupons

Continue reading "Meet Top Autism Treatment Docs At the Autism Education Summit In Dallas" »


Announcing The Autism Education Summit: Where Experience Meets Medical Expertise

Banner-H

We're blessed in the autism biomedical community to have a range of choices in conferences. Old friends gather in the Windy City each Spring, on the sunny West Coast of Florida each November and now, in Dallas, Texas beginning this October with the inaugural Autism Education Summit.

Register with a friend or partner to save. (See registration rates below) Better yet - take advantage of the special group rate savings for TEN attendees who register together. This rate is for any group of ten and includes special bonus recognition at the conference. What a great way to acknowledge a local organization, school program, town support group or even a local treatment center in your area! Email info@autismeducationsummit for more info about creating your own group.

Join the Age of Autism team at The beautiful Fairmount hotel in the heart of downtown Dallas - meet old friends, make new friends - share your experience and take home medical expertise for your loved one on the spectrum.

Registration includes:

Access To All Summit Lectures

Complimentary Coffee and Tea Throughout the Event

Gift Bag with Products, Conference Program Guide and Vendor Coupons

Continue reading "Announcing The Autism Education Summit: Where Experience Meets Medical Expertise" »


Assurance of Things Hoped for, Evidence of Things Not Seen

Sword in the stone
By Brooke Potthast

It has been almost one year since our son James had the opportunity to use the RPM method of communication with Soma Mukhopadhyay.  James is verbal but not conversational, and his speech is best described as being very “unreliable” as well as hard to understand. James has gone from almost no real communication to total communication in 6 months.

Needless to say it has changed everything for him and for us. I tell people it is bigger than marriage, childbirth or winning the lottery. It seems as though every day we learn something really big about James and his heart and mind.

When I first realized that a lot of what we thought about James was wrong, I called Dan Olmsted. Over coffee I told him, “I think mercury toxicity creates silent geniuses.” I’ve always been certain that thimerosal and my dental amalgams caused James’ regressive autism and I am now fairly certain that a huge percentage of children or young adults with autism are not intellectually disabled, not even learning disabled, but so severely sensory-motor disabled they can’t show us.

We thought James, who is 14, was around 2nd grade in his academic understanding and that was spotty. When we decided to homeschool and let him use the letter board fo spelling answers, he was able to do 9th grade work in just a few months. We thought he couldn’t add and he easily does algebra and recently asked to learn about cube roots.  I am not writing this out of pride for our son. I am telling you this because I don’t think he is the exception, I think he is the rule. In the last year I have seen this over and over again in teens and children who are in life skills classes and who educators and doctors have said are cognitively disabled. When given the opportunity to use RPM or something like it they show us that they have not just been taking it all in, but assimilating it in a typical and functional manner. One day early on our homeschool teachers gave James a vocabulary test. They gave the word “gullible” he spelled “easily fooled." Those examples are endless.

But the most remarkable thing we have learned about James and what I wanted to share in this piece is that despite having suffered in ways unimaginable he (and I think so many of his peers) has great hope for the world and for forgiveness and understanding. It is hard to even put into words what life would be like trapped in your body. Thinking and understanding just like everyone else but not being able to join in a conversation, tell a joke, verbally express love or anger or sadness. To not have friends, have education be limited; the list is long and painful.

But here is a “legend” written by James this week. When I read it my first thought was to put it on Age of Autism because I thought it summarized so much of what this community experiences and it gives us some hope. James said in another conversation that he remains hopeful and I’d like to think we all can. The background is that he is doing Medieval literature in school right now and they have read Beowulf, Sword in the Stone, etc. After discussing (on the letter board) the Sword in the Stone he was given this assignment: (his writing is in Caps)

Why was it so hard for people to believe that Arthur pulled the sword from the stone?

BECAUSE PEOPLE CANNOT BELIEVE THINGS THAT THEY DONT UNDERSTAND.

Continue reading "Assurance of Things Hoped for, Evidence of Things Not Seen" »


Autism Research Institute Live Webinar Ask The Clinician with Dr. Nancy O'Hara

ARI logo FebWednesday 10/23, 2:00pm  Eastern.

Ask the Clinician - with Nancy O'Hara, MD Register HERE.

Please note: Because this is live Q&A and not a presentation in lecture format, certificates of participation will not be offered for this event.

Have questions you'd like to ask a physician? Struggling to navigate evidence-based treatment for yourself or your loved one on the autism spectrum? Here's your chance to pose questions for free in real time.

Dr. Nancy O'Hara is a board certified Pediatrician. Until January 2010, she was the Assistant Medical Director for Defeat Autism Now!® Physican Training and the Physican Mentoring Director for Defeat Autism Now!® in Europe. Prior to her medical career, Dr. O'Hara taught children with autism. She graduated with highest honors from Bryn Mawr College and as a member of the Alpha Omega Alpha Honor Society from the University of Pennsylvania School Of Medicine. She earned a Master's degree in Public Health from the University of Pittsburgh. After residency, chief residency and general pediatric fellowship at the University of Pittsburgh, Dr. O' Hara was in private practice for 7 years. Dr. O'Hara has worked with Dr. Sidney Baker and other practitioners in the research and care of children with Autistic Spectrum Disorder for many years. Since 1999 she has dedicated her practice to the integrative and holistic care of children with neurodevelopmental disorders and Autistic Spectrum Disorder.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

Contest: Taste-Free Enhansa Curcumin Supplement from Lee Silsby

Enhansa_tf_header_image1
We have three bottles of new "Taste-free" Enhansa to give to three lucky readers. Leave a comment and include your email address in the email line so we can contact you if you win. Thank you to Lee Silsby for always seeking new ways to ensure nutrional support for our families.

The same original Enhansa in a water-dispersible powder form that is nearly taste-free.

Enhansa Taste-Free also has less scent, is less staining and easier to mix than the original formula.

Enhansa is a proprietary blend of curcuminoids derived from the rhizomes of Curcuma longa (Curcumin). It is the specific ratio of curcuminoids, along with the specialized method of extraction, which allows for the unique benefits of Enhansa as compared to other Curcumin products.

Some of the positive results have been mentioned in a recent 20-patient study on Enhansa and concurred by hundreds of practitioners that prescribe it on a daily basis to their patients. Take a look at some testimonials here.

Enhansa has been tested to be very low in oxalates and phenols. Each batch of Enhansa is tested for heavy metal content. The results of the testing show that most heavy metals are below the detectable limit, and those that are detectable exist at extremely low concentrations.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

CEASE Therapy Overview – How it Helps Children with Autism

CEASEBy Sima Ash, CHom, CEASE Certified Practitioner, C.N.C.

CEASE therapy was developed by Dutch physician Tinus Smits who was looking for a way to help children with autism. CEASE stands for Complete Elimination Autism Spectrum Expression and Dr. Smits helped well over 300 children with Autism prior to his death in 2010. While his method was originally designed for children with autism, Dr. Smits and those that he trained have experienced success treating a number of conditions including MS, Chronic Fatigue, allergies, ear infections, hyperactivity, and detoxificat

CEASE utilizes several holistic elements to form a systematic approach that helps people detox from physical and energetic blockages while bringing balance to the mind and body.  The elements used in CEASE are:

Homeopathy – the use of remedies in different potencies.  The remedies are produced by dilution and succession and are labeled according to their potency.  Dr. Samuel Hahnemann, the founder of homeopathy noted that if a certain potency had an impact, but had not yet finished healing the problem, often times a higher potency was needed to continue the healing process. 

Isotherapy – the use of pathogenic substances that have been prepared in homeopathic potencies.  For instance if a particular medication such as Prednisone is suspected to play a part in an illness, the homeopathic version of Prednisone will be used to help the body rid itself of the physical and energetic imprints that it has left on the body. 

Continue reading "CEASE Therapy Overview – How it Helps Children with Autism" »


STX209 Families Send Open Letter To Roche About Drug Trial

Roche

We recently reported on a drug trial that had been discontinued do to lack of funding when Roche Pharmaceuticals terminated its agreement with Seaside Therapeutics.  The STX209 families who were in the trial published an open letter to the CEO of Roche and received a response via Twitter.   The trial was for a drug known as STX209/Arbaclofen. The study was to include both Fragile X Syndrome and autism.  We realize that Fragile X is a very different diagnosis from autism in that it is testable and confirmable. There is some overlap in presentation and there were autism families in the study. While we tend to be leery of pharmaceutical options, for those families for whom this drug was improving their children's lives in the short term - we hope they find a way to continue the study.

Here is an excerpt of the letter:

An Open Letter Regarding STX209 to Dr. Severin Schwan, Roche Pharmaceuticals


Dr. Severin Schwan
Chief Executive Officer
Roche Pharmaceuticals
F. Hoffmann-La Roche AG
Konzern-Hauptsitz
Grenzacherstrasse 124
CH-4070 Basel
Schweiz

June 10, 2013

Dear Dr. Schwan:

Behind every drug Roche Pharmaceuticals makes are the personal stories of patients and their families. You must hear these stories everyday, and we cannot imagine the pressures you face determining where to put your resources and whose lives – whose children’s lives – you will try to save. We understand you cannot support every drug and every trial, but you are a father, so surely you will understand our desperation and need to reach out to you directly to help our children. Like most parents, we are certain you would go to any lengths – contact any person – if your children needed help; so you’ll understand why we are writing you this letter.

Recently, Roche Pharmaceuticals was involved with a Cambridge, Massachusetts-based pharmaceutical company called Seaside Therapeutics, Inc., which has been developing a drug called STX209 (Arbaclofen).  This compound has been in Phase III trials for children with fragile X syndrome.

When Roche pulled back on its R&D, it ended its involvement and financial support for STX209. We understand there have been issues with the therapy’s trial results, but it had statistically relevant improvements to secondary outcome measures. Luca Santarelli, head of neuroscience research at Roche has been quoted as saying “We concluded that arbaclofen wasn’t going to provide that real difference for patients.” Dr. Schwan, we respectfully disagree, the improvements we have seen in our children have changed the lives of our families.

Continue reading "STX209 Families Send Open Letter To Roche About Drug Trial" »


Roche Backs Out on Seaside Therapeutics Drug Trial for Fragile X. Parents Dismayed.

Roche-seasideManaging Editor's Note: The drug in question called arbaclofen, was in clinical trials for both Fragile X and autism. To learn more and to read about family stories, please visit stx209.com and read A Plea for Help: Fragile X Stories.

By Melissa Welin

Most pharmaceuticals represent years of research, millions of dollars of investment, and the tacit promise made by the government that what is in the bottle is safe and effective.

Most pharmaceuticals also represent the personal stories of patients and their families; stories that are often filled with suffering, struggle, but most importantly hope.

Of course, we understand the responsibility of the FDA to protect the public.

Of course, we understand that pharmaceutical companies are responsible to shareholders and have a complex formula to determine how they allocate resources. 

But sometimes, amidst shareholder meetings, bottom lines and risk aversion, our personal stories are lost.  Sometimes, we have to remind those who control access to promising treatments that there are lives at stake… that balanced against their ledger is our precious, fragile hope. 

Recently, Roche Pharmaceuticals was involved with a Cambridge, Massachusetts-based company called Seaside Therapeutics, Inc., which has been developing a drug called STX209 (arbaclofen).  This compound has been in Phase III trials for children with fragile X syndrome (the most common known single gene cause of autism) and Phase II trials for children with ASD (which has had positive results). 

When Roche pulled back on R&D investment, it ended its involvement and financial support for STX209.  Without Roche’s backing, Seaside Therapeutics was forced to issue the following statement on May 15, 2013 to the clinics involved in the administration of arbaclofen:

We regret to inform you that Study 209FX303 [An Open-Label Extension Study to Evaluate the Safety, Tolerability, and Pharmacokinetics of STX209 (Arbaclofen) in Subjects with Fragile X Syndrome] is being terminated immediately.  The closure of the study is due to resource limitations at Seaside Therapeutics, Inc., and is not related to any known safety issues in patients dosed with STX209.

As of June 7, 2013, Phase III trial participants will no longer have access to STX209.  The abrupt end of the study will leave our children in danger of significant regression. 

For many of us in the study, arbaclofen has been that miracle for which we had hardly dared hope.  A child, who had never wanted to be touched, opened his arms for a hug.  For the first time, a five-year-old said, “Mommy”; a ten-year-old said, “I love you.”  Children were making friends, learning to read and write.  We started to believe in the possibility of a “normal” normal.

Continue reading "Roche Backs Out on Seaside Therapeutics Drug Trial for Fragile X. Parents Dismayed." »


Autism Action is Year Round: Generation Rescue Grant Success

Ao Holland
We've finally left April and its namby pamby feel good (not that we don't like feel good stories at AofA) blue lit "awareness" behind. It's fitting that May first was MAY DAY - the call of distress. Here's a story from Generation Rescue, our sponsor, and provider of the Rescue Family Grant. This grant program puts dollars into familes' hands and medical treatment.  And it is quietly changing lives for the better. Thank you to Jenny McCarthy, Candace MacDonald and the entire GR team.   You can meet Jenny and bask in the GenRescue Lounge at the Autism One Generation Rescue conference in Chicago later this month.  The cost is just $50 for a five day conference if you register by May 6.

Listen to what a Mom said about what the grant has done for her son:

Less than a month into starting biomedical treatment, the Generation Rescue grant recipients are making amazing progress!

"P's teachers were thrilled today when I came to pick him up from school. They said it was the best day he's had in a long time. P's expressive and receptive language is just taking off. He is able to express anything he wants. We're over the moon! Seeing these positive changes makes us so grateful for this opportunity."

-V, Mom to P

To find out more about the Generation Rescue Family Grant program and to apply to start treatment, please visit Gen Rescue.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


OurKidsASD Contest for Enhansa Curcumin or ASD Autism Spectrum Supplement

Enter to winOur friends at OurKidsASD have a contest for you. No Luck of the Irish Lee SIlsby needed, just leave a comment to enter and you can choose from one bottle of Enhansa Curcumin 150mg, 600mg or powder or ASD Vitamin and Mineral Powder any version.

OurKidsASD is the in-house brand from our sponsor Lee Silsby Compounding Pharmacy in Cleveland, Ohio. Lee Silsby is one of the largest and most respected compounding pharmacies in the country.

Our pharmacy offers a:

  • Class 100 certified clean room for preparing sterile products
  • Dedicated capsule room
  • Large compounding facility
  • Pharmacists always available to speak with practitioners and patients

We use only the finest quality chemicals and equipment to prepare our patients’ compounded medications and nutritional supplements. Customizing medication and nutritional supplements for our customers allows them to achieve their unique health goals.

Continue reading "OurKidsASD Contest for Enhansa Curcumin or ASD Autism Spectrum Supplement" »


Leucovorin Study for Autism

Lee SIlsbyManaging Editor's Note:  We are proud to share with you that  Lee Silsby Compounding Pharmacy in Cleveland, Ohio, is supplying the Leucovorin for this study below. Alan Israel, lead pharmacist, has been a leader in our community to ensure safe, effective biomedical treatments for our children. On a personal note, Lee Silsby was the first pharmacy I ever used for girls' back in 2001 and I've never forgotten their customer care and attention.  Thank you, Alan and the staff at LS.  KRS

A Folinic acid intervention for ASD

Dr. Richard Frye is conducting an exciting study on the impact of a daily treatment of folinic acid on ASD-related symptoms. The hypothesis is that an folinic acid will improve folate metabolism in the brain, oxidative stress and mitochondrial function in children with autism, resulting in specific health improvements for patients with autism, a discovery that would be very welcome by the autism community.

Lee Silsby Compounding Pharmacy has been selected as the sole supplier of Leucovorin (folinic acid) for the study. Alan Israel, R. Ph., the lead pharmacist at Lee Silsby, stated that the biomedical community can benefit greatly from more research and that he is willing to help out as much as possible. To his credit, Lee Silsby Compounding Pharmacy has agreed to provide folinic acid for both the double-blind placebo-controlled portion of the trial as well as the open-label portion of the trial at no cost to the patients in the trial.

Dr. Frye’s current proposal can potentially provide strong evidence for a folinic acid intervention and will provide insight into the subgroups of children with ASD who would benefit from folinic acid.  The primary goal is to improve language for those with ASD (which is measured by the receptive and expressive CELF language index). Preliminary studies have suggested that a folinic acid intervention is associated with receptive and expressive language improvements. For example, in a case-series of 44 children with ASD and the folate receptor alpha autoantibody, treatment with high-dose folinic acid (2 mg/kg/day divided twice a day; maximum dose 50mg / day) improved communication, attention, and stereotypical behavior in many children with ASD.

Folate is an essential B vitamin required for normal neurodevelopment.  Defects in folate metabolism can cause secondary physiological abnormalities, some of which have been associated with ASD.  In this study, Dr. Frye and his team aim to study several physiological mechanisms associated with folate abnormalities in children with ASD: the folate receptor alpha autoantibody that reduce folate transport across the blood-brain barrier, low glutathione redox status, mitochondrial dysfunction and genetic polymorphisms. Most importantly, ASD patients with these physiological mechanisms have shown improvement in ASD symptoms with a folinic acid intervention.

Continue reading "Leucovorin Study for Autism " »


The Worms Crawl In The Autism Crawls Out

Retro mom worms in fridgeAw come on, who hasn't sung that childhood tune? Seems even Mainstream Medicine is giving a serious look to a treatment posed at Autism One several years ago - and has a study to review the efficacy of parasite treatment for autism. Yes, creepy crawlies. 

Fox News has a report that Dr. Eric Hollander, at Albert Einstein College of Medicine is conducting a study using TSO, "whipworms" for autism.  Honestly, the report looks like we could have written it right here at Age of Autism. It's encouraging to see mainstream docs looking beyond psych medications as treatment. The article has a link to volunteer for the study.

“There’s some evidence with autism that some individuals may have had an activation of the maternal immune system – the inflammatory response is activated during pregnancy,” Hollander told FoxNews.com. “The TSO is a naturally-occurring drug delivering device that can dampen the inflammatory response and decrease pro-inflammatory cytokines, which is something that keeps the inflammatory process going. And, that’s associated with certain symptoms we see in the autism disorder.”

Hollander said his patient failed to respond to typical treatments like Risperdal or Abilify, which is marketed for severe disruptive behaviors. Incidentally, the teenage patient also has a history of allergies and food allergies – and his family has a history of autoimmune diseases.

The family noticed their son’s autism behavior improved when he was having an allergic reaction or fever, leading them to believe there was a problem with his immune response – so they got the idea to treat him with TSO, an immunotherapy biologic agent.

Read more: http://www.foxnews.com/health/2013/01/21/study-looks-at-worm-therapy-to-treat-autism/?test=latestnews#ixzz2Inmlgcjz


Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

Register For Fall Autism Research Institute Conference in Orange County

ARI sidebar logoThe Fall 2012 ARI Conference is set for October 11-14th at the Hyatt Regency Orange County near Disneyland in Garden Grove, CA. The Autism Research Institute has negotiated a block of special discounted room rates of just $119 per night. You must reserve your room by next Monday to take advantage of this special rate.

REGISTER HERE

Don't Miss Our Free Special Event with Ken Cook October 12th Hear Environmental Working Group President Ken Cook's 10 Americans presentation in person at the Hyatt Regency Orange County at 7:30 p.m. Friday, Oct. 12th.

Enter to Win an iPad and See "Stories in a Snapshot" at ARI's Networking Party Sat., Oct. 13th  

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

Age of Autism Contest: OurKidsASD Autism Supplements

Enter to win Congrats Trina and Carly, our winners. Contest is Closed.

Our good friends from Lee Silsby Compounding Pharmacy and OurKidsASD are offering you a chance to try two popular and useful products for back to school for free in this latest contest.

Trina and Carly won a bottle of Kensho Nutritional Support (powder) for the hyperactive child and a jar of  GabaMag cream with NO formaldehyde releasing preservatives. 

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Meet The Medical Academy of Pediatric Special Needs: MAPS

ListenMapping the way forward, with Dr. Dan Rossignol and Shannon Kenitz

On the VoiceAmerica Health & Wellness Channel
AutismOne: A Conversation of Hope<
Tuesday, August 7, 12 noon Eastern/9 am Pacific
Listen HERE

MAPS:  Mapping the way forward, with Dr. Dan Rossignol and Dan_rossignol Shannon Kenitz

The Medical Academy of Pediatric Special Needs (MAPS) has been developing an ASD Fellowship for physicians and other medical professionals. Under the guidance of Daniel Rossignol, MD, FAAFP, and David Berger, MD, FAAP, this evidence-based course of study has been uniquely designed by clinicians for clinicians. The MAPS Spectrum Standard of Care Conference is coming up September 27-29 in Orlando, FL, with CME units available.  Dr. Dan Rossignol, MAPS president and head of the Rossignol Medical Center, and Shannon Kenitz, executive director of the International Hyperbarics Association (IHA), join Teri to talk about MAPS and the road forward for kids on the autism spectrum.  Visit www.medmaps.org.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Win Dr. Martha Herbert's The Autism Revolution Whole Body Strategies for Making Life All It Can Be

Autism RevolutionWe have contests frequently at Age of Autism. But this one is special. Dr. Martha Herbert, MD, who is an assistant professor of neurology at Harvard Medical School and a pediatric neurologist at Massachusetts General Hospital has kindly given us a signed copy of her book The Autism Revolution Whole Body Strategies For Making Life all it Can Be. Please leave a comment to enter.

After years of treating patients and analyzing scientific data, prominent Harvard Medical School researcher and clinician Dr. Martha Herbert offers a revolutionary new view of autism. Autism is not hardwired into a child’s genes and destined to remain fixed forever, as parents are often told. Instead, Dr. Herbert approaches autism as a collection of challenges, many of which can be tackled in a deliberate and methodical way. Her recommendations aim to provide optimal nutrition, reduce toxic exposures, shore up the immune system, reduce stress, and open the door to learning and creativity—all by understanding and truly meeting your child’s needs.

Drawing from the newest research, technologies, and insights, as well as inspiring case studies of both children and adults, Dr. Herbert guides you through small changes that can create a substantial difference in your loved one with autism. A paradigm-changing book that offers hope and healing for the millions of people with autism in their lives, The Autism Revolution shows that there’s plenty you can do every day to reduce vulnerability, feel better and live life to its fullest.

Read the Table of Contents and Introduction.

Read Preventing and Dealing with Autism Problem Behaviors.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Free Two Day Event As Talk About Curing Autism Philadelphia Chapter Welcomes Dr. Richard Frye to Speak

Dr. Richard Frye**FREE EVENT** Save the date! TACA 160

Don’t miss this special two-day event where you can hear the latest on Autism research and treatments from one of the top ASD specialists in the country! Come with questions and hear Dr. Frye speak on…

Location:
Saint Alban’s Episcopal Church
3625 Chapel Road
Newtown Square, PA 19073Dr. Richard Frye is coming to TACA PA!!
www.tacanow.org

Friday, August 3, 2012, 7:00 - 9:00 PM

• Neurological Abnormalities in ASD

Children with autism have been found to have many neurological abnormalities. These include differences in brain function, structure and connectivity, neurotransmitter and metabolic abnormalities and electrical disturbances in the brain including seizures. This talk will review some of the important aspects of these neurological abnormalities and their treatments.

Saturday, August 4, 2012, 10:00 AM - 12:00 PM

One Talk Covering Two Common Issues

• Mitochondrial Disorders in Autism Mitochondria

There is strong evidence that many children with autism also have a mitochondrial disorder, which means that the mitochondria produce less fuel for the body and for the brain. This talk will discuss the challenges of how to test for mitochondrial disorders, as well as the current treatments available for them.

• Seizures in Autism

A New National Survey on Treatments: Approximately 25% of children and adults with autism have seizures, and another 50% have sub-clinical seizures that are often undetected but may affect their intellectual functioning. This presentation will briefly review seizure issues in autism, and then present the new results of a national survey of over 500 children and adults with seizures, with a comparison of the benefits and possible side effects of many medical, dietary, and nutritional treatments.

Dr. Richard Frye, M.D., Ph.D., who is the Director of Autism Research and Associate Professor of Pediatrics at The University of Arkansas for Medical Sciences, speaks across the country on pediatric neurological disorders. He specializes in pediatric neurology disorders including learning disabilities and dyslexia, autism and developmental delay, speech and language delay, attention deficit, tics and Tourette’s syndrome, sleep disorders, and epileptic encephalopathy. Dr. Frye is board certified in Pediatrics and in Neurology and completed fellowships in behavioral neurology and psychology.
Nationally Renowned Speaker from Autism One, ARI & more!

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.