Sponsor News

Winners: Enhansa Taste-Free Curcumin Supplement from Lee Silsby

Enhansa_tf_header_image1
Three winners of either the powder or capsule form of Enhansa Curcumin supplement from Lee Silsby are Lauren Harris, Joe P and Dave Kornbleth.  I'm sending you each an email so you can contact LS for your shipment. CONGRATS!

The same original Enhansa in a water-dispersible powder form that is nearly taste-free.

Enhansa Taste-Free also has less scent, is less staining and easier to mix than the original formula.

Continue reading "Winners: Enhansa Taste-Free Curcumin Supplement from Lee Silsby" »


Contest: Taste-Free Enhansa Curcumin Supplement from Lee Silsby

Enhansa_tf_header_image1
Three winners of either the powder or capsule form of Enhansa Curcumin supplement from Lee Silsby. Leave a comment to enter.

The same original Enhansa in a water-dispersible powder form that is nearly taste-free.

Enhansa Taste-Free also has less scent, is less staining and easier to mix than the original formula.

Enhansa is a proprietary blend of curcuminoids derived from the rhizomes of Curcuma longa (Curcumin). It is the specific ratio of curcuminoids, along with the specialized method of extraction, which allows for the unique benefits of Enhansa as compared to other Curcumin products.

Some of the positive results have been mentioned in a recent 20-patient study on Enhansa and concurred by hundreds of practitioners that prescribe it on a daily basis to their patients. Take a look at some testimonials here.

Enhansa has been tested to be very low in oxalates and phenols. Each batch of Enhansa is tested for heavy metal content. The results of the testing show that most heavy metals are below the detectable limit, and those that are detectable exist at extremely low concentrations.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

Hollywood Night! Taylor Hawkins Headlines Benefit Bash for Age of Autism, Generation rescue

Event playing

By Dan Olmsted

"We're the fun part," Taylor Hawkins said at Saturday Night's benefit concert in Hollywood for Age of Autism and Generation Rescue. "But we know why we're here."

And oh, the fun part! Hawkins and his two Chevy Metal bandmates threw down a seriously jambalistic 90-minute set of 70s-ish rock at the Sayers Club. (Taylor said in a local radio interview on Thursday it's the kind of stuff that would have appealed to a meth dealer in 1974. Actually it appeals to anyone with a rock bone in their body.)  Rolling Stone covered the showi n an article that ran yesterday.

Rolling stone taylor

Taylor is the drummer, a gig he also performs in a side group called the Foo Fighters. Actually, no! This is the side group, and the Foo are freaking world famous. But calling Chevy a side project or a cover band does nothing to capture the wild authentic energy at the heart of it all. The heart is Taylor's insane drum licks, which cause his long straight blond hair to mop his face in the manner of an Afghan hound shaking off a pesky fly.

For the encore, Taylor leapt from the drums to the main mike and wailed like a one-man Led Zeppelin. There was a whole lotta love.

And that was just on stage. People boogied In place and the Grey Goose flew, with bottles delivered with sparklers and some sort of internal illumination that made them look like lamps for library desks. But not.

Event GR Crew
The Generation Rescue Wonder Team
And wasn't that a Jonas brother over there taking it all in? "It very much is Nick Jonas," GR's exec director Candace McDonald, who knows all, and everyone, told me above the din. "It very much is." A drummer himself, he must have been truly gobsmacked.

All power to Candace, who pulled all this together with her GR staff after Taylor's sister in law, Tara, who has an affected child, got in touch with AOA about Taylor's offer to do an autism benefit if Tara handled the logistics.

AOA's Kim Stagliano pulled in GR, Sayers made a generous agreement with us, and the rest was a rockin' blast. Tara brought it all back home when she briefly told the crowd about the need to put "the CDC under pressure" to produce a vax-unvax study and end the autism nightmare.

Continue reading "Hollywood Night! Taylor Hawkins Headlines Benefit Bash for Age of Autism, Generation rescue" »


Natural News Endorses Life-protecting Platform of the Canary Party

Canary square(NaturalNews) Today is a milestone day for Natural News because it is the first time we are officially endorsing the platform of a political party. However, the Canary Party is really more of an activism group right now with the aim of influencing elections. You are not likely to actually see Canary Party candidates any time in the very near future (although you might a few years out).

What is the Canary Party? It's a group of moms, dads, concerned citizens and scientists who recognize the severe harm being caused to our world and our children by toxic heavy metals and synthetic chemicals found in vaccines, medicines, foods, personal care products and even products for the home. Their published mission statement is:

The Canary Party is a movement created to stand up for the victims of medical injury, environmental toxins and industrial foods by restoring balance to our free and civil society and empowering consumers to make health and nutrition decisions that promote wellness.

The Canary Party recognizes, as I do, that neither Republicans nor Democrats are ever going to deal with these issues. Both parties have been wholly compromised, bought off and hijacked by corporate interests. The democrats feign a belief in "environmentalism" but utterly fail to talk about GMOs, mercury in vaccines or toxic additives in everyday foods. Republicans, for their part, want virtually zero regulation on drug companies, food companies and chemical manufacturers, allowing them all to continue poisoning our world with no regulatory oversight whatsoever. Both of these parties fail to recognize how our world, our food and our children are being systematically poisoned by destructive corporations and failed regulatory policies.

Continue reading "Natural News Endorses Life-protecting Platform of the Canary Party" »


Age of Autism Generation Rescue Sayers Club Exclusive: Chevy Metal Benefit Concert

Chevy Metal TaylorCONGRATS TO CLARISSA! CONTEST IS CLOSED.

We'd like to thank  rock icon Taylor Hawkins of Foo Fighters and Chevy Metal (and a devoted uncle to a youngster with autism) for his generous offer to play  a benefit concert for Generation Rescue and Age of Autism.

This exclusive event is by invitation only at The Sayers Club in Hollywood.  Sponsorship opportunities are available. Contact Candace McDonald for details.

The event is Saturday, September 28.

The contest is for tickets only - you must provide transportation and/or accommodations.

Chevy Metal 9.28.13


Generation Rescue Family Grant Application Period Open

GR faceApply for the Rescue Family Grant

When a parent hears the words “your child has autism” everything changes. Generation Rescue is here for that change and the many more to come throughout their lifetime. Many individuals with autism suffer from treatable conditions like gut issues, sleep disorders and mitochondrial dysfunction which directly impact speech development, behavior and focus. Our grant program provides the opportunity to pursue treating these underlying symptoms of autism.

We understand that financial costs is often times the prohibitive reason from pursuing treatment, therefore, our grant program is available to individuals of ALL ages with an economic need.

Each grant recipient receives:
◾Two doctor visits with a medical physician specially trained in treating autism
◾A 90-day supply of vitamins, minerals and supplements
◾Comprehensive Stool Analysis Lab Test
◾Urine Porphyrins Lab Test
◾A Generation Rescue Parent Mentor
◾Dietary intervention Training
◾The Listening Program®
◾Ongoing discounts on supplements and programs provided by our partners after completion of grant program

AofA Science Summary: A Review of Traditional and Novel Treatments for Seizures in Autism Spectrum Disorder: Findings from a Systematic Review and Expert Panel

Science post imageWe would like to thank our friends at AutismOne for providing this paper to Age of Autism and supporting this type of scientific progress

A review of traditional and novel treatments for seizures in autism spectrum disorder: findings from a systematic review and expert panel

(Click HERE to download the pdf.)



Richard E. Frye1*, Daniel Rossignol2, Manuel F. Casanova3, Gregory L. Brown4, Victoria Martin4, Stephen Edelson5, Robert Coben6, Jeffrey Lewine7, John C. Slattery1, Chrystal Lau1, Paul Hardy8, S. Hossein Fatemi9, Timothy D. Folsom9, Derrick MacFabe10 and James B. Adams11
1Arkansas Children’s Hospital Research Institute, Little Rock, AR, USA
2Rossignol Medical Center, Irvine, CA, USA
3University of Louisville, Louisville, KY, USA
4Autism Recovery and Comprehensive Health Medical Center, Franklin, WI, USA
5Autism Research Institute, San Diego, CA, USA
6New York University Brain Research Laboratory, New York, NY, USA
7MIND Research Network, University of New Mexico, Albuquerque, NM, USA
8Hardy Healthcare Associates, Hingham, MA, USA
9University of Minnesota Medical School, Minneapolis, MN, USA
10University of Western Ontario, London, ON, Canada
11Arizona State University, Tempe, AZ, USA

Despite the fact that seizures are commonly associated with autism spectrum disorder (ASD), the effectiveness of treatments for seizures has not been well studied in individuals with ASD. This manuscript reviews both traditional and novel treatments for seizures associated with ASD. Studies were selected by systematically searching major electronic databases and by a panel of experts that treat ASD individuals. Only a few anti-epileptic drugs (AEDs) have undergone carefully controlled trials in ASD, but these trials examined outcomes other than seizures. Several lines of evidence point to valproate, lamotrigine, and levetiracetam as the most effective and tolerable AEDs for individuals with ASD. Limited evidence supports the use of traditional non-AED treatments, such as the ketogenic and modified Atkins diet, multiple subpial transections, immunomodulation, and neurofeedback treatments.

Although specific treatments may be more appropriate for specific genetic and metabolic syndromes associated with ASD and seizures, there are few studies which have documented the effectiveness of treatments for seizures for specific syndromes. Limited evidence supports l-carnitine, multivitamins, and N-acetyl-l-cysteine in mitochondrial disease and dysfunction, folinic acid in cerebral folate abnormalities and early treatment with vigabatrin in tuberous sclerosis complex.

Continue reading "AofA Science Summary: A Review of Traditional and Novel Treatments for Seizures in Autism Spectrum Disorder: Findings from a Systematic Review and Expert Panel" »


Tampa Fundraiser for Canary Kids Documentary on Pediatric Health Recovery

Canary Kids screen


You are cordially invited to ‘A Night Out... For Our Canaries’ to benefit the making of Canary Kids [A Film For Our Children] at Maestro's Restaurant, Straz Center in Tampa, FL.

About the Canary Kids Project

We are taking seven children with a diagnosis of autism, ADHD, asthma or other chronic illness and providing them with FREE healing and recovery services for 18 months. The children’s recovery journey will be documented on film and made into a feature-length movie. To view the trailer of Canary Kids, please click here.

Some of the many benefits of attending this amazing event include:

Guests will have the opportunity to learn about and support the making of a game-changing/paradigm-shifting documentary film, Canary Kids.

Continue reading "Tampa Fundraiser for Canary Kids Documentary on Pediatric Health Recovery" »


Canary Party Video Highlights US Vax Injury Compensation Program Failures

Canary final logoThe Canary Party Highlights the Failures Reported by Families of the U.S. Vaccine Injury Compensation Program to Perform its Intended Role
 
Why do 1 in 50 U.S. children have autism? Do vaccines cause autism? What is the VICP? How does the U.S. government really treat children injured by vaccines?

Those questions are answered in a compelling video from the Canary Party, a political group that stands up for victims of medical injury, environmental toxins and industrial foods. Though dozens of published studies show that vaccines are linked to autism, and tens of thousands of reports per year of post-vaccinal regression continue to roll in to the CDC, according to The Canary Party, the U.S. government and pharmaceutical companies routinely deny it – and prevent vaccine injury victims from receiving treatment and justice.

The new video is narrated by actor/comedian/activist Rob Schneider, a parent concerned about government intrusion into families’ healthcare choices for their children, and the increasing reports of vaccine-injured children. When the SNL alum was approached about the project, he was eager to sign on, saying, “This fight is like the Civil Rights fight. I only hope this is 1963... not 1953!” Schneider does not have a vaccine injured child, but was disturbed by what he learned about the vaccine program while looking in to vaccinating his own baby, “What upset me the most is the inequity in this system. Parents vaccinate their children after being told that it will keep their child healthy. Then when some suffer devastating disability instead, the system abandons them and sweeps the damage under the carpet. No one is accountable, these families are left devastated and it’s wrong."




The video illustrates The Canary Party's understanding of how the current autism epidemic is rooted in the 1986 National Childhood Vaccine Injury Act, which Congress passed to shield vaccine manufacturers from liability for injuries and deaths caused by vaccines. “Reports of adverse reactions to the diphtheria, tetanus, pertussis (DTP) vaccine had caused consumers to question its safety, and manufacturers lobbied for relief from potential lawsuits,” said Ginger Taylor, Vice President of The Canary Party. “With that financial obstacle removed, pharmaceutical companies then pushed government agencies to add more and more vaccines to the recommended childhood schedule.”

Continue reading "Canary Party Video Highlights US Vax Injury Compensation Program Failures" »


Science As Social Control

ObeyExcerpted from the SafeMinds website:

By Lyn Redwood

For years now I have been trying to understand why the huge focus and investment on genetics in autism research when to date the findings have been dismal. I also could not understand why promising research investigating environmental factors have been dismissed or worse yet, conducted in a manner to purposefully manipulate significant finding away from their connection to certain risk factors (like mercury or vaccines). Then I came across this article, Science as Social Control Political Paralysis and the Genetics Agenda, which explained perfectly what I instinctively knew, science is being used as a means of exonerating industry and/or government for culpability by blaming the individual for having the poor luck of bad genetics.

The author of the article reviews recent publication in the prestigious journal Science which investigated whether variations in individual “educational attainment” (essentially, whether students complete high school or college) could be attributed to inherited genetic differences. According to the research, fully 98% of all variation in educational attainment is accounted for by factors other than a person’s simple genetic makeup.  But nowhere in the title of the paper, the accompanying press release or in the summary was this important fact even mentioned!  The focus was on the identification of three gene variants that each contributed 0.02% to the variation in educational attainment.  And instead of calling for effective ways to help all children to reach their full potential, the 200 plus authors called for more genetic research to follow-up on these “promising candidate SNPs”.  Read the full post at the SafeMinds site.

Join Jacqueline & Chris Laurita at the National Autism Association VaConference

Nac banner

Summer has ended and it's time to launch into Fall (insert HUGE cheer here.)  That means it's time to start planning your vaconference with National Autism Association. If vaconference isn't a word, it should be, because that's what NAA has created for attendees.

Held each November at the family owned Trade Winds Resort in St. Pete Beach, Florida, the NAC is the perfect mix of beach vacation for you and your child(ren) and chock a block informative autism conference.   The cost is only $150 and scholarships are available.

Learn more and register HERE.


Join us in beautiful St. Pete Beach for this family-friendly event featuring the country's leading experts on Autism Spectrum Disorders.

NAC cabana chairs

TradeWinds Island Resorts are two resorts, just steps away from one another on the white sands of St. Pete Beach, overlooking the Gulf of Mexico. With 14 dining and entertainment options, 7 pools, full service salon and spa, activities center for the kids and more, TradeWinds is the perfect location for a relaxing and fun getaway.


In November of 2010, TradeWinds Island Resorts was designated an Autism Friendly business by the Center for Autism and Related Disabilities (C.A.R.D.). TradeWinds employees underwent C.A.R.D.’s training program, which taught employees how to better meet the needs of guests who have autism and their families. Employees who have been through the training are easily identified by the puzzle piece pin on their nametags.

At TradeWinds, you can rest assured that they will take all your needs into consideration so you can “just let go”.

During your visit you can request a “Safety Kit” available for your room, which includes a hanging door alarm, corner cushions for tables and outlet covers.

For those with special diets, they have gluten free offerings available in our dining outlets. As a special treat they also have our Snack Attack amenity available, which includes a TradeWinds lunch bag and gluten free snacks.

For children, the KONK (Kids Only No Kidding) has special sensory activities available as well as selected drop-off programs for kids. Please call KONK at 727-363-2294 in advance to speak with a counselor about your child’s needs and so they can staff appropriately.

Call 800-808-9834 today to speak to one of their friendly reservation agents about how they can best accommodate you and your family during your stay.

Review and print the TradeWinds Social Stories Book to fully anticipate the resort’s offerings before your visit.

Science Summary: Ischaemic heart disease, influenza and influenza vaccination: a prospective case control study

Science post imageFrom Heart and Education in Heart, An international peer-reviewed journal for health professionals and researchers in all areas of cardiology. Read the full study HERE.

Competing interests Professor CR Macintyre has received grant funds and/or support for investigator-driven research from GSK, CSL, Sanofi Pasteur, Merck and Pfizer. Dr Anita Heywood has received grant funds for investigator-driven research from GSK and Sanofi Pasteur. Dr Holly Seale has received grant funds for investigator-driven research from GSK, CSL and Sanofi Pasteur. The other authors have no conflicts of interest to declare.

Abstract

Background Abundant, indirect epidemiological evidence indicates that influenza contributes to all-cause mortality and cardiovascular hospitalisations with studies showing increases in acute myocardial infarction (AMI) and death during the influenza season.

Objective To investigate whether influenza is a significant and unrecognised underlying precipitant of AMI.

Design Case-control study.

Setting Tertiary referral hospital in Sydney, Australia, during 2008 to 2010.

Patients Cases were inpatients with AMI and controls were outpatients without AMI at a hospital in Sydney, Australia.

Main outcome measures Primary outcome was laboratory evidence of influenza. Secondary outcome was baseline self-reported acute respiratory tract infection.

Results Of 559 participants, 34/275 (12.4%) cases and 19/284 (6.7%) controls had influenza (OR 1.97, 95% CI 1.09 to 3.54); half were vaccinated. None were recognised as having influenza during their clinical encounter. After adjustment, influenza infection was no longer a significant predictor of recent AMI. However, influenza vaccination was significantly protective (OR 0.55, 95% CI 0.35 to 0.85), with a vaccine effectiveness of 45% (95% CI 15% to 65%).

Conclusions Recent influenza infection was an unrecognised comorbidity in almost 10% of hospital patients. Influenza did not predict AMI, but vaccination was significantly protective but underused. The potential population health impact of influenza vaccination, particularly in the age group 50–64 years, who are at risk for AMI but not targeted for vaccination, should be further explored. Our data should inform vaccination policy and cardiologists should be aware of missed opportunities to vaccinate individuals with ischaemic heart disease against influenza.

Autism Free Brain
Putting an End to Autism
by Fighting Brain Immunity Storms™

The science category is sponsored by AutismFreeBrain, Inc. was created to fund innovative research to develop a cure for Autism Spectrum Disorders (ASD). Our studies have identified inflammatory processes in the brain, we called Brain Immunity Storms, that are much like an allergic reaction, releasing surges of molecules that disrupt areas of the brain responsible for emotion and language.

National Autism Association Video for First Responders on Wandering

Big red box
Our friends at NAA are the community leaders in exposing the life and death problem of wandering and autism; and proactively educating families, providers and, in this video, first responders. Please share this video with your local first responders. You coud save a life.

http://www.youtube.com/watch?v=auJvlpWhb5E

If you have child who wanders - no matter what his or her age - contact NAA to learn about their BIG RED SAFETY BOX program. And if you can donate $35? You'll buy a box for a family who needs it.


Call on Your Congressperson to Support HR1757 Vaccine Study Safety Act

Start-your-enginesSAFE MINDS ACTION ALERT! – Support Passage of HR1757 on Capitol Hill

Date: 31 Jul 2013

By: Eric Uram

What is HR1757? – Also known as “The Vaccine Safety Study Act,” this bill, introduced by Rep. Bill Posey (R-FL) and Rep. Carolyn Maloney (D-NY), directs the National Institutes of Health to conduct a retrospective study of health outcomes, including autism, of vaccinated-versus-unvaccinated children, and to determine whether exposure to vaccines or vaccine components is associated with autism spectrum disorders, chronic illnesses, or other neurological conditions.

Currently before the US House Committee on Energy and Commerce, the bill, if implemented, “should bring an answer to this decades-long question,” Rep. Posey stated on the House floor.

Why is this important? Nearly all drug-safety and toxicological studies include investigations of exposed and unexposed populations in order to determine negative health outcomes and degrees of risk. Every 7th grader knows you cannot do a proper experiment without a rigorous control group that can be compared with the exposed group. Yet this most basic science has not been done when considering the totality of the US vaccination program, only with individual vaccines or combinations of certain vaccines. No study of vaccinated-vs.-unvaccinated children and autism has ever been attempted anywhere in the world. Without this basic data, no one can say with certainty whether or not the current vaccination schedule is associated with a greater risk of autism and other chronic health outcomes.

Why hasn’t this been done before? Everyone concerned about autism and vaccine safety should be asking this question. Some studies have looked at high thimerosal exposures versus lower and zero exposures, including one CDC analysis obtained by SafeMinds through the Freedom of Information Act. It showed risks of autism, ADD, sleep disorders and speech/language delay were consistently elevated in the more exposed group: Increased autism risk in one-month-old infants with the highest exposures ranged from 7.6 to 11.4 times higher than zero-exposure infants.

Another study published in January found that unvaccinated children (due to parental choice), had significantly lower emergency room and outpatient visits without any increase of in-patient visits.

Is it feasible? Yes. Dr. Julie Gerberding, former director of the CDC and now head of Merck’s vaccine division, said on CNN that, “this is the study that could and should be done.” It would be unethical to conduct a prospective study in which some children were vaccinated and others were given placebos, but that is not what this bill calls for. Several populations routinely exempt their children from immunizations for religious, medical or other beliefs. These individuals offer access to a control group for comparison with exposed children in retrospective research.

Continue reading "Call on Your Congressperson to Support HR1757 Vaccine Study Safety Act" »


Welcome To AutismFreeBrain.org

Afb_logo_col_new


Please join us in welcoming Autism Free Brain to the AofA family.

"AutismFreeBrainTM is a non-profit organization established to generate support and funding for research of specific molecular mechanisms contributing to focal brain inflammation leading to Autism Spectrum Disorder (ASD), and how it may be diagnosed, treated, prevented and reversed.

AustimFreeBrainTM was initiated and is maintained by doctors, scientists, and families with ASD children hoping to enable an in-depth scientific and clinical exploration of the inflammatory cause of ASD primarily based on the findings of Professor Theo Theoharides, MS, PhD, MD working in Boston, MA. He has published evidence of increased levels of unique neuroinflammatory markers in the blood of young children with ASD, and proceeded to develop a novel, patented, formulation containing a highly pure chamomile extract of the flavonoid Luteolin, formulated in olive kernel oil to maximize oral absorption.  Two clinical trials and numerous anecdotal reports indicate significant benefit in attention and sociability with reversal of gastrointestinal and allergic ASD symptoms in over 50% of children and verbal gains in about 20% in 4-6 months."


Thank You from SafeMinds to IACC Public Commenters

Thank you typeBy Lyn Redwood

I want to personally thank everyone who responded to the SafeMinds action alert to submit written public comments to the IACC regarding their child’s medical conditions this past month. And a huge thanks to Eileen Nicole Simon, Jill Rubio, Albert Enayati, Jeanna Reed, Nicholas, Carolyn, and Andrew Gammicchia, Brooke Potthast, Clinton Potocki on behalf of Dawn Loughborough, and Wendy Fournier who came in person to share directly with the committee their struggles to get appropriate medical care for their children and recommendations for what can be done to make things better. 

Historically, medical problems in children with autism have been completely denied by the medical establishment and the IACC committee. And, although the response from the committee after the panel discussion regarding co-morbidities was lackluster, the outcome at the very end of the day when discussion finally took place resulted in a unanimous vote by the committee to create a working group to focus on these conditions.

This was not the first time that the IACC has heard of co-morbidities. Parents have been meeting with Tom Insel and his staff as far back as 2002 telling him our stories of sick children and recovery with appropriate medical treatments. But just because we said autistic children had multiple underlying debilitating medical conditions didn’t make it so. Many impassioned discussions (like the one below pulled from IACC transcripts in 2009) couldn’t bring the committee around. The sad fact is that government moves at a snail’s pace, but passionate participants can speed up progress and make a positive difference for all those who can’t be there to speak for themselves.

Ms. Redwood: “For those of you who don't know me, I am one of the public members of IACC. And I just wanted to share with you a story about a little girl in Georgia who was 12 years old. She was being taken care of by her grandparents and they could no longer control her behaviors and she was admitted to a state psychiatric institute. And within a matter of months, she deteriorated. She became very ill. She writhed in her bed all night long. She vomited and by the morning she was dead. When an autopsy was done, this little girl was obstructed and she had infarcted her bowel. And that was never treated and never acknowledged. And I am sharing this story with you because I feel so strongly that these children have many, many underlying medical problems that are being completely overlooked because the focus has been on the brain and not the body. And I think it is an area where we can make so much difference. There is not any amount of behavioral therapy, or speech therapy, or assisted communication devices that is going to help with a child who is impacted and has infarcted their bowel. And we are missing so many opportunities to improve the health of these children. Oftentimes when we these underlying medical conditions are addressed and treated, their behaviors get better. Some kids have even lost their diagnosis. So we know they have immune system abnormalities. We know they have ulcerative colitis. They have metabolic stress. They have low levels of glutathione. They are under methylated. And there is so little focus on addressing those medical issues. We have protocols in place now for treating inflammatory bowel disease. But it is not anything that is even considered. And I know {another IACC member] mentioned yesterday that the pediatricians are so stressed, they don't have time to really look at these children medically and it is an area where we could make a tremendous amount of improvement and it is not anything that requires a genetic test or an MRI or anything except a good physical exam and some laboratory work. So I just want to put in a plug to please look at the children's bodies as well as their brains.”

After the comment above a developmental pediatrician on the IACC took “offense to this description of children with autism as being ill and sick” and I was actually accused by a Federal member of the IACC in a handwritten note passed to another committee member of “pushing autism as a multi-system disorder in order to feed into the vaccine injury awards”
See Dr. Story Landis Resigns from IACC.

Continue reading "Thank You from SafeMinds to IACC Public Commenters" »


National Autism Association Give a Voice iPad Grant Period OPEN

NAA Give VoiceOur friends at NAA have a new grant program called "Give A Voice."  If you can help fund hte program, please consider making a donation. If you need an iPad for your son or daughter, the application period is open. 

From NAA:

The intent of this program is to provide communication devices to individuals with autism who are non-verbal or minimally verbal, and whose communication challenges put them at increased risk of injury or harm.

We have very limited funding to begin this program and will provide communication devices to only fifty applicants during this initial round.  Every application will be carefully reviewed and all information submitted will be verified by NAA staff.   This program is intended for families who are in dire need of financial assistance and are otherwise unable to attain a communication device.

NAA’s Give A Voice Program will provide qualifying individuals with an assistive communication device including:

Grant applications must be postmarked by July 31, 2013.

For full program details and eligibility requirements, click here to download our Give A Voice Grant Application.


Funding is desperately needed for this program.
To make a tax-deductible donation, please click here.

 


Call to Action As Minnesota Vaccine Safety Advocates Fight Proposed Rule Changes

Canary Party Action AlertA call to action from our sponsor, The Canary Party:

By Patti Carroll

Several months ago, it was brought to the attention of vaccine safety groups in Minnesota that the Minnesota Department of Health (MDH) was proposing to add more shots to their recommended schedule, and lower the recommended age for other shots on the schedule.  Luckily, we have a really strong group of advocates here, and representatives from several groups came together to plan what to do. We knew we would have a battle on our hands, as attempts to fight changes a decade ago were unsuccessful.  In fact, MDH’s recommended changes to the vaccine schedule have never been successfully stopped.  But that would never stop us from trying.

The rule in Minnesota is that if at least 25 people write in to oppose the changes, then a hearing before an administrative law judge must occur.  If not, MDH can simply adopt the changes that they themselves have recommended.  So step one was to get at least 25 people to write in to the administrative law judge, opposing the rule changes.  We sent out an action alert, and about 100 people wrote in contesting the rule changes.  So a hearing was set up for June 27, 2013.

Next step for the team – what could we actually fight here?  The administrative law judge’s job was to determine:

1.    Did the MDH have the authority to make these changes?
2.    Did the MDH follow all the required procedures when making these proposals?
3.    Were the proposed changes necessary and reasonable?

Knowing they had the authority to make these recommendations (whether or not we believe this authority is justified in the first place), and knowing they had followed the necessary steps to propose the changes, we knew our strongest argument would be on whether these changes were needed and reasonable.  As we pored over the lengthy SONAR document (Statement Of Need And Reasonableness) put together by an advisory group appointed by MDH, it became clear that their arguments were shaky.  They made these proposals in order to bring Minnesota into alignment with the CDC recommended schedule, but of course the CDC schedule has never been proven to be safe, and has come under intense scrutiny recently by members of congress.  And there is no need to mandate some of these vaccines, since the number of people getting the diseases is actually DECLINING in Minnesota in the age ranges for which they are recommending the new requirements.

Which begs the question – why?  And why now?  As we all know, there are fights heating up in many other states to take away individuals’ rights to opt out of vaccines.  Minnesota Commissioner of Health Ed Ehlinger has publicly stated that he supports removing the rights of Minnesotans to choose when and how to vaccinate their children.  Perhaps these changes are simply a way to get more vaccines on the schedule before MDH then tries to remove our rights to refuse them.

So for the past several months, our little band of advocates worked tirelessly  to hone our arguments, get the press involved, reach out to medical professionals to submit testimony, fact-check the SONAR document, write and submit our own testimony, and contact parents to urge them to attend the hearing.  We had multiple meetings and conference calls, with representatives from several Minnesota groups attending when they could, including The Minnesota Natural Health Coalition, Vaccine Awareness Minnesota, DAMS (Dental Amalgam Mercury Syndrome), BEATMN (Biological & Educational Autism Treatments MN), The Minnesota Natural Health Legal Reform Project, The Canary Party and the  Vaccine Safety Council of Minnesota.  We were contacted by concerned individuals from all over the country.  Minnesotans I had not met before reached out to me through CP and VSCM, asking if we were involved and what they could do.  Two of them came and testified. 
We had two parents of children who were killed by vaccines (but were unable to travel here) submit powerful testimony that was read to the judge by members of our group.  And when I called my friend Karen Kain to ask if she would come and testify, she did not even hesitate. 


Karen Kain

We reached out to attorneys with the National Health Freedom Action group, asking if they could analyze the legal aspects of the proposed changes, and I was excited to find out a few days before the hearing that Ann Tenner would come and testify for us on behalf of that group. 


Ann Tenner

Friendly groups sent out our action alerts to their readership.  And several knowledgeable doctors sent in their comments.

The day of the hearing we had two people planning to testify for us that had to leave before they were given an opportunity to speak.  One of them had to rush home to take care of his severely vaccine-injured son with autism.  I was afraid we would be outnumbered and overwhelmed.  But surprisingly, there were more people testifying against the rule changes than for them.  And we had far stronger arguments.

Continue reading "Call to Action As Minnesota Vaccine Safety Advocates Fight Proposed Rule Changes" »


Celebrate July 4th and Support Autism Families

NAA Star



Designs by Ja9 is supporting The National Autism Association through the sale of these beautiful exclusive patriotic star pendants.  Order yours here for $30 and support our sponsor AND families facing the challenges of autism. NAA spends every dollar wisely and our families reap the benefit.

Shimmering silver puzzle pieces float above stripes of red, white and blue. It measures 1 ¼” overall and has a sliver plated hanging loop. Necklace is not included. Due to the rainbow-like properties of the glass, colors and patterns will vary. No two are ever alike! A $10 donation will be made to The National Autism Association for each piece that is purchased. Included with each piece is a card acknowledging your donation. Handcrafted in the USA by Glass Artist Janine Stillman. Please allow 2 weeks for delivery.

Contest: Oy Vey! Autism and The Comments We Hear.

Tradewinds-Island-Grand-Pool-St-Pete-Beach

Win registration for two to the The National Autism Association's Fall
Conference in St. Pete Beach.
(And a cocktail with NAA President Wendy Fournier.)

A group of us were emailing about some of the cruel comments and actions of family members in They said it regard to our children with autism. It seemed everyone on our thread had a horror story that had hurt them to the core. And sharing the hurt made us feel less alone, and even made us laugh, in a "oy vey" kind of way. We decided to open the comments to our readers so you can share your own story - anonymously.   Feel free to use any screen name when  you comment. We will compile the comments into the body of this post and then start voting.  Here are a couple to start you thinking.

"Is so and so going to go to college?"  (So and so is a nonverbal teen with autism who tests at the preschool level.)

"Leaving money to so and so would be like leaving money to a houseplant."

"You should be happy we are less ashamed by your child now than were were at first."



Here are your comments:

"If it were my son, I'd have put him in an institution."

"It isn't so much the comments for me as it is the silence. Going to a cookout over a family member's house and having the entire family ignore your 6 year daughter with Asperger's and 4 year old son with PDD because they are not worth their time."

"God only gives you what you can handle"

"When are you gonna take that kid off that crazy diet? "

"If that was my kid I would smack him and have him locked up in a psych hospital, how can you live like this..."

"You should put him in an institution and get on with your life." - from a former friend with no children

"At least she's pretty"

Continue reading "Contest: Oy Vey! Autism and The Comments We Hear." »


Stop Hurting Kids Campaign: Share your Restraint & Seclusion Story

Stop Hurting Kids


From our friends at National Autism Association, who have the leadership position nationwide when it comes to safety and autism.

The Stop Hurting Kids campaign wants you to share your story! Have you or a loved one been affected by restraint or seclusion? Help us share your story so people know the true impact of restraint and seclusion: http://stophurtingkids.com/axcn

National Autism Association USA Flag Tees and Pendant For Patriotic Holidays

NAA cause logoNAA has teamed up with two companies who have designed patriotic wear so that you can show your USA pride and help raise funds for autism at the same time! Order now and have your gear to wear by Flag Day (June 14) and 4th of July!

Musati Apparel have created these super soft and comfy USA Flag HOME tees! Available in grey, white or black and only $25 of which $5 per shirt is donated to NAA! Order yours today at http://www.musatiapparel.com. And be sure to follow them on FB for new designs coming soon https://www.facebook.com/MusatiApparel.

Designs by Ja9 has done it again with an exclusive pendant - the red, white and blue star featuring silver puzzle pieces! These handcrafted pendants are just $30 and $10 for each sold is donated to NAA! Order today at http://www.designsbyja9shop.com/NAA-Patriotic-Star_p_685.html

As always, we appreciate your help in supporting our fundraising efforts to help our programs! Thank you for showing your patriotic pride this Memorial Day and for supporting Think Autism always!

The Think Autism team
Find us on FB at https://www.facebook.com/NationalAutism

Tell IACC and AAP How Sick Your Autistic Child Is And About Unmet Medical Needs

Speak upSafeMinds believes that the lack of appropriate medical treatment for individuals with autism is a violation of basic human rights. Together we can improve the lives of children with autism now, but we need your help.

The IACC (NIH’s Interagency Autism Coordinating Committee) added the existence of co-occurring conditions associated with autism in the strategic plan for autism research back in 2011, acknowledging the need to better understand the scope and cause of these conditions, and the need for multidisciplinary heath assessments and effective treatment guidelines. But to date, far too little progress has been made. In an effort to address this urgent unmet need the IACC has invited Dr. Perrin, President of the American Academy of Pediatrics, to attend the July 9th meeting to discuss what can be done to improve health care for children with autism. This is your chance to let them know what you think!

Those in the autism community understand that many of the behaviors present in children with autism, especially those that are self-injurious, are often related to physical pain and are treatable and preventable with appropriate medical interventions. Therefore, every effort must be made to increase the medical community’s knowledge and awareness of these co-existing medical conditions. 

Continue reading "Tell IACC and AAP How Sick Your Autistic Child Is And About Unmet Medical Needs" »


Safeminds: Impact of the DSM-5 Criteria for ASD – Community Update - May 2013

SafeMinds bannerBy Katie Weisman, for the SafeMinds Research Committee Introduction

This month, the American Psychiatric Association will publish the latest edition of its Diagnostic and Statistical Manual – the DSM-5.  The manual contains significant changes to the diagnostic criteria for individuals with autism.

1. The name of the category will be changed from Pervasive Developmental Disorder to Autism Spectrum Disorder.

2.  The four previous diagnoses: Autistic Disorder, Asperger’s Syndrome, Pervasive Developmental Disorder- Not Otherwise Specified and Childhood Disintegrative Disorder will all be combined into the single category of Autism Spectrum Disorder.  Rett Syndrome will be eliminated from the manual since the gene that causes it has been identified. 

3. Three symptom domains will be reduced to two by combining the speech and social symptoms into a single category.  The number of criteria has been reduced from 12 to 7 which reduces the number of possible combinations of symptoms to receive an ASD diagnosis.

4. Severity codes will be added for each symptom domain, though the details will not be clear until the new manual is published.

5. Criterion B4 adds a sensory component to the diagnosis for the first time.

Criteria

The new criteria under the DSM-5 are as follows:

Autism Spectrum Disorder
Currently, or by history, must meet criteria A, B, C, and D:

A. All individuals must have or have had persistent deficits in social communication and social interaction across contexts, not accounted for by general developmental delays, and manifest by all 3 of the following:

1. Deficits in social-emotional reciprocity; ranging from abnormal social approach and failure of normal back and forth conversation through reduced sharing of interests, emotions, and affect and response to total lack of initiation of social interaction,

Continue reading "Safeminds: Impact of the DSM-5 Criteria for ASD – Community Update - May 2013" »


Musician Ry Romero Debuts New Single for Generation Rescue

Romero
© Incite Photography / Ysa Adams


Musician Ry Romero Debuts New Single for Generation Rescue
 
We recently came across a very talented supporter of Generation Rescue. His name is Ry Romero, a young singer-songwriter from Los Angeles, who stopped by our office to serenade us with an original song he had written. The song is titled, “Through the Storm.” Just recently, he debuted the song at Rock Now for Autism, our acoustic benefit concert at Boulevard3 in Hollywood, CA. We are glad to share with you that Ry’s new single is now available (iTunes , Amazon, etc.) and can also be heard in our new PSA.




“Through the Storm” is a song I started working on over two years ago. The idea came to me at a time when I saw people that I care about going through hardships in their lives. Being that almost every song that I have written is a love song, I wanted to do something completely different from my norm. I began with putting a melody together and finding a nice chord progression that I felt symbolized a motivational song. Once I found the sound that I was looking for, I began working on lyrics. I knew that the message I wanted to get across to my audience was that this was a song telling a story. I wanted the song to be expressed through the eyes of a person in need and the person who was there for them.

I remember how many times the lyrics had changed writing the song. I couldn’t seem to find the GR facewords to express how I wanted my story to be told. I continued working on the song for the next two years, and after struggling to find the words to say, I took a break from it. Early last year, I came across my friend Zack who told me about his work with Generation Rescue. I found it very motivating that a person of his age had accomplished so much and stood for a cause that I have always supported. Zack and I became good friends and overtime we both began to help one another with projects that we both had a passion for. He knew how much I enjoyed music and knew that I wanted to make a difference. One day, Zack approached me with an idea of me possibly donating a song to Generation Rescue. I thought it was an amazing idea! I saw this as an opportunity of doing my part to support the movement. I always wanted to give more of myself to the cause, but I never knew how.

Continue reading "Musician Ry Romero Debuts New Single for Generation Rescue" »


Autism Action is Year Round: Generation Rescue Grant Success

Ao Holland
We've finally left April and its namby pamby feel good (not that we don't like feel good stories at AofA) blue lit "awareness" behind. It's fitting that May first was MAY DAY - the call of distress. Here's a story from Generation Rescue, our sponsor, and provider of the Rescue Family Grant. This grant program puts dollars into familes' hands and medical treatment.  And it is quietly changing lives for the better. Thank you to Jenny McCarthy, Candace MacDonald and the entire GR team.   You can meet Jenny and bask in the GenRescue Lounge at the Autism One Generation Rescue conference in Chicago later this month.  The cost is just $50 for a five day conference if you register by May 6.

Listen to what a Mom said about what the grant has done for her son:

Less than a month into starting biomedical treatment, the Generation Rescue grant recipients are making amazing progress!

"P's teachers were thrilled today when I came to pick him up from school. They said it was the best day he's had in a long time. P's expressive and receptive language is just taking off. He is able to express anything he wants. We're over the moon! Seeing these positive changes makes us so grateful for this opportunity."

-V, Mom to P

To find out more about the Generation Rescue Family Grant program and to apply to start treatment, please visit Gen Rescue.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Autism Community Action Alert for Rep Darrell Issa

Action alertAs Autism Awareness Month winds down, let’s ask for some action in Canary squareCongress. 

Please contact Congressman Darrell Issa, chairman of the House Committee on Oversight and Government Reform, with the following messages:

1)    Thank him for holding a great hearing on November 29th, 2012. Let him know that you strongly support his investigation.  Last month, the CDC's latest parent survey reported a shocking 1 in 50 school-aged children with autism spectrum disorders - that's 1 in 31 boys - creating even greater urgency in answering the issues he and other members of the committee began to identify during that hearing.

2)    Ask Chairman Issa when the responses provided by CDC (Dr. Coleen Boyle) and NIH (Dr. Alan Guttmacher) will be made publicly available. Not only did Guttmacher and Boyle leave the hearing early, they took over four months to provide answers to the committee's important questions. The public deserves to see these responses in the exact context in which they were submitted to the OGR committee - including cover letters, references, and attachments.

3)    Chairman Issa stated there is nothing that is off-limits for what the OGR committee will continue to explore.  Ask him to promptly schedule the next hearing to investigate government malfeasance in covering up the vaccine/autism connection including, as examples, the following areas:

•    Evidence in the National Vaccine Injury Compensation Program  showing clearly that vaccines can and do cause autism

•    CDC's cover-up of the thimerosal/autism connection

•    CDC's suppression of evidence of the autism epidemic

Four ways to contact Congressman Issa:

1)    Call the office of the committee here -  202-225-5074
2)    Call his office in Washington, D.C. – 202-225-3906
3)    Fax his office in Washington, D.C. – 202-225-3303
4)    Send a Facebook message to the Committee’s page

Let’s take action to ensure more hearings move forward.


Same Problems in "New" Research on Autism and Vaccines

SafeMindslogo_colSame Problems in "New" Research on Autism and Vaccines

“New" study from DeStefano et al., only rehashes a flawed 2008 data set - says SafeMinds

WASHINGTON, DC - A new book chapter on statistical methods in Recent Advances in Autism Spectrum Disorders by University of Northern Iowa researchers, DeSoto and Hitlan[1] documents major methodological flaws in the data set said to disprove the link between Thimerosal-preserved vaccines and autism by Price, et al.[2]   More recently DeStefano et al. [3] used the same data set while attempting to disprove a link between the number of vaccines and autism.

“Both researchers tested whether any increased risk of autism was associated with increased exposures via vaccination.  To do so, they must compare different levels of exposure.  They failed to do so when they matched cases to controls on birth-year and HMO.  Birth-year, by itself, defines exposure level and HMOs further ensures similarity guaranteeing cases and controls were nearly identical on the exposure,” said lead author Dr. Catherine DeSoto.  “This is a design flaw called overmatching, it forces cases and controls to be artificially similar and renders the results invalid.”

 The number, type and timing of vaccines US children receive is a function of birth-year. Formulations purchased and administered would be the same within a given HMO.    

“By matching on birth year and HMO, they eliminated the variability right from the start,” said Sallie Bernard, President of SafeMinds.  “Here’s a perfect example of the cascading impact from problem data analysis. The same statistical flaws in Price’s 2010 research resurface in De Stefano’s 2013 research.”

“Once again, media reported exactly what CDC released last week without critically reviewing the information,” said Eric Uram, Executive Director at SafeMinds. 

Continue reading "Same Problems in "New" Research on Autism and Vaccines" »


OurKidsASD Contest for Enhansa Curcumin or ASD Autism Spectrum Supplement

Enter to winOur friends at OurKidsASD have a contest for you. No Luck of the Irish Lee SIlsby needed, just leave a comment to enter and you can choose from one bottle of Enhansa Curcumin 150mg, 600mg or powder or ASD Vitamin and Mineral Powder any version.

OurKidsASD is the in-house brand from our sponsor Lee Silsby Compounding Pharmacy in Cleveland, Ohio. Lee Silsby is one of the largest and most respected compounding pharmacies in the country.

Our pharmacy offers a:

  • Class 100 certified clean room for preparing sterile products
  • Dedicated capsule room
  • Large compounding facility
  • Pharmacists always available to speak with practitioners and patients

We use only the finest quality chemicals and equipment to prepare our patients’ compounded medications and nutritional supplements. Customizing medication and nutritional supplements for our customers allows them to achieve their unique health goals.

Continue reading "OurKidsASD Contest for Enhansa Curcumin or ASD Autism Spectrum Supplement" »


AAP Backs-up and Detours Away from Responsible Medicine

DetourAround the end of the year, the American Academy of Pediatrics gave the children of the world their gift by expressed support for the World Health Organization’s request for an open-ended exemption for the continuing use of mercury-based preservatives in vaccines.[1] 

AAP's support for this policy signals a dangerous disregard for children’s health and sets a precedent that could reverberate throughout medical and chemical policy initiatives - rolling-back positions taken due to safety concerns without proof of safety.  

Under the language in the treaty (as developed by WHO and supported by the AAP) no requirements would exist to require labeling of active or inactive mercury-containing preservatives in products and nothing either from FDA or WHO prevents mercury-preserved products from once-again appearing on the shelves of our markets.

Continue reading "AAP Backs-up and Detours Away from Responsible Medicine " »


National Autism Association Announces "Marching Forward" Post Hope FaceBook Campaign

Post Hope
Managing Editor's Note:  While other so called autism advocates talk about what our kids do NOT deserve, we can always rely on our friends at National Autism Association to give families from coast to coast an active, meaningful, progressive set of tools to make Spring a season of true hope through action. Join their FaceBook page, become an NAA member, ask your family members to become members on behalf of your child(ren) and remember that no matter how dark the night before dawn, together we can wake up the world to the ongoing needs of the autism community. Thank you, NAA.  Here is their new "Post Hope" campaign.

Starting March 1, the National Autism Association is marching forward with initiatives that promote progress and hope. First up, our Post Hope campaign on Facebook. The goal? Make hope go viral in the autism community. It may sound small, but we believe sharing simple messages of hope will make a big impact.

What is Post Hope?

Post Hope is an initiative that provides share-friendly social media cards that contain messages of hope, support, and critical information, such as autism safety tips, autism facts, and early signs of autism.

Continue reading "National Autism Association Announces "Marching Forward" Post Hope FaceBook Campaign" »


SafeMinds & the House Committee on Oversight and Government Reform

Safeminds againHuntington Beach, CA 2/13/2013

February 12, 2013 – A few bloggers from inside and outside the autism community recently took potshots at efforts by SafeMinds to increase awareness in Congress of the causes of the autism epidemic including the role of vaccines.  SafeMinds offers the following response to these divisive comments. We are proud of our record and accomplishments working with Congress in the past 12 years and our refusal to back off from uncomfortable topics like vaccines.

Over the years, SafeMinds has established a professional relationship with the House Committee on Oversight and Government Reform (COGR) due to its ongoing interest in autism.  Since 2000, six SafeMinds board members have testified before COGR, its precursors or subcommittees, in hearings regarding mercury, vaccines and the autism epidemic. The most recent hearing took place on November 29, 2012. SafeMinds was asked to testify and Mark Blaxill represented us. We consider this hearing to be a positive step forward. The feedback on the hearing that we received both publicly and privately was overwhelmingly positive and supportive. Due to the efforts of parents who brought their injured children to the hearing room, Committee members got a firsthand look at the devastation impacting hundreds of thousands. Several Representatives commented on how many constituent families had been in touch with them about the hearing – many of them mentioning vaccine injury specifically.  Members were able to see for themselves how ineffectual Federal agencies have been. Vaccines and autism were linked repeatedly in the congressional record.

Still, critical comments have surfaced about SafeMinds and this hearing. Those which deserve a response have come from Dr. Brian Hooker and Jake Cosby, two members of the autism community whose long-standing contributions to critiquing the government's response to autism's causes have been valued and important. When SafeMinds became aware of their allegations that our organization inappropriately represented ourselves and used undue influence with congressional staff at the COGR to create desired outcomes for this hearing, we immediately began an investigation. 

Brian spoke to us directly and expressed his concern that we maneuvered to block him from testifying, which we did not do. SafeMinds spoke directly with the Congressional staff responsible for organizing the recent autism hearing to ensure that there had been no misunderstanding. Our contact there assured us that nothing undue or untoward occurred in conversations between the Committee and SafeMinds.  He concurred with our internal view of events that at no time did SafeMinds misrepresent our organizational affiliations to congressional staff, nor did we or any of our affiliates seek the recision of Brian Hooker’s invitation to testify before the COGR. We did make a request that SafeMinds be allowed to testify on the panel. 

Jake has criticized us for going light on the vaccine issue. Mark covered vaccines in his written testimony[1] hammered the government on its denial of the epidemic in his oral testimony and reintroduced these issues pointedly during the questioning by Committee members, calling them the “Great Unmentionables, vaccines and mercury, as causation factors”.[2]  Committee members had been briefed by many members of the community including SafeMinds and Brian, so they knew what to ask. Members did an incredible job and we thank them. 

Continue reading "SafeMinds & the House Committee on Oversight and Government Reform" »


Leucovorin Study for Autism

Lee SIlsbyManaging Editor's Note:  We are proud to share with you that  Lee Silsby Compounding Pharmacy in Cleveland, Ohio, is supplying the Leucovorin for this study below. Alan Israel, lead pharmacist, has been a leader in our community to ensure safe, effective biomedical treatments for our children. On a personal note, Lee Silsby was the first pharmacy I ever used for girls' back in 2001 and I've never forgotten their customer care and attention.  Thank you, Alan and the staff at LS.  KRS

A Folinic acid intervention for ASD

Dr. Richard Frye is conducting an exciting study on the impact of a daily treatment of folinic acid on ASD-related symptoms. The hypothesis is that an folinic acid will improve folate metabolism in the brain, oxidative stress and mitochondrial function in children with autism, resulting in specific health improvements for patients with autism, a discovery that would be very welcome by the autism community.

Lee Silsby Compounding Pharmacy has been selected as the sole supplier of Leucovorin (folinic acid) for the study. Alan Israel, R. Ph., the lead pharmacist at Lee Silsby, stated that the biomedical community can benefit greatly from more research and that he is willing to help out as much as possible. To his credit, Lee Silsby Compounding Pharmacy has agreed to provide folinic acid for both the double-blind placebo-controlled portion of the trial as well as the open-label portion of the trial at no cost to the patients in the trial.

Dr. Frye’s current proposal can potentially provide strong evidence for a folinic acid intervention and will provide insight into the subgroups of children with ASD who would benefit from folinic acid.  The primary goal is to improve language for those with ASD (which is measured by the receptive and expressive CELF language index). Preliminary studies have suggested that a folinic acid intervention is associated with receptive and expressive language improvements. For example, in a case-series of 44 children with ASD and the folate receptor alpha autoantibody, treatment with high-dose folinic acid (2 mg/kg/day divided twice a day; maximum dose 50mg / day) improved communication, attention, and stereotypical behavior in many children with ASD.

Folate is an essential B vitamin required for normal neurodevelopment.  Defects in folate metabolism can cause secondary physiological abnormalities, some of which have been associated with ASD.  In this study, Dr. Frye and his team aim to study several physiological mechanisms associated with folate abnormalities in children with ASD: the folate receptor alpha autoantibody that reduce folate transport across the blood-brain barrier, low glutathione redox status, mitochondrial dysfunction and genetic polymorphisms. Most importantly, ASD patients with these physiological mechanisms have shown improvement in ASD symptoms with a folinic acid intervention.

Continue reading "Leucovorin Study for Autism " »


National Autism Association Offers Alex & Ani Necklace in Time For Your Sweetheart

AlexandAniAutism_blast-e1333376869444

From the amazing team at National Autism Association. Not only do they protect our kids with safety programs in their BIG RED SAFETY SHOP, they are looking out for our marriages and relationships too by offering this beautiful necklace in time for that big red holiday coming up on the 14th! Thank you, NAA.

Our friends at Alex and Ani have designed a beautiful charm in honor of all of us who are affected by autism.  It is available exclusively at Alex and Ani retail stores and online at http://alexandani.com.

20% of all sales will be donated to NAA to support our programs for families affected by autism.


Treaty Negotiations INC5 Wrap Up SafeMinds Perspectives

Globe handsFrom the Safeminds.org newsletter:

By Eric Uram, SafeMinds Executive Director

So what happened in Geneva at the negotiating session for finalizing language contained in UNEP's international mercury treaty?  In particular, when it came to making real headway on addressing the sources of mercury associated with over-exposed kids?  In brief: not much.  Political will putting people first took a back seat to special interest influence about making profits pretty much across the board. 

To give some background, the process for negotiations, a treaty is similar to the lawmaking process here in the USA, UNEP Treaty negotiations allow everyone access to the process. 

Just as with federal and state legislatures, access to government officials outside of the negotiations is allowed, and written and face-to-face communications took place in many countries where interests had a presence. 

Similar to elected legislators, only treaty delegates can add, amend or remove treaty language.  Intergovernmental organizations (similar to federal or state agencies) including UNIDO, UNITAR, WHO and other UN affiliates and the UNEP Treaty Secretariats get greater access (and influence) with the delegates, but are still prohibited from participating in negotiations on any specific language. 

The process considers all others, including non-government organizations (NGOs, such as SafeMinds) only as observers, allowing us to monitor the process, but allowing extremely limited opportunity to address the delegations. 

The negotiations approval process uses consensus instead of a majority rules approach.  Any change in language can only occur under consensus from all parties - so adding or removing language requires everyone present to allow it.  This means one nation could veto any proposed addition or deletion of language even if everyone else wanted it. 

Continue reading "Treaty Negotiations INC5 Wrap Up SafeMinds Perspectives" »


Protect Children: National Autism Association Calls for Cameras

Naa longManaging Editor's Note: From our friends at National Autism Association who are always looking out for the health, well being and safety of our children, whether tots or adults. Read their white paper, Behind Closed Doors: What’s Happening to Students With Autism in America’s Public Schools? The case for cameras in self-contained classrooms.  Many of you will recall that it was cameras on the school bus that proved that the bus aide was harming my daughter Bella and lead to an arrest and conviction.  From the NAA Blog:

We need your help.

The National Autism Association has been the leading national organization addressing the critical safety needs of children most severely affected.  We’ve made progress on some issues, such as wandering-related initiatives.  Now, we need to tackle the problem of student abuse.

At NAA, we follow trends via daily news alerts to see if problems facing families affected by autism are on the rise.  In our view, the number of reports of students being subjected to abuse, particularly in isolated self-contained classrooms, highlights a growing area of grave concern.

The issue suddenly became front-burner in south Texas about two years ago when Fox News 26 special projects reporter Greg Groogan began reporting on this dangerous trend. An award winning journalist and the father of an affected child, Greg has documented more than half a dozen confirmed cases of abuse in the Houston area alone in that timeframe.

These reports include:

  • A ten-year old with Down Syndrome who came home with scratches and heavy bruising
  • A nine-year old student with autism who was repeatedly imprisoned in a closed file cabinet by her special-ed teacher
  • A teacher who disciplined a student with autism by spraying water in his face at point blank range
  • A boy with severe autism who came home with multiple bruises and abrasions
  • Several students in a classroom who were forced to put vinegar-soaked cotton balls in their mouths or run on treadmills at a painful pace as a means to get them to complete work

Families are taking notice, and they are talking to their legislators in Texas.

Building on this momentum, disability advocates in our state have been working toward legislation that would require cameras in self-contained classrooms in response to multiple media reports of confirmed abuse in these educational settings.   The Texas legislature meets only every two years for 140 days.  If you have legislation you want passed or amended, you have a very short window and the pace is unbelievably frantic.

If we are going to get this done in Texas, now is the time.

It’s no surprise to parents of children significantly affected by autism that their kids are uniquely vulnerable to abuse due to many factors:  classrooms with closed doors, often inadequate training for teachers and aides, inappropriate staffing levels, children with sometimes challenging behaviors who may not be able to report what happens at school.  The explosion in autism rates has brought some school districts to the brink of disaster as they struggle to catch up with rapidly increasing numbers of students who have a high level of need.  For many families who have no insurance coverage for autism-related therapies, the public school is the only resource they have to help their children.  It’s no wonder IEP meetings have become war zones as caregivers vie for scarce resources.  Even squeaky wheels often don’t get the grease.  Read more at the NAA site.


IOM Fails Again to Pursue Science on Vaccine Injury

System failureSafeMinds Response to 1/16/2013 IOM Report: 

IOM fails again to pursue science on vaccine injury

The January 16, 2013 Institute of Medicine report, The Childhood Immunization Schedule and Safety: Stakeholder Concerns, Scientific Evidence, and Future Studies, repeats the IOM pattern of failing to call for the appropriate scientific research to be conducted on vaccine-induced autism.  The report ignores the fact that for 6 of the 7 vaccines administered in the first year of a child’s life (HCV, DTaP, PCV, Rotavirus, IPV, and Rotavirus), there has never been a study of autism prevalence in children who received the vaccine versus children who did not receive the vaccine.  These studies were not performed before each of these vaccines was approved, and have not been performed since approval.  The IOM report admits that such a study is the gold standard of science, yet does not call for studies.  The IOM report ignores the fact that for the 7th vaccine (Hepatitis B), there has been only one such study and that this study found a 3-fold increase in autism risk for children who received the vaccine in the first month of life.  The autism epidemic dates to the 1988 birth cohort per an EPA study, the same birth cohort which was administered the Hib conjugate vaccine (an entirely new class of vaccine), and an October 2011 published paper describes a plausible mechanism by which this new type of vaccine could have caused the autism epidemic.  Yet the IOM report ignores the fact that autism prevalence has never been studied for the Hib conjugate vaccine in children receiving versus not receiving this vaccine.

Why would the IOM not call for the obviously necessary research to be conducted?  Safeminds believes the answer lies in an institutional bias within IOM towards protecting the vaccination program.  Leaked transcripts of initial deliberations during the 2004 IOM Immunization Safety Review show that the IOM chair told the committee that they would not ever come down that autism is a true side effect of vaccines; subsequently, the IOM 2004 report had the audacity to call for a halt in further research into a vaccine-autism association.  The IOM 2004 report was not based upon conclusive research, but instead appeared policy-driven based on leaked transcripts.  Now in this January 2013 report, intended to lay the groundwork for future research on vaccine-safety, the IOM instead advertises the benefits of the current testing system which has failed to conduct the necessary research.  While recognizing that “randomized controlled trials are the gold standard for clinical research”, the IOM committee does not call for these trials. The IOM committee also dismisses the feasibility of retrospectively comparing vaccinated vs unvaccinated children citing that population groups often containing unvaccinated children, such as religious communities, would yield sample sizes too small for valid results. This short-sightedness ignores the more obvious solution of utilizing the estimated 1-2M home-schooled population for such a study.

Continue reading "IOM Fails Again to Pursue Science on Vaccine Injury" »


Happy Thanksgiving from SafeMinds: TACA Families Visit Congressman Issa

TACA ISSA

All of us at SafeMinds are thankful for our community of wonderful fellow parents who love and support our children every day.

These TACA famillies took the time to visit Chairman, Darrell Issa's office this week. They wanted to thank him for paying attention to autism by holding the hearing next Thursday. We really appreciate their extra effort on behalf of all of our kids. (Learn more about the Autism hearing in DC on 11/29 HERE.)

Best wishes for a lovely Thanksgiving to you and yours.

SafeMinds

Will Congressional Autism Hearings Be Different This Time?

Blah_blah_blahBy Anne Dachel Autism pose

On November 29th a congressional hearing will again address autism.  The simple truth is, we can’t afford to bring up the issue, let lots of people talk and then go home with nothing resolved. Something needs to be done about an affliction that is decimating our children and that officials seem unable to understand or to stop.

The advocacy group SafeMinds asked parents to contact their Congressional Representatives and urge them to attend the hearing. 

SafeMinds also asked us to consider four questions regarding how the government is dealing with autism:

1) Do you think the federal government is doing enough about autism?

2) Do you think the Interagency Autism Coordinating Committee has helped your family?

3) Do you think federal policies have prevented new cases of autism?

4) Have you seen results from the government's hundreds of millions of dollars in research spending?

Please remember we’re asking these questions in 2012. The autism numbers have been steadily
increasing over the last two decades to what can only be described as an epidemic rate while
mainstream medicine and U.S. health officials have stood by helplessly, unable to tell us the cause
or the cure for autism.  There’s nothing a mainstream doctor can tell a new mother whose baby
was born healthy and is developing normally that will ensure that this child won’t also end up on
the autism spectrum by age two. On a daily basis we’re given news reports where experts
solemnly tell us that all the autism is merely better diagnosing and an expanded definition of a disorder that’s always been around. 

In 2006, the Combating Autism Act was passed by Congress and signed into law by President
George W. Bush.  This legislation authorized nearly a billion dollars over five years for screening,
education, services and research. The act created the Interagency Autism Coordinating Committee
chaired by Dr. Thomas Insel.  The act was reauthorized in 2011.

Here’s what the advocacy group, Autism Speaks, had to say about the reauthorization:

“The new law continues the federal government’s commitment to autism research, services and
treatment at current levels, authorizing $693 million over the next three years. The original act
provided nearly $945 million over five years. Since its passage in 2006, significant advances have
been made in determining potential causes for autism as well as promising new early intervention
behavioral treatments. By signing CARA into law, President Obama has ensured the federal
government’s commitment to autism so that crucial research can continue unimpeded for the next
three years.”

So how concerned is Congress about autism?  Besides the CAA, what have they done to address
a disorder that has claimed a million children in the U.S.?   How interested are they in
the heated controversy over vaccines and autism?

This is some of history of how the Congress has dealt with autism.

In 2000, Representative Dan Burton held a six hour hearing on autism and childhood vaccines.
Burton talked about his grandson’s regression following his routine vaccinations.  Other legislators sounded equally concerned about the possible role vaccines could play in the development of autism.  Parents testified about the difficulties of raising an autistic child and about the link they saw between vaccines and their child’s autism.  There were calls for adequate studies to discern any causal relationship.  Dr. Andrew Wakefield was there presenting a report on his discovery of a new bowel disease he had observed in autistic children.  Dr. John O’Leary from Coombe Women’s Hospital in Dublin Ireland testified on the presence of measles virus in the children with autistic enterocolitis.

Continue reading "Will Congressional Autism Hearings Be Different This Time?" »


SafeMinds Action Alert: Autism Hearing in Congress

Urgent-Actions-WBMdAUTISM  HEARING  IN CONGRESS

THURSDAY, NOVEMBER 29th AT 2:00 PM

RAYBURN HOUSE OFFICE BUILDING - ROOM 2154

PARENTS AND ADVOCATES:

PLEASE ATTEND, GET YOUR CONGRESSMAN TO ATTEND AND SPREAD THE WORD.  COME TO WASHINGTON.  BRING YOUR CHILDREN.

On Thursday, November 29th at 2:00 pm, The House Committee on Oversight and Government Reform will hold a hearing regarding the federal response to autism over the past decade.  EBCALA, SafeMinds and many individual parents have worked hard to make this happen.  Our understanding is that two panels are scheduled - one of government witnesses and one of public witnesses, including SafeMinds. 

Do you think the federal government is doing enough about autism?

Do you think the Interagency Autism Coordinating Committee has helped your family?

Do you think federal policies have prevented new cases of autism?

Have you seen results from the government's hundreds of millions of dollars in research spending?

If you answered "No" to these questions, here's what you can do to help:

  1. Attend the hearing if possible.  Bring your child or children if you can.  Let's try to make the hearing "standing room only".  Be visible.      
  2. Contact your Congressman right now.  Committee members and contact info are listed here  and it is critical that they attend the hearing. If yours is on the list, make sure you contact their office (leave a message) and ask that they attend. Other Representatives can be found here.    Ask them to attend the hearing and stay for the entire meeting.  If they cannot, ask them to send staff.  If you are going to Washington, ask for an office meeting, before or after the hearing, to talk about your family's needs and concerns.  Or meet with them Thanksgiving week when they are home in your district.  Remember they work for you and this is the first time in 10 years that Congress has provided oversight of autism activities.  Encourage them to get involved in the House Autism Caucus long term.      

Continue reading "SafeMinds Action Alert: Autism Hearing in Congress" »


Thank Jim Kirk of Chicago Sun Times for Hiring Best Selling Author Jenny McCarthy

Jim kirkLast week Every Child By Two asked the Chicago Sun Times newspaper to remove Jenny McCarthy's parenting column because of her pro-vaccine-safety stance.    JB Handley wrote about ECBT yesterday, you can read his post Every Child By Two: A Frozen Caveman Pharma Front Group. We invite you to email Mr. Jim Kirk (feel free to use the letter below) to thank hm for hiring Ms. McCarthy and show your support for his newspaper.

jkirk@suntimes.com

Jim Kirk
Editor-in-Chief, Chicago Sun Times

Dear Mr. Kirk

I am writing in regard to “Every Child By Two’s” campaign asking “parent advocates” to write to you and request that actress/author Jenny McCarthy not be allowed to have a column in your newspaper. 

Every Child By Two (ECBT) is primarily funded by vaccine makers whose products have fallen under criticism for inadequate safety by Ms. McCarthy.  In 2010 (the most recent year for which funding information is available), Wyeth vaccines provided  $307,000 to ECBT and Sanofi Vaccines provided ECBT with $245,171.  Furthermore, ECBT’s board members include Dr. Paul Offit – vaccine industry spokesman and co-inventor of the Rotavirus vaccine that has been estimated to have earned him in excess of $10 million.

These funding sources were not disclosed in ECBT’s letter urging the media’s censorship of Ms. McCarthy.  Instead, ECBT presents itself as an unbiased public service organization.

ECBT’s states on its home page:

“11,000 children are born every day. We must vaccinate all of them on time.”

This statement is an example of ECBT’s disregard of the established medical fact that all individuals are not tolerant of all pharmaceutical products. The federal government has compensated families over $2 billion for vaccine injuries and deaths, and thousands of Americans have reported serious adverse affects to VAERS (the government’s Vaccine Adverse Event Reporting System).

Continue reading "Thank Jim Kirk of Chicago Sun Times for Hiring Best Selling Author Jenny McCarthy" »


Help and Hope at National Autism Association Conference in St. Pete

Tradewinds-Island-Grand-Pool-St-Pete-BeachPlease click here for conference details and registration!

In response to the growing needs of families and professionals impacted by autism, we have assembled the “best of the best” in terms of conference presenters and relevant topics.

From cutting-edge research of environmental toxins to dietary interventions, legal and legislative strategies to estate planning, the world’s most renowned experts will gather to share their knowledge and expertise with parents and practitioners.

We have just launched a brand new web site for our 2012 conference where our featured speaker will be the inspiring Eustacia Cutler, mother of Temple Grandin.

Our conference will be held at the beautiful, and Autism-Friendly, TradeWinds Resort on St. Pete Beach, Florida.  November 8-11, 2012.


Findings Published Today In Pediatrics Show Half Of Children With Autism Wander From Safety

Big red box

Managing Editor's Note: Thank you to National Autism Association for spearheading this study so that doctors around the globe wake up to the ravaging effects of the autism epidemic.  We all do our best to shed light on the tragedies (and triumphs) of daily life with a child on the spectrum - but doctors tend to listen best (insert cough here) to formal studies rather than to informed parents. If YOU have a child who wanders - or know someone who needs help in their household, we implore you to visit AWAARE.org.

Boston, MA – A new study published today in Pediatrics found that approximately half of children with autism wander from a safe setting, a rate nearly four times that of their unaffected siblings. The study, conducted by the IAN Project at the Kennedy Krieger Institute in Baltimore, is the first research effort to scientifically validate that elopement is a critical safety issue for the autism community. Advocates hope its findings will lead to much-needed safety measures and support for families struggling with the issue.

The study’s key findings showed that:

  • 49% of children with autism wander/elope from safe settings
  • More than one third of children who elope are never or rarely able to communicate their name, address, or phone number verbally or by writing/typing
  • Two in three parents report their missing children had a “close call” with a traffic injury
  • 32% of parents report their missing children had a “close call” with a possible drowning
  • Wandering was ranked among the most stressful ASD behaviors by 58% of parents of elopers
  • 62% of families with children who elope were prevented from attending/enjoying activities outside the home due to fear of wandering
  • 40% of parents had suffered sleep disruption due to fear of elopement
  • Half of families with elopers report they had never received advice or guidance about elopement from a professional

In 2010, the National Autism Association (NAA) sounded the alarm on the wandering issue when it made a statement before a federal committee outlining the need for wandering data and federal resources. “We began seeing a rise in wandering incidents and fatalities,” says NAA President Wendy Fournier.

According to NAA, accidental drowning caused 91% of wandering deaths from 2009 to 2011, and 23% of total deaths happened under the care of someone other than a parent. “This is not a ‘bad parenting’ issue,” says Fournier. “We hear from parents who sleep next to their child’s bed at night, or in front of the door. They live in constant fear of the worst.” Fatalities in 2012 have doubled those of last year, and in the last two weeks alone, three children and one teenager with autism have died after wandering from safe environments.

Continue reading "Findings Published Today In Pediatrics Show Half Of Children With Autism Wander From Safety " »


Karma Foundation partners with Generation Rescue

Karma FoundationKarma Foundation partners with Generation Rescue

- Karma and its members pledge to support autism recovery and awareness charity through grant program and volunteer work –

Los Angeles, CA – August 23, 2012 – The Karma Foundation, an exclusive social membership organization that combines the benefits of executive networking and philanthropy with luxury lifestyle events, has added Generation Rescue to its growing list of charity and non-profit beneficiaries.

The Karma Foundation has already donated over $25,000 to Generation Rescue through proceeds from its annual Kandyland event.  It will now become a Corporate Sponsor and participate in the charity’s grant program.

To date Karma and its members have sponsored ten families, providing their children medical assistance and services which would otherwise be unaffordable for recovery of autism spectrum disorders.  Karma will continue to sponsor additional families whose children need this assistance through future event proceeds and member donations.

Marvin Epstein, Karma Foundation’s executive vice president of Business Development and Philanthropy, said: “Karma prides itself on long-term relationships with the charities it supports, our ‘philanthropy legacy’ strategy. We will work with Generation Rescue to ensure our donations are contributing in the most effective way possible. We believe our strategy will create a genuine and critical component to ensure the success of these organizations.”

Candace McDonald, executive director of Generation Rescue said: “We are grateful to the Karma Foundation and its members for making a commitment to support our grant program and provide treatment for families affected by autism. We appreciate the generous donations they have made, and also the lasting partnership we have begun to build together. Their ongoing unique support strategy establishes an exciting initiative to help more families and create further awareness and growth for Generation Rescue.”

Generation Rescue, led by president, Jenny McCarthy, is dedicated to the recovery of children and adults with autism spectrum disorders through medical treatments, support and guidance. Of the recent sponsorship and partnership, Jenny McCarthy said: “It’s so great to find a sponsor like the Karma Foundation, where its members truly care about the people served by the nonprofits they support.”

For more information about Karma Foundation and its sponsorship of Generation Rescue, go to www.thekarmafoundation.com. To learn more about Generation Rescue visit www.generationrescue.org.

About Karma Foundation

Karma Foundation is a Beverly Hills, CA based exclusive lifestyle membership organization that provides its Members and Member guests with remarkable upscale lifestyle experiences that enrich their lives, expand their networks and benefit noble causes. Karma uses its global infrastructure of VIP Hosts to provide Members with the ultimate access for hospitality, nightlife, gaming, entertainment and luxury lifestyle amenities and services anytime anywhere.  Karma is based on four main principles Networking, Philanthropy, Revelry & Access.  More information about Karma Foundation can be found at www.TheKarmaFoundation.com.

About Generation Rescue

Every year, Generation Rescue helps more than 25,000 families affected by autism by providing education support and medical assistance, directly improving children’s qualify of life. With mentors in 38 countries around the world, services include a toll-free hotline, medical grants, parent mentors and conferences. It is dedicated to the recovery of children with autism spectrum disorders by providing guidance and support for medical treatment to directly improve the child’s quality of life for all families in need. www.generationrescue.org


Katie Weisman of Coalition for SafeMinds Informs IACC of Mercury Dangers in Public Comments

Graphic-mercury-large(Managing Editor's Note: Last month the IACC met - and Katie Weisman presented the following public comments. Read Dan Olmsted's scathing review of the meeting along with follow up from Jake Crosby and Katie Wright.

Good Afternoon Dr. Insel and members of the IACC,

My name is Katie Weisman and I am here today on behalf of SafeMinds.

I am the mother of 14 year-old identical triplet boys, two diagnosed with PDD-NOS and one with autism.  I have been a full-time advocate for 11 ½ years now.  I have run a parent support group for a decade, have fundraised, have started a safety campaign, have done autism awareness training for typical kids, have lobbied for insurance, and have worked on the bill that reauthorized this committee.  More importantly, I have helped three of the best, hardest working young men on the planet learn how to talk and write and read and live in their world happily.  But I am here to tell you that this is all taking too long.  My boys and all the people like them and all the children who are being diagnosed now, today, while we are sitting here, need answers and help now, today.

I am here to tell you why the mercury/autism connection is stronger than it has ever been.   It is time to set politics aside and look at the science.  Anyone who truly cares about individuals with autism simply cannot ignore mercury.  For those who say that the link has been disproven, I say go and actually read the literature – it currently supports a connection by a 2 to 1 margin.  The positive studies rarely make the press. Included with my comments are e-mails, obtained through the Freedom of Information Act, showing that the CDC omitted data showing that autism rates in Denmark actually dropped in 2001 after they removed thimerosal from their vaccine program.  I have also included Mark Blaxill’s graphic analysis of the early Verstraeten VSD data, also obtained through the Freedom of Information Act, showing 7.6 times the relative risk of autism in children who received high thimerosal by one month of age compared to children who received zero thimerosal.  This is important because, later, unvaccinated children were excluded from the study eliminating the zero exposure control group.

I have read most of the autism abstracts in Pubmed for over 4 years now, along with hundreds of studies and have followed the research for over a decade.   I can tell you unequivocally that the number one, best supported, most logical suspect for autism causation is mercury and it is only being ignored because it implicates vaccines.  It will not be the only cause, but it is logical to tackle mercury because exposures are often easy to avoid.  With about 45,000 children a year being diagnosed with autism spectrum disorders in the US alone, based on the most current prevalence ratio, I do not believe that anything can be off the table for research.

However, thimerosal is not the only mercury exposure of concern in autism.  Mercury comes from many other sources including fish, other food, dental amalgam, skin-lightening creams, fluorescent bulbs, Santeria rituals, air pollution and even tattoos.  Despite recent emissions controls in developed countries, global mercury pollution is on the rise due to massive growth of industry in countries like India and China. The EPA estimates that 83% of the mercury deposited in the US is from international sources. Any candidate for causation must fit trends of exposure, and cause symptoms that make sense. There are obvious studies like those linking autism rates to mercury in the air or the number of fillings a mother had, but there have been no studies yet of total mercury exposure relative to autism.  Those studies need to be done.

Continue reading "Katie Weisman of Coalition for SafeMinds Informs IACC of Mercury Dangers in Public Comments" »


Become a Champion for Safeminds

SafemindsSafeminds was founded to raise awareness, support research, change policy and focus national attention on the growing evidence of a link between mercury and neurological disorders like autism, attention deficit disorder, language delay and learning difficulties.

We need your help!  Become a Safeminds champion and spearhead outreach efforts in your area that will directly contribute to our mission of educating the community through targeted outreach, and fundraising.   

Awareness Isn’t Enough, We Need Action!   The prevalence of autism is rising at about 12% a year.

SafeMinds believes that most cases of autism are preventable and treatable. We demand action to protect our children.

Please contact Elizabeth Kilpatrick today at eksafeminds@gmail.com