Speak to Me
Years ago, I used to be on all sorts of social media sites, but the time I spent on those sites ended up bringing a lot of noise and distraction to me. My focus would be better served elsewhere, so one by one I deleted accounts. I limit myself to just facebook now and only with a few close family and friends these days. Someday I may jump ship off of FB, but not yet. I’m still hooked on the interactions and the memories. Oh, the memories!
I’ve referenced the On This Day memories feature before. Like previous times, something I saw on it last week made me pause and reflect. Usually, the memory is still somewhat fresh, but I’ll be honest. I don’t remember this post at all.
Thank you to our friends and family who are so totally awesome. Each and every one of you...you with the loud voices, you whispering a kind word, you hanging in the back waiting for the right moment to lend a hand, thank you. I heard this on the way home yesterday; it was a great message at just the right moment. Then I linked a song that had a great message.
Based on the date of the post, early September 2010, I can imagine where I was when I heard the song – I likely had all five kids with me in the minivan, and we were driving back from Ronan’s school where he made the most progress with a team that had only his very best interest at heart. Ronan’s siblings were such troopers for how much time they spent in doctor’s offices, sitting in therapy waiting rooms, and exploring the city while Ronan went to his private school that was over an hour away from our home.
That was 14 years ago. Some things have stayed the same like the siblings remaining as faithful as ever to their brother. Some things have changed since then, though. We’re back to square one with a medical issue that we and doctors haven’t figured out yet.
It's torture waiting for information, for red tape to be cut so that testing can be done, for time to speed up, and to finally get an answer to a concerning problem. I was hoping for a happy memory another morning when I opened my FB memories but felt a punch to the gut when I saw that I’d mentioned something odd that had happened to Ronan. We knew he’d been dealing with this current problem for around 2 years now, but that other FB memory from 2016 has me thinking might’ve been the first sign of the current problem. That means he’s been dealing with it a lot longer than we thought. I’m positive I would’ve shared this information with the doctors we were seeing at that time. I’m positive I would’ve asked for help. I’m also positive I would’ve been worried about it then as I am now. The unknown isn’t easy to deal with, especially when it negatively impacts your child.
Right after I saw that memory post, I logged out of FB, turned on some praise and worship music and sat quietly. Easily I could have gone down the rabbit hole of worry, but that day I didn’t allow myself to run ahead of my thoughts. It did me no good to do that one night last week. So, I decided not to do it again on Friday morning. For the next 45 minutes that morning, I listened to God’s word and stayed positive. When I’ve done that before, I find that a friend will sometimes randomly reach out to me soon after. Those friends and family who have remained faithful to us and to all the things we’ve had to juggle have been the biggest blessing on this journey. The timing of their check ins, the random running into each other in town—like happened later on Friday morning, their unexpected texts of hey, Cat…we’re praying for Ronan today…each is so comforting. I remember most of my FB memories and revel in the happy emotions many of them bring me.
Even though I don’t remember that first On This Day message above, nor the song I have now replayed all this week, I find comfort in recalling each friend, then and now, who have stayed with us through thick and thin.
Here’s that song. Give it a listen, and let me know if it resonates with you as well I love the title, and I love the message. Ronan still can’t talk, but we respond to his every need as quickly and lovingly as possible. Those close to us, and many of you here, do that as well…and I’m forever grateful for that. .
https://www.youtube.com/watch?v=f8-5bvAFCzQ
Cathy Jameson is a Contributing Editor for Age of Autism.
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Cathy-I am praying that you will find the answer to Ronan's concerning heath issue very soon. Your posts about him are very inspiring to me and help me to keep praying for my adult son, who also has epilepsy, and all others tragically affected by this challenging condition. My son was diagnosed in 1990 and it has been a very long and heartbreaking journey as it is for all of us. I am thankful for Age of Autism where we can all share in this journey with other affected families. I know that our prayers will someday soon be answered for a true cure for their autism and will never stop hoping for the future of my son and all those affected. May God Bless every one!
Posted by: Gayle | September 17, 2024 at 08:58 AM
Good Day to all! Yes, always praying for our children and all children in general. The world is so complicated these days. So many toxins and evill doers out there. Here is our safe haven, so I dearly appreciate AoA website and all of its writers and staff from the top down! Thank you!
Goodness, it has been since 2009, March that we started this journey and not much help has really come to our damaged children from the men and women in the white coats, with the advance degrees. God help us and keep us safe! Blessings to all.
G. Martinez
Posted by: Gerardo Martinez | September 16, 2024 at 06:03 PM
Back 20 years ago and on going from 10 years ago; I did not get blank stares from the neurologists,; but down right warnings that I could cause great harm to my son by giving him vitamin B6. Even though he was taking Keppra which was known, and even in the packet insert that it just sucks the B6 right up from the body.
Did they test for that? Why no! Not interested at all. Sure let me know and worry me.
Thanks for the study.
He is on to his father and I for talking to loud, or banging dishes too much. He says we scared him. Every since the bout with Strep at the end of 2019 just on going anxiety.
Posted by: Benedetta | September 16, 2024 at 08:50 AM