Sinking In Pictures
By Kim Rossi
Headline is a play on Temple Grandin's Thinking In Pictures book from many years ago. I'm here to make a confession. Bless me readers, for I have been a terrible autism Mom. See that photo above? I'll save you the effort of zooming in. It's thousands of tiny screen shots from Sesame Street, Blues Clues, Spot the Dog, Between the Lions, Arthur and other early 2000s children's television shows. Oh, and a goodly dose of the Sony Wonder CD-Rom Sesame Street series. THOUSANDS.
More than a decade ago, my oldest daughter got that red birthday card. We taped it to a piece of paper. And so it began. She asked me (in her way) to take a screen shot of a YouTube video. I did. And she wanted it on a piece of paper. I thought it would help her get AWAY from the computer if the photo was in her hands. I decided to SHRINK the picture so she could have more than one on a page.
It became an obsession. The papers grew in number. Her day program laminated them to protect them. We cheered. I grabbed a plastic bag to cover them when it rained. PROTECT THE PAPERS!!! She carried them everywhere. Slept with them carefully laid out across her bed. The only bedmates she would ever have, her old friends from childhood.
Ultimately, the papers became her prison. She couldn't leave the house without them. She couldn't walk on the beach. Go through a store. Take part in daily activities. They were omnipresent in her life.
About six months ago, the prison grew even smaller. She'd beg for ONE MORE PICTURE before she would leave the house. Transitions regressed to a teary nightmare. She'd demand TAPE! TAPE! all day long, to reposition one errant photo. The papers became raggedy tributes to Scotch tape and mania. She'd wake at night, I'd hear her bed move, "Where is it? Where is it? Under the bed." if a single photo fell off.
I had do do something to help her. Because I was the problem. I'd let the papers take over her life. They bought me a few minutes of peace. They let me ignore her when I needed to. I used them as much as she did. Like a Mom whose child wanted a pacifier long after toddlerhood. We had a symbiotic sickness.
So, two weeks ago, I bit the bullet. I THREW AWAY HER PAPERS. That picture is from my driveway. From there, I drove to the town dump It broke my heart. But? It did NOT break hers! She had a few days of struggle. Her sleep fell apart. She whined and cried. Her day program helped considerably. And she has been doing pretty well overall. I'm so proud of her. She's talking more. Bothering her sister to interact. And she's now, "hands free!"
We can get so bogged down in our routine, that we forget that our kids, no matter their age, need to grow forward. And often, we're the ones holding them back. It's a sharp lesson. It hurts a little, but not even as much as a paper cut.
Kim Rossi is Managing Editor for Age of Autism.
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God bless you Kim. So happy that your daughter is moving forward. I wish that this did not have to be so difficult.
Posted by: Jill in MI | August 08, 2024 at 09:01 AM
Gerardo Martinez It was a cereal box that had Dragon Ball Z character on it a couple of months ago. Boy did we have an argument. I am giving away dolls, Christmas bears, Afghan, crochet dresses my Mother made. I am struggling to let go of a pink bedspread that when I was 6 and my sister was 12 that Mother bought us for our bed.
My sister showed me how to make up the bed and then take the time to spread out each corner on the floor so it draped just right. Yet, here we are having a fight over a cereal box.
By the way the cereal itself cause high anxiety. I finally caught on. He cheats with gluten, or a high histamine processed food, and he becomes unreasonable.
Posted by: Benedetta | August 02, 2024 at 08:24 PM
Good morning to all! Our son has hoarding issues as well. He will collect used frozen pizza boxes, old frozen food packages. Also during the school year he takes an extra bag with him with many of these items. I think it eases his anxiety at school. Can we understand this anxiety/ compulsion? Maybe. You ever see an adult misplace or loose their cell phone? Multiply this times 100. And we get a small taste of what some of our children go through. Blessings to all.
Posted by: Gerardo Martinez | August 02, 2024 at 06:54 AM
Kim, I identify so much with your daughter's desire to have photos of all her favorite characters put on paper, sleeping with them, traveling everywhere with them and always wanting to print more and more of them. My son has similar behaviors and he also has a hoarding problem in his room that is filled with all his favorite stuffed animals that he won't part with. I think it gives them comfort and security and relief from anxiety and it is just part of the autism condition. We try to cope with it because we love them and want to see them happy. Glad she finally was able to forget about carrying them around and everything turned out fine.
Posted by: Gayle | August 01, 2024 at 09:28 AM
With all else that goes on with a human brain injured by vaccines, well there are some hoarder problems as well.
It takes your happiness away, it really can.
Posted by: Benedetta | July 31, 2024 at 10:44 PM
What is the purpose of this Age of Autism post?
Oh my god my daughter with autism likes Blue Clues! Who cares!?
The young lady can like whatever she wants to watch or listen to, autism or not. I like some kids show so do many other adults I watched Pokémon until my early twenties. I like the character design of Dragon Tales a show with cute Asian looking Latino kids and their silly adventures from PBS kids channel.
Posted by: Bill | July 31, 2024 at 04:56 PM