A few times now when I'm scheduled to leave the house later than usual, something has happened with Ronan - a fever, a possible seizure (they can happen so fast), or a wonky episode of something worrisome (I don't know yet what to call it). It happened again one day last week. Ronan looked confused, held his head, closed his eyes and looked wobbly on his feet. I was worried, since it – whatever it was, came out of the blue.
While getting him off his feet and to the couch, I sat next to him, ready to administer emergency seizure medication, should it be a seizure. I was ready to clean up throw up, should it have been an upset tummy rumbling. But Ronan, who could only grip my arms as I reached out to hold him, laid on the couch and drifted off to sleep. He ended up taking two naps, even though he’d had a great night of sleep.
The day that happened, I wasn’t scheduled to leave the house until 1:00.
The time before, he was also wobbly on his feet and knew something was different – but couldn’t express anything but a worried look on his face. Ronan had woken up that day and was fine but then wasn’t. That day was the first day that my work hours had changed, and I happened to be home. Both times, I didn't know it, whatever it is, was going to happen, but God knew I needed to be with my bud. I got to hold his hand, to calm his nerves, to settle him quickly, to watch him quietly fall back asleep to witnessing him wake up refreshed as if nothing worrisome or wonky had just happened.
I’ve spent the last few days trying to figure out what triggered the odd episodes. We haven’t changed brands of foods he and I have for breakfast. The supplements taken are the same as always. Other products found in a home – laundry soap, dish soap, bath soap and more, are all the same. Granted, we had the huge medication fiasco a few weeks ago, but this happened while on generics and since he’s been back on his regular doses and brands. I joked with a friend when I knew I’d be home all morning again, “I hope nothing happens to Ronan while I’m home past lunchtime!” All joking aside, it’s just so odd and definitely something I definitely need to track.
I was thankful I was home both times. I truly felt like I was at the right place at the right time.
Another time, I was thankful for something that wasn’t supposed to happen. It was more of a wrong place, right time sort of story (and has nothing to do with the recent events)…
A right place, right time moment usually leads to something positive. A wrong place, wrong time moment has usually led to a negative outcome. A few years ago, I had a "wrong place, right time" moment, and I'm glad that I did.
After getting Ronan buckled in the car, I said to our therapists who had come to the house to work with us that morning, "I have to run back inside to get my coffee. Oh, and to get the iPad, too. He'll use it on our drive back." As I remembered where we were headed, I realized that we were coming straight home. We were not going off on the errand that we sometimes would do after this appointment. Realizing that I wouldn't need to bring the iPad, I said, "Wait. I don't need the iPad; we're coming home right after his appointment."
I went back in the house.
I grabbed my coffee.
Then I grabbed the iPad.
As I unplugged it from the charger, I remembered what I had just said. Geez!! "I don't need this," I said to myself and walked out of the house. Saying goodbye to the therapist, I got in the car, put on my seatbelt, and drove off.
I was a minute later leaving the house than I'd planned.
Ronan and I got on our way. About to turn out of our neighborhood, I saw traffic immediately slow down. Then, it completely stopped. I could see why. Looking and then creeping very, very slowly past the scene, my heart skipped a beat. A car had flipped and was facing on-coming traffic in the exact lane that I needed. A sedan, with what looked like smoke coming from the undercarriage, was resting on its side half in the lane, half in the shoulder.
Traffic was heavy that day, and it was raining. Maybe those were factors that contributed to the accident. Surely, other factors could've contributed, too. Perhaps it was a distraction - like texting, or putting on make-up, or reaching for something that had fallen, or reading a book. As odd as that sounds, it's not too far-fetched. My kids have seen a few drivers holding and reading books while driving!
I didn't see how the wreck happened, but whatever caused this car to flip and land in our lane, I believe that me running back into the house for the coffee and the iPad helped us miss being hit by mere seconds. At the scene, people were starting to park along the side of the road. Some drivers were coming out of their cars and began running to assist. Other cars had also stopped, but they were still in the roadway. Those drivers were also beginning to get out of their vehicles. They looked too stunned to do anything though.
One on-looker just stood and stared.
Another began to cry.
Once we cleared the area, I focused on where we were headed and resume my speed. I got us underway again and began praying.
Daily, we say the Guardian Angel prayer. Angel of God, my guardian dear... I actually say it quite often. I'm in and out of the car several times a day as I pick up kids from school, take them to or from after school activities, as I run errands, as I get Ronan to therapy. I'm on the road a lot. The kids and I are on the road a lot together. I can be as safe as safe can be, but I make sure to be on the constant look out for potential trouble spots and for bad drivers wherever we go. Before even getting on the road, I know that I can ask for some spiritual assistance and oftentimes do.
I did that the other day when Ronan got wobbly. I prayed tons and tons of prayers that day. I also thought of what to do should I need to call the paramedics. I didn’t get that feeling the first time he’d had the odd episode. I hope I won’t have to, should there be a next time. I’ll be hitting the books, so to speak, turning back into a medical detective just in case there is a next time. It’s been awhile since I’ve had to look things up like this. That’s because Ronan’s been doing okay.
When he’s okay, I read about other topics, not usually ones about seizures, migraines, or sudden onset of fatigue. But those will be topics I dive into this week. I don’t think it a coincidence that this image popped up when it did this week. Hopefully the research I’ll get to do will provide useful answers, ones that’ll help me help my son.
Cathy Jameson is a Contributing Editor for Age of Autism.
In his foreword, Kennedy alerts readers to the undeniable fact that the persecution of those who tell uncomfortable truths, which Ibsen described over one hundred years ago, continues to this day and is as relevant now as ever. We face environmental deregulation and degradation, politicians in lobbyists’ pockets, attacks on facts that are agreed upon by reputable scientists, corporate funded and controlled research, and attempts to impede and suppress whistleblowers. The battle continues and Kennedy joins Ibsen on the front lines.
I meant my son missed three days of work, not three weeks, but he had to miss work again.
They are hiring him finally full time next week.
Will there be health insurance? I am unsure.
Cathy since it is March, it might be something to consider. Extra vitamin D.
Most not all seizures seem to be in the fall and especially late winter and early spring.
I wonder if Kim got her Sauna for her girls? She was convinced and maybe I should be too that it is a good thing.
Posted by: Benedetta | March 05, 2023 at 06:17 PM
Pray without ceasing.
I Thessalonians 5:17
Having a child with autism can remind us to fulfill this command.
Cathy, I am praying that God would give you wisdom needed to solve this worrisome puzzle for Ronan. Perhaps the switch from generic to name brand has triggered it? Is the production quality of the name brand the same as in the past? So much has been affected since Covid.
Posted by: Emmaphiladelphia | March 05, 2023 at 06:08 PM
So glad you and Ronan are safe. I often fail to see God's hand at work in our daily lives, but it is in every minute and thing that we do. I don't like to think about it, but God's hand was a play, when our Sam eloped from our home last summer- Gone for 4 hours and found unharmed 3.5 miles away. He crossed several major intersections at night. How close did he come to harm? The savvy Police Officer who posted about him missing on their facebook page, the citizen who's empty car He got in after exhaustion set in, happened to see the posting and called the local Police. The longest night of our lives. It could have ended so differently.
Your posting reminds me to take each moment/minute with our family as a miracle/treat it like the special moment that it is. Now even though I am deep in work if my youngest(Sam's brother) is saying something to me, I stop and push the work away and listen, really listen to him and engage in a conversation. It really has made a diffence. Thank you for another great article.
Blessing to us all and may the Lord keep us all safe and healthy this year!
Posted by: Gerardo Martinez | March 05, 2023 at 03:15 PM
Well my son had strep again this past week and missed three weeks of work. He was really sick too, with chills and high fever.
This is the fifth time since September. He had covid then and strep.
Strep is an on going problem here.
2020 from Jan to June he had OCD from a strep infection.
I thought then that the seizure medicine was lowering his immune system. We have since been off of seizure medicines for the past two years.
March is a bad time of the year. It has been a long time since August and vitamin D through our skins. That might be the problem?
I have started giving vitamin D twice a day now.
Posted by: Benedetta | March 05, 2023 at 03:00 PM