Is Severe Autism Measured Adequately? New Commentary Believes there’s a Better Way to Measure How the Condition Impacts Life - see the article below from the Safeminds site.
Maybe ask AND BELIEVE the parents who have been shouting for 2 decades, instead of telling us to ACCEPT! ACCEPT! ACCEPT! And stop gaslighting our children's PLIGHT away into a supper dee duper Swiss Army knife set of self-selected differences. We acknowledge and support families and individuals any and everywhere on the spectrum. But let there be no doubt, the most affected, and certainly those who regressed following vaccine injury, have been marginalized and all but vaporized by the "approved" narrative. The puzzle piece has been cast aside for a rainbow infinity symbol - a visual slap in the face. Remember that in 2012, the DSM V removed Asperger's as a diagnosis. Many of our kids were diagnosed PDD-NOS as tots, Pervasive Developmental Disorder - Not Other Specified. Wasn't the code 299.0 - and rarely did insurance cover anything? The changes to terminology have confused everyone. We're happy to see strides to better measure - but honestly, if experts listened to the experienced voices of parents of kids across the spectrum, we might be in a much better place. Thanks to Safeminds for featuring this info.
A new commentary featured in the journal, Autism Research, calls for a more effective way of measuring severe autism that details specifically how an individual’s autism severity level impacts their life. Autism severity is currently defined and measured based exclusively on the levels of two core symptom domains: social-communication and restrictive or repetitive patterns of behaviors and interests. However, the commentary’s authors point out that people with autism are often diagnosed with other medical, developmental, and psychological co-occurring conditions. These additional challenges may include intellectual disability, limited expressive and/or receptive language, and anxiety disorders. All of which can have a significant impact on day-to-day life. The authors also indicate that core symptoms and co-occurring conditions interact across development, influencing the other’s trajectory over time. Due to these reasons, the team believes that a multidimensional, measurable definition of autism severity could be helpful.
Especially for identifying unique subgroups of individuals for clinical purposes, determining individual needs and strengths in clinical assessments, and developing intervention goals and plans that involve all the different aspects and challenges relevant to the life of a person with autism. They believe a promising avenue for measuring autism severity would be a core outcome set (COS) for autism that defines the domains of a condition most relevant to clinicians, caregivers, and individuals with autism. The authors mention that the International Consortium of Health Outcome Measurement recently developed a COS. This COS characterizes core symptoms (social communication and restrictive or repetitive behaviors), adaptive skills, family functioning, sleep, and anxiety. The set also examines other neurodevelopmental disorders and general quality of life. The authors hope that other organizations or institutions will duplicate the COS system for severe autism, enabling researchers and clinicians to comprehensively characterize the individual and select treatments and therapies that are most relevant to their basic biological needs.
By Edward Dowd
Follow Ed Dowd on Twitter for in depth coverage of the problems facing the banking & capital markets today. @DowdEdward
The book begins with a close look at the actual human reality behind the statistics, and when you see the people who are represented by the dry term Excess Mortality, it’s difficult to accept so many unexpected sudden deaths of young athletes, known to be the healthiest among us. Similarly, when lots of healthy teenagers and young adults die in their sleep without obvious reason, collapse and die on a family outing, or fall down dead while playing sports, that all by itself raises an immediate public health concern. Or at least it used to.
Ask yourself if you recall seeing these kinds of things occurring during your own life—in junior high? In high school? In college? How many times in your life did you hear of a performer dropping dead on stage in mid-performance? Your own life experience and intuition will tell you that what you’re about to see is not normal.
Or at least it wasn’t normal before 2021.
The War on Ivermectin
By Dr. Pierre Kory
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Big Pharma and health agencies cry "Don't take ivermectin!" A media storm follows. Why then, does the science say the opposite?
Ivermectin is a dirty word in the media. The drug has been derided and declared useless. Doctors have earnestly recorded pleas asking those afflicted with COVID-19 not to take the drug. But why?
The War on Ivermectin is the personal and professional narrative of Dr. Pierre Kory, the co-founder of an expert group of physicians’, and his plight to alert the world of his group's identification of ivermectin as a highly-effective, life-saving, widely available generic medicine with an obvious ability to end the global pandemic. In this book, Dr. Kory details all the personal attacks, professional setbacks, and concerted, corrupt, and highly effective actions which influenced the world’s major health agencies and medical journals to dismiss and deny it’s efficacy.