By Cathy Jameson

The good news is that the medication we were so desperately waiting for finally arrived.  The even better news is that Ronan fared better than I expected as the long weeks of waiting dragged out.  During that time, I dreaded making additional calls to the specialty pharmacist.  I hesitated to send more emails to the nurses while waiting for updates on the medication delay.  It was important that I reached out, even though the news remained completely gloomy from mid-December to early February. 

It was the first time in a very long time that I was not feeling my usual hopefully ever after self. 

As the expected date of availability approached, I reread my notes.  Since the beginning of the ordeal, Ronan’s script had been changed and sent to multiple pharmacies.  We did that thinking that someone, anyone at one point, would have the name brand meds on hand.  From our community to each corner of the United States we were told no, the name brand supply was gone.  While trying to go the traditional route to fill the prescription, others thought outside the box for me.  People offered to go out of country and find the pills elsewhere.  Others, while traveling overseas on other continents, thought to do the same.  I’ve shared already how floored I was that friends and complete strangers leapt at the chance to help my son.   

I’m beyond grateful still that they thought to do that.

Since the medication arrived on February 9^th, a few days earlier than originally expected, a friend shared that she’d gone to Lourdes.  She specifically prayed for us and for the very special intention we asked others to pray – that Ronan’s medication get to him without any further delays.  She included another intention we were praying at the same time – that we find a suitable replacement for our caregiver who’s moving onto a new job.  I wasn’t aware that this friend had traveled to Lourdes, a pilgrimage site in France, but the time that she was there coincides when the medication issue was resolved.  It also corresponds to when we met and offered the caregiver position to an ideal candidate who came with the highest of recommendations. 

Switch my feelings of being floored to experiencing indescribable joy.