Earlier this week I had a phone chat with a young Mom of three children under 9, each with diagnosable needs, one including autism. She asked me the same question I screamed at the four walls of my house 26 years ago: "WHERE DO I START?" Nothing has changed for parents who have newly diagnosed kids. Decades of "learn the signs" has added up to zilch. Pediatricians have no tools to offer in their toolbox except "Call school. Or Early Intervention."
Parents are left to make life changing choices for their kids with no guidance. Insurance payments are a crapshoot. Families hemorrhage money, assuming they can pay out of pocket. All of this sounds familiar, yes?
There isn't another diagnosis in the world that comes with so little support. I suggested the TACA website as a great starting point. And National Autism Association. Between them, they cover a wide range of topics parents need. But really, should a child's future be subject to a referral by a friend of a friend of a friend who knows someone? In this case me?
Why is this still happening?
Cause Unknown The Epidemic of Sudden Deaths in 2021 & 2022
By Ed Dowd, from Skyhorse Publishing. The CEO of the OneAmerica insurance company publicly disclosed that during the third and fourth quarters of 2021, death in people of working age (18–64) was 40 percent higher than it was before the pandemic.