Cathy has today off. 21 years ago, I dressed Bella as a football while Mia and Gianna were Boston College (my alma mater) cheerleaders. Mia and Gianna had been diagnosed with PDD one year prior. Do you remember the early days of diagnosis - before the Internet was ubiquitous? I sure do. Lonely. Frightening. Dark. More trick than treat. I'm not sure much has changed for families facing a diagnosis, despite our best efforts. There is still no real roadmap. Services are luck of location and staffing. There's no St. Jude. No Make a Wish. Not for us. Many of us found Yahoo groups like Tough Nuts and Old Timers and BioMedHeads, my old group. We knew ARI had answers and we went to conferences. Despite the Internet, I feel like we are more isolated than ever. Social Media cannot replace face time, even via.... Facetime.
Still, we need to continue to help families, because I fear we are going to see an onslaught of something very dark for children soon. It might not be autism per se. But something wicked this way comes.
Not the cheeriest Sunday post, but a reminder of why Age of Autism is still here. Why TACA and NAA are still here. We're needed. We do not leave others behind. Kim