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Making an Impact

Listen to themBy Cathy Jameson

As the world outside my front door becomes more and more unrecognizable, I was able to find something good to dwell on last week.  Ronan was given a great compliment.  I was, too.  We heard these at an appointment from a specialist who’s been providing some of Ronan’s care. 

Stopping at the doorway of the exam room and smiling toward Ronan, the GI doctor said, “You look great!  It looks like you grew since last time we saw you here.”

“Yep, in height *and* weight”, I happily said.

A few winters ago, Ronan landed in the ER.  Long-time readers will remember that story and how a typical day went from bad to worse: 

From The Perfect Patient December 2019 The team of nurses and doctors were quick to help alleviate one of the problems, but we all agreed that with all of Ronan’s existing medical issues and complications, we were in the wrong place.  Ronan would need to be elsewhere with a team of pediatric specialists who could evaluate and treat him.  Not wanting to waste any more time, an immediate Emergency Room-to-Emergency Room transfer was ordered. 

I’ve never had to follow an ambulance that was transporting one of my children.  I hope I never have to again…

Readers may also recall that, with the help of some quick thinking medical people, things got a bit better.

…the team of compassionate caregivers and medical staff assigned to his care exceeded our expectations.  I lost count of how many we’d encountered, but over the course of the two days he was admitted, at least 30 people personally evaluated, managed, and executed multiple tests and procedures for my son.  That constant, direct care helped ease our minds.  They collaborated and kept us informed of everything as things were happening throughout the stay.  Best of all, they were able to determine what the major issue was that brought us to them, which meant that they could send us home with a treatment plan!    

We’ve continued to keep in touch with the lead doctor and remain comfortable with the advice Ronan’s received under his care.  Dr. M’s immediate response then, and his active involvement now, have helped keep us on a good path. 

While driving to that recent appointment, I reflected on the problems Ronan had that brought us to this exceptional doctor.  They existed long before Ronan landed in the ER at the children’s hospital.  Ironically, we’d had an existing appointment with his office booked for the next month, but we were blessed that we didn’t have to wait for it.  Dr. M could treat the acute problems, and he wanted to begin treating the chronic issues no one else cared to.  We were speechless.  Once we found our voices, we said, yes, of course, please.  Please help us help our son.

Doctors we’d approached years before brushed off all gastro problems, even though GI symptoms and simple-to-treat diagnoses were more than obvious.  I’ll never forget the time when a much sought after specialists told me he didn’t know why Ronan was having trouble pooping.  Kids with more severe problems were receiving expert care from this doctor and his team.  We’d hoped for the same, but after 2 appointments, we hit a dead end.  At the sink while washing his hands after examining Ronan, that doctor literally washed his hands of us when he said, “It’s part of the autism.  Talk to the autism doctor about it.” 

I hinted, “But…it’s a pooping problem…can’t you address that?” 

No, the GI doctor couldn’t. 

And no, the GI doctor wouldn’t. 

Then he walked out on us. 

After that failed attempt, I tried working with another doctor at a large GI clinic.  We didn’t get in to see the attending like I’d requested but were offered an appointment with a resident.  Promised that she would be just as professional as the ‘expert’, I agreed to drive the two hours to see her. 

After explaining as much medical history as I could and offering that Miralax, the go-to remedy at the time, did not work for my son, that doctor said she could help.  Oh, thank the Lord!  I thought, because we really do need some help.  That’s when the young doctor excitedly went to a cabinet and pulled out a poster.  On it was an enlarged illustration of the bowels with the words MEGA COLON across the top.  Other words, like impaction and constipation were listed also.  Giving me what sounded like memorized textbook definition of these GI problems, I politely said to her, “Yes, I know what they are,” I began, “and they’re exactly what I just described to you.” 

“OH!” She said even more excitedly, “Then let’s get him to try Miralax.”

Baffled, I said, “But I just told you he didn’t respond to that, and that we’ve tried it several times.  It even worsened the problem,” I explained.

“Oh,” the young doctor answered much less enthusiastically.  “Well, if you don’t want to use it again, I don’t have anything else I can offer you.”

I started, “…you guys came highly recommended.  I’ve heard you do testing, like motility testing, and some have said you’re beginning to do things with pill cams.  Could my son be a candidate for some further testing?”

“No.  I can only offer you Miralax,” she said.

“He’s not going on that again.  I told you, it didn’t work,” I answered as I began to pack up our things.  “Can I speak to one of the other doctors if you can’t help us?”  She didn’t think so.  They wouldn’t do anything besides the Miralax either.  She told me that we’d have to try that first.  Again.  Even though it didn’t work. 

I can usually recognize when an appointment heads in the wrong direction.  I was stunned that this clinic, also highly recommended, focused on the autism and used it almost like an excuse.

“Well, it’s probably the autism that’s causing it…” the young doctor began. 

I cut her off, “You can’t say that if you don’t bother to look deeper,” and then we walked out on her. 

It’s true that some GI issues may accompany an autism diagnosis, but those issues should be, and can be, treated independent of an autism diagnosis.  Had that been a priority for doctors who saw Ronan after those initial disappointing encounters, things Ronan has had to deal with might not have gone from bad to worse. 

But they did. 

And he’s still getting through some of it.  

Which is why we keep people like Dr. M in our back pocket.  He’s quick.  He’s helpful.  He’s kind.  He’s able to see that yes, major disabilities and other serious medical complications exists.  But he’s also able to see that his expertise can address, treat, and even help improve some of the GI issues that linger. 

Ronan’s definitely made progress since that awful day back in 2019.  Dr. M made note of that when we both recalled how scary that ER encounter was.  It was awful.  I was overjoyed, though, when he then said, “Mom, Dad, you guys are doing great!  From a nutritional standpoint, keep doing what you’re doing.”  As much as I’d like to not have to puree Ronan’s meals due to the type of GI and swallowing problems he has, we’ll keep doing that.  He’s still not able to eat independently nor use the toilet completely on his own right now.  But we have a team who’s given us access to supplies and useful suggestions for us to try.  At each appointment since that really bad day, Dr. M and his team have been willing to go beyond our expectations to help us. 

“Can I do anything else for you?  Do you need refills, for me to order anything, or sign any paperwork?  I can do that today, or later if you think of something…”  How refreshing to be welcomed to a medical facility with open arms and to be offered more care than I expected. 

Times are tough for so many people right now.  Things may be tough for this doctor, but he didn’t let the outside world influence or interfere with how he treated me or my child.  After we returned home, I thanked God for humans, like Dr. M, who go out of their way to build people up instead of tear them down.  We don’t have to go back to the clinic for another 6 months, but I will look forward to seeing how much more progress Ronan can make by then.  I’ll also look forward to being able to share that information with a doctor who truly cares about my son and others like him.

Cathy Jameson is a Contributing Editor for Age of Autism.



This is a brilliant gastroenterologist based in Bern, Switzerland (fluent in English). Perhaps he could do an online consultation:

G. Martinez

Hello. It is so beautiful when the medical system works the way it is suppose too. Doctors, nurses and other medical staff correctly identifying a medical need and actually treating some of the root causes of Ronan's body. If only we had more medical folks like the ones described in the story. Blessings to all!
G. Martinez


Gall bladder.
It has become all to clear that if the gall bladder gets involved, then my son will not longer be able to lightly go in and out of ketosis with intermittent fasting. So far, no more seizures, and on no seizure meds. But anxiety is a big problem.


Just grinding up food - is that all or is there more?

Gall bladder problems is what I worry about too. IF the gall bladder goes and it has for young teenagers that were friends of my daughter's when she was young. They were just teenagers. I also I have seen that really close up and personal, that is what eventually got my father. He had neurological illness of Parkinson, believe me the gut is messed up all the tie with at illness I ground up his food for years too. Adding coconut cream or milk in those cans makes everything takes better and smooth the food out better. Give it a try, unless you already know.

With my father's disease advanced; he was coughing and throwing up brownish red stuff. A trip to the ER ended with a hospital stay and a feeding tube in his stomach which was better than the feeding tube they put down his nose. I think they broke it. That turned out not to be why he was so sick It was his gall bladder . Because of his age, they would not remove his gall bladder, or the stones, , but put a drain in. Another tube. He kept it in for 15 months till it came out, and they told me to watch him. He did not last long without it. a mere two weeks. I was hoping it was better, I had been giving him a supplement that dissolve stones for over a year. When the tube came out, I asked the doctor for the prescription kind and he gave it to me.

So, I think maybe? We should all get on a bus with our children, and go to Arizona to see that Phd Adams and see if we can get into his protocol. He is giving antibiotics along with fecal pill transplant ? I mean if the microbiome is all about putting a methyl group on all our food to make it all more bioavailable - and plus it blocks viruses (at least I think it can fro reading that new book out "Ending the Plague of Dr. Judy A. Mikovits and Kent Heckenlively and this time with Dr. Francis W. Ruscetti"; then it could be all about methylation after all.

That is what one of the 22 amino acids cysteine is all about, that we are taking for a hosts of things. . N acetyl cysteine they are trying to ban cause they have put on an acetyl group that makes it more bioavailable. They want to make it prescription. Darn their black hearts.

Avril A Dannenbaum

Reading this triggered me. It's been twenty years since I was fighting to get respect for my son's physical ailments. Ever since they destroyed Dr. W's reputation, mainstream medicine had denied the connection of gut problems and autism. It took a good doctor who was looking for lympo-nodular hyperplasia to get my son on the right medication which allowed him pain relief and bowel control. I am pleased that you have found some good doctors. Hang in there!


A story about a good doctor... So rare in today's world, and so welcome. Thank you for sharing this story, and I'm so happy to hear that some things are trending in the right direction for your son.

The Gospel for today is "whoever is not against us is for us," which seems just about right.

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