As the first wave of the 1990s autism epidemic ages into adulthood, we can expect chaos more than care. We've weathered decades of a complete misunderstanding of autism. Autism Speaks took over Cure Autism Now and the focus and dollars went to awareness and genetics testing. Neurodiversity groups like ASAN focused on acceptance AS IS and related only to the highest functioning of the community. "As is" is pretty awful for many with autism. That's painful to type, as a parent. We will have a deluge of adults with autism in the coming decades.
Many will be born to the anxiety generation - young adults themselves hardly able to cope, make decisions, problem solve, and think outside the box. I see parent after parent of grade school kids asking if there is a residential option, the behavior at home is "too much." And it may well be - most of us have lived it. Age of Autism has been sounding the alarm for almost 15 years. Anne Dachel continues to track thousands of stories of school districts under siege, families lost as sea, states struggling to provide a modicum of services. And how COVID has thrown a monkey wrench into everything. Schools are hardly perfect. Adult care is a disaster. With no answers in sight.
Check out this story from New York from The Times Union. Worry.
State seeks to move severely autistic clients to secure facility
Lawmakers, parents say state agency exploiting 'loophole' that prevents disabled from receiving least restrictive care
Brendan J. Lyons
Sep. 12, 2021
ALBANY — The parents of adults afflicted with conditions such as severe autism say they are being forced by a state agency to choose between sending their child to a fenced-in institutional facility in the far reaches of the Adirondacks, or face the prospect of losing funding for their long-term care.
The situation has rankled a group of state lawmakers who say the practice, put in place under former Gov. Andrew M. Cuomo, is an apparent cost-saving measure that exploits a loophole in a 2014 law designed to give parents due-process rights in decisions about long-term care for their children when they reach age 21.
Some parents say they've been left with no alternative to sending their disabled children to what they feel is a remote and prison-like facility that apparently houses individuals convicted of crimes such as child sexual abuse or those who have been deemed incompetent to stand trial. Read more here.