Pediatricians Refuse To Care for Children
An Arm For Every Shot! President Trump Declares "Massive" Supply Coming

The Forgotten Americans: Those with Intellectual Disabillities

All aloneThanks to SafeMinds for bringing this article to readers. It's true, from coast to coast, red states, blue states, purple states alike - our loved ones with special needs are suffering. And for most of us, that means WE ARE TOO.  Sure, we suck it up. We act like we can handle anything. We adore and cherish our kids. Yadda, yadda. But the fact of the matter is..... we're human.  I have worked all three shifts of a 3 person day program for months. My break? 2 night every 3 to 4 weeks when the ladies see their Dad.  Can I do it? You betcha.  Is it my preference for my daughters first and foremost?  No.   They need their outlets outside the home. Without schools and programs, many families face danger, exhaustion, and breakdowns. Ugly. We know it. I'm fortunate. My older daughters' day programming opened up. They attend 3  days a week. My youngest has a working outline of a school program, but it has not started yet, except for 40 minutes of OT and speech.  Which are provided in my home, exactly like early intervention.  So now I make another pot of coffee and clean up the kitchen before each visit. Families of adults in group homes have been devastated by the lack of ability to see their sons and daughters. COVID has taken a steep toll on all of us. How are you managing?

###

September 17, 2020

“Few are more adversely affected by COVID-19” than individuals with IDD

A letter published recently in the American Journal of Psychiatry on behalf of the directors of the nation’s 13 intellectual and developmental disabilities research centers — which are funded by the National Institutes of Health — is sounding the alarm about the devastating impact the pandemic has had on an already vulnerable population.  Click here to continue.

Comments

Emmaphiladelphia

“Although there is public awareness of some of the challenges imposed by the pandemic on individuals with disabilities, the totality of the impact on a family or a person with such disabilities can go unrecognized, even by professionals,”

There may be a test for that.

UC Berkeley School of Public Health researcher Amani M. Allen is doing ground-breaking work on the health impact (allostatic load) of prolonged racial discrimination environments. It is basically a measure of cumulative biological stress. According to Allen, "limited attention has been given to psychosocial processes involved in the stress response- critical for understanding biological pathways to health..." In her research she measures for various byproducts of prolonged "fight or flight" response. Perhaps she could expand her research to measure these levels in individuals with an autism diagnosis as well as levels in their caregivers. This could bring further attention to our plight.

https://vcresearch:berkeley.edu/faculty/amani-m-allen

"Racial discrimination, the superwoman schema, and allostatic load: exploring an integrative stress-coping model among African American women" pub. August 12, 2019

Verify your Comment

Previewing your Comment

This is only a preview. Your comment has not yet been posted.

Working...
Your comment could not be posted. Error type:
Your comment has been saved. Comments are moderated and will not appear until approved by the author. Post another comment

The letters and numbers you entered did not match the image. Please try again.

As a final step before posting your comment, enter the letters and numbers you see in the image below. This prevents automated programs from posting comments.

Having trouble reading this image? View an alternate.

Working...

Post a comment

Comments are moderated, and will not appear until the author has approved them.

Your Information

(Name and email address are required. Email address will not be displayed with the comment.)