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Tag! You're It! Infection

SwingBy Cathy Jameson

I was at the playground with youngest the other day.  It was one of the first real fall days we’ve had and a perfect day to spend outdoors.  As my daughter and I held hands walking from the parking lot to the playground, I could see a bunch of kids running all over the place.  Some were climbing, others were sliding, and a large group was playing tag.  Some stood still as if they had been frozen.  Ah, Freeze Tag.  I remember it well.  But when I got closer, I listened to what the kids were saying – Help, infection!  Do you need healing?  Yes, save me!  What an odd conversation.  I slowed down my pace so I could keep watching.  With a simple touch, the Healer tapped an infected boy.  That simple tap released him from his frozen stance.  What an odd game! 

I later learned that it wasn’t Freeze Tag.  It was a game called Infection.  I remember my oldest daughter telling me about the game back when she was still playing on the playground.  “It’s just like the original Tag game, and also like Freeze Tag, but has some different elements.” 

I’ll say it does! 

Instead of continuing our walk around the playground that beautiful fall day, I stuck around and quietly listened some more. 

“Help me!  I need healing!” another boy yelled to a group who’d just run past him.

“Don’t touch him…he’s infected!” a girl squealed as she scampered off.  Constant chatter could be heard as “zombie” kids zipped around the monkey bars toward the slide.  Push chair cj

RUN!

Who’s infected? 

She is! 

Who needs healing? 

Getting caught up in the excitement, I wanted to yell out, “Ronan does!”

Oh, how we’d love to see that happen.  One of my other daughters desperately wants her brother to be healed.  She and I stayed up late one night last week talking about Ronan.  Izzy had heard a conversation about vaccines and was curious about the adjuvants, like aluminum, that are added to some of them.  She knows that some kids cannot detox metals and could be worse post-vaccination than pre-vaccination. 

“Why do people think we’d be better off with all that stuff in our bodies?  It doesn’t make any sense,” she said.

I agreed. 

Izzy wants to learn more so that one day, when she’s a mom with kids, she will know what to avoid.  She knows I didn’t know enough years ago and that my lack of knowledge about diseases lead to making uninformed choices about vaccines.  That lack of knowledge lead to Ronan’s vaccine injury.  When it came to vaccinating, my choices turned out terribly.  Izzy is very aware of that and quietly listens in when she’s been in earshot of a vaccine convo I’m having with someone else.  She’s drawn to those conversations and craves more.  That’s because she knows that…

Had I known that some diseases weren’t as dangerous as others, I’d have avoided certain vaccines.  

Had I known that some diseases aren’t as scary as the media makes them out to be, I’d have thought twice about vaccinating altogether.

Had I known that some diseases can be treated with alternative means, I’d have started to look at alternative medicine much sooner than I actually did.

But I didn’t know all of that as a young mom.  And at the time, I didn’t have the wherewithal to look any of that important information up.  Now that I know more though, it’s like that game of Tag on the playground.  Izzy’s frozen.  She’s watching and waiting for someone to get her in the game.  But it’s not Tag, You’re It with an infection; it’s Tag, You’re It with knowledge.  She wants information now and for when she’s older, too.  Watching her big brother grow up without words, without skills, and without the same chance she has toward independence pains her.  If she could get some sort of healing for Ronan, I know Izzy would be the first one in line to get it.  In the meantime, she seeks to learn what I did not while praying daily and nightly for her big brother.  She asks that others will seek and pray, too. 

Drawing cj

Because sometimes, it feels like no matter what we do and no matter what we’ve tried, Ronan continues to be a non-responder compared to other kids.  While everyone else is running around the playground, he’s frozen standing in place.  He’s still plagued by seizures, by developmental delays, and by lack of speech while others are tagged Progressing!  Recovered! and Independent!  We literally jump for joy when we hear news that others have reached that independence.  We cheer so loudly when we see our friends’ kids going off into the world on their own.  Ronan’s far from that still, but we won’t ever give up on keeping at the chance to heal what ails him. 

For Ronan, we crave physical healing.  For us, and especially for my typical children, the healing we’d like is different – it’s an emotional healing from some of the difficulties experienced during this journey.  While they are some of the strongest humans I know, being an autism siblings isn’t a gift.  It’s hard.  It’s trying.  It’s frustrating.  All that said, it can be also rewarding.  And they will be the first to tell you that.  Always their first question when they come back home from school, How was Ronan’s day?? His siblings love to hear what he did that day and want to know how he’s feeling.  They love, care, and stand up for that brother of.  As they age and move into adulthood, I hope that they will continue to do that. 

So, like the kids frozen on the playground who were anxiously waiting to be healed from the infection, we’d gladly take a little bit of healing, too.  Until he’s blessed with that, we will continue to stand up for Ronan.  We will stay the course and search high and low for better outcomes for him while continuing to speak up about what happened to him also.  If we don’t, we’ll lose an opportunity to tag someone with knowledge, with valuable information and with hope.  As difficult as some days can be, we will always hold onto that hope.    

Cathy Jameson is a Contributing Editor for Age of Autism.

https://www.youtube.com/watch?v=yhlh4wINzJE

Comments

John Stone

Gayle

While I would be curious about the properties of these drugs I tend to think “fast track” is pretty bad news. Obviously, all things being equal if something helps you want it yesterday but I would want to know that anything given to my child was properly tested and monitored. That said I would also be worried about giving drugs to someone if they can’t tell you what it feels like, I would be worried about psychotropic drugs per se, I would be worried about long term side effects particularly if fast tracked, and I feel very troubled about a huge new market which pharma having created can exploit.

Grace Green

Gayle,
I'm sorry to say that pharmaceuticals are never a cure. As you say yourself, they treat the symptoms. Of course, if life is so miserable as it is for many who are vaccine injured, maybe treating the symptoms is better than nothing. But many of us find it's better to go the way of health promotion, rather than take the risk of compounding the problems with more poisons. If your hoped-for treatments prove me wrong I'll be delighted for any who are helped.

Cathy Jameson

Laura, I'm going to put that date and time on my calendar so Izzy and I can listen. Thank you, xoxo, Cat

Laura Hayes

Cathy,

I think Izzy would appreciate the presentation I will be giving on 11/2 in Utah. It will be live-streamed, and I will ask Kim to share the link here on AoA closer to the date. Perhaps Izzy can stay up a little late that night to listen in. I will be speaking from 7:00-8:15pm MST, and Andy Wakefield will be speaking after me. Hope you and Izzy can tune in :)

Grace Green

But what a terrible game! The BBC recently held a short story competition for children, and the excerpts I heard read out were all by kids suffering from trauma, deprived circumstances, depression and other ills. What on earth have we done to our children? I think this is a deeply systemic problem that we're living with. Any healing which takes place will have to start from a position of belief such as Cathy's, and even then of course, it's not guaranteed, just easier to bear.

Gayle

John-I have moments when I too have fears of things never changing for our children. However there are medications that legitimate companies are working on right now that have been given the Fast Track by the FDA. These drugs are the first ones to correct the core symptoms of autism and have shown excellent potential in clinical trials. They should be available in the near future and that is what gives me hope that a cure is coming very soon. Keep up the faith and I am doing the same. We can never give up on our children, especially now when a cure is closer than ever.

John Stone

Gayle

I wish I was as optimistic as you. I think some children have responded to biomed better than others and maybe they weren’t as profoundly damaged in the first place. It also came as rather a relief that the Autism Speaks industry “pe-competitive” consortium to find new autism drugs foundered - God knows what that might have unleashed? As it is the naturopath route has yielded more dividends. If we set out to cure autism in the way the US government did cancer 5 decades ago then we are truly lost.

Gayle

Cathy you are right that we will never give up hope for a cure for our vaccine damaged children. We need research and with the technology we have today it is possible for researchers to find the answer and finally cure our children of this terrible autism condition. My older son also desperately wants a cure just as your children do. We will never give up and one day that cure will come! God Bless you and your wonderful family.

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