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IACC Meeting September 27, Public Comments Invited

IaccThe purpose of the 2018 IACC Workshop: Addressing the Health Needs of People on the Autism Spectrum, is to convene a working group of the IACC that will focus on health needs and outcomes among people with autism spectrum disorder (ASD). The working group will use this workshop to discuss health epidemiology, patient-provider interactions, and co-occurring health conditions that affect people with ASD. The workshop will be open to the public, will include time for public comments, and will be accessible by live webcast and conference call.   Click here for complete details.

  Thursday, September 27, 2018
Time: 8:30 a.m. to 5:00 p.m. ET
Place: National Institute of Mental Health (NIMH)
6001 Executive Boulevard, Neuroscience Center (NSC)
Conference Rooms C, D and E
Rockville, MD 20850
Metro Stop: White Flint Metro Station (Red Line)
Registration: Pre-registration is recommended to expedite check-in. Seating in the meeting room is limited to room capacity and on a first come, first served basis. Onsite registration will also be available. Register
Remote Access: Conference Call:
Dial: 800-369-1744
Access code: 6697418
Webcast: https://videocast.nih.gov/live.asp?live=28242&bhcp=1ac
If you experience technical problems with the webcast or conference call, please call 240-668-0302 or e-mail IACCPublicInquiries@mail.nih.gov.

Agenda:The workshop will focus discussion on the health and wellness of people with ASD, including health epidemiology, patient-provider interaction, and the state of the science on commonly co-occurring health conditions affecting people on the autism spectrum.Cost:The meeting is free and open to the public.Deadlines:Notification of intent to present oral comments: Friday, September 14, 2018 by 5:00 p.m. ET

Submission of written/electronic statement for oral comments: Wednesday, September 19, 2018 by 5:00 p.m. ET

Submission of written comments: Wednesday, September 19, 2018 by 5:00 p.m. ET

Please note: Written public comments and statements accompanying oral public comments should be sent to IACCPublicInquiries@mail.nih.gov. For IACC Public Comment guidelines please see:https://iacc.hhs.gov/meetings/public-comments/guidelines/Public Comment:The IACC invites oral and written public comments relevant to the topic of the workshop. Individuals interested in presenting oral comments must notify the Contact Person listed on this notice by 5:00 p.m. ET on Friday, September 14, 2018 with their request to present oral comments at the meeting, and a written/electronic copy of the oral presentation/statement must be submitted by 5:00 p.m. ET on Wednesday, September 19, 2018. Expand for more down arrow
Please Note:Remote Access:
The meeting will be open to the public through a conference call phone number and webcast live on the Internet. Members of the public who participate using the conference call phone number will be able to listen to the meeting but will not be heard. If you experience any technical problems with the webcast or conference call, please call 240-668-0302 or e-mail IACCPublicInquiries@mail.nih.gov.

Special Accommodations:
Individuals who participate in person or by using these electronic services and who need special assistance, such as captioning of the conference call or other reasonable accommodations, should submit a request to the Contact Person listed on this notice at least 5 days prior to the meeting.

Security
Visitors will be asked to show one form of identification (for example, a government-issued photo ID, driver’s license, or passport) and to state the purpose of their visit. Also, as a part of security procedures, attendees should be prepared to present a photo ID at the meeting registration desk during the check-in process. Pre-registration is recommended. Seating will be limited to the room capacity and seats will be on a first come, first served basis, with expedited check-in for those who are pre-registered.

Meeting schedule subject to change.

Information about the IACC is available on the website: https://iacc.hhs.gov.

Contact Person:Ms. Angelice Mitrakas
Office of Autism Research Coordination
National Institute of Mental Health, NIH
6001 Executive Boulevard, NSC, Room 6183A
Rockville, Maryland 20852
Phone: 301-435-9269
E-mail: IACCPublicInquiries@mail.nih.gov



Comments

Beleaguered Autism Mom

Benedetta, according to the Autism Speaks:
4 out of 5 of those diagnosed with ASD have sleep disorders
20 to 40 percent of people diagnosed with ASD suffer from seizure disorders
30 percent of those diagnosed with ASD have anxiety disorders
According to the CDC, those diagnosed with ASD are:
3.5 times more likely to have chronic diarrhea or colitis (inflammation of the colon)
2.2 times more likely to have chronic severe headaches
1.8 times more likely to have asthma,
1.8 times more likely to have food allergies,
1.6 times more likely to have eczema or skin allergies
One in ten are taking medications to relieve ADHD symptoms
Older children and adults affected by ASD experience the potentially life-threatening condition known as catatonia. Catatonia stems from neurological changes that result in the inability to move normally, if at all. The person may become completely unresponsive and nonverbal despite being awake.

Benedetta

Some one please list the commonly co-occurring health conditions affecting people on the autism spectrum.

I

Brian James

March 11, 2014 Harvard: Fluoride Can Increase Autism and Attention Deficit Disorder

http://www.globalresearch.ca/harvard-fluoride-can-increase-autism-and-attention-deficit-disorder/5372893

The End Is Near...For Fluoride In Toronto!

http://www.youtube.com/watch?v=93fEgdjkDts

Neurobehavioral effects of developmental toxicity

http://www.thelancet.com/journals/laneur/article/PIIS1474-4422%2813%2970278-3/abstract

May 17, 2013 The Campaign to Fluoridate

http://www.globalresearch.ca/poison-is-treatment-the-campaign-to-fluoridate-america/31568

Fluoride Facts FLUORIDE FACT # 1

http://www.endfluoridetoronto.com/fluoride-facts/

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