Where's the HHS post celebrating Americans with cancer, like Steve Jobs. Yeah, he died and all, probably had a lot of pain and suffering too, but surely his battle with cancer was the impetus for his iSuccess! If we think for one moment that the old US Government, and perhaps this new one too, have any desire or drive to solve the rate of autism, we're morons. Every one of us. Celebrate people with autism like my girls? Of course. Celebrate their disability? Never. HHS says they want to remove obstacles - let them start with repealing the Vaccine Injury Compensation Act of 1986. You can hold your breath until you are blue in the face. The tone is so condescending it's laughable. KIM
Good riddance to April.
From The Health and Human Services of the US of America:
By Anne Dachel
This article, published by Health and Human Services and written by the new HHS Secretary, Dr. Tom Price, is about the "joys" of autism, and what got my immediate attention was the fact that he DIDN'T KNOW THE TRUE INCREASE IN AUTISM.
Price: "In recent years, as the number of children diagnosed with autism has steadily increased – more than doubling from about 1 in 150 children in 2000 to 1 in 68 in 2012."
This is a list of the official increases in the autism rate. One in 150 didn't come along until 2007. It's a lot more than "doubling" from one in 500, the actual rate in 2000. Furthermore, the one in 68 was announced in 2014, not 2012.
How could the new HHS secretary be so off on the numbers about such a widespread condition? The truth is, when it comes to autism, NO ONE REALLY CARES. It's all pretend.
Notice the references to children, kids, and young adults with autism, all the while pretending that we're talking about "Americans with autism." So why isn't Price addressing the needs of 40, 50 and 60 year old autistic people in group homes or adult day care? How about the two percent of the elderly that are supposed to also have autism?
What are "the barriers between children with autism and their doctors"? Huh? I thought DOCTORS were responsible for all the autism everywhere with all their "better diagnosing." Are they still confused about autism? Tom Price seems to be.
Price's goal for those with autism is "to enhance heir quality of life and maximize their health and social outcomes."
Notice there's no mention of finding the cause or preventing autism. According to Price, autism is part of life and we just need to accept it. Nothing is wrong if it's your child. It's just the way things are.
Regressive autism? Normal kids losing skills, getting sick, getting diagnosed with autism. Mums the words. We don't want to discuss it. Price says nothing about it.
Officials tell us that 25 percent of children with autism are non-verbal. Furthermore, 30 percent of them experienced a loss of learned skills and regression into autism. And 50 percent of children with autism are prone to wandering. Is Tom Price aware of any of this?
What about all the really sick kids with autism? Those with seizures, bowel problems, allergies, sleep disorders. Hardly part of the "joy" Price is talking about.
Autism continues to be something to celebrate, unless of course you're someone living with it.
My questions for Dr. Price: You're 62 years old. How many autistic kids did you know growing up? As a medical student, did you learn about kids with the symptoms of autism?
Thirty years ago, how many children with autism did you encounter as an orthopedic surgeon at Emory? How do you explain the steady increase in the number of children with autism? Are you worried?
By Tom Price, HHS Sec.
This month we celebrated Autism Awareness Month to honor our fellow Americans living with autism for the joy they bring to our lives and their incomparable contributions to our society. From coast to coast, we have seen homes, businesses, and national landmarks – including the White House – illuminated in the iconic blue light of the campaign to raise awareness of the opportunities and the challenges facing individuals with autism spectrum disorder (ASD) and their families. ...
The heroes of this story are the countless moms and dads, sisters and brothers, teachers, physicians, behavioral therapists, and researchers who have dedicated their lives to supporting individuals with autism, helping them live with dignity and fulfill their God-given potential. Along the way, the Department of Health and Human Services has played a critical supporting role in this effort.
The men and women of HHS understand that no government program can replace the work done by those directly responsible for the health and well-being of children with autism. There is no substitute for the energy, ingenuity, and compassion of family members, doctors, educators, and service providers who know best how to meet the unique needs of every individual. So, at HHS, we focus our work on helping remove any obstacles standing in their way.
That begins with identifying and breaking down the barriers between children with autism and their doctors.
Parents are willing to go to the ends of the earth to ensure their children receive the medical care and services they need. But this can be more than a full-time job for parents of kids with autism, who face the major challenge of trying to coordinate all of the various treatments from the host of doctors and therapists involved in their child’s care. The last thing these parents need is the added stress of not knowing whether their son or daughter’s medical care will be covered by insurance. That’s why HHS’s Medicaid program reimburses families for many healthcare services that help improve their child’s physical and mental development. ...
But for all the progress that we’ve made in recent years, our work is far from complete. There is always the need for fresh thinking, cooperative action, and innovative solutions. We still have much to learn about autism and other neurodevelopmental disabilities. And we also need to look closely at how our health and social service systems can better assist young Americans with autism as they age into adulthood and try to start independent lives.
In recent years, as the number of children diagnosed with autism has steadily increased – more than doubling from about 1 in 150 children in 2000 to 1 in 68 in 2012 – most of the support services available to families have been provided through local school systems. But in the next 10 years, estimates suggest that more than half a million youth with autism will celebrate their 18th birthday, a key milestone in their transition to independent living.
Redefining models of service and healthcare delivery to accommodate the upcoming surge of young adults with autism is especially important considering the heightened health risks people living on the autism spectrum face. Recent research suggests that adults with autism are nine times more likely to die from suicide; they also face elevated risk for conditions such as depression and anxiety, as well as other chronic conditions including type 2 diabetes and heart disease.
That’s why, as a physician and as Secretary of HHS, I pledge to do everything we can to assist Americans with autism – and their families – to enhance their quality of life and maximize their health and social outcomes. I am proud to stand shoulder-to-shoulder with the talented and hardworking men and women of HHS who share this goal.
Whether it’s the research supported through the National Institute of Mental Health, the early intervention research programs within the Health Resources and Services Administration, or Medicaid support, we are committed to protecting the health and improving the quality of life for Americans with autism.
In the months and years ahead, we will work with President Trump, Congress, and the healthcare community to improve treatments and provide more comprehensive and better coordinated support for Americans living on the autism spectrum.