Narrative Inquiry in Bioethics: “Families are Under No Obligation to Put Their Children at Risk By Participating in the Corrupt Current US National Immunization Program”
The Johns Hopkins Journal, Narrative Inquiry in Bioethics, has published their issue entitled, "Narrative Symposium: To Vaccinate or Not? Parents' Stories."
The journal description of this edition: "This narrative symposium, "To Vaccinate or Not? Parents' Stories", is comprised of personal stories from 12 parents on their decisions about whether or not to vaccinate their children. They offer a first-hand look at the debated issues of vaccination. As the narrative symposium editors said, "The goal of this symposium is to aid in a more constructive conversation between pro-vaccination/anti-vaccination groups."
Included in the narratives is a letter from Health Choice Executive Leadership Team member, Ginger Taylor. Her letter is reprinted here with permission from Narrative Inquiry in Bioethics.
Families are under no obligation to put their children at risk by participating in the corrupt current US National Immunization Program
Narrative Inquiry in Bioethics, vol. 6 no. 3, 2016, pp. 181-185. Project MUSE, muse.jhu.edu/article/646617.
My name is Ginger Taylor, and I hold an MS in Clinical Counseling from Johns Hopkins University. I am the mother of a 14–year–old vaccine injured child with an autism diagnosis, and our family no longer participates in the vastly corrupt and broken US National Immunization Program. Because of my experiences, I have become a state and national leader on vaccine safety and vaccine choice issues, co–founding The Canary Party, and The Maine Coalition for Vaccine Choice.
I have two sons, born in 2000 and 2002, and vaccinated them roughly according the the recommended schedule. My second son suffered what we now recognize as an adverse vaccine reaction to his first dose of the Hep B vaccine, but it was not recognized as such by either myself or his pediatricians at the time, so he continued to be vaccinated according to the CDC recommended schedule. Following his 18 month appointment, he suffered a severe neurological regression, displayed symptoms of GI distress, showed signs of an autoimmune condition, and was diagnosed with autism six months later.
His was a text book case of vaccine induced encephalopathy, per the Health and Human Services (HHS), Human Resources and Services Administration (HRSA), Vaccine Injury Table established by the Vaccine Injury Compensation Program (VICP), displaying symptoms including:
(1) A significant change in mental status that is not medication related; specifically, a confusional state, or a delirium, or a psychosis;
(2) A significantly decreased level of consciousness, which is independent of a seizure and cannot be attributed to the effects of medication; including:
- Decreased or absent response to environment (responds, if at all, only to loud voice or painful stimuli);
- Decreased or absent eye contact (does not fix gaze upon family members or other individuals); or
- Inconsistent or absent responses to external stimuli (does not recognize familiar people or things). Please see http://www.hrsa.gov/vaccinecompensation/vaccineinjurytable.pdf for more info.
Despite this, and despite my repeated attempts to have my son's pediatrician investigate his condition as a vaccine reaction, no such inquiry was undertaken, and these symptoms were used instead to give him a diagnosis of autism. I would not read the VICP Vaccine Injury Table to learn that his were the symptoms of a well-established vaccine injury for several years, and until after the three year statute of limitations had expired for me to file for compensation for his disability.
After being abandoned by the mainstream medical system, we sought expensive, out of pocket, alternative medical care, which proved very fruitful for our son. Although we lost our home over the choice, we still would make the same decision, as it dramatically increased his health and functioning. We are pleased to report that, while he still has full syndrome autism, he has gone from severe to a much higher functioning level. Most importantly, he is a very happy child.
Despite our earnest attempts, 12 years and four pediatricians later, we still cannot simply get him evaluated for this HHS established vaccine injury. Last year I filed a complaint against my own pediatrician with the state medical board, reporting that after multiple requests to evaluate my son for the condition, he had simply ignored my appeals as my previous pediatricians had. I asked the board to rule on whether or not my son had the right to an evaluation per an established standard of care, noting that if I had taken him to the doctor and reported that I believed he had a broken leg, their failure to assess him would constitute medical neglect.
The board investigated the matter, but their ruling did not address the question of what the duty of the doctor is to a patient reporting vaccine adverse reactions, and simply gave a non sequitur response to close the case. Their action was a de facto ruling that no doctor has an obligation to investigate suspected vaccine injuries, and evidence that the medical establishment's response to vaccine adverse reactions is systematized medical negligence.
Our experience is identical to that of untold thousands of parents, who learn the hard way that once your child is injured by a vaccine, you are on your own. The system has chosen to respond to those families with neglect, insults, coercion and even Child Protective Service intervention, rather than to reform the program to put measures in place to protect children and families from harm and fraud, as is the case with every other medical product in this country.
Read the rest on the Health Choice web site.