How Many Alex Spourdalakis Cases Will There Be Before We Medically Treat Autism?
In June of 2013, the realization that Alex Spourdalakis had been killed was all over the news . Because I have a daughter with severe Autism, the details hit home. Add in that Alex and his mother lived a mere 7 blocks away from me, something I never knew until it was all over the news, saddened and angered me beyond words. They lived on a busy street above a plumbing company, in the next town over. I went to the Memorial service as I needed to gather with others mourning the tragedy of all that had happened. Who could not feel something when the news went viral? -- ANGER< SADNESS< BLAME<DISGUST<.....
Now local news is sharing that Dorothy, Mom and Jolanta, Godmother are coming out of Cook County Jail, having served time for what is being called Involuntary Manslaughter. More feelings will emerge - -- ANGER< SADNESS< BLAME<DISGUST<.....
BUT, at the core of all of this is that we keep seeing this theme around the world in increasing MURDER/SUICIDE cases ---- the severe cases of AUTISM need proper MEDICAL care ---
To see this GI suffering (MICROBIOME) continue with these severe cases of AUTISM helps not one person. So yes, everyone will have feelings about this court decision BUT the focus on MEDICALLY HELPING these children and young adults should be THE goal . What do you feel and think? Please leave a comment and let us know.
Teresa Conrick is Contributing Editor to Age of Autism.
The University of Missouri is experiencing a mumps outbreak, but has decided that while it recommends that STUDENTS get another MMR booster, that it would do more harm than good to recommend that STAFF get one.
"Mumps: A third MMR is not recommended for most MU Employees
Despite a recent increase in mumps cases on the MU campus, MU Health Care’s Infection Control Committee does not currently recommend employees who are not MU students get a third measles, mumps and rubella (MMR). This recommendation was made after careful consideration and discussion between a multidisciplinary team including staff members in MU Health’s Infection Control Department, the Division of Infectious Diseases and Staff Health, and included direct consultation with the Columbia/Boone County Department of Public Health and Human Services and the Centers for Disease Control and Prevention. While the MU Student Health Center is recommending students receive a third MMR vaccine, that recommendation is limited to MU students only. This recommendation does include medical students, nursing students and other allied health profession students. These vaccines are available through the Student Health Center or any of the MU Health primary care clinics if criteria are met.
If a third MMR is obtained outside of of Student Health: Students should notify Student Health of the date of their third MMR by emailing email@example.com.
All employees who have received an MU Health Care badge are compliant with MU Health Care’s staff health guidelines for protection against mumps. This includes two MMR doses or a sufficient serum mumps titer.
An increased incidence of mumps in students on campus is a reminder to always follow good infection prevention practices.
The best way to prevent the spread of mumps is STILL to maintain good hygiene, including:
· Regular hand-washing.
· Covering your mouth and nose with a tissue when you cough or sneeze, and putting your used tissue in the trash can. If you don’t have a tissue, cough or sneeze into your upper sleeve or elbow, not your hands.
· Making sure work stations have alcohol gel readily available.
· Keeping work stations and areas free of excess trash and debris and regularly cleaning them with disinfectants.
· Offering individual snacks instead of using bowls of snacks where multiple people must use their hands to serve themselves (cereal mix, nuts, chips, candies, etc.)
Please reference the following CDC manual for additional information:
Posted by: ciaparker | December 17, 2016 at 01:17 PM
I didn't realize there never was a trial. So the system held them for 3-1/2 years and then spit them out without giving them their day in court to avoid the scrutiny that would have exonerated them and exposed the individuals and institutions that made them crazy enough to murder the tortured child they loved. That is disgusting.
Posted by: Linda1 | December 17, 2016 at 07:31 AM
The words that i do not have to express how heinous this is, are the same words that i do not have to express how grateful i am for Mrs Conrick!!!
This is my lame attempt:
THANK YOU THANK YOU THANK YOU!!! YOU BRILLIANT PERSON YOU!!!!! i am so incredibly grateful for all the wisdom You impart and that my children have taken advantage of.
I really hope these Moms can find peace! What happened to them is a crime against humanity!
Alex Spordalokis Rest In Peace! Your Moms Love You!!! We all Love YOU!
When safety rests in death, humanity is lost!
Posted by: annie | December 14, 2016 at 10:23 PM
When my son was around 5 years old I lived with a bathroom being painted with feces and despite all the toilet training I did and even with professionals working with him too, it was impossible to
teach my son who has severe autism, IDD, and minimal language ability, the habit of toileting. Occasionally, he would have a gut busting BM and that certainly wouldn't encourage a toileting routine. It is not unusual for children with autism to do these gut busting BMs.
I have said before on this site that we did find a procedure called the pulsated irrigated evacuation system so he can mechanically relieve his bowels three times a week with the help of a nurse and a special machine. However, we can not get this procedure and supplies covered by Medicare, Medicaid, or private insurance. He would die without this procedure. And so I can relate to the agony of caretakers who watch a person with autism in indescribable pain. A mercy killing is not the answer but the frustration is real and my son is blessed to be able to be comfortable despite his inability to evacuate his feces. The muscles of the bowel are shot from a time without the procedure and what is called a Megacolon. My healthy son is now age 43.
Posted by: Martha Moyer | December 14, 2016 at 01:43 AM
The only winners from this sad story are the pharmaceutical companies who sold the vaccine that originally damaged Alex and then the medical profession who took advantage of his vulnerable condition to pump him with virtually all the psychotropic drugs on the market while ignoring the cause of his challenging behaviour which was his serious gut pain. The documentary "Who killed Alex Spourdalakis" was a very excellent and powerful portrayal of his story no prosecutor would want to show to a jury. I think they thought they would never get a conviction based on this and if found not guilty on grounds of temporary insanity (as they had originally pleaded), it would have opened the way for a law suit against the hospitals and doctors who arguably mismanaged his care. The propaganda story on Dorothy's change of plea reported by Emily Willingham writing for Forbes ( http://www.forbes.com/sites/emilywillingham/2016/12/13/heres-why-you-dont-want-to-view-disability-as-an-excuse-for-murder/#30ad0e4a243d) was sickening. Ms Willingham was obviously trying to please her sponsors (big pharma) so naturally had to do an incredibly biased and untruthful story putting the sole blame for Alex's death on to Dorothy, likening her act to Hitler's attempted extermination of people with disabilities. She has obviously not watched the documentary or has and is in damage control on behalf of her sponsors. The fact that these two accused women were awaiting a trail in jail with no bail and no danger to the community for 3.5 years suggests to me that they never wanted this case to go to trail due to negative pharma/hospital publicity and or possible law suits. It seems now they have arranged a plea bargain with the accused women to involuntary manslaughter (which it technically was not) but they think the matter will be closed. The prosecutors can now say to the community the accused pleaded guilty so justice was done due to time served and the decision may undermine their ability to sue.
If Ms Willingham would like to address the issue of rising of facism/hitlerism perhaps she should address the mandatory requirements of citizens to be subjected to poorly or fraudulently tested vaccines and drugs, especially in light of the recent 21st Century Cures Act.
Posted by: Jane | December 14, 2016 at 01:43 AM
This hit home today .. My 12 yr old Autistic grandson was suspended from school today for attacking other students, teacher and police officer ...
He's coming to my house in the morning, and we are going to have a great day!!
I haven't watched Who killed Alex... I just can't get past the preview without sobbing...
Posted by: Tracey | December 14, 2016 at 12:03 AM
Ms. Willingham is about again. I tried to comment on the article but for some reason it takes forever to sign up. Here is the url for the Forbes article: http://www.forbes.com/sites/emilywillingham/2016/12/13/heres-why-you-dont-want-to-view-disability-as-an-excuse-for-murder/#1441bf0d243d
Posted by: Birgit Calhoun | December 13, 2016 at 09:06 PM
I am glad about the outcome of this tragedy. What I would hope is that people learn about it so that more attention is paid to the devastating effects of autism on his caregivers and the family. Right now only people who have an autistic person at home know how difficult it is for all those living nearby or are involved in the care. We are a third-world country. We need to become first in compassion.
Posted by: Birgit Calhoun | December 13, 2016 at 07:56 PM
In all 12 cases the students had received two mumps vaccination, Irwin said.
The public is still welcome on campus, but we continue to encourage caution, especially for those without the mumps/measles/rubella vaccination,” Irwin said.
Students who have not been immunized have been required to stay away from campus for 26 days following the most recently confirmed case.
The measles/mumps/rubella vaccine is the most-effective way to avoid mumps.
Each of those four students had received the recommended two measles/mumps/rubella vaccine doses. But, as seen in recent mumps outbreaks, a second vaccine does not guarantee immunity as the strength of the vaccine may wane and other variant strains of the virus could be a factor.
Posted by: Vaxxdon'tWorksoUbetterGet3 | December 13, 2016 at 04:58 PM
I hope they will find a way to live.
Posted by: Linda1 | December 13, 2016 at 10:13 AM
Reminds me of the Sky Walker Judy Sturnagel case. The Kent state professor who was beat to death by her severely autistic 18 year old son in early '09. They lived 45 minutes from me and I attended Trudy's memorial.
At the memorial I introduced myself to a female cousin who I maintained sporadic contact with. I have always wondered how Sky is doing. He had to be placed in a mental hospital 130 miles from home. It's been a few years since I emailed with his cousin. She said he was doing OK. He was on a powerful antipsychotic he was being given monthly via injection that the family had to pay for it at $950 a pop. In one of our exchanges she revealed Sky did have GI issues. She didn't graphically describe but the size of a bowel movement found in the home after Trudy was discovered bloody, beaten and barely alive was shocking. His diet consisted of all fast food and the article I am linking to goes into that from what I recall.
I'm glad Alex's mother and God mother are being released. What they lived through with Alex was enough punishment.
Autism can be very severe and very scary. I don't think anyone will disagree about wanting better treatments. Except maybe the neuro-diversity crowd.
At Trudy's memorial there was a picture of her favorite saying by Mother Jones.
"Pray for the dead, fight like hell for the living"
We are trying....we are trying.
Posted by: Andrea | December 13, 2016 at 09:30 AM
It is clear to me from watching "Who Killed Alex Spourdalakis" that his treatment by the medical system amounted to gross malpractice. Those involved in this will never be charged with anything. The article states Dorothy had spent years seeking out healthcare options but came up empty. It says nothing about the sheer incompetence of the local doctors and hospitals who treated him. In the richest nation in the world. With a vast medical bureaucracy. Where vast sums are spent on treatments of no value. Simply a tragedy.
Posted by: Gary Ogden | December 13, 2016 at 08:51 AM
I think autism needs to be seen as a medical issue for everyone on the spectrum. Biomedical treatments helped my daughter with her gut issues so she could be fully included in school and be an honor roll student. Another child in her preschool class got no medical treatment so lost what little language he had and has been in self-contained ASD classrooms. I had encouraged his parents to get medical help but they did not so it is very sad for me to see a man-child walking around the school. I tell parents new to autism to look into biomedical treatments to improve their child's life. My daughter still has autism but I know there are many things I can do to improve her overall health and happiness.
Posted by: Ann Dunn | December 13, 2016 at 08:04 AM
As I understand events .. my heart is heavy with compassion for Mom and Godmother Jolanta .. as I cannot conceive the daily agony of watching your beloved son suffer indescribable pain .. absent receiving the medical care and TREATMENT their child not only deserved .. but ... was DENIED.
While I believe "mercy killing" is not only illegal .. in my humble opinion .. it is also morally wrong .. HOWEVER .. if ever there was a case to justifiably argue for "mercy killing" .. this would be it.
Posted by: Bob Moffit | December 13, 2016 at 07:40 AM