Levi Quackenboss: Bring on the Adult Vaccine Mandates
Dachel Media Update: Uniquely Human

The Simple Economics of Autism and Adulthood - There's No Supply Because There Was No Demand

Economics101Below is an excerpt from the New York Times about autism and adulthood. The jist of it is (as many of us know and will come to know soon enough) is that there are almost no support services in place for people with autism over the age of 22.  There aren't even many "post-grad" programs within school districts that address the unique needs of the autism population.

Why?  America is the land of supply and demand. We find a need and fill it. We build better mousetraps! We sniff out a market and flood it with products, services.  Look at Memory Care/Alzheimer's facilities.  We have one opening in my town.   Because there are enough people with dementia and Alzheimer's to fill the beds. So why aren't there autism specific programs/housing/recreation in place as a rule - like there are for other intellectual disabilities?
Supply and demand. The supply is now starting to flood the market. Like my own daughters, who are 15 next week, 19 and 20.

Autism was first recognized and recorded in the 1930s. It was rare until the 1980s when the spigot turned on and now, in 2015, we're flooded with people starting to reach their adult years.   We need autism specific housing - like memory care facilities. Not institutions like the ones we closed. No Willowbrooks. No state schools. We need facilities where people with autism can have schedules, routines, pictures, iPads, communication, order, behavior support, work that meets the IQ whether 69 or 139.  In America, we don't act on anything until we have to - until it's a crisis and/or it can turn a profit for someone.

We need something BRAND. SPANKING. NEW. To meet the new supply.   Join me, Dan Burns and JB Handley for a panel about this topic at the Autism Education Summit later this month in Dallas.  Share your thoughts in the comments, please.  Thanks. KS

###

TWO months before she died of pancreatic cancer in November 2010, my normally strong, stoical mother broke down weeping in my arms over the fate of my autistic older brother.

Institutionalized for over 40 years, Joshua, then 55, was in a stable situation and seemed relatively happy. But my mother was undone by that fear that haunts all parents of disabled children: What will happen to them when I’m gone? Though I hastened to assure her that I would become his guardian and watch over him after her death, she was inconsolable.

In reality, given the nature of the bond between them, I shouldn’t have been surprised. As is often the case between mother and disabled child, the two early on formed a deep, exclusionary attachment that relegated the other members of our family to the outer boroughs of maternal attention. My brother’s marathon tantrums, his gory public (and private) displays of self-mutilation and his regular physical assaults on our mother left me balancing as a boy on a narrow emotional catwalk between instinctual love for my sibling and blind rage. But none of that altered the depth of her feeling for him in the least. He was her main passion in life, and would remain so till the very end.

After her death, as promised, I signed the guardianship papers and found myself suddenly a part-time resident in the island nation of adult autism in America. What I didn’t realize at the time was just how uncharted the waters around that island would turn out to be.  Read the full article here.




Comments

Cherry Misra

To Lisa, Re schizophrenia, Yes there are many similarities between autism and schizophrenia and one of the most interesting has been provided by Dr. Chris Shade,PhD, a leading mercury toxicologist. Chris has a lab that is extremely good at measuring mercury (Quicksilver Scientific in Boulder, CO) His lab is sometimes sent specimens from a facility for schizophrenics in Canada. He remarks that he has never seen samples from schizophrenics that are not off the charts in mercury. The topic of schizophrenia being possibly caused by mercury has also been covered in the book Age of Autism. You can see Dr. Shade talk about this in his speeches at the IAOMT conventions- See on youtube.

Lisa

My only question with this argument is whether, in fact, the 1 in 100 adults living with schizophrenia are in fact that missing population. This is not to argue that schizophrenics are the adult autistics, but rather that autistics may still, in fact, be the childhood schizophrenics. I was very interested to see that autism, or "withdraw from reality," was part of "dementia praecox," which was the original definition of schizophrenia. Schizophrenia, like autism, is a relatively new disorder, first described around the 1840s. So, it remains possible that industrialization is the source of schizophrenia, and that autism, which is now recognized as a disorder that strikes in early childhood, is the result of the same or similar environmental insult, just occurring much earlier than when schizophrenia normally strikes. I have been truly taken aback by how much overlap there is now in the research between schizophrenia and autism, to the point that I now consider the studies interchangeable; whatever is relevant to schizophrenia, in terms of causes, behaviors, physical illnesses, genetics, treatments, etc., is also relevant to autism, and vice versa. It is possible, in my opinion, that the same genetic predisposition exists in both, and that autism is just a form of schizophrenia that is now appearing much earlier due to immune dysfunction from over-vaccination. If this turns out to be the case, then we should see the number of newly diagnosed schizophrenics in adolescence and early adulthood decline dramatically, as these schizophrenics would already have succumbed to their illness in early childhood and thus received the identification of autistic. As the sister of an adult schizophrenic, I can tell you that they are all around us (1 in 100 in the U.S), and that there are few services for them -- never have been.

Ann Millan

My daughter is 44 years old. She has two jobs, YMCA membership receptionist and cashier at Publix grocery store. She owns her own condo through a local housing initiative for individuals with developmental disabilities and through the med waiver in our state (FL), she has a supported living coach and continued speech therapy 2 hours a week for stability. For recreation she belongs to a social group, Mainstreamed Adults Sharing Hope (MASH) and she is a CrossFitter. She drives within her community from activity to activity. As part of her Speech Therapy, she has been in RDI for five years and IM. I have written a book about Robin's success because other autism families do not realize that she has severe autism, Autism, Believe in the Future from Infancy to Adulthood...

Margaret

Anyone who mentions holy fools and feral children in the same breath as autism should be laughed out of the room. Are "researchers" so desperate to pretend that autism always existed that they'll grasp at anything? A pity that Mr. Gotlieb didn't make a snide comment about this stupidity--it would have been a good teaching moment. FYI, holy fools in Russia were part of a religious tradition, and feral children had to have enough smarts to survive a hostile environment. My son at 26 years would not have the ability to do so, and his autism is middle of the road.

cia parker

I just hope that if they ever provide good group homes that they won't require the flu vaccine (etc.) every year.

Andrea


I am so excited that my daughter who is entering her junior year in college landed an internship at Bittersweet farms. She is doing a marketing analysis for them. I am anxious to hear what she learns of their program. What services they offer. Where their participants live. What the structure of their lives are like etc... I know they have a national reputation because they are one of the few programs that have been serving adults with autism for a while.


http://www.bittersweetfarms.org/about/

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