Many times when I sit down to type I know exactly what I want to write. But there are days like today that leave me feeling like I have no idea what to write. It isn’t because I’ve run out of things to say. Sharing stories about Ronan’s gains and offering my two cents about the autism-vaccine connection is important. I’d like to continue to share my thoughts, but not today. Today, I’m at a loss for words. I’m at a loss at what else needs to be said. Everything that needs to be said has been said already.
Here, and on other alternative media channels we’ve talked about vaccines. We’ve talked about autism. We’ve talked about too many too soon. We’ve talked about Vaccine Court, corruption, shady practices and about twisted politicians. We’ve listed fact after fact after fact and told story after story after story. Even though we’ve said a lot already, those facts and those stories don’t seem to be enough.
I know it’s not up to just me to inform or to encourage others to educate themselves. But with what I’ve learned through my son’s vaccine injury, sharing what I can about that vaccine injury and about autism has become second nature. I can’t help but share. I tell the good, the bad and the very, very ugly. Sometimes it hurts to share what I do, but people usually appreciate my honesty. Some people prefer to see and hear only happy autism stories though. Magazines and television channels prefer to share only happy autism stories. I’m glad those stories exist. I live for happy stories and to be able to share Ronan’s happy stories. But there is a flip side of autism. It includes vaccine injury.
Vaccine injury has been around for quite some time, but it’s still being ignored. It’s being ignored despite its growing presence. Something else that’s being ignored is the general public’s real concerns about vaccines. Those concerns are being dismissed by providers and are being downplayed by the government. The public isn’t being given all of the answers. They are being bullied and belittled instead. They aren’t being told about vaccine choice and vaccine exemptions. They aren’t being told that vaccine manufacturers are not held liable for vaccine injury. To scoff at vaccine injury is dangerous. To minimize it while ridiculing people who asking important questions about it is disrespectful.
We were ignored again this week. Another major broadcasting station aired a pro-vaccine piece midweek. In the midst of the CDC whistleblower news that hasn’t been rated as Breaking News yet, the public was fed more propaganda. I’m not surprised. While turning their attention away from the truth, this station choose to instill fibs and fear at a fever pitch.
I can think of a hundred ways to counter what was presented. I can list authors, publications and websites for people to research. I can cite articles to review. I can correct the errors that were aired on that pro-vaccine piece, but I am feeling small, unheard and more exhausted than ever. I’m at a loss for words. It’s obvious that I must find them and find them again soon.
The mission I and other parents in our community have adopted is to educate and to help others. That mission is one we never realized we’d ever have to adopt, but it’s one we take very seriously now. We do this because at one point in life we were pro-vaccine. We did believe. We did support. And we did vaccinate. It was only after vaccinating that we thought to ask questions, that we took time to read and that we realized that “1 in a million” was closer to 1 in 68. That discovery, when we connected the vaccine injury dots to our child’s autism, their seizures, their GI distress and to other medical ailments, changed our lives forever. Never do we want to see vaccine injury happen to another person again.
Mainstream may rely heavily on their advertisers, but we’ll rarely if ever receive a paycheck in return for our efforts. Unlike that of the media, it isn’t financial gain we hope to attain. The reward of bettering and preserving the health of our children, of all children, is what drives us. Carrying out that mission hasn’t been easy lately. This week’s lack of mainstream coverage and the continued “vaccinate or die” message proves that, once again, we still have lots more to do.
But today, I feel like I have no words. I have no new suggestions to share. I have no new ideas. I have no encouragement to offer. I have nothing to say. I have nothing to say today that hasn’t already been said. Maybe tomorrow I’ll be inspired. Maybe tomorrow will be the day that things turn around. Maybe that’ll be the day that brings changes, long lasting ones for our children and for our families. Today isn’t that day though. I feel quiet and without words today. Hopefully tomorrow will be different. Maybe it’ll be a brighter day. I sure could use a brighter day.
Cathy Jameson is a Contributing Editor for Age of Autism.