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Required Summer Reading

Mom-reading-newspaperBy Cathy Jameson

"To promote the right to individual health choice and stand up for the victims of medical injury."

I scheduled my typical children’s dental appointments over their summer vacation.  Sitting in a dentist’s office for two and a half hours on a sunny afternoon wasn’t on my top 10 things to do while on summer vacation list.  Neither was defending medical choices I’m forced to make for my kids.  But that’s what ended up happening on a hot July day.

I shouldn’t joke.  Taking four children to our dental provider really isn’t that difficult; it’s more time consuming than anything.  After a terrible experience with another dental group in town, I’m grateful that our current dentist knows us well.  The staff listens to me.  They respect me.  They understand why I’ve made the medical decisions I’ve made for my children.  It’s comforting that they recognize that some of my kids are medically fragile.  What’s considered “industry standard” by some can send my children into a downward spiral with potentially long-lasting ill effects. 

So, smack dab in the middle of summer vacation was just as good a day as any to bring my kids in for a teeth cleaning.  I was prepared for the long afternoon and made sure to bring things for my kids to do while their siblings’ teeth were checked.  Just when I thought it would be business as usual, a new dental hygienist greeted us in the waiting room.  I wasn’t aware that the one whom I’d made a great connection with (she too had a young child with developmental delays) had recently left the practice. 

Politely introducing myself and my two older children whom she’d be working with, I felt somewhat exposed talking to the new hygienist.  Stating pertinent health and medical issues my children had, I went through a list of things we usually request. 

Will she judge me?  Will she understand why things must be a certain way?  Will she give me any flack for what I want done versus what she’s used to doing? 

Those questions raced through my mind as the hygienist opened the children’s dental files.  Inspecting my children’s files, she began to ask me pointed questions the dentist and the previous hygienist knew not to ask us any longer.  

No fluoride? 

“That’s correct,” I stated.

Sealants?  It says here that you were thinking about them. 

Actually, I was thinking about NOT doing them.

I smiled while trying to sound confident, “No, thanks.  We won’t be doing those.” 

For the quick second it took for the hygienist to look down at the medical records, I took over the conversation. 

“My daughter just got out of braces so this will be her first cleaning without any orthodontic gear.  Please use the gluten-free toothpaste and let me know how her teeth look now that the braces are off.”

The hygienist closed the files and said, “Okay, she can come back with me now.”

Whew!  Interrogation over…

Can I ask you something? 

Uh oh.

“Um…yes?” I stammered.

Why don’t you want sealants?

I felt like I was backed into a corner.  I had two choices:  I could answer her honestly or grab my children and run while yelling, “Leave us alone, you nosey Nellie!”

I took a deep breath and sputtered, “I don’t want to put anything in my kids’ body that I haven’t had a chance to look up.”

Satisfied, the hygienist replied, “Okay, we can get you something to read.”

Oof.  I meant that I would go home and look up MY side’s data, not rely on HERS.

“Uhh, okay,” my voice trailed off.

I wanted to hide.  But cramming myself behind a waiting room chair in a 10’ x 10’ room wouldn’t make for the best hiding spot. 

A few minutes later another dental hygienist, one who’s known us for a few years now, came over to me.  She handed me a 4-page print out of information on the sealants our dentist uses.  As she handed them to me she reminded me, “Remember, you do what YOU want done, Mom.”

From what little knowledge I have about sealants, I knew I didn’t want them.  But when face-to-face with a dental professional who was asking me for a specific reason, I clammed up.  I thanked our friendly hygienist and kicked myself for not having a better answer earlier.  I should know what I want my provider to do or not do for my children.  After all, I’m the Mom. Right? 

Mother’s intuition told me no, don’t do it.  These sealants are not all their cracked up to be.  And even though I wanted to cite actual scientific data to back the uneasy feeling my gut had about this particular procedure, I had hoped that mother’s intuition should be answer enough.

While a former dentist several years ago convinced me to start putting them on my children’s teeth because of the sealants’ cavity-preventing features, at the time I never thought to take the next step to ask what was in those sealants.  It wasn’t until last year when our new dentists suggested I get them for my children that I had the light bulb moment to question them. 

Since I hadn’t taken time at home yet to really read about them, the response I gave to the new hygienist was that I wanted to research what sealants were made of and to determine what role, if any, they play in my children’s health.  I thought that reply would buy me some time to formulate a solid and scientific answer.  After I started reading the handout, and after I used my phone to search for more information, it wasn’t time I needed.  I merely needed confidence. 

After reading, I knew that the next time I was asked, my answer would be a not just no, but no way.  From the American Academy of Pediatrics website: 

Dental Sealants

Sealants are a plastic material applied to the chewing surface of permanent molars that provide a physical barrier to bacterial invasion of pits and fissures. Sealants are effective because 90% of caries in school-aged children occur in the pits and fissures of molars, the place a sealant covers.

While the AAP websites’ sealant description sounded somewhat harmless, I’m glad I knew to continue to read.  Had I just gone to their website, which tends to promote a one-size-fits-all agenda while not fully considering nor disclosing how substances can and do negatively impact human development, I might have caved and let professional pressure persuade me. 

Here is the first page of the paperwork about the specific sealants our dentist uses:

CJ form

Note the Classifications column.  It includes two codes: Xi and T.  Xi denotes that an ingredient is an irritant.  T means toxic. 

Since none of the ingredients sounded natural, my eyebrows were already raised.  Reading that each ingredient was either an irritant or toxic didn’t help lower my eyebrows or my suspicions.  It only confirmed that this optional treatment would add to an extra burden to my kids’ bodies, a burden that none of them needed to bear. 

I scanned the ingredient list again.  Sodium Monofluorophosphate jumped out at me.  The “–fluro” in the middle of the second word made me pause, so I looked it up. 

It couldn’t be, could it? 

Yep, it was.  It’s a fluoride compound.  Fluoride is a neurotoxin that we make every attempt to avoid.

In retrospect, I’m glad the dental hygienist handed me the papers when she did.  The first page of this Safety Data Sheet confirmed the gut feeling I had—that these sealants would do more harm than good for my children.  Now very curious as to what else the sealant Safety Data Sheet would reveal, I continued to read.  Even though we don’t live in California, the Comments Warning toward the bottom of page three sealed the deal—my kids would NOT being getting them anytime soon. 

 

It wasn’t more than 30 minutes later that I was presented again with the fabulous benefits of sealants. This time, the information came from our dentist while he was finishing my younger daughter’s exam.  I nodded and smiled as he went into his spiel about those terrible cavities and the miraculous properties of sealants.  Thanking him for his input, and reminding him politely that I didn’t want them, I said, “That’s nice.  But we’re all set for now, thanks.”  Assuring me that sealants are recommended only up to a certain age, I again thanked him for the information but stood firm in my decision.

With what I’ve had to learn for my 11-year old son who has regressive autism, and because of how he’s been injured by recommended and optional medical procedures, I’ve made it a habit of being fully informed for things I specifically face with his providers, his therapists and his educators.  But for my typical kids, I’ve let some research slide.  That included taking time to educate myself on why I would not opt for a standard operating dental procedure. 

Fortunately, this time, my decision was respected.  I’m glad that I’m only faced with making that particular decision two times a year.  In six months, when we return for our next dental cleaning, only time will tell if our dentist, and the new hygienist, remembers my decision or not. 

The reason why I booked my kids’ appointments when I did this summer was because I could devote time to my children’s healthcare needs.  Questions that came up during that afternoon’s appointments are a reminder that I need to devote the same amount of time to be better prepared for all of my children’s appointments.  This includes reading, researching and asking questions and making sure that when I have learned as much as I can that I remain confident on behalf of my children.  Being able to make informed decisions, especially when those decisions are the exact opposite of what best practices state, is important.  It’s important because my children’s health depends on it. 

-

Cathy Jameson’s writing has been featured in Pathways to Family Wellness Magazine, Holistic Parenting Magazine, The Autism File Magazine and on Dr. Mercola’s website.  Cathy is a Contributing Editor for Age of Autism and co-author of the The Thinking Moms’ Revolution’s book Autism Beyond the Spectrum

Comments

Benedetta

Your welcome Laura
TaxiMom -- Holy Sh$t indeed -- I get shocked every day too. Just when I think I have seen everything - --- it is a mad, mad world!

Carter's Daddy

I have the same trouble thinking of how to answer professionals for my decisions. We have a biological dentist, who never vaccinated his kids, so no danger of confrontation. We're on the same page. A conventional dentist's office, btw, - the facility itself, even if it doesn't do metal fillings - presents a continual chemical onslaught to all inside it. The cumulative effects on the people that work there every day is very damaging and well documented. They range from respiratory issues to neurological conditions.

PANDAS Mom

We see a "mercury free" dentist who does not use mercury fillings, fluoride, sealants or x-rays (unless requested or urgently needed). They also know how to safely remove mercury fillings and will use ozone to stop decay that has just started, limiting the need for fillings. On top of all that, they are in network with insurance. I landed there after being diagnosed with mercury poisoning from my fillings. I later brought my son over so I wouldn't have to keep explaining to his mainstream pediatric dentist why mercury doesn't belong in the human mouth, why we didn't want sealants, etc. There are mercury-free dentists all over the U.S now, as well as other countries, and you can find one in your area at iaomt.org, the website of the International Academy of Oral Medicine and Toxicology. The website also has great information on safe dental practices.

Vaccine Information

All of this additional treatment is the result of medical entrepreneurship.
There are companies that are called "practice management", which maximize profit by ensuring that all patients get all medically / legally justifiable procedures.
Example here
http://www.levingroup.com/gp/

Taximom5

@John MacArthur

Holy $hit.

I'm out of words. Every time I think I understand what's going on, somebody posts a fact or two that tells me that things are, unbelievably, far worse than I thought they were.

Jeannette Bishop

Correction: I don't really want to say "prideful" obliviousness, though occasionally there seems to be some pride there. If anyone has a word or phrase for what drives the blindness, that keeps many from listening and investigating something like vaccine injury, especially outside of sanctioned channels (is it instinctive/indoctrinative authoritarianism?), I'd appreciate any suggestions for how to put it into words.

Jeannette Bishop

Thanks for the important reminder to study up on all of this and for all the helpful info in the post and comments.

Re dentists giving flu shots:

There is also legislation in California that will let optometrists give vaccinations. I was exposed to thimerosal through contact lens solutions in the 80s, so...as you all probably already know, you have to watch everything I guess, and the "professionals" who want to provide a service of real value to all of their patients would do the same, but the culture provides them a practically captive clientele, particularly through the individuals who need the most due diligence, not prideful obliviousness to where the harm comes from.

John MacArthur

Taximom5, thank you for sharing your experience.

Fluoride varnish (22,500 ppm fluoride) has nearly twice the fluoride concentration of fluoride gel (12,300 ppm).
http://www.jdentaled.org/content/65/10/1078.full.pdf

According to a 1989 study, “As much as 30 mg fluoride may be swallowed by children after prophylactic treatment with fluoride gel.”
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1836770

The US Institute of Medicine says the Tolerable Upper Intake Level of fluoride consumption from all sources for infants, toddlers, and children through 8 years of age is 0.10 mg/kg/day.
http://www.nap.edu/openbook.php?record_id=5776&page=309

Shanti

There are so many examples like this in the medical system. I recently tried to tell my OBGYN why I don't get mammograms. Of course, she couldn't force me, but she basically spoke to me like I was an idiot. Could I get a sonogram and not a mammogram? No. The reason: You do it our way or you can go Eff yourself!

Cynthia Cournoyer

From 2013. I wonder when dentists will start giving vaccines. http://www.chicagobusiness.com/article/20130314/NEWS03/130319878/doctors-dentists-spar-over-flu-shots#

david m burd

The Medical Industry is so pervasive and brainwashing the everyday "health professionals" on every front and issue.

As a personal instance I lacerated my hand by accidentally striking a glass patio door, and needed many stictches (splg?) at an Emergency Room.

TWICE! First, I was asked to take a tetanus shot by an attending nurse and afterwards by a Physician Assistant, which I strongly refused. They asked me why, and I easily explained I would not let all the toxic vaccine ingredients/excipients be injected into me, no way!

All this after bleeding a whole lot from cuts, not puncture wounds, from glass-door wounds.. So, there was zero threat from so-called tetanus.

Typical medical-care people are simply indoctrinated to always inject everybody with unnecessary vaccines - at every opportunity. Their poisonous dogma never stops.

Laura Hayes

Cathy, thank you for this important article. Bendetta and Taximom5, thank you for sharing your experiences, too. So crucial that we all begin to question each and every medical, dental, opthalmic, and screening procedure, which includes all the many procedures that are now labeled/considered "standard of care."

A few years ago, we began to completely opt out of x-rays at our dental appts. (we'd already given up fluoride treatments prior to this). At first, it wasn't a big deal. Then, we all hit the 3-year mark without x-rays. They said/threatened that "for insurance and liability reasons" they would no longer be able to see us if we didn't acquiesce and allow the x-rays. I said, "Fine. Then we will have to look for a new dentist." I no sooner said that then the receptionist said to wait, that she would ask the dentist (was she making up office policies on her own?). Lo and behold, she told me that if we signed a waiver (so sick of having to sign waiver for decisions that are mine to make in the first place!), we could continue receiving dental care. So, they created what was apparently their first such waiver, I read it, made numerous changes to it, they re-typed it, and we signed one for each family member's file. However, I won't be surprised when even this waiver will no longer suffice, and we will have to search no doubt high and low to find a dentist who honors our medical decisions, or we will be forced to forego dental care. This seems to be the way in all areas of medicine...our way or the highway...you will comply, or go without care. Medical tyranny is increasing. More people must begin to question what has become "standard of care," and refuse to comply when it is a procedure or treatment they don't want.

Thanks, as always Cathy, for sharing your experiences with us :)

Not an MD

Dear Cathy, I thank you for such a thoughtful post on this topic. Sadly, it is at every single doctor's appointment that we must know how to respond to the recommendations of our medical professionals. Not just pediatricians. Not just dentists. Not just pharmacists pushing influenza vaccines. I mean cardiologists, and other doctors, too. Right now, we are living through yet another scandal. It involves Pradaxa and other new anti-coagulants (like Xarelto) which gleefully promote in advertisements that no monthly INR monitoring is required with their new drug. What could possibly be wrong with this, you ask? Well, for one thing these newer drugs have absolutely NO ANTIDOTE. Sorry for that little scream. Essentially, Cathy, if your significant other, or family member experiences a major bleed from this or any other similar drug (and not the older Coumadin for which there is a quick fix for any bleed which can stop a hemorrhage right in its tracks-- Vitamin K) they are sh_t out of luck-- as in --they are as good as dead, complete with doctors standing by, powerless, watching the fatal bleed occur. Nothing less than a full blood volume transfusion, if done early enough, is capable of stopping this kind of catastrophic bleed. How many cardiologists refuse to prescribe these newer anticoagulants that cost 30 times the price of Coumadin to their patients, or at least have the decency to warn their patients that they will very possibly die from Pradaxa or Xarelto, should they experience a serious bleed? I would guess, very few. The joke is that new research is recommending blood monitoring for people taking Predaxa so that 40% of the deaths from these newer anti-coagulant drugs can be avoided. This makes me sick, because promotion of the lack of need for such testing never should have been permitted by the FDA in the first place. When will this madness end? Why is the burden on the patient to do the medical research when we are paying top dollar to our medical professionals to advise us of the potential risks and benefits of their medical advise?

I think we are at the point where we need to accept that we are in charge of all the research that must be done on every single drug a doctor prescribes for us, and for our family members, prior to filling the prescription, especially if a newer drug is being recommended.

Taximom5

Cathy, I am VERY troubled by your experience. Thank you for writing about it.

Here is our experience:

Two years ago, I brought my oldest son to his dental appointment, where the hygienist gave him a "fluoride" treatment. He had never had reactions to fluoride before, and we had not given much thought to fluoride. The dentist, by the way, did know that there was a history of adverse reaction to vaccine.

Afterwards, the hygienist came out and said, "oh, by the way, we did a NEW fluoride treatment on your son, is that ok?"

Um, thanks for asking?

I didn't think anything of it, though, since, as I said, he'd never had a reaction to fluoride before.

Two days later, he had severe intestinal pain, complained of dizziness, and then passed out. After he regained consciousness, he made it to the bathroom, and had severe diarrhea. We thought that maybe he'd eaten gluten somehow, and that it was now out of system, but he seemed to take an awfully long time to recover--and then things got worse.

He was dizzy for weeks, and absolutely exhausted. He had tingling fingers, headaches. facial pain, and sudden clumsiness--he kept dropping things, bumping into things, and tripping. His intestinal problems continued, but were much milder.

The pediatrician thought maybe it was a sinus infection--even though my son insisted that he didn't have any congestion--and treated him with not one but two rounds of antibiotics.

This was right before the beginning of school. He missed two full weeks of school, and had to drop one of his classes, as well as two extracurricular activities.

Here's the kicker: HE HAD A REGRESSION OF AUTISM SYMPTOMS THAT WE HADN'T SEEN IN 4 YEARS.

This was so hard for him. He remembered how he felt when he was quite autistic as a child, and he remembered how he felt when he lost both symptoms and diagnosis. In his own words, "I remember what it was like to feel normal. I don't feel normal anymore."

I learned a couple of months later that the same thing happened to another child, who had not autism but Tourette's, which, until then, had been well-controlled with medication. After receiving this brand-new "fluoride" treatment, he became ill, and then had a major regression of Tourette's symptoms.

The "fluoride" treatment for both boys was "Vanish" (3M) Varnish. It had NOT received FDA approval as a pediatric fluoride treatment. Instead, it was approved as an adult WHITENING agent. The dentists are legally permitted to use it off-label, though.

Our dentist, by the way, was VERY good about it, after we told him what was going on. Both he and the pediatrician agreed that they absolutely thought the Vanish Varnish was responsible. The dentist said he'd report the reactions to the manufacturer, and actually suggested that we use a fluoride-free toothpaste. He said that he believed that topical fluoride is beneficial--but only during developing years. The dentist now has parents fill out a form at every visit, asking if the parent WANTS a fluoride treatment, asking about allergies, special needs, etc.

Interestingly, the last three dentists we have gone to have all said that they don't do sealants, because they don't think that they are particularly effective, and if they're not so effective, why put them in children's mouths. ALL THREE DENTISTS said this. As far as I know, none of them know each other.

The Material Safety Data Sheet for Vanish (3M) Varnish is here: http://multimedia.3m.com/mws/mediawebserver?mwsId=SSSSSuUn_zu8l00xM82G58_B4v70k17zHvu9lxtD7SSSSSS--

Take a look and see if the ingredients--and warnings, and side effects-- are at all similar to the sealant you were offered.

Benedetta

Well; 20 plus years ago - we let them be put on my daugher's teeth.

The next week she was constantly spitting out plastic, They lasted for about a week.

Waste of money.

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