PLAGUE: Tsunami Judy and the Liberation of Scientists
I've always believed in the power of nicknames to reveal truths about a person. My grandfather nicknamed me "the little professor" because I could usually be found with my nose in a book. Indeed, one of the favorite images I have of myself is a picture taken by my fourth grade teacher and given to my parents. In the picture, class is over, the chairs are up on the tables, and yet I'm still sitting there reading a book.
After two years working on the book, "PLAGUE - One Scientist's Intrepid Search for the Truth about Human Retroviruses and Chronic Fatigue Syndrome, Autism, and Other Diseases", I have a greater appreciation for the nickname given to my distinguished co-author, Tsunami Judy. Dr. Judy Mikovits certainly can talk. Sometimes I'd interview her for an hour and a half and when I did a word count we'd be at well over fifteen thousand words. "Judy, they wanted a hundred thousand word book. With just one interview we're fifteen percent of the way there!" (Update - It's probably going to be a hundred and fifty thousand word book.)
I like the image of my co-author as some elemental force of nature, because to a great extent it's true. And yet, there's also a gentleness and an unshakeable devotion to the betterment of humanity in her. For those of you familiar with the story, you'll know that after a civil dispute with her former employers went in a really "bizarre" direction in the words of Jon Cohen, a writer for Science, she was jailed for five days. I wanted to write in some joke about how the staff at the jail hadn't improved much since the days when they hung horse-thieves.
"Oh, no," said Dr. Mikovits, "They were really very professional." Who thinks to compliment the professionalism of their prison guards? My co-author, that's who! And as she was waiting to be released, one of the other prisoners told the guards that Dr. Mikovits was a cancer researcher. A few of the guards had family members with cancer and came up to ask her questions. They gave her their cards and she promised to review their cases and offer her opinion as to what they should ask their treating physicians. Who does that?
And it reminded me why I was attracted to this story in the first place.
I want to be inspired by scientists. I've heard enough double-talk, wilful ignorance, and outright lies from scientists in the autism struggle that it's blinded me to many of the couragous people who are trying to fight our battle. I want to be inspired by scientists who care about humanity, not whether a certain line of research will affect their lab's funding.
The mainstream media may characterize this struggle as parents vs. science, but in the course of writing this book it's become clear to me how much of a civil war is being fought within science. I recently read Desmond Tutu's book on forgiveness and one story really stuck with me. A South African activist was under arrest, and as he was being beaten by one of the security guards he had an epiphany. He realized that the man who was beating him was as much a victim of apartheid, as the man he was beating. The prison guard had a family, friends, hobbies, and when he was young he likely had great ambitions. He probably never imagined he would find himself in a small room beating a defenseless man. The fight needed to be against the unjust system, not those individuals who were twisted and corrupted by it.
If you are in science, how can you be blind to the fact that so many of our children are sick? I think there are many who ask this question, but don't know what to do. Just as that anti-apartheid activist realized his struggle was also to liberate the prison guard who was beating him, I believe that this book is also to liberate the scientists.
We all need to break the system which is not just harming our children, but corrupting our science and those who work in it.
PLAGUE goes on sale September 2, 2014 at bookstores everywhere.
Kent Heckenlively is a Founding Contributing Editor to Age of Autism and author of Plague: One Scientist's Intrepid Search for the Truth about Human Retroviruses and Chronic Fatigue Syndrome, Autism, and Other Diseases. Visit his website at Plague The Book.. You can pre-order the book HERE.
Allied NATO Government is hiding millions of infectious NON HIV AIDS cases (like mine) under the "Chronic Fatigue Syndrome (CFS)" ICD-code.
- Dr. Lorraine Day on Cptn. Joyce Riley's military show THE POWER HOUR (09/12): "...HIV-Negative AIDS cases falsely reported and treated as CFS cases may be one of the biggest cover-ups we’ve ever seen..."
- In 1992 (i.e., after Gulf War 1) "...Newsweek made an even more shocking announcement: …CFS patients who had the same immune system deficiencies as the NON-HIV AIDS cases..."
- Dr. Judy Mikovits stated on In Short Order (11/12) about CFS & Myalgic Encephalopathy (ME): "…consider this as NON HIV AIDS."
- Neenyah Ostrom's book "America's Biggest Cover-up: 50 More Things...CFS & Its Link To AIDS" cites: "Some CFS Patients May Be Non-HIV AIDS Cases."
My case goes up through the NIH, CDC, White House, WHO, to the UN. I testified federally in Washington-DC, sat on conference with the America Red Cross, and am published 28 times on 4 continents.
E.g., www.ukprogressive.co.uk/the-aids-like-disease-seldom-mentioned/article20891.html
Or simply google "NON HIV AIDS"
Posted by: lemonfoundation | July 19, 2014 at 05:40 AM
John - I'm glad that you are neither mad, nor sitting around waiting. I suppose I don't see forgiveness as only a religious ideology, and I guess I don't think that the role of forgiveness should or needs to be put aside when trying to achieve institutional progress. I think it can play a useful role in instigating institutional change. Institutions are comprised of people, ergo . . .
I suspect Kent has found a very meaningful comparison to what happened in South Africa, otherwise I don't think he would have mentioned it. So many different forms of freedom and oppression, but people having to get through it all the same. I hope we hear more about it from him.
In the meantime, nice article, Kent! I'd love a bumper sticker that says "Save the scientists!" - as they seem to be under their very own set of environmental stressors.
Posted by: Jenny | July 15, 2014 at 01:42 PM
Jenny
I don't think I am waiting for anything, and I am not even angry. But it is one thing to have a religious view and another to decide how you get institutional progress. Kent made the comparison with South Africa where change came about because the people in power recognised that their position was no longer sustainable. If the comparison was meaningful we perhaps also ought to look at what else happened there.
John
Posted by: John Stone | July 14, 2014 at 04:09 PM
http://www.huffingtonpost.ca/michael-kruse/new-microbiomeautisim-stu_b_3574651.html
Here is Kause and his take on all the recent finding on the humam microbiome.
"While it is understandable that the public is interested in the ongoing story of why ASD patients have so many problems with their gut and diet, we cannot leap beyond the conclusions from one study and overgeneralise. This study, like any good science, leaves us with more questions than answers. Is there a connection between neurological symptoms and Prevotella? Is the decreased incidence of Prevotella predictive of ASD? Is the severity of GI symptoms really connected to the severity of ASD? Does the ASD cause the change in the microbiome, or does the microbiome cause ASD, or are both conditions interconnected in multiple ways? Is there a genetic link between the ASD child and the microbiome and how is the microbiome of the child related to his or her immediate family
What we do know is this will continue to be an active area of study for a long time to come, and Wakefield will still be left out in the cold."
I know if you write too long -- we all cross our eyes here -- but that is what is out there!
This guy hates Dr. Wakefield.
Jenny ----- I am going to have to think on what you said a bit more. My take on it though is that Forgiveness must be asked for --- before it can be received or given. To ask for forgiveness means that person makes an effort to stop the behavior -- as in alcholics.
So that leaves us victims in a pickle -- we must not forget - we must not stop being aware, we must be ever watchful -- but we must not let hate destroy or maime us -- we cannot allow these people to makes us sick.
but that is not forgiveness - at least I don't think so?
Posted by: Benedetta | July 14, 2014 at 03:12 PM
@Jenny,
I completely agree with you, in every respect.
Posted by: Bayareamom | July 14, 2014 at 01:54 PM
John, I respectfully disagree with you on the need for certain conditions or acknowledgement before forgiveness can be given. In a recent Bible study I participated in, pretty much everyone agreed to the contrary, that there will be plenty of times in life where the person who you feel wronged you will never ever admit it, which means sometimes forgiveness will be a one way street, for the benefit of the one doing the forgiving, allowing them to move forward to a faster or more productive way to achieve their goal(s) in life.
If those in the autism movement stand still and just wait for those in the current decision making paradigm to say they are sorry, they will be waiting a long time and wasting a lot of time. The best and brightest scientists, who were hoodwinked into thinking their efforts would only benefit mankind when in fact they were misused solely for others' profit with no regard for human consequences, might just need some forgiveness to move beyond the reach of corruption and serve as beacons to others still riding the fence, to know that their new-found wisdom and bravery will be welcomed and appreciated. Who knows but what if there is or could be an organization of privately funded scientists & whistle blowers who want and need to work for a reputable cause and to know their science won't be corrupted AND will be used. What would their incentive be to continue researching for maybe less money than they make at universities & corporations, if they feel they are still condemned and ostracized, despite the risks they take to right their lives. If money and job stability are the incentives profiteering corporations provide, what are the counter-incentives that autism families could provide scientists that would be equally valuable?
I am not saying the purposefully bad should remain beyond the reach of consequences either now or in the future, but to err is human, and there is also room for forgiveness in many cases prior to any acknowledgement, and I would go so far to say that sometimes forgiveness on the part of one LEADS to acknowledgement of wrongdoing on the part of the other, paving the way for new paths. Just like autism itself, they will need to be considered on a case by case basis, not in a one size fits all mentality.
Posted by: Jenny | July 14, 2014 at 11:59 AM
I'm really looking forward to reading this book!
Posted by: Twyla | July 14, 2014 at 10:46 AM
Kent, in The Band Played On, some researchers trying to find a cause and a cure for AIDS had first to fight the institutions that employed them, in particular the NIH and the CDC. Courageously, they paid a price. Different plague now, autism, but a similar fight today.
To the unsung heroes battling a fear-and-greed driven system without and within, whose names cannot be used, thank you.
Posted by: Dan Burns | July 14, 2014 at 10:40 AM
Kent,
Thank you for all you do. Can you post your 4th grade picture ? ... so the other side can see what they are up against ???
Posted by: cmo | July 14, 2014 at 07:55 AM
From the book-jacket sleeve of David L. Lewis book "Science For Sale .. how the US Government uses powerful corporataions and leading universities to support government policies, silence top scientists, jeopardize our health, and protect corporate profits":
"Organizations dealing with scientific integrity are designed only to weed out those who commit fraud behind the backs of the institutions where they work. The greatest threat of all is the purposeful corruption of the scientific enterprise by the institutions themselves. The science they create is often only an illusion, designed to deceive; and the scientists they destroy to protect that illusion are often our best."
Kent .. I eagerly look forward to your coming book .. as I am sure it will greatly advance the examination of science in our great nation .. and .. God knows .. our nation truly needs it.
Posted by: BoB Moffitt | July 14, 2014 at 07:53 AM
Kent
I have always favoured truth above retribution, and actually we already have a lot of truth we just have zero acknowledgment of it from the PTB. That is, of course, what we need. The condition for South Africa's truth commission was that the main points had already been conceded, and it was the details that were being established. From the UK I have learnt to dread public inquiries which become exercises in not finding anything, or anyone to blame except the occasional minor player, even where the truth is blatant. It just becomes a bureacratic screen for people misusing the system.
What am I trying to say? If the system is bad there are still people who are pleased to operate it, and they are not innocents - moreover, they are prepared to see very bad things happen to people rather than admit any fault. If we are to have reconciliation or even forgiveness then we have to have the conditions for it. Not only are we not there yet we have to be careful of settling for too little or token gestures.
But I am sure you would be in agreement with me on all this.
John
Posted by: John Stone | July 14, 2014 at 07:36 AM