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Dachel Media Review: Wandering, Perceptions

Online newsBy Anne Dachel OurKids ad 2013

Read Anne's commentary and view the links after the jump.  The Dachel Media Update is sponsored by Lee Silsby Compounding Pharmacy and their OurKidsASD brand. 

May 29, 2014, Guelph (ONT) Mercury: An inspiring change in autism diagnosis

May 28, 2014, Idaho Mountain Express: Opinion piece about vaccines is misleading

May 27, 2014, Portland (ME) Press Herald:  Our View: No easy solution when kids with autism wander

May 27, 2014, NBC News: Mice With Mohawks Yield Clues to Autism

May 27, 2014, Chicago Tribune: Changing Perceptions on Autism, One Chicagoan at a Time

 

Guelph (ONT) Mercury

It's a medical advance that could have a positive impact in the lives of children with autism spectrum disorder. New research from Toronto's Hospital for Sick Children suggests that autism begins its development in the womb, a finding that should lead to earlier diagnosis.

Since many children aren't identified with autism until the age of 4, the possibility of a much quicker diagnosis means they could get started on treatment that can improve their brain functioning. With one in 68 children now affected by autism, that's very good news.

The Toronto Star reported that the rate of one in 68 children with autism is "very good news." Children are born autistic. Autism is genetic. The problem is waiting for services.

Questions: Why are we so neglectful of autistic children? If autism has always been around, why aren't there services immediately available for every child diagnosed? If it's so common, why do we have to train everyone to deal with autism--teachers, EMTs, police, firefighters? WHY CAN'T ANYONE SHOW US THE SAME POPULATION AMONG ADULTS? And why do normally developing children suddenly and inexplicably regress into autism?

This same editorial was published on May 26, 2014 in the Toronto Star.

 Idaho Mountain Express

The opinion piece by Leslie Manookian and Kendall Nelson regarding vaccines is one of the most irresponsible distortions of scientific fact that I have ever seen. They use careful word choice and phrasing to imply causal relationships that do not exist and they create the impression of scientific support for theories that have been completely debunked. It is manipulative and unconscionable.

I posted a comment here.  This is a slam at Manookian and Nelson for daring to say there are risks to being vaccinated.  According to the writer, the chances of side effects are "vanishingly small."

Portland (ME) Press Herald

Federally funded GPS units for families are just one part of an effective response strategy.

As the number of children diagnosed with an autism spectrum disorder has soared, a nationwide effort is gaining ground to spread the word about the likelihood of their wandering off from a safe environment.

On a day when I saw numerous stories about genetic autism and no real increase, I found this. The Portland Press Herald in Maine must be exaggerating. There's really isn't a soaring number of children with autism--it's just better diagnosing of a disorder that's always been around. So why are they talking about training police about autism?

And why is there a need for tracking devices? We've never needed them in the past, so why should we have to have them now? Kids have always been wandering off and we've done just fine.

NBC News

It's not every day you see a mouse with a mohawk. But that's what researchers saw while studying mice that had a genetic mutation linked to autism.

The mohawks that the mice were sporting actually resulted from their "over-grooming" behavior, repeatedly licking each other's hair in the same direction.

The behavior resembles the repetitive motions displayed by some people with autism, and the researchers say their experiments reveal a link between the genetic causes of autism and their effects on the brain, suggesting potential avenues for treating the disorder.

...People with autism may also engage in repetitive behaviors, such as rocking or hand flapping.

NBC is very clever. Here we hear about a cute study involving mice who over-groom. It reinforces the idea that autism is genetic and hey--there's no mention of CHILDREN. "People with autism" is the subject. Autism affects everyone, across the ages.


We're also reminded about "Beyond Vaccines: 5 Things That Might Really Cause Autism."

Chicago Tribune

"Autism is not a disease...it is a way of life. It is a stepping stone to something greater: an opportunity to make life interesting for those with this special condition while allowing us to think twice about practices our community grew up with. We truly need to use this platform as an opportunity to make our society better for all...more inclusive."

What can I say? (It's way of life all right. It's one we're all going to be paying for FOREVER.

Autism isn't the problem, people's perception of autism only needs to be changed. Autistic kids aren't really sick. They don't wander off and die.

There is nothing wrong with a condition that is rampant among our children and that has no known cause, prevention or cure. Doctors continue to get better and better at diagnosing it among our children. The fact that 30 percent of autistic kids have experienced some sort of regression is just part of the mystery of autism, and having 25 percent of children with autism labeled "nonverbal" isn't really concerning either.  If we all just pretend having autism is just a normal part of childhood, we won't have to talk about it.


Lee Silsby logo 09 The Dachel Media Update is sponsored by Lee Silsby Compounding Pharmacy and their OurKidsASD brand.  Lee Silsby Compounding Pharmacy is one of the largest and most respected compounding pharmacies in the country. They use only the finest quality chemicals and equipment to prepare our patients’ compounded medications and nutritional supplements. Customizing medication and nutritional supplements for our customers allows them to achieve their unique health goals.

Anne Dachel Book CoverAnne Dachel is Media Editor for Age of Autism and author of  The Big Autism Cover-Up: How and Why the Media Is Lying to the American Public, which goes on sale this Fall from Skyhorse Publishing.

Comments

Betty Bona

Barry,
I don't know first hand, but I assume his previous posts are truthful, and from those I formed an opinion about Roger. Certainly there are posters all over the internet who deserve to be doubted - I'm with you there - but I don't really have a good reason for doubting the veracity of Roger's posts.

Roger Kulp

Barry,I wish I had video of the different hearings my mother and I attended,starting at the age of eleven in the early 1970s.Hearings to put me in institutions or residential treatment centers,the first being Rosewood Center in Owings Mills.Right up until 2008,when my autism had to be reevaluated.At that time,the developmental psychologist had papers ready for my mother to sign to put me in a group home.

The last such hearing was in April,2012 right after my mother died.At that time I had been seeing a DAN doctor for three years.The cerebral folate deficiency half of my problems had been identified,and I had been treating it since 2009.The hospital where my mother died found out how severe my autism diagnosis was,and was about to have adult protective services come in and take me away to a group home.My landlord would not agree with me.Long story short the caseworker from APS saw the improvement from treating my CFD and saw I could live on my own.Most recently,I have been found to have a very new type of Complex IV mitochondrial disease unique to autism,and will be seen in Aransas in a few months.Some of you might know how difficult it is for an adult to be seen at ACH.I have a medical history to equal the sickest of autistic kids.You would not believe the close calls I have had.

It taken me a long,long time for me to realize how unique I am.I have yet to figure out how to put all this experience to work.

Hera

Hi Barry;
Roger has been posting here for a long time and has described in the past the various health issues that resulted in him finding biomedical help for his autism.
He ahs in the past described seizures and post seizure behavior where he wandered not knowing where he was.

I'm sure Roger can describe his issues better than the rest of us, but his info regarding mitochondrial disorders etc has been really interesting.
How does anyone know anything about a person on the internet?
Well mostly ,you look for consistency over a long period of time, and some of it of course is just "go with your gut"
In this case though, I think Roger has actually published an article on Age of Autism in the past??

You might want to read some of Rogers previous posts to get a feel for his history and opinions; imo they are very informative and give a unique perspective.

jen

Barry, Roger has been posting for quite a while here and he has shared his background. He's definitely not with the neurodiverse crowd who thinks autism is something which cannot or should not be treated/helped.

Barry

Barry,
Roger would most definitely have been locked away except for the amazing grit of his mother, and he would not be able to write here without the help of a DAN! doctor or MAPS doctor (I forget which). He is not from the neurodiverse crowd. I assume that's what you assumed. Roger had a very scary history of wandering.

************
And you know all of this … how?

Linda

Re the Canadian autism rate - wouldn't it be fairly easy to compile that data since Canada has socialized medicine?

 Bob Moffitt

Chicago Tribune:

""Autism is not a disease...it is a way of life. It is a stepping stone to something greater: an opportunity to make life interesting for those with this special condition while allowing us to think twice about practices our community grew up with."

As I understand this gibberish .. it appears the Chicago Tribune has adopted a ""zero tolerance" policy for "common sense".

AND THE BAND PLAYS ON ....

jen

Linda, sadly the most recent statistics seem to be from 2012. See www.nedsac.ca
Hit Publications tab then go to reports- NEDSAC Update 2012
Some estimates put us at around a 1 in 100 prevalence.

No Forced Vacc

"I want to know why the Canadians are applying the US CDC statistic of 1 in 68 to their population."

Good question, Linda. Actually, there have been no robust studies here in Canada to discern our national autism rate, despite an ad hoc study done out East, showing it to be 1 in 91. I sense our public health figures are hesitant to do such studies in case they turn up any 'disturbing' pecularities. Better to defer to the US rate.

On another note, our PM Harper was recently on TV, cozying up to Melinda Gates as he promotes his global maternal child-health initiative. Haper also took the occasion to lamblast parents in the developing world that are turning against vaccines. He explained it's a thorny issue for him, with science clearly vouching for vaccines safety and efficacy. In case anyone is keeping score, this 'science lover' is the same man that seeks to muzzle enviromental scientists. Oh the irony!

Mr. Harper, if you are not aware of the issue, perhaps you should read the Toronto Star exposing the dire situation of families seeking services for their autistic kids. Perhaps you will also publicly speak out on the matter and tell us what steps your government is prepared to take to redress the problem.

Betty Bona

Barry,
Roger would most definitely have been locked away except for the amazing grit of his mother, and he would not be able to write here without the help of a DAN! doctor or MAPS doctor (I forget which). He is not from the neurodiverse crowd. I assume that's what you assumed. Roger had a very scary history of wandering.

Barry

I wish there had been tracking devices for me in the 60s,70s.80s,90s.But back in the day the few kids that were like me were locked away in institutions where they couldn't wander away.
***************

There's barely an error to be found in what you just typed Roger. That ability to reason out, and then so flawlessly communicate your thoughts, put's you in a category that doesn't describe even a single autistic child that I know.

Kids like you would never have been locked away in institutions. Because beyond that fact that you would have known not to wander away, they would never have known you were autistic.

Eileen Nicole Simon

This morning on the news I saw President Obama talking about his “Safe Sports Concussion Summit.” He stated, “We’ve got to have better research, better data, ... better protocols.”

I wrote to Obama last December about autism and the obstetric protocol for clamping the umbilical cord immediately after birth, whether or not the baby has begun to breathe. I pointed out that there is no health benefit from clamping the cord, that clamping the cord leads to the need for resuscitation in about 10% of newborns. and that even with quick revival, damage to the brain is likely.

I received a form letter response in which Obama stated that he remains committed to leveling the playing field for all Americans with disabilities, including those with autism. He wants to screen children before age 2, and continue to work with congress, experts, and families to improve ASD programs.

In other words nothing should be investigated to prevent autism. I wrote back and expressed my disappointment to have received only a form letter response, and that no mention was made of the danger of clamping the umbilical cord, which I proposed might be responsible for many cases of autism. I still have not received a second response.

This morning via Google I see that NIH has contributed millions to research on safety measures for school sports, and that every year nearly 250,000 children and young adults are seen in emergency rooms with concussions or other brain injuries sustained in sports activities...

Roger Kulp

I wish there had been tracking devices for me in the 60s,70s.80s,90s.But back in the day the few kids that were like me were locked away in institutions where they couldn't wander away.

Linda

I want to know why the Canadians are applying the US CDC statistic of 1 in 68 to their population.

Greg

"There are also risks in antibiotics, surgery and cancer treatment. Should we give those up, too"?

True -- but when was the last time a healthy person was forced to take antibiotics, or undergo surgery and cancer treatments, and while incurring the risks associated with these activities?

Greg

Two stories on mice grooming......

NBC: The behavior resembles the repetitive motions displayed by some people with autism, and the researchers say their experiments reveal a link between the genetic causes of autism and their effects on the brain, suggesting potential avenues for treating the disorder.

Huffington Post: Genome research aiming to crack the autism code has been plentiful and puzzling. Individuals exhibiting symptoms often have unaffected siblings with the same genetic mutations.

In light of another recent study, Fishell's work indicates that biological pathways gone awry could be the main cause of autism rather than genetic mutations alone.

Tracing the steps of what makes a biological pathway gone awry in the first place could lead to the discovery of a solution to put it back on track.

http://www.huffingtonpost.ca/2014/05/27/autism-causes_n_5397432.html


Oh, the dissonance is dizzying!

Barry

Parents are welcoming disease to have a chance at a second life with their refusal of vaccinations. Their reasoning is an invalidated theory that vaccinations will lead to Autism Spectrum Disorder.

**********

We're well past the point of allaying parental fear with yet more of the tired old " studies could find no link " bullshit.

Growing parental fear is based far less on what they're hearing, than it is on what they're seeing.

And the more double speak they hear, the more apt they will be to believe their eyes, and not their ears

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