Dachel Media Review: Journalism Jail for Reporting on Autism?
April: 30 Days of Autism Action Ideas to Help Friends, Family

World Autism Day Redux: Commemorate Don't Celebrate

Girls easter
Managing Editor's Note:  You know, this "Autism Awareness Month" is getting so easy! All we have to do is run previous years' posts since NOTHING changes! Well, almost nothing. The numbers keep rising so we have even MORE autism to be aware of this year than last! A is for AUSOME!!!!   I still say - I will commemorate autism - I can't celebrate it.  I'll celebrate my kids forever. Their life threatening diagnosis?  Nope.   This post ran last April 1, 2013.

By Kim Stagliano

Join me in commemorating autism action month.  Let's look at other diagnoses and their fund raising efforts: Walk to End Alzheimers. Race for the Cure. Knock Out Muscular Dystrophy.  What are we "allowed" in the autism community?  "Light it Up Blue!"  "Shine a light on autism!" We deserve more.

We face numbers that are rising with seemingly no concern or alarm in the medical, government or mainstream media communities. Prevention? Taboo. Treatment? Reviled. Recovery? Impossible!  Insurance coverage? Too expensive! Housing and employment? Crickets.

Meanwhile, kids are aging out into adulthood. My oldest is 18. Families are going broke. And we are simply told to recognize or celebrate the difference?

Today, April 1,  and every day I honor my beautiful children: Bella, Gianna and Mia (L to R in photo) - I remember their struggles, their difficulties, and how hard they work to make it through a day in a world that seems content to simply "acknowledge them" and offer them a special seat in a movie theatre or a fast line at Disney, as if accommodations are the answer.  I want more for them.

Commemorate someone you love with autism in the comments.

House of Cards 200 pixelsKim Stagliano is Managing Editor of Age of Autism. Her new novel,  House of Cards; A All I Can Handle 50 pixel Kat Cavicchio romantic suspense is available from Amazon in all e-formats now. Her memoir, All I Can Handle I'm No Mother Teresa is available in hardcover, paperback and e-book.

Comments

Kristie Sepulveda-Burchit

..."fast line at Disney" One thing has changed since you last wrote this. We no longer have this accommodation!!! The opposite of progress I suppose.

Connie

Sorry! I meant to write the previous comment to Louis Conte. I was confused by the name of the person being BELOW the comment.

Connie

Jeannette, I would like to thank you for your wonderful words: "Awareness of autism is insufficient if respect isn't paid to the truth of what causes it."
Those words (with credit given to you and Age of Autism and the link to this page) will now be shared with anyone I email.

Connie ~ proud grandma of a 5 1/2 year old grandson with autism

Tamara

Thank you for expressing exactly what I've been thinking every year during April. My son doesn't need acceptance, he needs insurance coverage, treatments, solutions.

Jeannette Bishop

To me "autism awareness" is only a dis-awareness campaign without any effort to see and acknowledge how we are poisoning ourselves.

Sometimes I have the emotional fortitude to commemorate the point of learning or coming to see what I've participated in, what is being done to us by keeping in mind the gains made possible for my daughter.

But I can't help but also be continually aware that much more advancement in well-being for her and many others has been delayed and lost by the continuing efforts to keep us un-"aware" of how much cost accompanies some practices.

Louis Conte

Awareness of autism is insufficient if respect isn't paid to the truth of what causes it.

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