Autism Parental Input
Bright Lights in the Big City
Last Monday evening I got a call from my friend Megan Davenhall who is also known as Sunshine from The Thinking Moms’ Revolution. Sunshine was asked by Fox News to go on air and give her reaction to the induced labor-autism study. Unable to go, she asked if I might be able to jet up to the studio to be on the evening news. While still on the phone getting details, I whispered to my always-supportive husband what the call was about. He encouragingly smiled at me and said, “Go!” I have no prior television experience. Heck, we don’t even have cable TV anymore! I felt a little out of touch but was excited to see what was in store. I thought what have I got to lose? I’ve already been so vocal about Ronan and our situation; this will be one more chance to tell people what I know about autism.
I said to Sunshine, “Sure! I’ll do it.” Had I known how nervous I would be just a few hours later during the interview, I would’ve quickly hung up and hidden under a blankie instead! I’m glad I didn’t run and hide. As nervous as I was (and, oh boy, was I nervous), this opportunity was important.
I knew I needed to do some major prepping for what I just signed up to do and only had just over an hour to do it. I made a quick call to Fox News and told the fellow putting the segment together that a Thinking Mom was available to go on air. I got more details about what the piece was about too. Fox News’ reporter, Shawn Yancy, who is also an autism mom, was going to showcase the autism-induced labor study in the 10 o’clock health news segment. Could I share my thoughts on that? I laughed and said, “Oh, yeah, I saw that go through my news feed. I usually read everything I see about autism, but I didn’t open that link. I thought to myself, ‘Another study? Really?? What’ll it be this time?’ My contact at the station pressed if I’d be available. I confirmed I could and hung up.
While I got dressed and ready to go, my husband read through the study and wrote some notes for me. I joined him moments later and sat down at the computer to do some reading. Together, we found more information and saw that this particular study was drawing a great deal of national attention on several news sites, including ones we trusted and on quite a few mainstream ones as well.
With notes in hand, we went over key talking points. Since I hadn’t yet been given any questions that the reporter would ask me, I made sure to jot down general information on autism as well as news from other recent studies. Not having done too much reading on induced labors, I wanted to verify that process and that induced labor requires chemical assistance. I already knew that, when any kind of toxic goo is added to the body burden, the immune system can be suppressed. The GI tract can take a hit. A toll can be placed on the neurological system. I assumed that once induction starts, risks immediately do too.
I felt like I had a good idea of what could be presented but wanted to get some input from those who’ve sat in the hot seat before. I made a quick call to Kim Stagliano. She offered sage advice and boosted my spirits. Once we hung up, Kim put the word out that I’d be on the news which prompted an encouraging call from AofA’s Media Editor Anne Dachel. She too wished me luck and reminded me of something I hadn’t thought of. This study, as with a string of others, puts blame on the mother. Ah, yes. Another tactic to dodge the truth and make mommy the bad guy.
With only ten minutes left before I needed to get on the road, I reached out to a friend who is well versed in the subject of pregnancy, laboring and babies. Brandy Burd has ten year’s experiences as a doula and serves the Virginia Beach, Chesapeake and Norfolk cities in Virginia. From her website, “As a birth doula, my goal is to help mothers educate themselves on their options for childbirth, and provide the physical, emotional, and informational support they need to achieve what they define as a positive birth experience.” I knew Brandy would be a fantastic source for me in the final few minutes I had left to cram for the interview.
What I gathered from our conversation is that inducing labor could indeed be medically necessary in certain situations, but allowing for a natural birth should be considered first. Some reasons a doctor may suggest an induction are when the mother is experiencing pre-eclampsia, high blood pressure, diabetes, multiple complicated pregnancies and when the membranes rupture but the next stage of labor is grossly delayed as that can put the baby’s health at risk.
Full-term pregnancies typically range from 37 – 42 weeks. Forty-two weeks may seem like a long time, but women can and have safely labored up through then naturally. Despite that fact though, some clinics promote induced labor as a “standard management” practice. Some reasons for non-medically necessary inductions are:
*for social reasons (inducing because parents wish to have the baby on a certain date)
*due to maternal age (inducing because a woman is “older”)
*for convenience to the provider (inducing around his/her schedule or time off)
*for convenience to the hospital (inducing scheduled during the day when more staff is available)
*for convenience to the pregnant woman (inducing because she may be tired of being pregnant or because she wants a smaller baby)
When considering birthing options, taking note of the woman’s health, the type of pregnancy she’s had as well as the baby’s development is of utmost importance. To needlessly schedule an induced labor could actually cause serious complications for both mom and child and what Brandy referred to as the Ripple Effect. This means that when one intervention is started, another is likely to be added in order to offset an unexpected outcome or unforeseen complications from the procedure. More drugs, some with increased negative side effects, are added next. Those, as well as other invasive actions, can add stress and physical strain to the laboring process. Instead of a let-nature-takes-its-course approach, or allowing mom to trust her body, both mom and baby are hooked up to drips and monitors and have less mobility to move through the labor pains.
It was a lot to take in within such a short amount of time, but I got some other good talking tips from Brandy. It was finally go time. The last thing I wanted to do before I drove to the big city to sit under the bright lights was pop over to the Thinking Moms group to tell them I was on my way. Their messages were enthusiastic: Cat, you can do this!!!
Here’s hoping!
When I arrived at the studio, I was shown the green room and the main studio. I’d be doing a remote interview that evening. That meant I’d be in a studio all by myself while the news reporter spoke to me from another studio. During the interview, I’d be sitting on a stool staring into a black monitor that housed a camera. I could hear everything through an ear piece, but I wouldn’t be able to see the reporter or the video of the segment. It wasn’t what I expected. I had hoped to either be face-to-face or at least next to the reporter to pick up on her cues, but I put on my game face and tried not to be nervous.
I had a peek at what the reporter was going to say and reread my notes:
Prevention—YES, please!
1-in-88??—Um, hello! That is so last year’s rate.
Doctors declined—of course they did! Who wants to admit they contributed to an autism diagnosis?
It was finally time to go live. I was miked, did an audio check and stared into that black screen. There was no turning back now. Nor was there time to turn off my nerves. Holy nervous Nelly!
DC News FOX 5 DC WTTG
Can I Get a Rewind?
As you can see in the link I’m no Hollywood super star. Everyone says the first time is the hardest which I can absolutely attest to. Since there’s no rewind button to do this particular interview again, here’s how I would’ve responded without the pressure, the bright and blinding lights and the bundle of nerves that kept me from smiling on camera:
Reporter: Should pregnant women be concerned (about the results of this study)?
Cat: This study has many holes in it. Not enough data of each birth experience was reported which leaves me with more questions than answers. As far as should pregnant women be concerned, my thought is this. If the reason to induce is due to an emergency and/or to protect the mother or her child, then no, pregnant women shouldn’t be as concerned as the media might think they will be. Medically necessary induction rates are much less than those of the elective induction rates that this study focused on.
Now, if the reasons to induce labor are elective for the doctor’s convenience, then, yes, I would think pregnant women should be very concerned. The concern would not about the study or about autism though. It would be a concern for the woman’s personal needs and that they are not a priority for their provider.
As we autism parents have done for so long, pregnant women must also arm themselves with as much information as they can before they step foot into a doctor’s office. Their input is just as important, if not more, than what the doctor’s have been trained to say. If a woman needs intervention, she should ask early what her options are. I’d encourage expectant moms to be thorough with their research and to read as much as they can throughout their pregnancies. She should read about the procedure and the drugs that will be administered—including the ones that are clearly not recommended for pregnant women but are often used to induce labor. A good deal of information is available to women when they know where to start looking. Two helpful resources are the Nurture Parenting website and Jennifer Margulis’ book, The Business of Baby. Lastly, I’d recommend she hire a doula who can provide the pregnant woman with continuous physical, emotional and informational support during her pregnancy and the birth of her child.
Reporter: What if any advice do you have for parents out there who have children with autism and for moms whose labor was sped up or induced?
Cat: How long can I talk? Seriously. I need at least an hour. For the first part of that question I think parents like you and I need to be more vocal about what happened to our children. We need to keep talking about it, about autism and about that the autism rates are still rising.
Secondly, what would I say to moms whose labor was sped up? Unfortunately, you can’t go back in time to change what happened. But you can be proactive now. Find resources. Look for therapy and for appropriate intervention. Get started as soon as possible, and stick with it. Since it can be very overwhelming, find a support group to guide you. Over time, as you read, research and discover that certain procedures and medical interventions you opted for may have a link to autism, learn more about it. Read, research, ask questions and do it all over again until you have a good understanding of what happened and why. If the side effects can be reversed, try to do just that. Autism is medical. It can be treated. Happily, for some, autism can also be reversed.
Reporter: Cathy, in your circles, are people talking about this study?
Cat: Yes, and not in a good way like mainstream media probably thinks. When I first saw the link go by my news feed I laughed. It had only been, what, 4 few weeks, since the IVF-autism study was shared? When these “studies” come out, I can’t help but wonder what is being covered up in other autism news? And, come on, media! It’s not the 1950s. Stop blaming moms for autism. If you want to do something that’ll make everyone want to read and share your stories, get someone to investigate the overinflated vaccine schedule and how it’s messed up so many children’s childhoods. I guarantee that’ll make front page news.
If I knew what the protocol was during the final seconds of the segment, when Yancy said,
Reporter: More studies need to be done…
I would have interrupted and said:
Cat: Well, not entirely. I’d prefer more action be done than studies. People need help now. Sure, it would be nice to have more definitive answers as to all the causes of autism, but look at what the other studies are saying causes autism: old dads, moms with big boobs, college-educated parents, living near a freeway, prenatal ultrasound, Tylenol use, jaundice, larger head size and watching TV. Enough already! Families working through an autism diagnosis are in crisis. They need support. Why not take some of those valuable research dollars and put them into intervention programs and biomedical treatment options? Studies cause speculation and delays. Action can help people right now.
Annnnnnnd, cut.
What an experience! I am glad that in the actual interview I did remember to use key words and phrases like environmental trigger, unnecessary elective procedure, do your own research, ask questions until you get a good answer, the current autism rate is alarming and parents should be concerned about it.
Fast Forward to Now
All week since the interview I’ve been thinking about the study and the pressure it will put on women. This study does nothing more than raise alarm bells for pregnant women and future pregnant women. Fear, worrying and possibly being bullied by a provider to give birth earlier than necessary is no way to go through pregnancy. I also believe this study will make parents second guess a decision they made years ago that they can never take back.
I made sure to email the news reporter the next day. I said thank you for the opportunity to be on the news. Her response was encouraging as she said she’d make sure the producers had my contact information for future stories about autism. I’m glad because as thrilling as it was to correct the reporter about the autism rate, it is troubling that both this station and several websites that posted the induced labor study have the incorrect autism rate. Sadly, some people are not doing even basic research on such an important issue.
We all know that whenever human development is interrupted, or when chemicals are injected, ingested or slathered on the body, potential risks that cause irreparable damage can occur. Messing around with nature and adding increased stress isn’t going to do expectant mothers or their unborn child any good. Additionally, if a woman is being told that the tiny human being she’s carrying in her womb isn’t worth another two or three weeks of development, I’d hope she already have that mother’s intuition to question why. What’s the rush to get life started? Is it really too much to wait it out? We’re learning that our kids’ physical, mental and emotional health greatly depends on.
Cathy Jameson is a Contributing Editor for Age of Autism.
You were simply fantastic with great comportment! A deep thank you for all your ongoing work and never-ceasing commitment and love.
Posted by: Jean | August 19, 2013 at 09:56 PM
This is not the first time induced labor has been implicated as a cause of autism. There was a study in the early 90's that was reported in TIME magazine. It was apparently squashed, I never saw any follow up on the findings. I have gently warned people about elective inductions for 20 years based on that study.
Posted by: Georgia Mom | August 19, 2013 at 03:10 PM
Induction of labor, except for crucial medical reasons has always been despicable. It belongs to the era, from which we have yet to emerge, of perceiving the human body as a machine, rather than a biochemical masterpiece.
It needs to be placed on the long list of medical atrocities including blood letting. Look at blood letting today, by the way: Is taking some blood (which can be replaced by the body) OUT of the body somehow WORSE than injecting mercury and aluminium and other toxic foreign substances INTO the body.??
Induction of labor , outside of emergency reasons, is something that would puzzle any zoologist. Amazing what we can be taught to accept when we see white coats and granite floors.
And by the way, what supposed increase in autism exists for inductions- maybe 2%? And did the fine scientists ensure that all the babies in the study had been vaccinated.? You have to maintain the variables correctly, ya know.
Anne- is it correct that flu vaccines contain 25 mcg ethylmercury or is it 25 mcg Thimerosal. What are the brand names of the flu vaccines that contain that quantity?
Posted by: Cherry Sperlin Misra | August 19, 2013 at 02:04 PM
You did a great job, Cathy. You didn't look nervous - you looked cool, calm, and collected.
Posted by: Twyla | August 19, 2013 at 12:02 PM
Cathy:
I enjoyed watching your clip on Anne's site. Beautiful job! I've been in the "biz" since 1991 and I can tell you that you never lose that nervous feeling or the post appearance woulda-shoulda self dissection when you truly care about what you are presenting - and you do care deeply. Thank you for taking the plunge. Also, thanks to D.C.'s FOX affiliate for having you on. Hopefully there will be some new Thinking Moms as a result of this piece.
Posted by: Christine Thompson | August 19, 2013 at 10:25 AM
My second birth - my son -- was not induced - he came two weeks early. He was the one that reacted to the vaccines with encephalopathy and he was the one with the speech problems, fine motor skill problems - with the autism.
Not my daughter that went three weeks over and had to be induced.
So now what?
Posted by: Benedetta | August 19, 2013 at 09:55 AM
Cathy, you did a wonderful job! I watched the video before reading this article, and would never have guessed that it was your first such on-camera experience. You are smo-o-o-th.
Posted by: nhokkanen | August 18, 2013 at 11:03 PM
Nice job Cathy, you made it look pretty smooth.
Posted by: Victor Pavlovic | August 18, 2013 at 08:14 PM
http://intermetu.com/2012/02/what-causes-autism-a-theory/
this is a great case for pitocin/hepb in synergy causing autism
Posted by: barbara j | August 18, 2013 at 07:13 PM
I did some research on this a while back, and apparently the pitocin hinders the BBB from being able to block toxins to the brain. Thus, scientifically, it would appear to contribute to autism. The four children I had induced all fell to autism. What's worse is that they were all for the convenience of the doctor. I would never had them, nor were they medically necessary, had the doctor told me there were any harm, risks, etc. Anyhow, after doing much research, there is no dispelling that autism is from toxins, so all toxin exposures, and all things that hinder the body from eliminating toxins contribute to autism. If you have enough of such, you will have autism.
Posted by: Heidi N | August 18, 2013 at 06:02 PM
Cathy,
Very well done.
John
Posted by: John Stone | August 18, 2013 at 05:26 PM
Good job, Cathy. I know it must be hard to have to participate in this pretend science and talk like it actually means something.
News anchor: "I have a child on the autism spectrum. You do too. I think I speak for every parent out there, hoping that one day we'll have a definitive answer as to what causes autism, so we can prevent it. This study, funded by the EPA, is alarming. More and more women are scheduling labor and being induced. And now this. Should pregnant women be concerned?":
Cathy Jameson: "WHAT ACTION IS GOING TO COME FROM IT?"
Anchor: "A lot more study, a lot more research needs to be done."
Always someone in the studio has an affected child.
Always there's a lot more study that needs to be done. Nothing is ever definite. And next week, there'll be two new studies showing there "might" be a link to something else.
"Should pregnant women be concerned?" Older dads, older moms, moms who take this...who don't take that...moms who do this....moms who live there... ...Listen, if pregnant women really worried about everything linked to autism, they'd all be having their children in mental hospitals.
(BTW, the scene of the mom-to-be getting an ultrasound reminded me that there is this research.
http://www.healthandenvironment.org/docs/Facts_-_Electronic_10-6.docx.pdf
"A recent study found an apparent link between multiple second-trimester ultrasound exposure of girls and autism. Animal studies show that ultrasound can both damage cells and alter their migration, creating the patterns observed in autistic brains."
http://www.ultrasound-autism.org/?page_id=115)
I can almost guarantee that nothing more will be said about this link. In the end, there'll be hundreds of "possible" links/triggers/associations to autism. Doctors and health officials will be finally able to throw up their hands and declare that there are so many possible "causes" for autism that we'll probably never know what did it for your particular child. More of the mystery. And I'm sure 99 percent of the possibilities will be tied to health of the mother or her behavior. Sorry moms, it's always going to be OUR FAULT. It has to be.
This study was funded by the EPA. Those are the guys that I'd like to talk to about mercury levels. Why are flu shots with 25 mcg of mercury being given to anyone three years old and older? According to their own EPA estimates, that much mercury is for someone weighing at least 550 pounds? (And please don't say it's safe mercury---there's no such thing.)
(Great publicity for TMR!)
Anne Dachel, Media
Posted by: Anne McElroy Dachel | August 18, 2013 at 04:17 PM
Oh, Cathy:
Every conversation I have ever had - let alone a news interview -- I have rethought what I wished I said.
So, let me inform you -- that you did an excellant job! Stop rethinking it.
I can promise you if it had been me -- I would have gone into major panic, my mind would have froze up and what they would have gotten from me would have been the frozen deer in the headlights - blank look!
You did great! You spoke thoughtful words of wisdom.
Best of all you did not let the situation rush your words, you spoke very clearly and at the right pace.
By they way, You are also very pretty!
Aside from the nerves a lot of information was passed along in this interview.
At the very end the news reporter quoted a head doctor that said it probably was something wrong with the woman - in that labor had to be induced. That is not blaming the mother.
I know I was three weeks - easily going into four weeks overdue-- without a sign of going into labor. I am pretty sure I came very close to dying. My gyno went on vacation, he had planned for a year to go on it. I wondered why said the due date that he wanted -making me a month later than I really was. Well it was because he was going on vacation and if I went into labor - well I had the ER, but he was not going to tell me that. What he did not plan on was - I needed induced labor. .
I knew exactly how far along I was because we planned this child from the very beginning, and were watching, and waiting.
My duaghter however was born perfect - She was so far along though that the nurse as she left the hospital was able to make her smile. The nurse was amazed and told us that rarely happens. The nurse did not think that smile was gas.
It took the fourth DPT shot -as she reacted to each three of the previous ones - to give her Kawasakis - and the beginnings of bipolar.
So what was wrong with me, as a mother?
The same thing that was wrong with my thyroid -- one Swine flu vaccine, and one DPT shot just three years pior. I thought I was healthy --but this is a very silent disease - isn't it-- if you have no idea what the very subtle signs are. . Just found suddenly the inability to concentrate like I had going through college -- can easily be blamed on changes in your life. OR a first time yeast infection.
And the father's immune system has a part to play too-- it just has too. And he too was heavily vaccinated - soon after to have his first severe vaccine reaction
Posted by: Benedetta | August 18, 2013 at 11:43 AM
Cathy, you did an excellent job. Thank you. Interesting that doctors declined to discuss this issue.
The IACC is having some upcoming conference calls. They were going to include stakeholders. I asked to be involved, but have not been invited. I will inquire again. We all should inquire, and request to be participants in back and forth discussions, until the causes of autism are identified, and steps taken to stop all causes. The IACC received many responses from requests for public comment. See for example
http://iacc.hhs.gov/public-comment/2009/rfi_comments/index.shtml
All of our ideas need public discussion. Autism is a crisis for too many of us (and for me still more than 50 years later). The medical profession can no longer be allowed to hide. I will continue to point out the most horrific obstetric error, use of a clamp on the umbilical cord. There is no evidence of any health benefit from this procedure. It is especially dangerous when they clamp the cord before the baby begins breathing.
Posted by: Eileen Nicole Simon | August 18, 2013 at 08:02 AM