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The Autism Bureau A New Blog: IACC....Ick

Autism Bureau

Congrats to Jill Rubolino on her new blog "The Autism Bureau." Here's an excerpt from her first post. Add her to your bookmarked favorites.
 
iacc......ick
 
maiden voyage....our trip to give a whopping three minutes of public comment at this past iacc meeting. as usual, we mistakenly thought we should be nervous, until we got there. then we quickly realized, pretty much nothing to be nervous about except maybe the possibility of jumping across the table and throat punching someone until her airway collapsed. alas, we are not murderers like some people in the room. pathetic was the response to the public comments, some of them pleading for help. I think the fabulous Kelly Peters sums it up with this fb post:
 
Let's objectively look at objectives. Let's plan a meeting to plan the plan about the plans. Let's regroup and recap and examine the reviewed data in four months. Let's schedule a committee review about the separate meeting of the committee subgroups. Let's re-evaluate the same shit we have blathered about for the past few years and did nothing about.....
 
Let's gather again and blow some more smoke up America’s ass....
 
two rays of light...Wendy Fournier and Lyn Redwood...thank you for making us feel like, for a second, we weren’t sitting in the third ring of hell by injecting some much needed reality into the day...and for your tireless work. i couldn’t move forward without recognizing the unbelievable display of restraint you both demonstrate and, in retrospect, the realization that all along you have endured this gross display negligence while keeping your commitment to the truth....and to our children....who are suffering. all i can offer is my deepest thanks. and i’m sure there are some warriors out there that are rolling their eyes right now mumbling the proverbial ‘this is just a normal tuesday for us’ and looking down at our disgust for the status quo with a judging ‘don’t you think we would have fixed this by now!?’ attitude. oh well. if you wanna be a hater, stand in line bitches. if I lose any sleep over your opinion of me, i’ll be sure to send you a frickin memo. until then, realize that the travesty of justice is big enough for all of us. that whole posturing within our community bullshit is just that, bullshit. spending my life working with physicians whose egos were bigger than their frontal lobes enables me to see past those who talk the talk but can’t walk the walk. look around...at 1.5 million kids with autism, there’s enough more important shit to talk about. hence, i digress.

 
what can i say about Dr. Buie or Dr. Frye. please, for the love of God, watch their presentations. for your own sake and the sake of your children. they pretty much laid it out for everyone. our kids are sick and they require medical treatment.if they get treated, they can and do get better. not sure anyone was listening as they kept leaning over whispering to each other about time, and how far behind the schedule was. we sat right behind insel not on purpose but it turned out to be enlightening. especially when he would lean over and make little comments like “she’s smart” or “makes sense” like he was an actor in a pr campaign and it was the first time he’s ever heard of this shit.  i thought Jeanna was gonna unleash her rugby playing self on his ass at any moment but thankfully she kept it to a minimum and we spent the time texting each other how much we hated them and writing notes on each other’s notepads.  Read the full post at The Autism Bureau.

Comments

Wendy Frye

I have to love another mother who must restrain herself from crawling over a table and (thunder) punching ignorance in the throat until it collapses......LOVE!

PJ Carroll

Thank you for being there and representing the thousands of parents who continue to be ignored by IACC. I love your style!

White Rose

Yes agreed there is room for all of us in this campaign .
Dont forget the Dads ! Excellent work , I thank you greatly.
We all need to do much more . We need higher visibility ! The general public all think the vaccine autism question uis settled , and they are unrelated , thanks to the collaborators in the media (the scoundrels at the BBC deserve a special mention here .)


I didnt really understand this part ?can someone explain please ?

"all i can offer is my deepest thanks. and i’m sure there are some warriors out there that are rolling their eyes right now mumbling the proverbial ‘this is just a normal tuesday for us’ and looking down at our disgust for the status quo with a judging ‘don’t you think we would have fixed this by now!?’ attitude. oh well. if you wanna be a hater, stand in line bitches. "

Cherry Sperlin Misra

What is the option? I believe that the only option now is to do an end run around these evil or ignorant or brain washed people(Whichever it may be- the result for the autistic kids is the same) Or - we can do lots of prayers for an effective whistle blower to appear on the horizon. We now have about half of the public thinking that autism may be caused by vaccines. Keep doggedly working to increase that number
Find a means of letting everyone know that there may be mercury in the flu vaccine they receive- even when pregnant.
Rope in all the people who realize and could realize that their Alzheimers Disease and their chronic medical disorders are probably due to the mercury in the fish they eat, the mercury in the flu shots, and the mercury in their dental amalgams. When enough people understand this, the game is up.
And its time to look for every means available to us to get people to listen and think and understand . One of the areas that I think we need to work on is good visuals. It recently dawned on me that one of my best visuals is the little chart of the Indian vaccine schedule, post year 2000, with the names of the vaccines and a notation for "mercury" for those that contain it. Lots better than a mercury toxicologist talking about how many micrograms blah blah blah.

Benedetta

Oh, yeah; it gave me a chuckle this morning too -- So I thank you as well CMO and Jill.

Taximom

I know I should be crying, not laughing--but the "Let's plan a meeting to study the plans"and "study the feasibility of a study, but more study is needed before the study" has me laughing to the point of...tears.

Thank you, Jill (and cmo) for pointing out just how ridiculous they are.

cmo

Let's plan a meeting to ...plan the plan about the plans.... Let's regroup and recap and examine the reviewed data in four months. Let's schedule a committee review about the separate meeting of the committee subgroups. Let's re-evaluate the same shit we have blathered about for the past few years and did nothing about.....

VERY WELL WRITTEN JILL. I believe they also once created a "study" to study the feasibility of creating a vax-novax study, but decided more study was needed before the study.

A problem 100 times more common than polio, and they give the parents three minutes every 6-8 months.

Alison MacNeil

The Full Rubilino. Love you Jill. You speak for me.

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