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Does Ethylmercury(Thimerosal) Inhibit The Clearance Of Measles Virus Infection Of The Brain?

Tell IACC and AAP How Sick Your Autistic Child Is And About Unmet Medical Needs

Speak upSafeMinds believes that the lack of appropriate medical treatment for individuals with autism is a violation of basic human rights. Together we can improve the lives of children with autism now, but we need your help.

The IACC (NIH’s Interagency Autism Coordinating Committee) added the existence of co-occurring conditions associated with autism in the strategic plan for autism research back in 2011, acknowledging the need to better understand the scope and cause of these conditions, and the need for multidisciplinary heath assessments and effective treatment guidelines. But to date, far too little progress has been made. In an effort to address this urgent unmet need the IACC has invited Dr. Perrin, President of the American Academy of Pediatrics, to attend the July 9th meeting to discuss what can be done to improve health care for children with autism. This is your chance to let them know what you think!

Those in the autism community understand that many of the behaviors present in children with autism, especially those that are self-injurious, are often related to physical pain and are treatable and preventable with appropriate medical interventions. Therefore, every effort must be made to increase the medical community’s knowledge and awareness of these co-existing medical conditions. 

Please help SafeMinds educate the IACC and AAP regarding the unmet health care needs of children with autism by sending in your child’s medical history (including all diagnoses and co-occurring conditions), plus any suggestions for how to best address this issue, to the IACC via the IACC Public Inquiries inbox (IACCPublicInquiries@mail.nih.gov).  Also, please send a copy of your submission to IACC Member Lyn Redwood (Lyn@safeminds.org) so that she can reference your submission, if needed.  If you are able to travel or live in the Bethesda area, please consider attending the meeting and speaking at public comment.  (Public comments need to be submitted days in advance.) For information regarding how to register for the meeting and public comment, go to:   http://iacc.hhs.gov/public-comment/2010/index.shtml .     

Comments

Linda

Make a quilt. Everyone do a 12x12 square to honor their loved one. Someone take charge of piecing it together and storing it. Show it at events.

Linda

The brilliant, dedicated and tenacious Barbara Loe Fisher at NVIC has been informing the public and government officials of vaccine injuries including autism and has been calling for safer vaccines, honest independent vaccine research and justice including medical care for those injured, for several decades. These are the people that she has been addressing and these are the people who have been attacking her for her message.

Autistic Living

With all due respect, this is just naive. I'm guessing/hoping this call to action is part of a bigger action plan, but telling these creeps anything about our kids is a waste of time.

The IACC? Really? The organization that was created to delay and misdirect all things related to autism?

Our kids have been, and will be for the foreseeable future, collateral damage. An acceptable error rate in the grand scheme of things.

Our problem is that as bad as autism is today, we're still on the wrong side of the calculator :(

Eileen Nicole Simon

I have just submitted a request to MA Senator Elizabeth Warren to meet with her and discuss the concerns that have been expressed repeatedly by so many of us:

Dear Senator Warren,

I would like to schedule a meeting with you at the Boston Office to discuss the Interagency Autism Coordinating Committee (IACC).  This agency was formed to investigate reasons for the continuing increasing prevalence of autism, but they refuse to discuss comments of stakeholders (parents like me) submitted in writing or in person.

I plan to attend the next meeting on July 9.  Once again I will point out that the obstetric protocol for clamping the umbilical cord immediately after birth risks causing a lapse in transfer of respiration from the placenta to the newborn infant's lungs.  Resuscitation may be possible, but a pattern of brain damage affecting auditory centers in the brainstem is a likely result.  See the presentation I made on November 21, 2008 online at:

http://iacc.hhs.gov/events/2008/slides_eileen_simon_112108.pdf

That was 5 years to the day after I presented something similar at their Autism Summit meeting.  The IACC needs to be reorganized, and all meetings should be devoted to back and forth discussions of stakeholder ideas.  

The brain, and its vulnerabilities, should be made the top priority.

I look forward to meeting with you to discuss the purpose and performance of this important agency.

Sincerely,
Eileen Nicole Simon, PhD, RN

Linda

Perfect analogy, Jake.

Jake Crosby

Tell Goebbels and Hitler how your synagogue was torched during Kristallnacht and about unmet needs for religious freedom.

Benedetta

I noticed that the some of the girls injured with the Gardisil vaccine have had their docs say Vasculitis.

That might be a good place to start - if they were really wanting to know.

Do you think they really want to know?

I don't think they really want to know.

If you think about it - the route that they would go if they did would be straignt to the peds' officies across the country,
and request the ped give them the complaints of why certian patients come into the the office for. I am sure there are tons of kids out there that the peds knows that they have vaccine injured - My peds knew.

Eileen Nicole Simon

Bob Moffitt, thanks for your support, and for recently encouraging all of us, “See something? Say something.” I do plan to go to the IACC meeting in July to put in a 3-minute comment. However, I also will send written comments, and I will send these also to our new MA senator, Elizabeth Warren. The IACC needs to be reorganized to become more receptive to stakeholder concerns.

Written comments, by the way, become part of the “public record.” I finally found out (via the Government Printing Office) that this public record can be obtained via IACCPublicInquiries@mail.nih.gov, which lately I have been requesting after each meeting.

Back and forth discussions should take place on all comments submitted. Then maybe progress could be less painfully slow (as Dr. Guttmacher reported to the congressional hearing last november).

L

Insanity is defined as doing the same thing over and over and expecting a different result. WORD.

Bob Moffitt

"In an effort to address this urgent unmet need the IACC has invited Dr. Perrin, President of the American Academy of Pediatrics, to attend the July 9th meeting to discuss what can be done to improve health care for children with autism. This is your chance to let them know what you think!"

Forgive me .. but .. in my humble opinion .. the idea of inviting the President of the American Academy of Pediatricians to "address the urgent need" to explore the "existence of co-occurring conditions associated with autism" appears to be a predictable .. total .. deliberate .. waste of precious time.

After all .. this man is the PRESIDENT OF THE AAP .. and .. it is PEDICATRICIANS who .. after more than a full DECADE .. are still in denial regarding those very same "co-occurring conditions associated with autism" that this man is now supposed to "urgently address"? Give me a break.

Instead of the IACC putting the "fox in charge of the chicken coop" .. how about they invite two of today's contributors to Age of Autism? Such as:

Eileen Nicole Simon

"Co-occurring conditions, especially GI dysfunction, likely result from disruption of the autonomic centers of the brain, which control peristalsis etc. The autonomic centers are, like centers in the auditory pathway, susceptible to asphyxia at birth and toxic injury during early childhood."

Theresa Conrick

"So then it is possible that ethylmercury (Thimerosal) can decrease IFN-gamma release in a human recipient thus making viral clearance, especially measle virus, impaired? In other words, could a vaccine containing Thimerosal, like HIB back in 1994, impair and dysfunction the clearance of measles after an MMR vaccine?"

I have far more faith and confidence in these two remarkable contributors to Age of Autism will finally "address the urgent needs" of our community .. than I will ever have in either ... the IACC or the President of the Academy of Pediatricians.

If anyone has a reason why the IACC should remain our only hope of "addressing the urgent needs of our community" .. I am more than willing to hear them .. otherwise .. I am all for shutting the IACC down.

Eileen Nicole Simon

You get 3 minutes to speak at the IACC. Since the Autism Summit in 2003 I have been pointing out the damage caused by asphyxia at birth to auditory centers in the brainstem. Drs. Korshetz and Insel briefly mentioned this last December, and I am glad they had Dr. Tager-Flusberg speak about non-verbal children at the last meeting.

What we really need is to demand discussion of stakeholder concerns. I will continue to try to point out that the brain must be the primary focus of research. The injury is specific, and prevents normal language development, which is the most serious handicap for children with autism.

Co-occurring conditions, especially GI dysfunction, likely result from disruption of the autonomic centers of the brain, which control peristalsis etc. The autonomic centers are, like centers in the auditory pathway, susceptible to asphyxia at birth and toxic injury during early childhood.

Farmer Geddon

Barry , the vaccine injury toll is in the millions , dont be afraid to say it . It could even be tens or even hundreds of millions - on that part I'm unsure .

Barry , you and I seem to believe the same story except I think you need to speak up now . Actually I mean protest .

And we will both need to protest for the remainder of our lives (this issue is one of the big ones !).

I agree with you about some of the highly suspect representation we have had from some of the groups involved . eg the NAS here in the UK is highly suspicious

Victor Pavlovic

Unfortunately the only thing that is going to happen is they will introduce new drugs to supposedly help our children, something the IACC, AAP and all other medical organizations are dying to do anyway, after they created the damage with vaccines to our children. I just don't see the logic in any of this.

Barry

"... SafeMinds believes that the lack of appropriate medical treatment for individuals with autism is a violation of basic human rights..."

*************

My child was not born with the autism label . He was born normal and healthy, and was developing normally until the vaccines he received at his "well baby" visits sent him spiralling into a health crisis that has been given the name of autism.

Vaccines did this to my child, just like they've done it to countless thousands of other children. And it's hard for me to imagine of a bigger violation of human rights than that.

From where I'm sitting, THIS is the issue that advocacy groups like Safeminds need to really... REALLY be chasing down. And until they do that, please don't ask ME to speak up, and tell my son's story yet another health official who's being paid to feign interest in his vaccine induced condition.

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