By Trudy Snyder (photo credit Kelly Dunham)
A government survey of parents says 1-in-50 U.S. school children have autism which surpasses a previous federal estimate for the disorder reported just two years ago.
Don't worry. Per this report, autism is not occurring more often. Once again, it’s just better diagnosing. These really smart people who run our medical community FINALLY learned how to count. AND here's the kicker, my son and many others weren't even counted in the most recent CDC numbers of 1 in 88 from 2012. Why? My son was too young. In 2008 when 8 year olds were the cohort of the study those children younger than 8, like my son who was only 5 years old at the time, were not included. What’s more shocking is that the 2008 information wasn’t published until 2012!
Autism is the LEAST funded illness to be "researched" by the government. According to the government and the committees that are charged with FINDING the answers...answers which should include vaccines, but they have been exonerated. However, on November 29, 2012, Dr. Boyle from the CDC admitted a vaccinated versus unvaccinated study has never been conducted. How can vaccines be discounted when they won’t even be considered?
What does this mean for you? You now have a 1 in 50 chance of having a child diagnosed with autism. And God help you if you have a boy. Your odds go up.What do you have to look forward to?
Advocating for a child who cannot defend themselves for the rest of your life. Protecting that child from the entire world which includes strangers, medical staff and educational staff. The only person you will trust with your child is yourself. You will be on constant alert. Hardly anyone can be trusted and you will do this for the remainder of your life here on earth. Not to mention the very real flight risks many of these children are. Eloping and wandering are only two worrisome behaviors children with autism have. More troubling is that a number of autistic children will drown each year because of their fascination with water. It only takes 15 seconds for their parents turned their back for to pull the pot roast out the oven to discover their child is gone. Gone forever.
What else do the new rates mean?
Fighting for services. Any kind of service from SSI disability to Occupational Therapy; it will be a fight to find and secure assistance. Your insurance is NOT required (nor do they want) to cover your child's "early interventions" such as speech therapy. Obamacare threw that decision BACK to the states in February 2013. So cross off typical therapies that used to be covered, too.And don't forget fighting to have your child's medical issues addressed. Oh yes, lest we not forget Alex and his mother. Languished for a month in a GUARDED hospital room at Loyola Medical Center in Illinois. Your child, more often than not, will have severe bowel issues. They will go through DAYS of diarrhea, so horrid that it burns their skin off of their bum. Then suffer days of constipation. Oh and don't forget the screaming in pain. It will rip through the very core of your parental soul. You will want to comfort your child while they scream and hurt themselves and anything or anyone who comes near them. But you won't be allowed to touch them. They will push you away. The pain is so excruciating that they block out everything BUT the pain. Including you.
You will be looked at as angry, crazy and perhaps a bit unstable. Keep in mind, you'll get used to it when it
comes to medical staff, but when it comes to family members and friends? It will hurt your heart. "How dare you speak out about what you
witnessed happened to your child. You
are only looking for something and someone to blame. What do you mean you deny him a peanut butter
and jelly sandwich? ALL kids eat peanut
butter and jelly! What do you mean he's
not allowed to have gluten? I don't even
know what that is anyway. How about a
glass of milk? No? You mean your child
isn't even allowed to have MILK? It's so
nutritious, and we all drank milk because it ‘does a body good’". I can tell you what milk does to my child's
body: rash, gas pain, bloating, screaming, but I'm crazy for changing my child's diet so he won't be in pain.
You will be blamed. You will be looked at by medical staff as causing your child's severe pain for attention. I have one friend who is currently fighting the courts to return her child who has severe stomach issues. The hospital that she took her child to for help, called Child Protective Services (CPS). The mom is being accused of Munchausen by Proxy and medical abuse. I have another friend whose child has a genetic heart defect that the child's own father carries and CPS took her child. They said SHE was causing his heart monitor to go off repeatedly. This friend's been fighting for almost a year to have her child returned to her and to put this ugly chapter in their lives behind them.
You will be chastised, ridiculed, sneered at for seeking bio medical
interventions for your child. For
seeking "alternative" medical relief for your child. This ties in directly with the fact that you
will be "blamed". The medical
community doesn't like it when you question their methods. If you do, you are delusional and grasping at
straws. You need to learn to accept that
your healthy child is now disabled and YOU caused it because of your faulty
genes or something that YOU did while you were pregnant. You did not see your child developing normally
for a number of months or years and then suddenly slide backwards into their
own world. YOU DID NOT.
You will be damned. For having horrible genes. Don't you know that your genes are inferior? Better yet, apparently you didn't do "something" right while you were pregnant. You talked on a cell phone. You lived near a free way. You chose a partner who was too old to father children. You took anti-depressants while pregnant. Etc., etc. and etc. But wait, there's more. You will be thought of as a "Refrigerator Mother". You never loved your child. You offer no nurturing, no bond with your child. You are standoffish around your child causing your child to separate from reality. To spin in circles, to flap their hands and to lose speech because you never speak to your child because you do not love that child.
This is just the tip of the iceberg.
However, let me tell you about the child with autism who has been trusted by some wrinkle in the fabric of the universe to be in YOUR care.I cannot speak for everyone with a child with autism, but I can give you my own experience.
I know love like no other now. The innocence of this child goes to my very being. The connection that I have with him is other worldly. He is the reason I breathe. The reason I wake up every single day ready to take on the world. I want to wrap my body around him and keep him safe, protected, warm and always with me because NO ONE will ever love this child like I do. No one. I swim in the blue of his eyes. He is the most beautiful person I have ever had the privilege of knowing, and I get to be his mother. How lucky am I? He makes me slow down and LOOK. His giggle, oh his giggle. Infectious is the only word I can think of. It reminds me of butterflies. He's aware of everything around him even if he never says a word. He knows more than anyone (sometimes even I) give him credit for. He's smart and he's a stinker when it comes to picking on his sister. He's very thoughtful. Some may think that because he's non-verbal that I have it in my head that he's "thinking" all the time...but he IS. I've watched his eyes as he calculates things. He's also extremely kind. Literally, when they say "This life that chose me" I know what that means now.
So when? When are we going to beat down the doors of the government agencies that are supposed to be honest and TRUTHFUL about what is happening to OUR children? This isn't just about my son. It's about thousands of children lost. Their futures lost. What they could have been or were destined to be, lost. Some children with an autism diagnoses will go on to accomplish great things. I know they will because they INHERITIED their parents fighting spirit and GENES.STILL, Autism is NOT considered an EPIDEMIC. When 1 in 50 children are being diagnosed with a debilitating, physical and mental disorder it's NOT an epidemic. I simply cannot wrap my mind around that. At this point, government agencies should be leaving NO stone unturned looking for the CAUSE. What have we received? Silence. Avoidance. Doublespeak, enough so that the average person who doesn't read article after article or study after study, honestly thinks they are doing something. The ONE thing they keep avoiding? Vaccines. They say that they have looked at vaccines and that there is no cause for concern. What you need to realize about this statement from the CDC, FDA and the NIH is that they actually HAVEN'T. They supposedly looked at MMR and one ingredient in vaccines that is mercury based. What they fail to mention is that Dr. Wakefield's colleague Professor Walker-Smith was exonerated of ALL wrong doing when it comes to the MMR link to bowel disorders. Their work showed that bowel disease is linked to autism. That the scientist who studied the mercury in vaccines was charged with 9 counts of fraud and is on the FBI’s Most Wanted List. That there are 15 OTHER vaccines that have not been glanced at let alone studied. That there are dozens of OTHER ingredients that haven't even been put into the equation of cause and effect. What? You didn't know? You didn't hear these things on the nightly news? You won't.
When Health and Human Services’ Secretary Kathleen Sebelius makes this statement in an interview with Readers Digest, "There are groups out there that insist that vaccines are responsible for a variety of problems despite all scientific evidence to the contrary. We have reached out to media outlets to try to get them to not give the views of these people equal weight in their reporting to what science has shown and continues to show about the safety of vaccines,” you know we have hit a nerve and a big one. Knowing that the studies HAVE NOT been done. There are approximately 60 studies that implicate vaccinations, but again, you're not going to hear it on the nightly news.
So I'll ask again. When? When are we, as a nation, going to demand better for our children? When will others stop saying, "It's not my child affected and besides, vaccines save lives" in the face of such devastation? April is Autism Awareness month. It's well past the time of awareness at this point, it's time for ACTION and it starts with YOU. Ask questions, be a pain in your doctor’s rear end. REFUSE vaccinations until these questions are answered. Yes, I said it...refuse. Once it's in and causes the damage, it cannot be taken back. You do not know when or if the vaccines you are injecting are going to be the ones that break your child's immune system. The unfortunate thing is, neither does your doctor or your government. YOUR child deserves BETTER than what the government is offering you right now. You know it and I know it.
Just some of the many things you have to "look forward to" if your child is diagnosed as 1 in 50. So, please before the autism numbers get any higher do something now to prevent further devastation for more children later.
Trudy Snyder is the mother of 3 children. Her second son is vaccine injured, diagnosed with autism and a host of medical issues. She has been an active advocate in her community and is a supporter of cameras in special needs classrooms.