A recent post on The Thinking Mom’s reminded me about the roles grandparents play in the autism epidemic. I believe in many cases they are the unsung heroes of much of what we’ve been able to accomplish in the pursuit of health, truth, and justice. I know for me personally, there’s no way I could have saved my daughter, kept my sanity, and found time to advocate were it not for my parents on both sides. No way.
Thinking about them actually brings tears to my eyes, especially when I remember my mother making an honest, quiet comment to someone in a conversation years ago. I don’t remember it word for word, but I do remember the gist of it: how hard it was not only to watch your grandchild suffer, but your own child as well, and mostly how helpless and painful that felt.
The thought stopped me in my tracks. For so long I had been completely wrapped up in my own pain. It had never crossed my mind to think about how she felt, or how my father felt, or how my in-laws felt. I was completely focused on my daughter and myself, oblivious to the toll this was taking on them.
I thought about it then. What was it like for her, watching
me in so much pain? Was she walking on eggshells around me? Of course she was. Truth
be told, I’m not the easiest person to deal with when I’m on a mission. No one
knows that better than my mother.... Read more.