Dear Congressman Burton,
I appreciate the work you are doing on behalf of our children with autism. I’m writing regarding Community Living Assistance Services and Supports program (CLASS Act), a Title VIII component of the Patient Protection and Affordable Care Act. The Act is supposed to provide long term care for our disabled adult children, including adults with autism.
In her letter to Congress, October 14, 2011, Secretary Sebelius declined to implement the CLASS Act because it did not meet actuarial requirements and, as she wrote "I do not see a viable path forward for CLASS implementation at this time." Yet as the Secretary acknowledged in that letter, the need for long-term care for developmentally disabled adults has not gone away.
I’m working to create a national program for LTC (Long-Term Care) community living services and supports that fills the vacancy left by the CLASS act. It might be a reworking of the Act, or something else entirely.
My question: Which of our elected representatives in Washington has made autism issues his or her own? Who will follow up on the work you are doing?
Dan E. Burns, Ph.D.
Chair, The Autism Trust USA
Contributing Editor, Age of Autism
Adult Issues Liason, AutismOne