Valerie,

You're most welcome. I don't know how much you have as background study to relate to the very large amount of connected concepts in all of the posts at the link I posted, but think it may well prove relevant if you follow enough to get the larger picture. I mention the Marshall Protocol and the benefit of high dose Olmesartan. My wife takes 5 tablets daily.

I have refrained from giving my views on the Protocol as a whole as Vitamin D is avoided on the Protocol and that is at odds with most views from the Autism community it seems. I will say my wife may have an unusal system and D worsened her particular problems and in spite of all the positive reports on D there is literature speaking of negatives of supplemental D use in some autoimmune conditions. You will do what you think best, but I believe the Olmesartan does many other things that help in biomedical related Autism that are not connected to Vitamin D anyway so and these very postive effects may be had whether taking D or not.

In the 90's I felt we had dealt with the Mycoplasma with strict diet{no gluten nor most grains, no dairy, low low sugars and carbs}, nutition{vitamins/minerals/supplements/certain aminos}, herbs, Candida/Clostridia control, probiotics, anti-parasitics, and silver, and more.
She was improving greatly, but after a few years she started to get Arthrits and bone spurs. I look back and think that the Mycoplasma had persisted, though reduced, but because her immune system was stronger in some ways her autoimmune feaures in these reguards increased. As they worsened I eventually looked for ways to deal with them and Olmesartan has been the best for us. I had truned my thoughts away a good bit from the Mycoplasma as time passed and had hoped she was just going to continue to improve as her system had reached a point to self correct. I was wrong.
I now belive she has a susceptibility to pathogens like these and is probably gene/epigentetically related as you may have read in the other thread.

I have posted a number of things over time here at AoA but the thread I linked for you and one other thread contain the majority my contributions here. The other thread with more of my posts and posts of a few others is largely a precursor of thoughts I had leading to the thoughts in thread link I already gave. If you find the current thread helpful you might be interested in the precursor thread.

It is found at:

http://www.ageofautism.com/2010/06/test-for-autism-measuring-gut-microbes/comments/page/2/

Thank you visitor, who ever you are.
My son had mycoplasma diagnosed two years after the TM.

Thank you for a new trail.

If the complex I in the electron transfer system is messed up --- then the Complex III will darn well be messed up too.
Just thinking on it.

And another thing I don't understand;
if not eating carbs helps and it does
or eating few carbs helps and oh - it -- does

Then why in the heck are they telling us that the problem is in the complex I and III of the electron transfer system?

It looks like to me it is up at the very beginning of the whole process where the carbohydrates are first being broken up in that part called Glycolysis.

Sorry - it has been a long day and my mind just doesn't want to stop tonight.
I went to a viewing tonight and saw people I have not seen in 30 years, way back in the mountians.
I noticed five of them had scars on their throats were their thyroids have been cut out.
I do wonder if this is in the future for all of us?

I've never made friends easily. I've stopped connecting with those I'm separated from by distance and time. Locally, I usually regret letting anyone in enough to see some of the good-is-bad, up-is-down, they-are-out-there-hurting-kids-all-of-us-really-and-I'm-not-really-ok that is the non-ending reality for me, and that generally happens when I just intended to venture enough to warn.

My family probably gets the most "warning" from me, and I get in return subtle messages that I'm not believed, though they don't usually don't actually say it.

I hope your unfriend is leaving because she actually believes your story or at least doesn't completely discount it, and she perhaps needs time to cope with the loss of a comfortable world view. I hope that she at least understands that autism and other vaccine injury can match or out-rival some of what we try to prevent with vaccination and that she is able to approach that practice for her own children or grandchildren with more truth.

Wow! your acquaintance(obviously not a friend) sure must live a charmed life if reading about your life is "taking a toll on her"

Benedetta, sorry, no--it is Goldenthal out of Drexel University

Valerie,
I don't know if you were given any reason as to the causeof the Transverse Myelitis in your child, but you may want to read this article in total. It illuminates on the relatioship of this condition with Mycoplasma pneumoniae and related neurologic deficits.

Mycoplasma pneumoniae—an emerging extra-pulmonary pathogen

http://onlinelibrary.wiley.com/doi/10.1111/j.1469-0691.2007.01834.x/full

If that peaked your interest you might find post 7 & 8 down from the top of the page at the link below of further interest. If those interest you than reading the most recent 6 posts as well and the rest of the whole thread may prove helpful,...or not.

http://www.ageofautism.com/2012/01/the-inflammation-highway-aka-autism.html

Dear Heart, I have been in heartbreak status because of what has been happening that doesn't need to happen with our adult grandson with autism and our clearly-vaccine-injured 8-year-old grandson. We are old and tired and up to our ears in it all. They tell us to "go on a cruise." We don't give up the struggle, and we want you to know we hear you and carry on the battle you are doing so well and so powerfully. We say, because we remember WWII ourselves, in the words of Winston Churchhill, when England was being bombed, "We shall neva surrenda," You won't and we, "grandparents" to a bunch of kids with autism, are with you. Love your! Granny Blue

We had several friends "unfriend" us when we received our son's diagnosis. I really think they thought my son was contagious or something... uninformed, uneducated people. It use to really bother me, so much that one time while in a crowd of co-workers I burst out in tears out of the blue thinking of my "friends". Next month it will be 5 years since my son's diagnosis and I, like everyone else, have too much on my plate to concern myself with people that lack compassion. I've let my anger and sadness go because they have not been sent here to learn our lessons. To me, this journey that I am taking with my family and my son is the path less traveled. Most will not even look down that path - it is too difficult for them. Their souls have not yet evolved to unconditional love and they are not yet ready to take this step. Does it still hurt, yes for sure. But take heart in knowing that there are others out there who may not have children like ours; however, they do posses that love and are willing to join our struggle. Peace out sister!

Our autistic child is also coincidentally chronically refluxing and constipated, coincidentally survived Transverse Myelitis four years ago, coincidentally has seizures now...

His teacher reported us to child protection because he missed too many days of school, and she felt 'too intimidated' to ask why.

When we launched a complaint against her and the school in the Human Rights Commission, her defense was that she was just doing her job, and that she shouldn't be expected to understand what we were going through as a family. She thought we just didn't value school like we should.

Needless to say, our complaint was upheld.

But, like your friend, the 'systems' are headed for a giant wake up call, as they are forced to acknoeledge that caring for a growing generation of chronically ill children is not a 'choice'.

The anger we all feel... well that is a choice. And a good one, in my mind. One that should motivate as many as possible to protect each other and slow this crisis down.

I feel a shift coming as more people begin to wake up, and say no to vaccines. And you are part of that "waking up" process. Stay with it and know that all of us are with you in your struggle. I can't stand facebook anyway. I think Garrison Keiler (not sure about spelling) wrote a very funny poem about being unfriended. I read it when I got unfriended once and it made me feel a lot better.

I hear you LJ, as a comrade in arms and another of the 1% I have over 6,000 unread email. Time management problem? No, Autism catastrophe imploding and I like you want to see it end. Keep truckin' sister and if we get some decent hearings in Wash. on Vaccine Safety we can share the old makeup we find at the bottom of our purses and wash the fish oil stains out of our clothes together in the Ladies room at the Capitol. Onward!

Dear LJ,

I woke up early this morning also, not from a child, but from a dream. My grandson has autism and I spend my days with him. At night I worry about him. I read and search for any treatments that might help. He is severe, non-verbal sometimes aggressive. I have a pool and yesterday he took his swim vest off and swam unassisted for the first time. When he took his swim vest off he somehow associated his vest with his swim suit so it came off also. This happened repeatedly throughout the day. Finally, I think he understood that the two are not connected. The vest can come off and the swim trunks must stay on.
Anyhow, back to what I was going to say. My dream had a meaning. Tomorrow, I am to go to a memorial. It is being held for my aunt who passed away last week. She was not an ordinary person. She was a nun, my mom's sister. She went into the convent a lovely popular girl after high school and she never turned back.
She spent her life giving to others right up unto the end. She spent ten years in Bolivia working in the slums assisting women. She received a PHD all the while working to help others. She came back from Bolivia to help in the city of LA. She worked there with immigrant women for a number of years. Her Spanish was fluent and she worked tirelessly to help the poor.
In her early eighties she was called back to her convent in the mid-west. She did not want to leave the work she had been doing in LA. She dutifully returned to her convent.
She was needed to help with the sick and dying nuns.
There were no young sisters to replace the old as in the past. So now the old must take care of the old. She was healthy and so she returned to the climate of the Midwest.
She ran the medical care center within the facility. She again proved herself invaluable. She was kind, gracious, and thoughtful to the end.
Last year my aunt developed cancer. She was treated with chemo it did not work. Her cancer took a mighty toll on her, but all the while she continued to help others. Up until the day she died, she worked for others.
Now let me tell you about my dream. I have not felt much with the passing of my aunt. It has been distant. I am preoccupied with my grandson's condition. I am not a practicing Catholic.
In my dream, I was with my family, my husband and my children. We were avoiding something throughout the dream. I did not really know what. We came to came to a road. On this road was a group of weary travelers. They were a group of sick nuns with one priest. They were on their way somewhere and they needed assistance. Some were walking, others were pushing wheelchairs. We saw this as a family and we offered our backs. We carried the sick I did not know to where, we just joined in the procession. I woke up.
This is our lot in life, we did not ask for it but, it is profound and good will come of it.