I have always said it was after the HIB when my bright, curious, talking, neurotypical little boy (my fourth child), changed and slowly drifted into autism. My other children did not have this vaccine or the exposure to thimerosal. ICAA will continue to refuse to do the research...and we know why.

He isn't "losing any sleep" over anything is he? He's not the parent of a vaccine injured child! He is despicable and it sounds like he's been talking to Offit. It's too bad they get to abuse the people who are exposing their ineptitude.

Thanks Jake, for another very well done article!

Glad we underrstand each other Jenny.

The roots and reciprocal dysfunctions are complex, and sometimes I forget the old principles involved. This piece is still helpful though dated and consolidates the a lot of knowledge and ideas leading up to it's writing.

http://www.newtreatments.org/ga.php?linkid=252

Yes, that is the mast cell abstract I was referring to.
You wrote:
"Not sure what you mean about 'reputations',"
What I was trying to communicate is that some of the things in the ongoing studies you cited are things we have been saying are involved in causing Autism before it was considered reasonable and now seem to be gaining legitimacy. I figured you may be like me and that we you originally tried to tell others about these things and why you were doing diets and other related approaches and telling them what the processes were you were labeled "out there". Maybe you were not, but I feel my reputations as a non-loon was gone and I was asking where to go to get a reputation as a sensible person back. I should not have been cryptic.

Here is another you may like

Mast cell activation and autism.

http://www.ncbi.nlm.nih.gov/pubmed/21193035

Jake, this was GREAT!!!

I haven't been able to keep up with Age of Autism like I used to, but I just HAD to hear what you said to the IACC. I listened to your statement twice and wrote down your concluding statement:

"The IACC was not formed to find the CAUSE of the autism epidemic....but it was formed overall, generally it was formed, to COVER UP the cause of the Autism Epidemic."

YES!!! YES!!! YES!!! Jake, in your writing, you always tell it like it is, and back up everything you state with your excellent research facts. We all know that you know what you are talking about, and the IACC members all know that you know what you are talking about...that's WHY they cut down your time to deliver your statement. However, in spite of you being forced into some fast talking to make your major points within the shortened time period, YOU DID IT. (Much to the dismay of those members who do NOT want the CAUSE of the autism epidemic to be recognized.)

Regarding Tom Insel's totally unfounded accusation of "physical threats", this is a carefully constructed statement by him, with the purpose of making you "look bad", so that whatever else you say will hopefully be disregarded. But it is not disregarded by those of us who know the truth about what is really going on.

Jake, could you please post your statement to the IACC on AoA? So that we can have this excellent summary of facts for a reference. And would you consider also posting the original version that the IACC prevented you from delivering by cutting back your time. PLEASE:)

Someday you and all of the other major contributors to Age of Autism will be SPEAKING IN FRONT OF CONGRESS.

Jake,
Thanks for continuing to bring the truth to light. This is an uphill battle, but sooner or later (hopefully sooner) the truth will be understood by so many people that it will no longer be deniable.
Regarding HiB vaccine, it also ushered in the peanut allergy epidemic, which, like the autism epidemic, has been raging out of control since about 1990. For anyone interested in exploring this topic, please read Heather Fraser's book, "The Peanut Allergy Epidemic." How many children have we lost to peanut anaphylaxis, and how many medical and education system costs have accrued because of this? Add peanut allergy/anaphylaxis into juvenile diabetes and whatever contribution HiB has made to the autism epidemic and the costs begin to spiral out of control.

Great exposing the mobsters Jake.. although they make me feel sick when I read about them they just do not have care about fellow mankind..just the bank balance

Thanks

Angus

Way to call a spade a spade Jake!

Jake, did you (or did anyone) listen to the conference call meeting on July 27? According to the agenda, they planned to discuss the July 10 public comments during the last hour. I was at work that day, but hoped a video cast or transcript would be posted.

What exactly does the tax funding of this committee go for? Since 2003, I thought listening to and discussion of public comments was supposed to be a major focus, and it should be. Some of us have been dealing with autistic children since before members of the IACC ever heard about the disorder.

Since 2003 I have been trying to emphasize (1) that language development should be promoted as the #1 focus of research, (2) that all of the myriad medical conditions associated with autism are likely to affect the auditory system, thus impede language development. (3) The evidence of auditory system vulnerability has been available for decades, which is why I have said, and will continue to say, that the major handicap (language) should have been understood decades ago.

Physical threats? Why in the world would Insel think you would make a physical threat? You never have threaten anyone.

That pisses me off that he said that to you Jake. Just because you have the guts to speak to them and question them and remind them of their words and deeds.... they can't handle you Jake!

These people make me sick. They have accomplished nothing and all they do is compliment each other for their lack of action.

Our kids need you! I have more respect for you than ever. Keep
exposing them Jake.

The Insel brothers story is one of the most amazing one, stuff you cannot make up:

In 2003 John Classen publishes a paper linking the Hib vaccine, co-developed by Richard Insel, to type 1 diabetes. The same year Richard Insel becomes the chief scientific officer of the Juvenile Diabetes Research Foundation (JDRF) with no track record in diabetes research.
He promptly stops funding for all promising research.
Who benefits? Big pharma, particularly Eli Lilly inventor of Thimerosal and also a large insulin maker. The JDRF is nothing more than a pharma front organization similar to Autism Speaks.
Of course, Tom Insel does not need an intro here.

Throw the bum out.

"A yearlong effort by the National Institutes of Health to toughen its policies against financial conflicts of interest was led by an administrator who quietly helped one of the most prominent transgressors get hired by the University of Miami after a decade of undisclosed corporate payments led to his departure from Emory University, a Chronicle investigation has found.

The administrator, Thomas R. Insel, director of the National Institute of Mental Health, also encouraged the researcher, Charles B. Nemeroff, to apply for new NIH grants, even though Emory had agreed on its own to restrict Dr. Nemeroff from NIH grant eligibility for two years. The NIH also allowed Dr. Nemeroff uninterrupted eligibility to serve on NIH advisory panels that help decide who receives NIH grant money.

Dr. Insel 'confirmed to me that Charlie was absolutely in fine standing' with the NIH, Pascal J. Goldschmidt, dean of the University of Miami's medical school, said of a July 2009 phone call he made to Dr. Insel just before hiring Dr. Nemeroff.

The actions by Dr. Insel, during a period of heavy Congressional pressure on the NIH to institute reforms, raise new questions about the NIH's stated commitment to attacking the problem of financial conflicts of interest in taxpayer-financed medical research.

'It leaves everybody scratching their heads as to what Insel's posture and NIH's posture about ethics is,' said Bernard J. Carroll, who served as chairman of the psychiatry department at Duke University from 1983 to 1990, while Dr. Nemeroff was a professor there.

Dr. Insel has declined months of requests from The Chronicle for an interview to discuss the matter, including his relationship with Dr. Nemeroff. The NIH's director, Francis S. Collins, was not available for comment, his spokesman said late last week. Dr. Nemeroff also declined to be interviewed, a University of Miami spokeswoman said."

http://wiredcampus.chronicle.com/article/While-Revising-Ethics-Rules/65800/

Good grief. You "don't like" some of the committee members? WTH is this, middle school? Tom Insel needs to pick up the clue phone, it's not about the members' likeability (or unlikeability) it's about their complete incompetence, lack of credentials, and (as stated in your public comment) their conflicts of interest. I don't care if the committee members are the biggest jackasses on the planet if they are competent, qualified and making headway into "combating autism"

http://www.jdrf.org/index.cfm?page_id=105584

JUVENILE DIABETES RESEARCH FOUNDATION INTERNATIONAL

POLICY ON RESEARCH CONFLICTS OF INTEREST

Juvenile Diabetes Research Foundation International ("JDRF"), acting through its Board of Directors, volunteers, officers, employees, committees, and scientific research and other advisory boards, develops and implements research goals, objectives, strategies, policies and procedures; collects, aggregates, and synthesizes information to generate an overview of ongoing Type 1 diabetes research; and evaluates applications for, and makes decisions with respect to, research grants, fellowships, career development awards, contracts and active projects (collectively "Research Investments"). JDRF wishes to ensure that its advisory and evaluation processes are as objective and unbiased as possible and free from conflicts of interest. JDRF recognizes that individuals involved in the research planning process (including the allocation of research investments and the evaluation of research strategy effectiveness), the Research Investment evaluation and selection process, and other research related activities are involved in a variety of organizations and projects, and may hold financial investments, which might create actual or potential conflicts of interest or the appearance of a conflict.

JDRF is committed to assuring that these important, nonpublic information and decisions regarding research planning and development, as well as decisions regarding individual Research Investments, are made by those who are free of actual or potential conflicts of interest and the appearance of conflicts (each a "conflict" or "conflict of interest"). To achieve that result, the following policy is adopted:

1. Applicability. This Policy applies to JDRF's Board of Directors, officers, employees, committee members, advisory board members, all lay and scientific members of any committee or advisory board, and other volunteers, including researchers, who have volunteered to evaluate Research Investment proposals (collectively, "Covered Persons").

2. Determining the Existence of a Conflict. Each Covered Person bears the personal responsibility for initially determining if a conflict of interest exists with respect to such Covered Person. The guidelines set forth below shall be utilized to determine the existence of a conflict. The guidelines are meant to be illustrative and not exclusive; a conflict may exist even though the situation in question is not included below. If a Covered Person has any questions regarding the existence of a conflict, such Covered Person should promptly contact the Chairman of the Board or the chairman of the committee on which he/she serves, as the case may be.

3. Guidelines for Determining Existence of Conflict.

A. Research Investments.

A conflict may exist if the Covered Person, or his/her spouse, parent, child,
or other individual with whom such Covered Person has a close personal,
business professional relationship (including persons with whom such
Covered Person is a partner, shareholder, co-author or other close profes-
sional co-worker or colleague) have one or more of the following relationships
with an Applicant.

As used herein, "Applicant" means any person, firm, corporation (nonprofit
or for profit), partnership, trust, incorporated or unincorporated association,
joint venture, joint stock company, governmental authority, educational insti-
tution or any other entity of any kind, which is under consideration by JDRF
for Research Investment or other consideration which may inure to the
benefit of such entity or person.

(i) owns, directly or indirectly, any equity interest in the Applicant including
the ownership of over 1% of the outstanding shares of publicly traded
companies.

(ii) is an officer, director, employee, consultant, trustee of, or has a signif-
icant ownership, governance, or management relationship with the Applicant;

(iii) owns, directly or indirectly, in whole or in part, any tangible or intangible
property that the Applicant uses in the conduct of its business;

(iv) is owed any amount by the Applicant, owes any amount to the Applicant,
or is philanthropically associated with the Applicant;

(v) is a party to any agreement for future employment or other agreements or
arrangements with Applicant;

(vi) has received any gifts with a value, or payments in excess of, $100 from
an Applicant;

(vii) has any cause of action against, any dispute with, any long-standing
scientific or personal differences with, or any claim whatsoever against, the
Applicant;

(viii) is or was (within the last 1 year) a student or teacher of the Applicant
or involved in a scientific collaboration with the Applicant;

(ix) is under the health care or supervision of the Applicant or has a physician
/patient relationship with the Applicant;

(x) is a close personal friend of Applicant or any person in senior manage-
ment of Applicant;

(xi) has a significant ownership, governance, or management relationship with
a direct competitor of an Applicant, such that a conflict of interest could be
alleged should the Applicant's grant request be rejected; or

(xii) has such other direct or indirect relationship with an Applicant (other
than solely as a result of being a member of the JDRF Board of Directors or
a committee thereof or a person involved in evaluating Research Investment
proposals) that in the Covered Person's reasonable view could be regarded
as potentially presenting a conflict of interest.

B. Research Planning/Evaluation.

A conflict may also exist with respect JDRF's activities with respect to the
research planning process (including the allocation and prioritization of Research
Investments and the evaluation of research strategy effectiveness). Covered
Persons need to be aware of potential conflicts that could arise through owner-
ship interests or governance or management relationships with one or more
firms involved in diabetes research when serving in any capacity for JDRF in
connection with recommending or approving research priorities, including
serving on the JDRF Board of Directors or one or more research advisory
committees, including the Research Portfolio Committee, Research Program
Advisory Committee, Research Development Committee, Lay Review Com-
mittee, and successor committees.

4. Disclosure of Conflict; Recusal. If a Covered Person determines that a conflict described in paragraph 3A or 3B exists, then such Covered Person shall notify immediately the Chairman of the Board or the chairman of the applicable Committee, as the case may be. The Chairman of the Board or of the applicable Committee, with input from the Board or Committee, as appropriate, shall determine whether a conflict exists (except that in cases of conflicts involving the Chairman, the Executive Committee shall decide). All disclosures of conflicts shall be maintained in confidence. The decision on any conflict shall be recorded in the minutes. Unless otherwise determined by the Chairman (or, as appropriate, the Executive Committee) in individual cases, if a conflict is found to exist, the affected person may make a presentation on the issue under discussion, but after such presentation, shall leave the meeting during the discussion of and vote on the matter that results in the conflict of interest (such recusal from the meeting to also be recorded in the minutes). Following such discussion and vote, the Covered Person may re-join the meeting.

5. Implementation. Each Covered Person, other than an employee, shall execute a written statement provided by JDRF stating that such Covered Person has read this Policy on Research Conflicts of Interest, understands its terms and agrees to comply with the provisions hereof so long as he/she is a Covered Person. With respect to employees, each employee shall execute a written statement provided by JDRF stating that such employee has read the Employee Handbook, understands its terms and agrees to comply with the provisions thereof. Such written statements shall be signed by an individual upon his/her appointment or other act resulting in him/her being a Covered Person, and periodically thereafter at such times as the Chairman of the Board of Directors determines.

Last revised 7/1/2010

https://twitter.com/T1D_TrialNet/status/195264964909473792

T1 Diabetes TrialNet ‏@T1D_TrialNet

@JDRF's Dr.Insel speaks about the possibility of a type 1 #diabetes vaccine and TrialNet's role in prevention on TED. http://bit.ly/JzTJEN
2:36 PM - 25 Apr 12 via web

It's disgraceful the way these persons seek to defend themselves, by making completely false allegations against those concerned citizens, who dare to challenge them in public. Falsely accusing Jake of making 'physical threats' against IACC committee members was utterly appalling, although I doubt if it is actionable. No doubt Insel will strenuously deny ever saying this, the public implication being that Jake is the lier. However, at least Insel admitted to having read Jake's pre submission which was as always, politely expressed, even if the points he made were plainly unwelcome.

Paul Offit also attempted to deflect Jake's unwelcome questions legitimately posed at a public meeting by accusing Jake, falsely, of stalking him and having Jake forcefully evicted from the meeting.

Matt Carey, as the then ubuiqitous 'Sullivan' once accused me of making personal derogatory remarks about him on an internet comment thread-laughable in view of his then anonymous personna. This was on an autism 'friendly' site and not the LB RB website, which I keep clear of. Unfortunately 'Sullivan' using his RB LB credentials often 'infects' other websites, and he used this thread to make some very vicious comments about Carmel Wakefield, who was in hospital at the time seriously injured after a car accident. Carey never did respond to my reasonably expressed arguments on that thread, but then these persons invariably deflect the arguments by making spurious attacks.

This is the 'calibre' of some of these IACC persons with responsibility for recommending essential research into autism causes and treatments. Jake you are doing a wonderful job of exposing these hypocrites. Just make sure you always have a few 'minders' handy when you confront them!!

I had to catch my breath when Tom Insel told you what his brother was doing now.

Good Gosh!

Then you have to think are that stupid or that evil????

Jake,

This is shocking: the man is supposed to be a scientist and a public official but he simply engages in innuendo. It is a not question either about not liking people, it is a question about their suitability and their conflicts. You are being criticised for posing just the questions relating to the accountability in public appointments that upstanding citizens are supposed to ask.

You never cease to amaze me, and unfortunately neither do they. What a pair of articles!

John