Steve

One of the problems is the many years and children lost by trying to look at the problem backwards. Families have been driven frantic because this kind of research had priority over - on a simple level - what kind of environmental insults might cause dysfunction (indeed, if they hadn't witnessed it for themselves). Even Francis Collins admitted as early as 2006 that the answer to the proliferation of autism wasn't going to be genetic.

http://www.ageofautism.com/2009/11/iaccs-dr-francis-collins-gives-the-game-away-on-autism.html

It may seem like some fascinating intellectual problem to you, but actually it is asking the wrong question.

Parents,
Maybe you all have heard of the diagnosis of CVID? If not you need to look at it! It is something I have been begging our immunologists and research facilities we have participated with for the last year now to look at. I have asked the immunologists to look at my kid's multiple medical problems and treat THOSE...not automatically put him under a mental diagnosis umbrella and leave his medical conditions untreated. This kind of audacity in a parent will automatically ensure a social worker at your appointment. (I digress.)

The list of symptoms is like reading about many of our kids on the spectrum. I am putting the link, but will share a few of the problems found. This is a primary immunodeficiency problem. We know that so many of our families have history of immune system problems in ourselves or relatives. Here are just some of the presenting problems.

Some of the presenting problems may be acute or insidious. Some present with seizures, signs of encephalitis, head ache, sensory problems, motor disturbances and personality changes.

More....
Low IG classes
Severe recurrent infection
Autoimmune disease
Lymphoid hyperplasia
Persistent Diarrhea
Malabsorption
Severe meningioencephalitis
......sound familiar?

http://emedicine.medscape.com/article/885935-overview

Guess what is advised againsed giving in this patient population? LIVE ATTENUATED (weakened) VIRUS VACCINES. So if we have had a subgroup of kids who may have had some immune system problems we are throwing them over the with this vaccine schedule. Three live vaccines are given ....the perfect cocktail for disaster at an age when the sutures of the skull are fusing. The pressure on he brain resulting in Something called dysautonomia. I am putting a link here. Read it. Again, you won't believe the overlap of symptoms with our kids. So many of the sensory problems could be due to this. Our poor kids are genuinely miserable, and the best our docs are doing are sending them for hearing tests and putting them on a wait list for the regional centers.

I tell these people this is child abuse. If these kids are genuinely suffering so badly like this...it is cruel to make them sit through hours of therapy under these conditions. No wonder they lash out and scratch and bite. I ask researchers and docs if they would like to be forced to work all day with these symptoms, stomach pain and severe diarrhea? (oops...I digress again...I am a bitter mom who is furious about child abuse being dished out by our docs and then we are labeled as crazy.).

http://dyna.latticegroup.com/docs/your_pediatric_patient_has_been_diagnosed_with_dysautonomia.pdf

Anyway....that is my latest crazy crackpot theory. I thought I would share because you may see your child in these disorders as well. It is time for these docs to treat the medical issues underlying the behavior. Unfortunately, I think most of these docs are incapable of thinking for themselves and practicing medicine. They are essentially following recipe cards...hospital protocols... And lack the ability to think outside the box. I am amazed by the fact that pediatric specialists are so woefully ignorant about the lastet findings surrounding autism and their lack of autonomy in educating themselves on the published research that is out their regarding some of the health issues going on with these kids.

I believe that the scientific community has failed us as well. They know that we have found very serious concerns with these kids. I believe they have a moral and ethical obligation to educate the CDC, NIH, and AAP about health issues we do know about. They do have information that could prevent injury in some of these children and educate about illnesses that pediatricians need to be treating. Current autism ideas in the medical community have left the pediatricians with no accountability or responsability. Quite frankly, I think they lack the integrity as well. I am becoming increasingly dissatisfied with the science communities lack of feeling towards their responsability in bridging the gap. Like my mom told me the other day autism parents deal from different stuff and motivation than the researcher. The difference here is GUTS and GRANTS!

Jackie Murphy
Sout San Francisco, California

They need to start looking at the time we typically see regression in these kids. The sutures of the skull fuse at 16 to 18 months. Then we see that there is a subgroup of boys who have rapidly growing head circumstance prior to that time. The may have some process going on like inflammation. The skull can accommodate this with infused sutures. When they are fused at 18 mos. There is no give resulting in pressure on the brain....giving us regression.
Jackie Murphy

Face it, folks. When 1 in 88 kids have autism compared to 1 in 10,000 twenty years ago, autism has become big business. Not only do we parents have to fight those who poison our food supply and environment and overcome the ignorance of the medical establishment when it comes to autism and the general area of nutrition, we must take on those who sympathize with our plight yet are trying to make a buck, too. So the field becomes one of narrow specialties whose practitioners know more and more about less and less until they know just about everything about nothing...and as Katie W. says, little that is likely to help our children.

One would think the federal government would recognize this state of affairs as the greatest public health emergency in the land. To be sure, obesity and diabetes are serious conditions that shorten lives and drive up health care costs. But at least the vast majority of people with these conditions can navigate the world independently. Half of kids with autism will never have that chance and will cost taxpayers $2-3 million each for their care. And we parents go broke seeking solutions without any help from government, most insurance, schools, and even organizations that are supposed to help, like Autism Speaks that pays their executives obscene amounts for the little they’ve accomplished.
So it’s time for national leadership to study the right things, defray costs to parents of children with autism for their care, and totally revamp how the medical community and public schools are addressing this issue. Too often these professions do more harm than good and don’t even know it. I’m waiting for our presidential candidates to lay out their respective plans to deal with this public health emergency. Hope they don’t keep us waiting too long.

What a complete waste of everyone's time this STUPID, WORTHLESS IMFAR meeting was. Sorry you had to endure this, Katie.

On a much more significant note, I am hoping that the work of Nobel Laureate Dr. Luc Montagnier pans out for the sake of our children. I am focusing on natural foods and supplements that kill a variety of bacteria and viruses, now. Not that the mercury and aluminum injected simultaneously and directly into my children by their ignorant pediatricians hasn't already caused irreparable harm to their brains, but if there are rogue bacteria and viruses continually wreaking havoc on my children's brains and gastrointestinal tracts in addition, I will have to get rid of the nasty germs, too. Thank God someone of Dr. Montagnier's stature cares about our children. And I thank God for Barry Segal of Focus Autism, too.

Guys,

The truth is, everything we have ever been told about vaccines is a lie. There is no scientific proof to support the safety and/or efficacy of ANY vaccine, and there's a reason for that. They are DESIGNED to make us sick, by the very same people who make TRILLIONS selling drugs to treat symptoms of the illnesses they create.

That part of the equation is pretty easy to understand. The part most people either can't , or aren't ready to see, is that drug companies control the media. And fake public protection agencies like the FDA and the CDC. And fake advocacy groups like Autism Speaks who advocate for the study of anything BUT the causal role of vaccines. And fake research groups like INSAR, who study anything BUT the causal role of vaccines. Heck they even pay people to "troll" sites like ours, to plant seeds of doubt in the minds of people who are starting to figure it all out. Isn't that right RTContracting???

Mercury is a known immune suppressant, and I believe it remains in far more vaccines than are being led to believe. And it will definitely take more than assurances from lying FDA officials to convince me I'm wrong.

RT Contracting:

The hospitals stopped giving the birth dose of hepB vaccine with thimerasol sometime in 2000. The rest of the hepB vaccines with thimerasol were never recalled and had expiration dates possibly into 2003.

When is somebody going to throw these jokers of worthless research into the middle of ocean and then propose a study to see if Dukin Donuts make a suitable flotation device because they look like life rings.

RT Contracting; one thimerosal-free Hep B shot was first introduced in late 1999, the second some time in 2000. However, existing supplies were never recalled and had a shelf life of 3 years. Providers were encouraged to continue using them until expiry, which could have been as late as 2003. Hib was on that same timeframe; DTaP and others were a bit later, I believe. They still have loads of aluminum, though...and flu vax still has thimerosal.

What a disaster!! I would be embarrassed to be a part of IMFAR at this point. Thank you Katie for shining light on what is going on. Unbelievable lack of concern for our children.

I urge more parents to engage this problem directly by studying medicine. If there is currently a lack of medical attention to what we view as the real issues behind autism, then we should seek to fill the gap ourselves.

there really is no useful information that comes from these poster presentations. Only two I can think of straight up made any significant progress, one was the IMFAR presentation of Immediate Cord Clamping in Autism, and the other was Maternal Antibodies to Fetal proteins. This is the way we need to go...to seek out the ioatragenic causes, environmental causes of autism. All the others don't help families now. The implications of those two studies are far reaching. One, that there is a maternal immune response to fetal brain proteins which would alter immune metabolic and neural function, and the fact they identified strep, lyme and mycoplasma antibodies should scream loudly mothers are infected with pathogenic bacteria that could alter neural networks before a vaccine even hit a child (and has a delay kind of affect, so you could have normal development until the vaccines come along and alter immune function). Two, that currently the way we birth our children is causing blood volume loss to the entire body, and especially the inferrior colliculus which would cause movement and speech problems. Again, a delay affect would also take place until you notice delays, but not until you vaccinate the hell out of that child causing severe oxidative stress. As well, it is well noted such clamping causes damagae to the blood brain barrier, you know, the thing that holds back metals and viruses from the brain. So what do we brainiacs do? Give a child a Hep B vaccinations with mercury within six hours of this tradgedy. Some good in the PAST has happened from IMFAR, but of late, they are rehashing old ideas and almost making sure we are never to know, what causes autism in this terrible epidemic.

I love your sense of humor, Katie Wright!

The best thing about it is that people can sometimes learn when material is presented that way, as opposed to. . .well, other ways!

Thank you for educating anyone new who might come by today. There are always more of us, after all!

I am so sorry money is being spent on useless information when families are desperate for insightful medical intervention. I am particularly sorry because not all parents of these children are as research oriented as you are. Most parents want to follow the conventional treatements. I know because I know some of these parents. A while back someone wrote about not "ever" getting an autistic diagnosis but simply treating medically for bowel disease, for allergies, for viral or baterial infections. That might be a good piece of advice for a parent who has a child with impacted bowel, skin rashes, and no speech at 2 years of age. Hmm. No don't seek an autistic diagnosis--treat the bowel issue, change the diet, and hope for the best. They (the powers that be) want to shove this under the rug, looks like to me.