Our condolences and sincere thanks to Katie's family.
By Tony Leys, DesMoines Register
Katie Beckett’s family hoped that by catching a president’s attention, they could force bureaucrats to free their 3-year-old girl from a Cedar Rapids hospital. They never dreamed that her case would bring landmark changes allowing hundreds of thousands of American children with disabilities to live at home instead of in institutions.
Beckett, whose name became synonymous with disability rights, died Friday morning at St. Luke's Hospital.
Beckett, 34, spent most of the first three years of her life living at St. Luke’s, after a bout of encephalitis infected her brain, caused a coma and left her with severe breathing problems. Her parents’ insurance ran out, so the case fell to Medicaid, the public insurance program. Doctors determined she could leave the hospital with proper supports at home. But Medicaid refused to pay for such care, even though it would cost one-sixth as much as hospital care.
Read the full story in The DesMoines Register.