Ancestry of Pink Disease (Infantile Acrodynia) Identified as Risk factor for Autism
By Teresa Conrick
Yet another study has come out to add to the growing list of research showing that autism can be connected with exposure to mercury. This study took the idea of heritability and paired it with a known exposure to mercury, Pink Disease. Also known as Infantile Acrodynia, Pink Disease was a mysterious ailment that affected 1: 500 children. Its origin was teething powders and also worm medicines that contained mercury, given to babies and children, but it took YEARS for that truth to be accepted. Here is a description and opinion from, A REVIEW OF INFANTILE ACRODYNIA ('PINK DISEASE'), NOVEMBER 30, 1949, of the painful and sometimes deadly symptoms seen: NIH Acrodynia
CARDIOVASCULAR: Tachycardia, hypertension; occasionally epistaxis, melaena, gangrene.
EMOTIONAL.: Depression, apathy, fretfulness, perversion of appetite, loss of interest, insomnia.
NERVOUS SYSTEM.:Myasthenia, hypotonia, photophobia; sweating, incontinence; head-banging, rocking and salaaming; paraesthesia, possibly 'thalamic' pain; disturbed temperature regulation; occasionally tremor, convulsions.
SKIN AND MUSCOAE:. Erythema, swelling of hands and feet; ulceration of mouth, loosening of teeth; dystrophy of nails and hair.
METABOLIC:. Hyperglycaemia, glycosuria; loss of weight: increased basal metabolic rate; enlargement of liver.
ENDOCRINE: Cessation of growth; diuresis.
DIGESTIVE: Vomiting, diarrhoea; occasional prolapse of rectum; occasional intestinal spasm, rarely progressing to intussusception.
BLOOD. Neutrophil leucocytosis.
And like Autism, Pink Disease was a "mystery", with many different opinions on causation yet the clues seem so clear now:
"The concept of diet deficiency, for example, has been abandoned, attractive as it seemed at one time, partly because the disease, whether in symptoms or pathology, resembles no known deficiency disease in man, and partly because it is found very frequently in conditions which seem to preclude malnutrition. The limits of age within which authentic cases have been reported are from the third week (Wyllie and Stern, 1931) to the fourth year;.....above this age there are probably a few cases......very rare cases reported in adults...indeed it is unlikely that a disease which appears not to have its origins in prenatal life or birth itself should be confined to the first four years....a lively baby becomes increasingly apathetic, loses interest in its surroundings, ceases to play, sleeps little, cries a lot. Older children cease to stand or walk or talk, and do not resume their progress in activity until the illness is past. No smile can be provoked, and the child resents being lifted or handled unless to be nursed very quietly."
And like Autism, when hard science pokes its way in, that reality may provoke feelings of denial:
"Recently, it has been suggested that poisoning or idiosyncrasy to mercury may be the fundamental cause. (Warkany and Hubbard, 1948; Bivings and Lewis, 1948; Bivings,
1949.) The idea is not new, since it was apparently considered a possibility by Zahorsky in 1922. The resemblance to classical mercurial poisoning is slight; many infants are still given mercury by doctors,nurses and mothers, either as 'grey powder ' or' teething powder,' yet acrodynia is an uncommon disease. In cross-examination, mothers of some
recent personal cases have denied any such treatment, and there seems no reason to doubt their word....Bivings and Lewis (1948) found 100 y of mercury per litre in the urine of a girl of 6 months with acrodynia,and none two weeks later, after she had been treated with BAL (British anti-Lewisite). The disappearance of the mercury coincided with clinical improvement, but the duration of her illness is not stated;....Much work will be necessary before the significance of these results can be estimated. They have called attention to the extraordinary prevalence of the use of mercury in infancy and surveys will be required both of the use of teething powders and of the normal incidence of mercury in the urine."
And like Autism, not all children were affected by mercury, which brings us to the current study by Kerrie Shandley & David W. Austin: Ancestry of Pink Disease (Infantile Acrodynia) identified as a risk factor for Autism Spectrum Disorders, Journal of Toxicology and Environmental Health
"Pink disease (infantile acrodynia) was especially prevalent in the first half of the 20th century. Primarily attributed to exposure to mercury (Hg) commonly found in teething powders, the condition was developed by approximately 1 in 500 exposed children. The differential risk factor was identified as an idiosyncratic sensitivity to Hg. Autism spectrum disorders (ASD) have also been postulated to be produced by Hg. Analogous to the pink disease experience, Hg exposure is widespread yet only a fraction of exposed children develop an ASD, suggesting sensitivity to Hg may also be present in children with an ASD. The objective of this study was to test the hypothesis that individuals with a known hypersensitivity to Hg (pink disease survivors) may be more likely to have descendants with an ASD. Five hundred and twenty-two participants who had previously been diagnosed with pink disease completed a survey on the health outcomes of their descendants. The prevalence rates of ASD and a variety of other clinical conditions diagnosed in childhood (attention deficit hyperactivity disorder, epilepsy, Fragile X syndrome, and Down syndrome) were compared to well-established general population prevalence rates. The results showed the prevalence rate of ASD among the grandchildren of pink disease survivors (1 in 22) to be significantly higher than the comparable general population prevalence rate (1 in 160). The results support the hypothesis that Hg sensitivity may be a heritable/genetic risk factor for ASD."
So it appears that the descendants of Pink Disease survivors have higher rates of ASD than the general population - a significant 7 times higher than the general population.
A simple yet brilliant study to demonstrate a susceptibility in families. We here at Age of Autism, have been sounding the alarm on mercury and especially thimerosal, due to the fact that there is so much evidence to its connection to autism. As Dan Olmsted and Mark Blaxill have said -- "facts cluster around a good hypothesis," -- and this is one that has not gone away due to that reason. In their book, The Age Of Autism: Mercury, Medicine and a Manmade Epidemic, Dan and Mark tell the story of mercury's insidious effect on generations of unsuspecting victims, including Pink Disease and its connection to mercury, and similarities to autism. From an interview they did when their book was released last year: Olmsted Blaxill Mercury Medicine and a Man Made Epidemic
"The later timing and the different kinds of mercury exposure probably had something to do with the difference in the profile. That said, there were some known cases - some of the symptoms of acrodynia or pink disease were similar in some ways to autism symptoms so there were similar biological effects in the youngest of children. But I think the difference in the timing, the difference in the particular type of mercury was the difference. Calomel would be affecting the body of these children whereas ethylmercury will get into the brain and that's probably the difference between teething powders and ethylmercury......The doctor who realized that pink disease, this terrible illness that children got that came from teething powders, the doctor who realized that that came from mercury poisoning said that it seemed to vary greatly. Some kids would get the same amount and have no effect and others would die from it.
We saw cases where these organic mercury compounds were used as seed disinfectants and in the factory some workers got exposed and became permanently disabled. Other workers who had the same amount of mercury didn't have any effects and so that's an idea that has never really been medically established, but we think the evidence for it is very strong."
Here, now is that piece of evidence, strong and convincing that some families, including different generations, as well as the type and mode of mercury exposure, can have profound effects . I know this personally as both my father and grandfather were victims of medicinal mercury. The physical, mental and emotional illnesses that mercury is capable of detonating are devastating and often hidden. Take for example that many have used ointments and salves that contained forms of mercury, for skin disorders or as a medicine. Unknown to them, the "cure" they were using often became the "disease" as the mercury worsened or cascaded into other symptoms that often seemed unrelated:
ECZEMATOUS CONTACT DERMATITIS DUE TO MERCURIALS
"There was a high degree of apparently allergic hypersensitivity to an ordinary innocuous substance. One of the editors observed a case of psoriasis in which 3 per cent white ammoniated mercury applied once to hands and elbows led to severe, long-lasting and almost fatal erythroderma with cardiac, renal and other visceral complications. Fortunately, these cases are extremely rare. Ordinarily, the yellow oxide of mercury ointments and the low concentrations of white ammoniated mercury can be put even into babies' eyes without the slightest harmful effects. Millions use these preparations with impunity but suddenly some person shows the most devastating, explosive reaction."
The Use of Ammoniated Mercury Ointment
"A 50-year-old man was admitted to The New York Hospital on Feb. 21, 1956, complaining of swollen legs. For 7 months the patient had used ammoniated mercury ointment (2%) for psoriasis involving his scalp, elbows, hands, forearms, and knees. Six weeks prior to admission the patient noticed painless swelling of both ankles."
One big difference between Pink Disease and Autism -- medicinal mercury exposure is STILL happening in this generation, especially in vaccines manufactured or preserved with Thimerosal. Mercury in teething powders became a thing of the past....something to keep in mind:
1956 mercury exposure warning
SEPT. 15, 1956 CORRESPONDENCE
BRITISH MEDICAL JOURNAL
Calomel in Teething Powders
SIR,-Mercury has been omitted from most, if not all, proprietary teething powders with a view to preventing pink
disease, but all loopholes do not seem to have been stopped. I have recently seen two cases of pink disease and found
that they had had teething powders made up by local chemists. On inquiring, in confidence, of these chemists
I learned that the teething powders they were in the habit of supplying contained calomel, and in one case the chemist
volunteered that in future it would be omitted now that he knew of its danger. These two cases may be of interest to
practitioners who may meet pink disease from time to time through chemists not being aware of this danger.-I am, etc.,
Ayr.
A. W. ABRAMSON.
Teresa Conrick is a Contributing Editor to Age of Autism
Does anyone know the exact dates for when calomel in teething powders was prohibited in Great Britain and the U.S.A, and when DTC pharmaceutical advertising became prohibited. I'm having trouble locating if these were outlawed or discouraged. Were there laws written?
Posted by: Albert Wilking | October 31, 2015 at 09:47 AM
Barbara J's link to a child that vaccine site became inflamed and it came down with Kawasakis talks a little about heat shock proteins.
Jon Poling talked some about this only he did not call it this. He said that any high fever could bring on a mitochondrial disorder if it was high enough and had probably been going on for a long time.
I don't know if he still does not want to blame vaccines or he really had some thoughts on this but apparently there is some.
"This inflammatory reactivation was hypothetically ascribed to the cross-reactivity between mycobacterial Heat Shock Protein (HSP) 65 and Human Homologue HSP63, which is a mitochondrial protein.11,12,18 Studies have shown that T-cells obtained from the peripheral blood of KD patients recognize an epitope from HSP 65 and cross-reacted with the corresponding peptide sequence of human HSP 63.12"
And no I did not understand it at all!!!! But it was a good copy and past job don't you think?
There were several words in my quote though that I did recognize: Inflammatory and I understand that. I looked up heat shock proteins and that is apparently from having a high temperature/fever, and the protein "folds" - what ever that means.
But what most disturbed me was that the heat shocked protein had something to do with the mitrochondrial which of course brings me right back to my family's problems and Hannah Polings problem with mitchondrial cytopathy/oxidation phosphoralation/ on the complex I and complex III. Big names meaning the metabolism is messed up. I also understand that they cannot break down long chain carbs into glucose and thus energy.
But what does it mean by: cross-reactivity between mycobacterial heat shocked what ever?
A pathogen? Is that what it means?
Posted by: Benedetta | August 31, 2011 at 10:15 PM
Hi Teresa:
And EXACTLY:
When Tanya was laying there in the hospital bed last year - don't think that atypical or incomplete Kawasakis was not what I was thinking because it was. I also was helpless and knew it - to get the doctors to look at it that way.
As far as the neurologist nurse practioner knowing Hep B can cause Kawasakis - remember she did not know that Kawasakis was a "Multiorgan vasculitis" let alone anything about a Hep B causing any trouble.
Also me being sarcastic (not my usually sweet self): Not the docs in the hospital last year, nor this nurse practioner, nor do peds look at children as human beings. They love the phrase "Children are not small adults" I have heard that - so children which are not older human beings can have Kawasakis and adults which are sure enough human beings and not that other species called children cannot have Kawasaskis.
Posted by: Liquidambar | August 12, 2011 at 09:28 PM
Hi Benedetta,
The nurse may know but can't say:
"This office visit - I asked her how her son was and she said he was fine. I said my duaghter has bipolar - and it devloped as she was becoming a nurse and took a Hep B and a flu shot.
She said - but that is not related to Kawasakis is it."
from that Mutter pdf:
KD AFTER VACCINATIONS
In one case, a 35-day old male developed KD the day after
receiving a second dose of Hepatitis B-vaccine (HepB),
known to contain thimerosal. An association between HepB
vaccination and vasculitis has also been reported in adults
[65]. Thimerosal seems a likely mediator of that association
since mercury is known to cause inflammation of blood
vessels [23].
According to the VAERS data, several vaccines may
have caused a number of cases of KD after vaccination,
mostly Hemophilus B conjugate (HiB), Heptavalent pneumococcal
conjugate (PNC), Diphteria and tetanus toxoids
and pertussis (DPT), Measles mumps rubella virus (MMR),
Diphteria and tetanus toxoids, pertussis vaccines absorbed.
Hepatitis B conjugate., and inactivated poliovirus (DTAPHE),
Inactivated poliovirus (IPV), and Hepatitis B virus
(HepB) vaccines. Some of them are known to still contain
thimerosal, a few to have contained it before the reduction in
the US (1999 – 2004) was made (See Table 3) [66-71].
Altogether, we counted 88 patients (with an average age
of 17 months) developing KD around 10 days after vaccination
who were reported to the CDC since 1990.
ETHYL MERCURY IN VACCINES AND THE
PREVALENCE OF KD
In the U.S., a rising trend in the incidence of KD was
noted 1986-1997[72-74], with the highest increase 1986-
1990 (See Table 4) [72]. The largest increase corresponds
exactly to the period when the federally mandated vaccine
program was implemented, which substantially increased
vaccine coverage and thus mercury exposure.
Posted by: Teresa Conrick | August 12, 2011 at 06:54 PM
Daniel Giversen
Maybe it is isolation, but it appears to me that the guys way up at the top of the medical community (CDC, and NIH)knows and as long as it is a low numbers of the population they choose to ignore.
Meanwhile regular professors of nursing univerisities and doctor's medical schools don't have a clue because it is not in their books.
Same goes for the doctors - who are it turns out -are just a common foot soldier and certainly not an artist, a talent that is much needed for the art of medicine.
But you would think that this nurse practionier of a large neurologist department, with her own son having the disease would have at least had some curiousity - you know - like an artist that paints landscapes - are curious of how colors blend to make that color of blue in the distant mountians or something?????
It runs deeper than isolation.
Posted by: Benedetta | August 12, 2011 at 06:42 PM
Barbara J.
So the little girl actually was still showing red around her immunization injection site. Hard to for them to say it wasn't the vaccine.
I have to now drive hubby to his doctors appointment and we just visited the neurologist this week. Actually we are seeing the nurse practioner and she gives him his prescrpioton of klupin it is for the recent myclonic jerks he has developed.
From the beginning after telling her about my family - I found out that her son had Kawasakis too - some 20 years ago. And like my daughter when he went in to have his fifth DPT shot - he too had a spike temp of 105 - that bit of comparsion opened her eyes some.
This office visit - I asked her how her son was and she said he was fine. I said my duaghter has bipolar - and it devloped as she was becoming a nurse and took a Hep B and a flu shot.
She said - but that is not related to Kawasakis is it.
I said she was always angry and moody after the Kawasakis, and she developed deep angry depression in her teens that required an anti depressant and then these last shots put her over the edge.
The nurse practioner who we are paying big bucks says to me this very week - "BUT Kawasakis, only involves the arteries about the heart though." And she spoke in that tone they all have - they are speaking from authority and the word of God.
I noticed in this first article referenced us too it said
"Kawasaki disease is a multiorgan vasculitis"
How can we fight this stuff, when a nurse practioner to a neurologist at the Univeristy of Kentucky Medical Center whose own son had Kawasakis not know this????
Posted by: Benedetta | August 12, 2011 at 05:41 PM
Without being an expert, it seems that some issues have been researched isolated. But anyone who knows a bit about the ASP, knows, that both symptoms and reasons are a complex.
I once made a simple calculation. Each cardinalsymptom has at least 4 subsymptoms. Each subsymptom can be absent, minor, average or severe. And the first cardinalsymptoms can be prior or after 3 years old. The resulting calculation is 2(4^12, which is more than 3 bio. (europeans would say 3 mia.) variants, registered in 4 classes of wich only a third is specifically named according to age and number of cardinal symptoms: Infantile Autism and Asperger Syndrome. The two other classes Atypical autism and Unspecified Autism consist of to thirds of the variants (the amount of persons with Infantile Autism and Asperger probably is the majority of people with ASF, since the other classes is not distinguished that precisely.
It is clear, that the reason for ASF is biological, and research confirms that several genes might be involved - e.g. ASF is somewhat inheriteable.
My impression when reading this article and a lot of other pro and contra articles is that most research is isolated with one factor it tends to refute in spite statistics show a different picture. Very few researchers has been looking at the interaction between the possible factors:
*Mercury susceptibility
*Mercury exposure - vaccinations, AMALGAM fillings, food, toys etc.
*Mercury accumulation from generation to generation
*Genetic disposition
*D-Vitamin deficiency causing low immune resistance
*Tylenol reducing ability to decomposit heavy metals
*Other chemicals with similar effects as mercury
Probably because it would demand a team of different specialist to uncover the factors.
Of cause there is som core reasons for the increase in diagnosed children with ASF:
*Asperger not being recognised prior to 1989
*Changed society causing fewer possibilities, less structered childhood, demand of flexibility, teamwork etc. (autist needs structure and predictability, they are often umcomfortable with social relations)
But this must not lead to neglection of other possibile reasons. Nonbiased research must consider the interaction of these other possibilities before discarding them.
What is clear, is that some conditions of ASF can be directly linked to medicine or drug poisoning. This study of the supposed relation between ancestors with acrodynia and children with ASF is looking at three of the factors: susceptibility and exposure to a chemical e.g. mercury in relation to genetics. It suggests an interaction and gives a possible explanation to why two children has the same amount of mercury in the body, but only one develops Autism. Thus it refutes earlier studies, that only looked at the amount of mercury.
It is no breakthrough, but might be the beginning of further crossstudies, that might end up with a clear answer to the question most parents of ASF-children ask: Why?
It won't help my son, but it might decrease the amount of children diagnosed with ASF and maybe totally prevent autism.
Posted by: Daniel Giversen | August 12, 2011 at 02:19 PM
Thanks Theresa and Benedetta, this is all such interesting information. I always wondered about the strange marks that would appear at sites of injections, months and years after, in Japanese children receiving bcc . Almost like a delayed systemic reaction that turns local at areas of mercury deposits? It must be synergy working as a time bomb going off sometimes months ,years, after exposures to mercury and vaccines..I just looked around a bit and found this..
http://webcache.googleusercontent.com/search?q=cache:sFl7rti59goJ:www.pediatricsupersite.com/view.aspx%3Frid%3D40516+japanese+kawasaki+disease+vaccine+location&cd=2&hl=en&ct=clnk&gl=us&source=www.google.com
Posted by: barbaraj | August 12, 2011 at 12:44 PM
So mercury is the superantigen that sets off the immune system into an autoimmune mode. But maybe mecury is not the only superantigen how about aluminium salts, I wonder if we could find anything on that???
Then it could be just mercury - only mercury.So, what is going on or could be going on is that Mercury in vaccines is okay for most people if they have not been exposed much before hand.
But for those whose (parents have a history with mercury) are the ones we see reacting to the vaccines. That does make sense.
So how long will it be untill all those old vaccines stored away in those ped's offices and health departments gets used up?
Oh and the flu shots that are given every year.
Medical people try to say that Kawasakis is an acute disease. But immune problems after the intial disease - still continue for years- and as usual the medical people talk out of both sides of thier mouths.
They claim it is acute, send them home, with little support, but get that heart checked out forever more.
A lot of parents are coming back with thier kids a few years after Kawasakis and complaiing of mild autistic symptoms (only they don't seem to know they are autistic symptoms), like: angry a lot, over the top tantrums, unrealistic fears, OCD, delaid talking, delaid potty training, being disengaged with other kids when in a larger group of kids.
Then there is atypical Kawasakis -- and I bet anything that everyone of the kids that had regressive autism had many episodes of unrecognized atypical kawasakis.
Posted by: Benedetta | August 12, 2011 at 11:08 AM
Here's the full study by Mutter-
Kawasaki's disease, acrodynia, and mercury.
http://www.toxcenter.de/artikel/Hg-ADHS-Acrodynie.pdf
Posted by: Teresa Conrick | August 12, 2011 at 10:53 AM
Here's another that seems to further this idea:
Curr Med Chem. 2008;15(28):3000-10.
Kawasaki's disease, acrodynia, and mercury.
Mutter J, Yeter D.
Source
Department of Environmental and Complementary Medicine, Salusmed Medical Center, Wieslistrasse 34, CH - 8267 Berlingen, Switzerland. [email protected]
Abstract
A superantigen or autoimmunity has been hypothesized to be the main cause of the Kawasaki's Disease but the etiology is unknown. Medical literature, epidemiological findings, and some case reports have suggested that mercury may play a pathogenic role. Several patients with Kawasaki's Disease have presented with elevated urine mercury levels compared to matched controls. Most symptoms and diagnostic criteria which are seen in children with acrodynia, known to be caused by mercury, are similar to those seen in Kawasaki's Disease. Genetic depletion of glutathione S-transferase , a susceptibility marker for Kawasaki's Disease, is known to be also a risk factor for acrodynia and may also increase susceptibility to mercury . Coinciding with the largest increase (1985-1990) of thimerosal (49.6% ethyl mercury) in vaccines, routinely given to infants in the U.S. by 6 months of age (from 75microg to 187.5microg), the rates of Kawasaki's Disease increased ten times, and, later (1985-1997), by 20 times. Since 1990 88 cases of patients developing Kawasaki's Disease some days after vaccination have been reported to the Centers of Disease Control (CDC) including 19% manifesting symptoms the same day. The presented pathogenetic model may lead to new preventive- and therapeutic strategies for Kawasaki's disease.
Posted by: Teresa Conrick | August 12, 2011 at 10:40 AM
The treatment for Kawasakis - back in the 80s was just asprin.
That was used for inflammation,and as a blood thinner in case those aneurisms developed at least the blood wouldn't clot.
Today it is IVIGs and steroids.
And if aneurism develop differnt kinds of blood thinners.
All of these are for treating serum sickness, allergric reaction, hypersensitive III, immune system attack.
It is not like they are chelatetatin mercury out of anything.
So this is were it gets all confusing to me??
Jen B says she actually had an allergy toward mercury.
But I am confused on that.
How can you have an allergy to a substance known to be a poison to begin with. I mean it is a poison so an allergric reaction to it is suppose to happen - doesn't it?
Posted by: Benedetta | August 12, 2011 at 07:29 AM
No,this can't be right because on the Kawasakis website they all agree or most do that it is genetic. The lastest on the research studies they just recently put up is a study on twins all from the NIH, proving it is genetic.
Doesn't matter some have said that to this day they can't walk across a lawn and not get sick. ORRRR it is still something in cleaning that carpet -- maybe somebody broke one of those twisty all go green light bulbs and it spelt on the carpet.
Posted by: Benedetta | August 11, 2011 at 09:54 PM
I must have been asleep to have missed this?!
http://www.ncbi.nlm.nih.gov/pubmed/12197264
right there in black and white the claim that mercury causes kawasaki...
Posted by: barbaraj | August 11, 2011 at 07:44 PM
Thanks for the info Benedetta, yes I see Kawasaki as a type of pinks. My friend lost her son, age 7 1/2 months, three days after his dpt. He had a seizure and had he returned to health no one would have known anything, but on autopsy it was determined he had a stroke, and had developed several aneurysims around his heart. I understand that in the 80's there was a class action suit forming out of Philadelphia claiming chemlawn and it's mercury based pesticides was responsible for Kawasaki among exposed children. The suit did not stand, yet some individuals went on to settle quietly with chemlawn. This is another "hush" story, as were some of the stories surrounding golf courses, ( lt.george prior's death) and men including some very famous golfers who were made ill from mercury applications.
Posted by: barbaraj | August 11, 2011 at 04:41 PM
Ohhh I just thought of this on Kawasakis.
There is atypical Kawasakis.
Barbara J said not many on Age of Autism has had it except few.
There is Kawasakis
and then there is atypical Kawasakis.
My daughter had all the signs of Kawasakis,
but my son had atypical Kawasakis twice.
He did not have the rash, he did not have the pink tongue and lips- although they were a little red and cracked - and maybe he did look a little "pink", but both could have occured with any high fever. What he had was a very prolonged fever lasting more than four days (my son's lasted seven to ten).
I also think he had atypical Kawasakis (that would make three times) when he was only four months old right after his first DPT shot, but it went unrecognized. I went into the peds because of a fever he had developed and they discovered at during that office visit that he had developed a heart murmur. A soft X ray showed a boot shaped heart. His left ventrical was swollen.
I found this rather interesting on the Kawasakis Forem
ADVISING ON ATYPICAL KD
by marinamom » Fri Jan 01, 2010 8:07 pm
FORUM PARENTS
PLEASE BE CAREFUL WHEN ADVISING PARENTS WITH KIDS WHO HAVE SUSPECTED KD THAT THE 5 CLASSIC SIGNS MUST BE MET. ATYPICAL KD DOES OCCUR (ESPECIALLY IN OLDER CHILDREN AND BABIES) AND CAN PRESENT WITH AS LITTLE AS A STOMACH ACHE. THESE ARE VERY OFTEN THE CHILDREN WITH SERIOUS COMPLICATIONS -- SOMETIMES AFTER TRYING EVERYTHING KD IS ONLY CONFIRMED ON ECHO BY SEEING ENLARGED ARTERIES. ALL FEVER OF UNKNOWN ORIGIN (MORE THAN 4 DAYS) SHOULD BE SUSPECT AND RESULT IN STAT LABS (INCLUDING ESR AND CRP) TO SEE WHA'T'S GOING ON. ALSO STREP IS THROWN AROUND ALOT BY SOME DOCS WHO DON'T EVEN DO A STREP TEST (RAPID IN OFFICE FOLLOWED BY CULTURED). ANY RASH SHOULD BE CAUSE FOR STREP TEST AS WELL AS SORE THROAT. I REALLY WISH THERE WAS MORE GENERAL EDUCATION FOR NEW PARENTS AND EXISTING PARENTS ON KD -- I AM WORKING ON IT BUT FRANKLY PART OF THE ISSUE IS THE KD FOUNDATION AND FORUM RESISTANCE TO SAYING WE ARE PROVIDING MEDICAL ADVICE. I AM A HEALTH CARE LAWYER -- SHARING YOUR EXPERIENCES IS NOT HEALTHCARE ADVICE -- BUT IS FAR MORE DANGEROUS IF PEOPLE ARE NOT EDUCATED ON KD. I KNEW NOTHING OF KD WHEN MY CHILD HAD IT UNTIL I SPENT THE PAST YEAR WORKING ON A PATIENT EDUCATION, INTERVIEWING KD DOCTORS, READING MEDICAL JOURNALS AND I STILL NO VERY LITTLE OTHER THAN WHEN TO QUESTION WHAT THE DOCTOR IS SAYING - BECAUSE THAT IS REALLY THE BEST YOU CAN DO.
Posted by: Benedetta | August 11, 2011 at 06:31 AM
If the use of mercury based teething products had continued, I wonder if the rate of Pink Disease would be significantly higher than 1 in 500 today? The rate of autism?
I used a thimerosal preserved contact lens solution for a few months as a teenager before becoming allergic, and my eyes have been sensitive to several things since that time. I wonder what amount of Hg entered my eyes daily through solutions of .001-.004% and how that compared to injecting a bolus dose?
When I asked my first daughter's doctor if my allergy to thimerosal would be a problem prior to her first Hep B vaccine, he didn't know what to tell me. I guess now after my second daughter did not come out of her well-baby visits well off, and I'm not sure my first daughter did either, I might have the answer, though I can't say if my sensitization possibly created some risk or just indicated it.
If allergic hypersensitivity to thimerosal also equates to familial autism risk that could be frightening, because the numbers below do not look like genetics to me. They look more like an indication of exposure opportunity, and our children now have all had pretty high exposure opportunity:
"In terms of safety, the panel cited a number of studies demonstrating the highly allergenic nature of Thimerosal and related organic mercury products. For example, it cited a Swedish study that showed that 10% of school children, 16% of military recruits, and 18% of twins, and 26% of medical students had hypersensitivity to Thimerosal."
http://mercury-freedrugs.org/docs/071130_Geier_etal_PublishedReviewOfThimerosalPaper1.pdf
Posted by: Jeannette Bishop | August 11, 2011 at 06:00 AM
Immune thrombocytopenic purpura;
Yes, it is tied into all this some how too.
I Never heard of it growing up, and now I actually know people that have it!
I think Barbara J; that Ann Dachel son had Kawasaki's too, if I remember right.
- Dr. Burns who is suppose to be the "BIG" Kawasaki's expert in California says that she believes that the child has inhaled something Six weeks before the onset of Kawasakis. She is side stepping the injected issue (inhaled gets it into the body too the same way as injected). So Dr. Burns is a smart little doctor meaning to keep her medical nich.
It was six weeks going on into the seventh week after the DPTs that my kids came down with Kawasakism by the way.
So pink's disease could be Kawasakis, or Kawasakis could be Serum Sickness (hypersenstive type III)takes some time to react anywhere from a few days to a few weeks. Serum sickness could be linked to heavy metals.
Posted by: Benedetta | August 10, 2011 at 08:58 PM
What all can be taken from this, is the fact that grandparents had toxic reactions to mercury suggest the future offspring carried this inability to rid of toxins , making that a possible genetic clue? I believe Kawasaki fits in here, as well,I have seen a few sibs of Kawasaki kids develop autism , no study, just a "very limited small scale observation" On here, it's just me and benedetta ( that I've noticed) Could a tendency to react with mitochondrial dysfunction exist among a sensitive group, with that weakness compounded by the heavy toxic load experienced in today's over vaccinated infants? Kawasaki is a disease for the most part in infants and toddlers as well, and is the current leading cause of acquired heart disease in children. I found it interesting that my daughter developed kawasaki while another small child in the same practice developed ITP , the other parent and I shared many a visit, our first encounter was an amazing shared office time for mmr vaccine! The doc recognised the itp as a reaction to that mmr! ( yet it was called idiopathic??? )
Posted by: barbaraj | August 10, 2011 at 07:58 PM
Another buried study by Pharma how many diffrent titles can they give Mercury damage?Couple of thousand so far...The Sacred Golden Cow sums it up
Thanks for this I can remember my mother talking about the powders ,gone before I came along.
Angus
Posted by: Angus Files | August 10, 2011 at 11:20 AM
Great work, Teresa. Fascinating study. Let's hope now it reaches and has an effect beyond the choir. Thanks, Maurine
Posted by: Maurine Meleck | August 10, 2011 at 11:03 AM
Good Morning-
Just want to add in this recent update and clarify:
The comparative ASD prevalence rate for grandchildren of pink disease survivors aged 6-12 years is 1 in 25 and, for 13-16 years is 1 in 35.
Overall, the prevalence of ASD among grandchildren of pink disease survivors was found to be significantly elevated (6-fold for children 6-12 years and 8-fold for children 13-16 years).
Posted by: Teresa Conrick | August 10, 2011 at 09:05 AM