Has anyone checked into the use of natural progesterone in high doses along with the role that thyroid plays in seizure activity? I recommend checking out the research/findings of Dr. Herzog, Dr. Ray Peat and Dr. Lita Lee regarding petite mals, grand mals and catamenial seizures.

"....William is among the one-third of epilepsy sufferers who do not respond, or respond only poorly, to anti-epileptic medications. Now he and others with refractory epilepsy are benefiting from treatment that targets inflammation, the result of new research into how epilepsy damages the brain.

'Many of us theorize that the two are tied — inflammation causes seizures, and seizures cause inflammation,' said Orrin Devinsky, director of the Comprehensive Epilepsy Center at the New York University Langone Medical Center and William’s doctor. 'Over time, both of them may feed off each other.'

....Annamaria Vezzani, a neuroscientist at the Mario Negri Institute for Pharmacological Research in Milan, has induced epilepsy in mice and rats by injecting kainic acid into their brains, and has observed the activation of a cellular pathway linked to inflammation before and during seizures.

The amount of inflammation in the brain correlates with the frequency of seizures, she also has found. 'This is a novel finding,' Dr. Vezzani said in an interview. 'It was not known that inflammation was a common feature of different types of epilepsy.'"

http://www.nytimes.com/2012/06/05/health/research/new-epilepsy-tactic-fight-inflammation.html

Do you call VAERS to report these are Long term results of vaccine damage? I think all parents should!!! In my research over 5 years ago, I also heard FROM PARENTS, the only reliable source, to keep a careful look out for seizures during puberty/hormonal changes. I feel these are Serious Long Term Results of Vaccination. Thank God for the web and parents can communicate. They have been the ONLY helpful resource that I've found. How sad is that? The Doctors, since they are recommending shots, should KNOW the long term effects of the damage they are causing. You think they would have read up on it? The inflammation, headaches and brain infllamation, gut bacteria and encephalytis caused by these and taken some action! Very few have and even though they've actually RUSHED babies that were JUST vaccinate to the emergency room, they still say...Oh, it's very rare. It's not that rare, these seizures, Autism, inflammation, diabetes, leukemia, arthritis, immune problems...not rare anymore! Wake Up Medical Field and see the Infant Mortality rates that are rising with these shots and all the behavioral and medical problems as an afermath. How long can you place your head in the sand?

I am also having that problem. My son just started having seizures. He is eighteen he has also become very aggressive. I would love to know what i could do to help him. He is also nonverbal. What is so horrible is the fact that im afraid he will grab someone and get in trouble. If there is an answer please share it with me I am at my wits end. Marie Dillard

I have an Autistic child who is 15, he just had a seizure.

While my son is 7 and clearly puberty isn't what is going on ~ he started having seizures a year ago. We saw a neurologist and did a couple of EEGs. He has petit mal cluster seizures. Well, that is what they said then. She put him on medication. It made him nuts so we changed the meds. He did great (with a few blips here and there) until February 14, 2011. On that day his seizures came with a vengence. Normally the treatment at the onset of seizures is to give him 2 - .125 dissolvable klonipin. Did that. It would stop them for a little while then they would come right back. Spoke with the neurologist - she increased the seizure meds. No relief. Day after day - seizure after seizure. February 19th we wound up in the ER. They administered ativan through IV and held him overnight for observation. We were released Sunday early afternoon. Sunday evening the seizures started again. Monday morning the neurologist decided to send us to Children's Hospital for a 24 hour EEG. (We had already done one before but during the previous monitoring we brought the machine home with us) We get there and a team of doctors come in - witness the seizure activity (arms raise, head lowers and mouth opens) He is hooked up to the machine and we are told to press the button for each time that we see one of his seizures. The next morning the lead doctor comes in and says that when the button was pressed - there was no EEG change. Confusing of course because sometimes these things get so bad his words slur and he can barely stand. He also says that he consulted with my son's neurologist and they agreed that they wanted to keep him another night for more monitoring. Ok. On this day, my son seemed more like himself than he had been in 2 weeks. He wasn't hostile or "out of it". He wasn't happy that we were staying in the hospital another day but he handled it like the champ that he always is. There wasn't ANY seizure activity that we saw at all on this day. We didn't press the button once. Of course the next morning they come in, say that my son is an interesting case and discharge us with instruction to see his neurologist.
We go see the neurologist - she tells me that since there was no EEG change that she doesn't think it's seizures. She hands me a questionairre about Autism (to see if my son TRULY has Autism because during our first meeting I explained that he did). I did the questionairre - she comes back and says that he has Autism. Decides that what is happening is one of the "ticks" from Autism. Decreases his meds and tells me to see a therapist. Problem for me is that in the beginning there were EEG changes corresponding with the physical attributes of the activity. So now what do I do? I don't believe this is some "tick" from his Autism. I feel like they have dismissed me as crazy and I have nowhere to turn because they don't want to listen anymore. If anyone can help me - PLEASE do. :(

The doctor comes in the next morning

Oh, Teresa.

My heart aches for you and Megan. The changes must be so scary. I hope you find the right answers and treatment to ease any pain Megan might be in during the seizures.

You're a great Mom to continue to find answers. You're a wonderful friend to report what you learn so that other people can stay a step ahead of what is to come.

Cat

As a professional working with families on the Spectrum (and having a 22 y.o. niece on the severe end, I have seen this happen to both boys and girls once puberty hits. I wonder what the explanation is for boys. My niece had them just during her early teen years, was on an anti seizure med for awhile and now is off of it and hasn't had one in years.

So busy yesterday that I am just able to post now.

Thank you all for such kind and supportive comments. They are very appreciated. I am hoping that the testing gives us a good picture so we can treat the source of these serious seizures.

Kathleen, I would really like to discuss more with you about the similarities that our daughters share. Can you email me please- [email protected]

Donna K- Thank you! Ironically, I just got the Dr. John Lee's book, What Your Doctor May Not Tell You About Menopause,and reading lots of research about progesterone. There's a lot of information that is very intriguing and may open some doors.

I may do a second part to this when we get the results back to the tests. I did find out researching that other are seeing the benefits of increasing progesterone- especially allopregnanolone. a significant metabolite. In fact, Prozac is supposed to be newly marketed soon for PMS and PMDD -- PreMenstrual Dysmorphic Disorder. They have found that tiny amounts of it increase allopregnanolone- and thus, prevent and treat these types of seizures....supposedly.

"Research from several laboratories previously showed that one SSRI, fluoxetine (Prozac) could increase allopregnanolone concentrations in rats and in people .."

BUT as we all have read, prozac has been shown to be very dangerous at times so going to the source - progesterone or allopregnanolone would seem to make much more sense.

Thanks again.

I am truly sorry you are having to go through this.
Even boys as they reach puberty (MINE) also begin to suffer from more and more intense seizures.

And of course it effected my daughter too, hormones high- lighting a mood disorder; making it much, much worse, and then she developed the inability to stop her monthly flow (after she received a DTaP at age 14).

Hormones do play a roll.

Speaking of eyes - my husband with his mitochondria problems and his vitlago (Immune sytem attacking pigment in skin living it white) went to the eye doctor the other day and she said that she saw white or rather no pigment areas on his retina - the vitaligo extends to his eyes too!!!!

I recently read that the DPT vaccine causes one to not be able to fight off intracellular pathogens. Of course, mercury and other toxins also do this. Intracellular pathogens like Lyme and Bartonella are being found in the autism population and they have cyclical symptoms. In that, doctors who are aware of this, say that the symptoms are worse during menstruation and can by cyclical. Testing is not considered accurate unless done by an LLMD (Lyme literate medical doctor). Since her symptoms are cyclical, I would check into these and protozoa, since they also lead to cyclical symptoms.

Australia

Thanks Theresa for sharing your story.

My sister-in-law has a nephew (vaccine injured) starting puberty and is now having frequent seizures. The doctor cannot link it to anything so with his "blase`" attitude he merely states that "it is one of those things!"

Perhaps I should link him to this site.

Teresa,
Your daughter Megan is beautiful. The story you wrote is almost exactly our daughter's story. She is 14 years old, has autism and seizes (Grand Mal, requires mouth to mouth and rectal emergency seizure meds) between day 10 and 15 of her cycle. For her 7 pm is the hour. She has been seen by Dr. Herzog in Boston, who specializes in seizures and menstruation. She has transdermal progesterone beginning day 13 of her cycle. Right now she is only having one seizure a month but they are very dangerous. We will meet with Dr. Herzog again this summer to see if an adjustment to the progesterone might relieve her of that one seizure a month.
My thoughts and prayers go with you.
Aloha, Kathleen

Thank you Teresa. Happy birthday to beautiful Megan.

Georgio, thank you for staying in the fight. Blessings to all of the courageous fighters.

Giorgio Tremante,
Thank you for bringing up Janine Roberts' book, "Fear of the Invisible." Very eye-opening information regarding what is known and what is not known about 'viruses'. She also offers a convincing alternative to what may have caused the polio epidemics in the 50's. I am very glad to hear that some recognition has come her way for her research into the key game players in the field of virology and their personal theories on what they think viruses are and how that has shaped our misunderstanding of what viruses are and what viruses do. I have just recently been re-reading this book in hopes that it can clear up some of my confusion with how viral vaccines actually work. (Teresa, sorry to go off topic on this comment)

They need to change course and go after the doctors and clinicians who misdiagnosed their child's symtoms as autism. Autism is not vaccine injury. The courts keep beating this into the people trying to claim vaccines caused autism. Vaccine injury is vaccine injury, and the doctors who mislead the family need to be sued to prevent this from happening to others. Right now, the government is using this loophole to protect themselves and the manufacturers..... Lose the A word and the wall will com tumbling down. Dump the A word.

It is so awful to read about these things happening to our kids.

My brother's seizures occur most when he is exposed to dairy products and when he is getting sick. I can't imagine knowing that it is coming every month. My heart breaks for you because seizures never get easier, no matter how many you have seen.

I'm just curious, can you use hormone therapy with her to prevent her from having periods?

Hang in there!

VACCINES MURDERERS Part 1: Tremante George [HQ]
September 30, 2009. at the hearing on the case Verona (Italy)Tremante-Glaxo
http://www.facebook.com/video/video.php?v=471386776752&ref=mf

E 'mark to describe this "CORRUPTION"? Considering going to interfere directly on the health of our children, and to try to steal the good faith of the parents, absolutely uninformed about the likely adverse effects that these trials may lead to short or long term, carried out as proposed in the document directly on human Human unaware where this is forbidden by Law
http://www.facebook.com/album.php?aid=5549&id=100000877344712#!/notes/giorgio-tremante-bis/e-sbagliato-definire-questo-documento-corruzione/148153371906475

When will 'this genocide?

Brief description of our tragedy
To show how evil can do the vaccinations, used so indiscriminately on families from all over the world, I think it's my duty by telling my story, but specifies that unfortunately my story is not considered a unique case in itself sporadically but it is only the tip of an iceberg that is trying to unmask the category of "scientism" that terror still require the use of vaccination practices.
The tragedy that struck my family, has hit three of my four children.
I state that my three children are affected by the reaction from the vaccine, were born perfectly healthy and that the manifestations of a disease may have appeared only after the first vaccine Sabin. A Mark, my firstborn, the folder was described the clinical symptoms that appeared after the Antipolo Sabin. The disturbances occurred (ocular nystagmus, tremors and defects to the word) had been made in relation to the pediatrician by Sabin, while other doctors had assumed various diagnoses such as brain tumor or degenerative encephalopathy, never confirmed by any analysis performed on the child. He died in 1971 at six years. The second son, born in 1970, there were problems. But the drama returns with the birth, which occurred in 1976, of two twins monovular. Despite my opposition to an iron law that I have imposed a mandatory absurd and dangerous, without any prior investigation, were vaccinated and the next day already began to emerge the first signs of any alteration. Submitted the medical records of the first shelters suffered by my children at various Universities: United States, England and even in Russia, in the latter country is speculated disease on immune deficiencies that would have confirmed the specific responsibility of the vaccinations. In my city, Verona, was placed the diagnosis of type metacromatic Leukodystrophy, a degenerative disease of the nervous system, this diagnosis was never confirmed by genetic tests also that we are submitting. Later Andrea, one of the twins, it is aggravated and was hospitalized for dehydration, despite my recommendation not to use drugs immune-suppressor, because the child was immune-compromised, of cortisone was used in a vein in five hours and my creature died. Later I came to know that the same drug was given to my first child before death. Even with the autopsy were able to have useful information to save the life of twin remained because there was denied the presence of a medical legal part, so that examination could not be trusted with our research. At one month after the death of Andrea, Alberto, was the sister, had to be hospitalized. Despite the opinion of doctors was to let it die, it was brought at our request, in resuscitation and asked a virologist of Naples, who previously had examined the child, they advised us of immune-stimulant. Subjected to treatment with interferon, the child began to improve slowly. After six months in hospital the baby was brought home with no letter of resignation. Sometime later, the requested medical records, I realized that they were different from those who copied each day during hospitalization. That is a statement presented to the judiciary. As a consequence of this was done by a judge issued a court notice to the Director at the Health Office in which he had been admitted to the child, later extended to primary pediatrics for "Fake ongoing public. At the end of this proceeding was filed.
Many other shelters suffered Alberto, both in the same hospital in Verona than in other resuscitation: the Polyclinic of Milano, Merate in the province of Como, a Melegnano, near Milan, and finally was transferred automatically from the Polyclinic of Melegnano Verona. During all the different shelters my task was to ensure that treatments were applied immune-stimulant that we had given the first positive results. These therapies we were always advised by Professor Tarro of Naples, who was a pupil of Professor Sabin. It was always difficult if not impossible to apply this type of therapy to Alberto, as the doctors had ruled compact now that my son had to die. This was supported because discovery was not the responsibility of the vaccinations used on a subject, partially immune-compromised. Although our case had concerned the then President of the Republic, Sandro Pertini, putting pressure because the Health Minister Renato Altissimo established a Ministerial Commission, this without ever having seen a report drawn Alberto fake to hide the truth of the damage suffered by the vaccines. The last shelter Alberto had to suffer at the Polyclinic in Verona, where, in the opinion of health care, my son had to die a short time. I tried desperately to bring home my child, was seen as their way of thinking because the only solution of the problem for them was the culmination of the whole nefarious affair. At that juncture, because I could not survive in order to make my creature, even I did remove the "parental authority" by the Judge of children in Venice, to whom I addressed just to make them understand that he was committing a gross error. I managed to convince him to reinstate me in the parental responsibility, starting as early the now 1984 to manage my child at home, creating me resuscitation room "where previously arranged our master bedroom. During hospitalization all my wife Franca Alberto has always remained with him day and night to protect it from any abuse that the medical profession sought to implement.
Many others had to suffer harassment by the Health, even if Alberto had not set foot in a hospital, controversy of any kind from the health institutions because they do not want to admit that the vaccinations were the cause of his illness and death of his brothers.
Finally, in 1995, making recourse to law 210 of 1992, recognized by the state saw the "causation" of the damage suffered by subjecting our children to mandatory vaccinations.
During all these years I efforts to establish associations in Italy to aggregate people like me who have suffered damage from the vaccine practices;
also tried to pass a law that had developed with the Parliamentarians, to waive the obligation of these practices, but this goal in Italy has not been achieved because, in my opinion, the health policy that is implemented is left thumb yet the power of corporations of drugs. All this is proving that even in this area, some pseudo science, with the arrogance of his scientism, devoid of any scruple, trample continuously, with action in most cases illegal, every human right and civil matters. It imposes its power based on speculation that interest their progress based not on an open and accurate information, but rather on a complete and deliberate disinformation to get even the Occult of certain realities and impersonating preventing these practices prophylaxis that may, except to prevent anything.
http://www.facebook.com/album.php?profile=1&id=100000877344712#!/photo.php?fbid=181193258586584&set=p.181193258586584&notif_t=photo_comment

I don't know if it means anything, but I've heard that they stopped giving Phenergan to young children because it interferes with their anti-seizure mechanisms that are developing to a later age. That's how one of the doctors my kids have seen worded it, and she kind of made it sound like if you give your kids Phenergan at age 3, then when they are 16, they can start to have seizures. That's just something I heard.

Anyway, best of luck to you and yours. You are doing the right thing by researching and fighting for the care you need.

Teresa you are a wonderful mother a fearless, voracious researcher, and a terrific friend. If anyone can find the answers to help Megan, it will be you. Unfortunately those with medical degrees and research dollars without affected children are not headed down the right paths. They've stopped listening to us, not that they ever did to begin with, so it's up to the parents. We will find the answers our kids need. I'm proud to have you as a friend and will always be there for you during this fishing expedition until will hit pay dirt. Hugs!

Teresa -- I feel for your daughter Megan and your family. I've thought for a long time that serious research needs to be done on adolescents and adults with autism, because the onset of hormones can dramatically change symptoms and behavior, usually for the worse.

My son Rory had seizures when he was little, but we were lucky that he outgrew them by puberty. On the other hand, puberty, though seizure free, was a very difficult time for him and us. As he entered his teenage years and his testosterone levels rose, he developed bizarre, aggressive and self-injurious behaviors that we hadn't seen before. He developed a severe anxiety disorder. Although he previously had language, he gradually lost it again and became mute for a year. Then the aggression began. He hit other people when they said one of his "trigger words" -- words he didn't like. Unfortunately, there was a fairly long list of those words, including common ones like "dog" and "cat." Then we saw the self-injurious behaviors. He hit himself on the leg so many times there was a permanent bruise and the hair fell off. He would yell at the top of his lungs for hours on end, often in the middle of the night, saying "hit that, hit that."

We were devastated and baffled that the biomedical treatments and behavioral interventions that we had been working since he was diagnosed at age 4 no longer seemed to have any effect. We were desperate and turned to drugs and tried a variety of anti-anxiety, anti-depressant, anti-psychotic meds, which either put him to sleep or hyped him up, but didn't do much to help the behaviors, the anger, or the anxiety. Our psychiatrist at one point chuckled and said "well, I only expect medication to work about 20% of the time." Bit of an indictment of your profession, wouldn't you say, doc?

Rory is now 21 and things are better. He's no longer aggressive and self-injurious, except for rare situations. He does still yell but not as long or loud. But he still has a severe anxiety disorder. He still has a loud verbal tic. What worked? Time helped, as Rory adjusted to the hormones that changed his body. We also saw benefit from sequential homeopathy. The biomedical work that we had never stopped seemed to be helping again, as we adjusted his supplements. We tried new treatments such as methyl B-12. He's still on some medication, but we are trying to wean him off. We hope for further progress with time, since we will never give up.

I wish the best for all of us as we go through adolescence with our sons and daughters.

Aimee Doyle

Your research is fascinating. I am starting to see the effects of puberty on jsohua, who is in the early stages. No seizures, but meltdowns for no discernable reason. At least previously when he had them, there was a reason and i could see the connection. They can be kind of frightening.
Doing some testing this month on testosterone etc.
Thanks for your hard work and I'll keep praying for you and Megan. Maurine

Great article. I wonder if the Geiers work with testosterone and Luprin would be of any help?