The American health agency, CDC, seemingly continues its collaboration with Danish autism researcher Poul Thorsen, who 13 months ago was renounced publicly in a highly exceptional statement by his former employer, Aarhus University. The reason was a considerable shortfall in funding at Aarhus University associated with a CDC grant.
According to data available at the homepage of The Danish Data Protection Agency, Poul Thorsen is data-responsible in a project, which takes place in collaboration with Centers for Disease Control and Prevention, National Center on Birth Defects and Deveopmental Disabilities, Division of Birth Defects and Developmental Disabilities in Atlanta USA.
The title of the project is “Biomarkers associated with the development of autism.”
The purpose of the study is to find possible biomarkers associated with cases of autism diagnosed in children born after January 1.1990 and living in Denmark. Validation of the autism diagnosis is also an integrated part of the study.
The data is going to be treated and stored by NANEA, Institute for Epidemiology and Social Medicine, Århus University.
The data is also going to be treated and stored at the Clinical Biochemical department, belonging to the danish producer of vaccines, Statens Serum Institute (SSI).
The outline from the Danish Data Protection Agency also has space to write the name of the person who treats the data and the address of this person, but those blanks are left empty.
The data treated in the study is general health information and particularly from birth to diagnosis of children with autism. Information from social authorities which are to be found in patients journals. Furthermore measures of biomarkers at blood samples in existing biobanks.
The research is private and Poul Thorsen in this context states his educational level as assistant professor, Bachelor of Medicine, Ph.D.
The permission from The Danish Data Protection Agency giving access to the relevant register runs until 01-07-2013.
Poul Thorsen is also data-responsible in another autism study, where the data is going to be kept respectively at NANEA, Århus University and at Children and Youth Psychiatric Hospital in Risskov, which is a suburb to Århus.
This study has the title “National Register for Autism Specter Disturbances”. The purpose of this study is the establishment of a validated register for all cases of Autism Specter Disturbances diagnosed in children born after January 1. 1990 and living in Denmark.
The project also includes clinical or paraclinical examinations. This register is going to be used as background for future projects about Autism Specter Disturbances based on validated diagnostic cases. This project also takes place in collaboration with Child and Youth Psychiatric Hospital in Risskov in Denmark.
However, when it comes to recording, who actually is going to treat the data and where this person lives, the space again is left blank. The second autism project also runs until 01-07-2013.