IACC Meeting Friday, April 30
The Interagency Autism Coordinating Committee has a public meeting tomorrow. Click HERE for full details on how to participate.
Friday, April 30, 2010
Time: 10:00 a.m. to 5:00 p.m. Eastern
Agenda: The purpose of this IACC meeting is to welcome the new members of the IACC and to discuss IACC activities including the 2009 IACC Summary of Advances and the 2009 Portfolio Analysis. There will also be presentations on the Autism Treatment Network, autism in the DSM-V, stem cell research, nonverbal autism and comparative effectiveness research.
Place: The Ronald Reagan Building and International Trade Center
Rotunda Room
1300 Pennsylvania Avenue, N.W.
Washington, DC 20004
Webcast Live: http://videocast.nih.gov/
Conference Call: USA/Canada Phone Number: 888-577-8995
Access code: 1991506
Registration: http://www.acclaroresearch.com/oarc/4-30-10_IACC
Access: Metro accessible - Federal Triangle Metro (Orange/Blue Line)
Contact Person: Ms. Lina Perez
Office of Autism Research Coordination
National Institute of Mental Health, NIH
6001 Executive Boulevard, NSC
Room 8185a
Rockville, MD 20892-9669
Phone: 301-443-6040
E-mail: [email protected]
TannersDad @AutismSociety 50% of some states prison populations are on the #Autism Spectrum. #IACC
TannersDad @AutismSpeaks @ANeeman @AutismSociety Jumping in and Stealing the great work of www.NationalAutism.org work Thank YOU NAA. #UWAC #IACC
TannersDad "Status Quo is not acceptable" Dr Tom Insel #IACC #Autism #AutismOne
TannersDad CDC Chimes in with rocket science intelligence... "We do believe perhaps we can address some of these problems" #IACC #Autism Morbidity #FAY
TannersDad #IACC Getting dizzy by all the letters... BRFSS behavioral Risk Factor Surveillance System NDAR ACF-ADD ICF CDC NIH SAMHSA ICS #Autism
TannersDad Talking about $1,100,000,0000 from American Recovery & Reinvestment Act invested in CER (Comparative Effectiveness Research) #IACC #Autism
TannersDad @MiaFindngBalnce Sorry, They said with todays state of the art, very very very seldom does a child become verbal after puberty #Autism #IACC
TannersDad One Word... Makes a difference #Autism #FAY #IACC
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TannersDad "One word is an astounding predictor for better outcomes" Dr Tager-Flusberg #IACC "Basic Human Right" #Autism #AutismOne #FAY
TannersDad "Urgent need 4 novel interventions 4 this pop (Non verbal ASD), Who r often excluded from research Studies" Dr Tager-Flusberg #IACC #Autism
TannersDad "No Published studies on sensory sensibilities for those non-verbal individuals on the #Autism Spectrum" Dr. Tager-Flusberg #IACC
TannersDad After that presentation on Non-Verbal Individuals, I don't know how Ari or anybody could call #Autism a difference. I am in tears. #IACC
TannersDad My heart has just been ripped out by the #IACC Presentation on those on the Non-verbal side of the #Autism Spectrum. #AutismOne
TannersDad #IACC Is trying to get 2 stars before we have learned to walk on earth #Autism is a get your hands dirty condition & Families need help now!
TannersDad @AutisticLady If something is not done soon... "Burden, Suffer, Afflicted etc" will be of minor concern, replaced with "Bankrupt, Suicide, Mu
TannersDad #IACC Is a half hour discussion on stem cells wasting precious time? #Autism #FAY
TannersDad ASAN is asking #IACC to eliminate language used around #Autism such as "Burden Sadness" Paula Durbin - Westby ... Is Going thru Hell OK?
TannersDad "We agree on one thing... providing the best for our children" #FAY #UWAC #Autism #AutismOne
TannersDad "I felt alone & I felt silenced" Female on the spectrum. #IACC #Autism #FAY Feel It Yet? #AofA #UWAC
TannersDad www.nationalAutism.org Making all parents cry... Reviewing the loss of life associated with #Autism in front of #IACC Thanks Jim Moody NAA
TannersDad @AutismRealityNB Just a lot of Back Slapping, Laughing, & Hugging.... "Good old .... " Network Stuff... #IACC http://bit.ly/dxZh6J #Autism
TannersDad OUTRAGE is that really best our Government has to offer families dealing w #Autism "going through Hell, keep on going" NIH Dir #Autism #IACC
TannersDad @AutismSpeaks Dr Geraldine Dawson Calls out Barack Obama @BarackObama to fund #Autism support as promised in campaign #FAY #IACC #HCR
TannersDad "Good old boy's back room effort" Dr Swedo on previous editions of the DSM. #IACC #Autism #AutismOne
TannersDad DSM-5 now looking like it will not be published until 2012. #IACC #Autism #AutismOne
TannersDad Dr. Susan Swedo Now addressing the #IACC on the topic of the new DSM-5 #Autism #FAY
TannersDad @Aneeman @Autismspeaks Relative 2 Restraint, Ari Asks if Psychotropic medication is being used inappropriately in #Autism Community #IACC
TannersDad @AutismSpeaks Reports to #IACC 22% of those dealing w #Autism are on complimentary programs of diets & Supplements GFCF #FAY
TannersDad Interesting that Dr Dawson is going on about GI problems? @AgeofAutism I thought the establishment was in denial... #IACC Go Dr. Wakefield
TannersDad Crap... @AgeofAutism Something new to worry about... "Bone Density" When will the list ever end? #AutismOne #Autism #FAY #IACC
TannersDad @AutismSpeaks I am thankful that you have your stolen seat back on the #IACC. #Autism
TannersDad "Sunsetting" What a nice way of saying the rug is pulled out from under you ... Dr. Dawson @ #IACC #Autism @AutlsmSpeaks
TannersDad @AutismSpeaks Chief Science Officer talking about economic impact, Physician Training, Insurance, Standards, & Family Support #IACC #Autism
TannersDad Dr Dawson Chief Science Officer talking about Sleep Problems & #Autism 52.73% in our house it is 100% .... Nobody gets to sleep #FAY #IACC
TannersDad @AutismSpeaks Chief Science Officer Dr Geraldine Dawson now addressing the #IACC #Autism
TannersDad @alexplank If you do not like the term "Epidemic" What did U think about NIH Director saying families are "going through Hell" #Autism #FAY
TannersDad #IACC After thanking everybody for an hour ... you gotta take a break.... #Autism #AutismOne @PersonalRights #AofA
TannersDad "If you are going through hell... Keep going" Winston Churchill Via NIH - Director Francis S. Collins, M.D., Ph.D Today At the #IACC #Autism
TannersDad RT @alexplank: The director of the NIH is speaking now about new research studies in autism and the national childrens study
TannersDad If one ever attends a mtg of Interagency Autism Coordinating Committee bring a translator for all the 3, 4 & 5 letter groups you will hear
TannersDad Autism is not "Classically Druggable" Learn new words straight from Pharma Lobbyists at the IACC #Autism @PersonalRights
TannersDad Thank God for Lyn Redwood @ IACC meeting Spoke about 1000 tons of mercury that reaches California in only 10 days #PMB Safe Minds #Autism
TannersDad #IACC Currently bragging about a NY Times front page story on Fragile X & Genetics? Folks wake up... It is the ENVIRONMENT! #AutismOne
TannersDad "The lights are shining on this condition" NIH @ IACC #Autism
TannersDad "A parent is never happier than that of their saddest child" NIH IACC Meeting #Autism "High High Priority"
TannersDad Kathleen Sebelius was only in attendance to Receive thank yous & Pat self on back & Blow out of town.... SAD #IACC #AUTISM
TannersDad Democratic party just lost thousands of votes by trotting out Kathleen Sebelius at the IACC Barack Obama Way to make parents mad! #Autism
ageofautism @TannersDad He can spend the next month attending the funerals of dead people w/ ASD and prison visits too.
TannersDad @BarackObama If you cared you would have been at the FULL IACC meeting today. #Autism Do More. #FAY
TannersDad Kathleen Sebelius HHS @ IACC 40 Thank you Madame Secretary & then breaking her arm patting herself on her back. #Autism #FAY
TannersDad Kathleen Sebelius already passing the buck back to communities to figure out #Autism. "We have assets but...." #IACC
TannersDad There is enough we know about #Autism that we can significantly improve the lives of those on the spectrum @AutismSociety #IACC
TannersDad Barack Obama sent Michael Strautmanis father of a son w #Autism & on his support team to the IACC. The Room is FULL! #IACC
TannersDad @AutismSpeaks Geraldine Dawson just introduced herself 4 prong approach Raise Awareness, Advocate, Fund Family support, Fund Research IACC
TannersDad Kathleen Sebelius Says #Autism "Has the President's Attention"... Glad he does not live under a rock. #FAY
TannersDad Dr Insel Thanking all for their activities during #Autism Awareness month? What exactly did the federal Government Do? @AgeofAutism
TannersDad Tweeting live from IACC Meeting... Here we go .. Dr. Insel first then Kathleen Sebelius in about 20 minutes.... #Autism #AutismOne
Posted by: Tanners Dad | April 30, 2010 at 05:25 PM
According to the Autism Science Foundation's facebook wall, HHS secretary Kathleen Sebellius and NIH Director Francis Collins are scheduled to participate.
I wonder how Offit and Singer got word of that? Hmmm...
Posted by: DAN FAN | April 30, 2010 at 10:01 AM