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IACC Meeting Friday, April 30

Listen The Interagency Autism Coordinating Committee has a public meeting tomorrow. Click HERE for full details on how to participate.

Friday, April 30, 2010
Time: 10:00 a.m. to 5:00 p.m. Eastern

Agenda: The purpose of this IACC meeting is to welcome the new members of the IACC and to discuss IACC activities including the 2009 IACC Summary of Advances and the 2009 Portfolio Analysis. There will also be presentations on the Autism Treatment Network, autism in the DSM-V, stem cell research, nonverbal autism and comparative effectiveness research.

Place: The Ronald Reagan Building and International Trade Center
Rotunda Room
1300 Pennsylvania Avenue, N.W.
Washington, DC 20004
 
Webcast Live: http://videocast.nih.gov/
Conference Call: USA/Canada Phone Number: 888-577-8995
Access code: 1991506 
Registration: http://www.acclaroresearch.com/oarc/4-30-10_IACC 



Access: Metro accessible - Federal Triangle Metro (Orange/Blue Line)
Contact Person: Ms. Lina Perez
Office of Autism Research Coordination
National Institute of Mental Health, NIH
6001 Executive Boulevard, NSC
Room 8185a
Rockville, MD 20892-9669
Phone: 301-443-6040
E-mail: [email protected] 

Comments

Tanners Dad


TannersDad @AutismSociety 50% of some states prison populations are on the #Autism Spectrum. #IACC

TannersDad @AutismSpeaks @ANeeman @AutismSociety Jumping in and Stealing the great work of www.NationalAutism.org work Thank YOU NAA. #UWAC #IACC

TannersDad "Status Quo is not acceptable" Dr Tom Insel #IACC #Autism #AutismOne

TannersDad CDC Chimes in with rocket science intelligence... "We do believe perhaps we can address some of these problems" #IACC #Autism Morbidity #FAY

TannersDad #IACC Getting dizzy by all the letters... BRFSS behavioral Risk Factor Surveillance System NDAR ACF-ADD ICF CDC NIH SAMHSA ICS #Autism

TannersDad Talking about $1,100,000,0000 from American Recovery & Reinvestment Act invested in CER (Comparative Effectiveness Research) #IACC #Autism

TannersDad @MiaFindngBalnce Sorry, They said with todays state of the art, very very very seldom does a child become verbal after puberty #Autism #IACC

TannersDad One Word... Makes a difference #Autism #FAY #IACC
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TannersDad "One word is an astounding predictor for better outcomes" Dr Tager-Flusberg #IACC "Basic Human Right" #Autism #AutismOne #FAY

TannersDad "Urgent need 4 novel interventions 4 this pop (Non verbal ASD), Who r often excluded from research Studies" Dr Tager-Flusberg #IACC #Autism

TannersDad "No Published studies on sensory sensibilities for those non-verbal individuals on the #Autism Spectrum" Dr. Tager-Flusberg #IACC

TannersDad After that presentation on Non-Verbal Individuals, I don't know how Ari or anybody could call #Autism a difference. I am in tears. #IACC

TannersDad My heart has just been ripped out by the #IACC Presentation on those on the Non-verbal side of the #Autism Spectrum. #AutismOne

TannersDad #IACC Is trying to get 2 stars before we have learned to walk on earth #Autism is a get your hands dirty condition & Families need help now!

TannersDad @AutisticLady If something is not done soon... "Burden, Suffer, Afflicted etc" will be of minor concern, replaced with "Bankrupt, Suicide, Mu

TannersDad #IACC Is a half hour discussion on stem cells wasting precious time? #Autism #FAY

TannersDad ASAN is asking #IACC to eliminate language used around #Autism such as "Burden Sadness" Paula Durbin - Westby ... Is Going thru Hell OK?


TannersDad "We agree on one thing... providing the best for our children" #FAY #UWAC #Autism #AutismOne

TannersDad "I felt alone & I felt silenced" Female on the spectrum. #IACC #Autism #FAY Feel It Yet? #AofA #UWAC

TannersDad www.nationalAutism.org Making all parents cry... Reviewing the loss of life associated with #Autism in front of #IACC Thanks Jim Moody NAA

TannersDad @AutismRealityNB Just a lot of Back Slapping, Laughing, & Hugging.... "Good old .... " Network Stuff... #IACC http://bit.ly/dxZh6J #Autism

TannersDad OUTRAGE is that really best our Government has to offer families dealing w #Autism "going through Hell, keep on going" NIH Dir #Autism #IACC

TannersDad @AutismSpeaks Dr Geraldine Dawson Calls out Barack Obama @BarackObama to fund #Autism support as promised in campaign #FAY #IACC #HCR

TannersDad "Good old boy's back room effort" Dr Swedo on previous editions of the DSM. #IACC #Autism #AutismOne

TannersDad DSM-5 now looking like it will not be published until 2012. #IACC #Autism #AutismOne

TannersDad Dr. Susan Swedo Now addressing the #IACC on the topic of the new DSM-5 #Autism #FAY

TannersDad @Aneeman @Autismspeaks Relative 2 Restraint, Ari Asks if Psychotropic medication is being used inappropriately in #Autism Community #IACC


TannersDad @AutismSpeaks Reports to #IACC 22% of those dealing w #Autism are on complimentary programs of diets & Supplements GFCF #FAY

TannersDad Interesting that Dr Dawson is going on about GI problems? @AgeofAutism I thought the establishment was in denial... #IACC Go Dr. Wakefield

TannersDad Crap... @AgeofAutism Something new to worry about... "Bone Density" When will the list ever end? #AutismOne #Autism #FAY #IACC

TannersDad @AutismSpeaks I am thankful that you have your stolen seat back on the #IACC. #Autism

TannersDad "Sunsetting" What a nice way of saying the rug is pulled out from under you ... Dr. Dawson @ #IACC #Autism @AutlsmSpeaks

TannersDad @AutismSpeaks Chief Science Officer talking about economic impact, Physician Training, Insurance, Standards, & Family Support #IACC #Autism

TannersDad Dr Dawson Chief Science Officer talking about Sleep Problems & #Autism 52.73% in our house it is 100% .... Nobody gets to sleep #FAY #IACC

TannersDad @AutismSpeaks Chief Science Officer Dr Geraldine Dawson now addressing the #IACC #Autism

TannersDad @alexplank If you do not like the term "Epidemic" What did U think about NIH Director saying families are "going through Hell" #Autism #FAY

TannersDad #IACC After thanking everybody for an hour ... you gotta take a break.... #Autism #AutismOne @PersonalRights #AofA

TannersDad "If you are going through hell... Keep going" Winston Churchill Via NIH - Director Francis S. Collins, M.D., Ph.D Today At the #IACC #Autism

TannersDad RT @alexplank: The director of the NIH is speaking now about new research studies in autism and the national childrens study

TannersDad If one ever attends a mtg of Interagency Autism Coordinating Committee bring a translator for all the 3, 4 & 5 letter groups you will hear

TannersDad Autism is not "Classically Druggable" Learn new words straight from Pharma Lobbyists at the IACC #Autism @PersonalRights

TannersDad Thank God for Lyn Redwood @ IACC meeting Spoke about 1000 tons of mercury that reaches California in only 10 days #PMB Safe Minds #Autism

TannersDad #IACC Currently bragging about a NY Times front page story on Fragile X & Genetics? Folks wake up... It is the ENVIRONMENT! #AutismOne

TannersDad "The lights are shining on this condition" NIH @ IACC #Autism

TannersDad "A parent is never happier than that of their saddest child" NIH IACC Meeting #Autism "High High Priority"

TannersDad Kathleen Sebelius was only in attendance to Receive thank yous & Pat self on back & Blow out of town.... SAD #IACC #AUTISM

TannersDad Democratic party just lost thousands of votes by trotting out Kathleen Sebelius at the IACC Barack Obama Way to make parents mad! #Autism

ageofautism @TannersDad He can spend the next month attending the funerals of dead people w/ ASD and prison visits too.

TannersDad @BarackObama If you cared you would have been at the FULL IACC meeting today. #Autism Do More. #FAY

TannersDad Kathleen Sebelius HHS @ IACC 40 Thank you Madame Secretary & then breaking her arm patting herself on her back. #Autism #FAY

TannersDad Kathleen Sebelius already passing the buck back to communities to figure out #Autism. "We have assets but...." #IACC


TannersDad There is enough we know about #Autism that we can significantly improve the lives of those on the spectrum @AutismSociety #IACC

TannersDad Barack Obama sent Michael Strautmanis father of a son w #Autism & on his support team to the IACC. The Room is FULL! #IACC

TannersDad @AutismSpeaks Geraldine Dawson just introduced herself 4 prong approach Raise Awareness, Advocate, Fund Family support, Fund Research IACC

TannersDad Kathleen Sebelius Says #Autism "Has the President's Attention"... Glad he does not live under a rock. #FAY

TannersDad Dr Insel Thanking all for their activities during #Autism Awareness month? What exactly did the federal Government Do? @AgeofAutism

TannersDad Tweeting live from IACC Meeting... Here we go .. Dr. Insel first then Kathleen Sebelius in about 20 minutes.... #Autism #AutismOne

DAN FAN

According to the Autism Science Foundation's facebook wall, HHS secretary Kathleen Sebellius and NIH Director Francis Collins are scheduled to participate.

I wonder how Offit and Singer got word of that? Hmmm...

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