I am a woman of strong opinions, but it is not my opinion that I want to write about when talking about autism during Autism Awareness month. It is yours – the individuals and families living with autism and the educators and health professionals working in the community. This is why I have posted a short online survey where you can discuss how you feel about the current state of research for autism HERE.
It will remain open until March 30, 2010 at 11:00 pm.
A large response from the community will give the data more power. So, please take the survey and get everyone you know to take it as well.
What is My Connection to Autism? It has been a few years, so there may be some who do not know my connection to the autism community, since I am not a parent of a child with autism. In fact, it is hard to believe that it has now been 11 years since I first became involved in the community through my service with Congressman Dan Burton leading the health care oversight investigations on the House Committee on Government Reform. The four years that would follow were full of information gathering, hearings, reports, interviews, conferences and getting to know thousands of families living with autism. We were the first on Capitol Hill to say there was an epidemic rise in autism rates and helped increase the NIH research funding five-fold. At the time there was no Autism Speaks, or Autism One, National Autism Association or Age of Autism. Unlocking Autism and SafeMinds had just been formed. Since entering the private sector, I have continued to be involved with the community through various activities both as a paid consultant and a volunteer. I am doing this survey as an independent activity and not as a representative or consultant to any organization.
I have kept the survey short, but also included a comment section, so you will truly have a chance to have your voice heard. I look forward to sharing the results with you. Thank you.