“This Too Shall Pass…..”
By Jacey Capurso
I sit here, banging away on my computer, as I continue to reverse the effects of my local hometown rag’s recent articles on biomedical interventions. Family, friends and foes have all emailed me the articles with “Have you seen this?” in the subject box. I have responded to each and every one of them. I reply with one line comprised of one link of one boy who conquered one disorder in the video below.
Living in the Chicago area last week had fired me up once again. Local biomed moms were more than prepared for the articles as emails and yahoo group posts flew around the Windy City. The news of the imminent publishing of, again, some crappy story on biomedical treatments for autism was the hot topic of the week. Honestly, I have resorted to not even justifying the articles as they are absolutely ludicrous. I believe some journal articles justify a healthy back and forth discussion about the treatments, but this series of reporting (if that is what they call it) was not even worth one breath.
Last Saturday night, with husband out of town and kids asleep, my furor continued to burn as I sat at my computer and awaited the “Sunday Paper” to be posted on the Chicago Tribune website. It was “the anger” I had not felt in a long time. In the past 2 years I have been living with some sense of peace as “the anger” was eating me alive. Don’t get me wrong, I am chronically disgusted with the snail’s pace of autism research and the continual run around from our government. I am regularly appalled at the comments from pediatricians and neurologists who have the nerve to look parents in the eye and say, “Find a happy place for you and him. By the time he is a teen, he will be institutionalized.” (An actual quote from a world-renowned epileptologist who diagnosed my son at age 3 with a seizure disorder.) How dare anyone give up hope on my child? Thus, despite my new leaf I have turned, my inner peace had given way to a fiery fit of rage.
However, in light of the upcoming Thanksgiving holiday, my grandmother’s words began to echo in my inflamed brain. “This too shall pass.” Jesus, was I really going to resort to some old fashion maxim when the world is tearing itself apart and destroying our children? Mimi died over 15 years ago when the autism rate was 1 in 10,000. I wondered if she would say this now.
Regardless, I exited out of my biomedical emails and autism yahoo pages. Scanning the screen, I found and clicked on my iMovie icon, which had sat quietly in the corner of my desktop ever since I bought this computer 3 years ago. It had never been touched, yet alone opened. And for the next 5 hours, I worked away at my rebuttal to whatever was coming out of the Chicago Tribune. I watched my final cut at 2 a.m. and had never felt better in my life. My son flickered before me in his You Tube debut and all the anger I had welt up and all the frustration I had harbored earlier that week all faded into a dim memory. I had just witnessed the last 6 years of my life flash before me. All the pain, struggle and sweat had paid off. All the therapy and medical interventions had worked. There is nothing you can say to me that will make me believe otherwise, especially not some flakey words on a piece of newspaper that arrived at my doorstep one morning. The effects of a printed page is nothing compared to my living, breathing recovered son….my recovered son from biomedical intervention.
Thus, remember this of the Chicago Tribune’s Chicago Tribune's articles, “this too shall pass.” Our children are the real story.
At Peace Once Again and Happy Thanksgiving
Jacey Capurso is a mother of a 7 year old son who is recovered from Autism and a 6 year daughter who is recovered from IBS using biomedical intervention. With the tenacity of some dedicated doctors, incredible therapists, and other warrior mothers who have gone before us, her children are incredibly healthy and happy. She now dedicates herself to those who continue to lead the way for real medical interventions for our sick kids....and cried like a baby when her son said the entire Lord's Prayer at the Thanksgiving feast."
Jacey's Quote: "I am tired of hearing how 'the road to recovery (from autism) is not a sprint. It is a marathon.' There is nothing further from the truth! There is no one long, straight, paved road to a finish line. Rather, the path to recovery from autism is more like scaling Mount Everest. It is a climb up a treacherous terrain with jagged edges and loose rocks. You will occasionally have to hold on with your fingertips or stumble back down a couple feet. You always have to look up and reach higher than you ever thought possible, never looking down. You will sweat; you will bleed; and you will scrape your knees along the way. But with others holding your rope, supporting your falls, and lending their hand, you can reach the summit!"