Autism Wars: Chris Mooney vs. Ginger Taylor
Darlene Oakley on Autism and Dentistry: Dental Challenges for Families and Treating Dentists

The Angel in the Engine: Reports of Restraint, Seclusion and “Special Treatment” in Special Ed—Part 2

Crossing guard 18 By Adriana Gamondes

Where There’s Smoke there’s an Analogy
 
In the sieve of history, all the perpetrators’ justifications, moral relativism and even victims’ irrational sense of shame are filtered away, leaving only the bare truth of what happened and that it was wrong. That’s the value of historical comparisons—but no one more than parents of vaccine-injured children wishes that so much of what surrounds autism didn’t lend itself so easily to certain analogies. 

My friend Cassandra’s explanation for why the abuses go on—because some in society are distancing themselves from the epidemic in order to feel “safe” from it and dehumanizing the collateral—rang with my own sense that there’s something sort of “T4-esque” about the deadly practices towards disabled, particularly autistic children in schools. Call it “T4-II”.  As some may know, “T4”—an acronym for the program’s address at Tiergartenstrasse 4 in Berlin— was Hitler’s code name for the systematic murders of the disabled which proceeded and acted as a model for the Final Solution. For the sake of accuracy, the “children’s euthanasia” program was a somewhat separate operation; the T4 program was actually the “adult” killing program. But since the collective operation is referred to as “T4” by many modern sources, that’s what I’ll call it. 

The T4 program had several phases, the first two of which—sterilization and killing— were the supposedly secret-but-officially-sanctioned phases. The official medical murders of the disabled spanned from October, 1939 until August, 1941, when Hitler issued a stop order due to public disapproval and church objections. This was followed by the secret-but-not-officially-acknowledged phase of “wild” euthanasia in German and occupied territories in which the killings of adults became more surreptitious, while the killing of children went on unabated until after the end of the war.

T4 child (2) It’s true that there are very obvious differences between the current policies towards disabled children in the United States and T4; the chief differences being that the U.S. is not Nazi Germany and this clearly isn’t 1939. Exaggerating the comparison would be to render it ridiculous:  the injuries and deaths to children with disabilities and those deemed “difficult” in today’s education system are not a stalking horse for organized, racist genocide, even considering our country’s shameful history of racism, eugenic sterilizations and the periodic “Black Stork” spates of post-natal euthanasia of “malformed” infants.
 In truth, though, the killing of the disabled in Nazi Germany wasn’t merely a prologue or “warm up” to the Final Solution either.  It was more a matter of “first things first”. The disabled, according to Nazi tenets of inequality, represented the ultimate and most critical “biologically inferior” target even before race.  As Rudolf Hess summed it up; “National Socialism is nothing more than applied biology”—or at least the Nazis’ bizarre conception of it. 

All the same, it’s clear that current abuse of disabled children in institutions doesn’t result from an organized, official policy to do harm, even if these current tragedies are, in an unconscious sense, perpetuated by an ideology which shares a few “chromosomes” with the “eugenetic” pseudoscience driving T4 medical atrocities. Maybe these differences could be summed up by saying the modern accidents too frequently befalling children with autism and similar disabilities aren’t exactly systematic but still systemic.

I think people within the education system can feel something negative afoot. The rate of career turnover for teachers is higher than it’s ever been and the increasingly challenged student population isn’t the only reason for this. As Phyllis Musumeci says, “I like to tell people that it’s not like everyone you meet working in a school is going to abuse your kid. But it happens more often than you know”. There are many good people working in schools and I can’t help but think that, depending on the school they’re working in, it’s got to suck being them and more than a few have reported symptoms of posttraumatic stress from witnessing abuse of disabled children.

As the rates of disabled students increase, so does the abuse and no one working in the system is ultimately out of earshot of the stories or sometimes the incidents themselves, creating an inquisitorial environment where one either remains collusively silent or faces the consequences of reporting. Anonymous Special Education teachers in the comments sections of articles on the subject of school restraint, amidst salvos of self pity and their complaints of how they are “abused” by autistic children, too often threaten that parents will be “sorry” the day that SpEd teachers leave the profession en masse because of being held to account.  I personally think this should be a goal—driving out those who defend abuse and making the system “unsafe” for abusers themselves, leaving the field open for those deserving to be vetted with the care of society’s most vulnerable individuals. How long could a sensitive, caring special education professional last in Stefan Ferrari’s school, moreover his school system (HERE), for instance?

During the rise of the T4 program in Nazi Germany, a similar thing happened to the professions of medicine, pediatrics and psychiatry—psychiatry particularly, since it was so much at the helm of creating and enforcing the eugenic selection criteria.  Young people were flocking away from the field.  Occupational therapy was actually invented during this period as an attempt to lure students back to the profession by offering “positivist” approaches.

“Special Treatment” for special students/Sonderbehandllung

One of the most jarring similarities between the current cases of abuse of disabled children in schools and the T4 euthanasia program in Nazi Germany is that the mechanisms of abuse and death are and were simply an excess of what were originally designed to be, for better or worse, “therapeutic” measures. The “therapeutic” means of killing provided cover along with the euphemized code for the mass killings—“Special Treatment”.

In the case of the children’s euthanasia program – because it was wildly unpopular in Germany and had to be conducted through bureaucratic subterfuge, front organizations and the use of euphemized medical language— causes of death of murdered children were usually listed as “cardiac insufficiency” or “pneumonia”. Of course it was never officially mentioned that pneumonia is an expected outcome of overdose with morphine compounds or the barbituate, Luminal— the most popular methods of killing before starvation, gassing, beating, medical neglect and the lethal use of “therapeutic” electroshock machines.  And it was never mentioned against what substance or treatment the heart was “deficient”.

Only the machinery for gassing—which was later disassembled and transferred to concentration camps, complete with medical staff—was specifically invented for the purpose of killing; all other murder methods simply arose from available medical practices. Even physical beatings and denial of rations were often viewed in German culture—as in many cultures at the time— as acceptable “moral” interventions to correct wayward youth.

Then consider that modern use of the “face-down prone” restraint hold in American schools—a technique with the worst record for lethality— has been “therapeutically” permitted to “protect children from injury”; either to protect students and staff from an out of control peer or to protect rampaging students from themselves.  Generally, the cause of death resulting from this hold is “traumatic asphyxiation” and sometimes heart failure,  so it appears that far too many students have  “cardiac” and respiratory “insufficiency” against the hold—particularly when much larger adults lean or sit on them. This “insufficiency” among students to adapt to “therapeutic approaches” is to the point that even U.S. federal agency SAMHSA (Substance Abuse and Mental Health Services Administration) has questioned whether the restraint method should be legal in any situation, has identified it as unnecessary, has outlined safe alternatives and has worked to have it banned from use in residential facilities and institutions receiving federal funding.  But still, teachers’ unions and the Department of Education defend the use of these dangerous practices in “limited circumstances”.

Of course, the use of Luminal and morphine “in limited circumstances” was not always or immediately fatal either.  Neither are the drugs now being pushed on children with autism—in not so limited circumstances—always or immediately fatal, but they often are. Until changes to the Individuals with Disabilities Entitlement Act limited schools’ roles in influencing psychoactive drug treatment for students, many schools coercively directed families to drug their kids. Some continue to.

The use of the Rifton-type type restraint chair is another example of the perversion of therapeutic devices. The Rifton-type chair is designed as an aid to sitting erect for individuals with paralysis or neurological conditions which effect muscle control.  It isn’t designed as a device for restraint or punishment, which may be one of the reasons several children who did not need the chair for physical support have died in the chair while being restrained.  Then there’s the misuse of the “sensory diet” in many schools.  It seems particularly rape--like to use children’s sensory issues as a rationale to force illicit restraints. Children have died or been seriously injured under weighted blankets.
There’s no need to stretch an analogy for seclusion rooms in the T4 program. T4 physicians used them frequently. So do prisons.  One could argue that it’s all a matter of degree but the point is, that “degree” was passed a long time ago, after the first child died in any of these situations.

The T4 program was “eased into” prior to its enactment by a planned decrease in quality of care in institutions, withdrawal of disability compensation and resulting increase in mistreatment, abuse and neglect and narrowing choice of resources. Selecting patients for particularly brutal treatment or neglect was done under the justification of “incurability”—whether this distinction was accurate or not. Finding a modern parallel is easier than it should be, though I believe this is not part of a conscious grand killing scheme on the part of most participants: insurance blacklisting for autism, sleight of hand exclusions of children in state and military autism aid programs and the dearth of adult supports come to mind. 

“Wild” Euthanasia, “Wild” Theory

The next most disturbing similarity between current school abuse of the disabled and T4 is the lack of any official, publically accessible data resource tracking the abuses and the number of deaths, including the destruction and disappearance of documents and evidence. A further similarity is a bureaucracy which has become adept in self-exculpation, in hiding statistics and collusive distortion of facts involving individual cases.

Another relative overlap is the fact that teachers who abuse or even kill their disabled students are rarely brought to justice and this was also true of participants and engineers of the T4 program.  Nuremberg did conduct trials against T4 killers—the doctors, psychiatrists, nurses and others who collaborated in the medical murders of both adults and children—but only for a fraction of those involved. Some were even treated with professional deference by American court examiners, who asked if research performed on T4 victims had been “useful”. As an exercise, look up “Hallervorden Spatz syndrome” and see how many searches it takes to uncover the fact that Julius Hallervorden and Hugo Spatz had been involved with T4 and had even issued requests to the killing centers for the types of corpses of children they needed for research.

The most famous among the T4 killers to evade justice is Hans-Joachim Sewering who, as a physician, sent over 900 disabled children to Eglfing-Haar child killing center to be systematically murdered. Last year, at the age of 92, Sewering was awarded Germany’s highest medical honor, the Gunther Budelmann medal for service to public health.  Werner Catel, a pediatrician who directed the children’s killing program from its inception, went on to head the pediatrics department at Kiel after the war. Werner Hyde, the director of the adult euthanasia program, escaped justice and continued—with the full knowledge of his  colleagues— to work in medicine under an assumed name until he was finally caught fourteen years later.  And psychiatrist Franz Kallmann, an early collaborator in Hitler’s eugenic policy-building whose recommended approaches went too far even for the Nazis (Kallmann called for the sterilization of all family members of the mentally “deficient”), went on to perform his famous “twin studies”. Kallmann’s studies, despite being poorly researched and widely debunked,  are again being cited in American psychiatric textbooks to argue the genetic “foundations” of schizophrenia— theories which are today directly extrapolated to assumptions of autism’s “genetic etiology”. 

Maybe in this sense more than in any other, T4 is quite literally the thing that wouldn’t die. Very few members of the modern medical establishment, much less the public, are even aware that certain prevalent scientific and medical concepts had their roots in T4.

Diminished Capacity

Once their children had been killed, some families made trouble for the T4 bureaucrats (known as “desk-killers”) over the mysterious and inadequately explained deaths. This was particularly true if the family saw the state of their loved one’s bruised and skeletal remains in the early days of the killing program, before killing centers were attached to the high capacity crematoria which were developed specifically for T4. In these cases, families might be threatened with a particularly “genomic” form of coercion: they were reminded that their child or relative was institutionalized for a “hereditary” condition and that the “unreasonable” nature of the family’s complaints was arousing medical suspicions that surviving family might be similarly afflicted.  Any parent complaining about the circumstances of their child’s death might also be barraged with T4 physicians’ incensed self-pity, reminders of what great sacrifices staff had made on behalf of their defective offspring, how no resource or inconvenience was spared to improve the quality of their child’s unbearable life which, in ending, had spared the individual the suffering of a life not worth living.

The parallel here goes back to the remarks that my friend the attorney-advocate overheard from staff of the schools she worked with—that autism parents are all “crazy”— as well as the endless stream of modern throwaway studies on “stress”, “depression”, “personality disorders” and “mental illness” in the families of autistic children.  There have been cases of parents of autistic children forced to submit to mental health assessments and investigations by child protection agencies as a result of conflict with schools over drugging or the use of restraint. 

Among other relevant similarities is that, in the years leading up to WWII, the rate of so-called mental disability had risen in Germany and other developed countries.  German eugenicists, prior to adopting anti-Semitic policies, were at first mostly concerned with overflowing German psychiatric institutions. In Britain in 1919 for instance, as the eugenics movement there ramped up, the rate of mental disability had in fact grown many fold in just seventy years, from an estimated .2 per 1000 in the population to almost 3.5 in 1000 or roughly 120,000 out of about 35 million British citizens.  The increasing burden on Britain’s welfare system, which had been under state control and monitoring since Henry XVIII, led Winston Churchill to announce that the growing population of individuals with “mental defect” needed a “eugenic solution”.  

It was of no more concern to British eugenicists than it would be to German biological “hygienists” that a large percentage of the mentally “defective” population wasn’t afflicted by hereditary conditions even within the era’s limited understanding of heredity.  Most of these conditions for which the disabled were condemned under T4 to this day have not been determined to be genetic, despite more than 100 years and billions of dollars spent trying to “prove” genetic components to such things as alcoholism, “susceptibility” to post-traumatic stress among war veterans, depression, “criminality” and even schizophrenia.  Furthermore, the use of mutagenic mustard gas and other biological weapons during World War I, as well as Germany’s position as a leader in the chemical industry at the time, could conceivably have contributed to a number of birth defects. Some of these birth defects were first discovered between the two world wars and several were later identified as “de novo” or nonheritable gene mutations. 

Sociological studies have been performed which attempted to determined the reason that so many doctors, psychiatrists and scientists willingly participated in the T4 program. Though the program was sometimes rationalized as economic, it apparently had more to do with disgust towards the rising tide of those deemed “genetically unfit” which was set aflame by Nazi scientific propaganda.
 The disabled have always lived tenuously in almost every culture on earth, but what was peculiar to the Nazi eugenic philosophy was the determination to reverse a widely established disability support system.  What’s also peculiar is that it seems almost to the very degree that some conditions were not, in fact, genetic but environmental (and could therefore happen to anyone)— and even perhaps the fault of science and society— that determined the degree of clinical hostility towards the afflicted.   Enough said. I don’t need to mention the modern parallel for this.
Accounting

The final similarity seems a bit arbitrary and simply has to do with numbers of victims. 

Between 100,000 and 200,000 individuals of varying disabilities were systematically slaughtered under the Nazi T4 killing program.  Among the victims, it’s generally estimated that about 5,000 disabled children lost their lives between October, 1939 and the end of WWII in 1945, when four year old Richard Jenne became the last victim of children’s euthanasia. This final murder occurred three weeks after Germany’s unconditional surrender, as T4 operatives continued killing victims until Allied soldiers were literally storming the gates of facilities.  The disparity between the numbers of adult and child victims may have had to do with which “excluded” conditions were recognizable among children under 17 (mental retardation, physical defects, epilepsy, visual and hearing impairment, etc.) and which tend to have later onset among adults (alcoholism, “criminal psychosis” , depression, schizophrenia, dementia, combat injuries, etc.).

It’s grotesque to say it, but 5,000 children out of the population of Germany and the combined populations of Reich-occupied territories—about 87 million in 1939— from which victims were drawn seems a very low number by today’s child-disability standards. Yet German pediatric clinics and institutions were virtually emptied out in France, Poland, Germany, Austria and some parts of Russia during the course of the war, to the extent that T4 physicians and psychiatrists began to worry that they might soon run out of victims altogether.  Even considering that Hans Asperger managed to spare the lives of a handful of children diagnosed with his new, namesake discovery, not an enormous number of families managed to hide their disabled offspring in order to save them.  There simply were not the per capita rates of disability among children as there are today.  In order to wipe out almost an entire population of children with disabilities in occupied Europe, the rate of killing of disabled children in the Reich would have averaged out to roughly 1,000 per year.

In 1998, as Spectrum Magazine recently reported, the Harvard Center for Risk Analysis estimated that about 150 individuals a year are killed due to restraint and seclusion in the U.S. The estimate included all facilities and schools and it was admitted to be a “tip of the iceberg” statistic.  This was several years before the epidemic had landed on public schools with its current force and numbers.  This might seem to be just playing around with statistics to foist some significance, but I find it chilling to think of how the public and government health agencies collectively shrugged when the numbers “150” and “1,000” were exchanged, as when the rate of autism went from 1/1,000 to 1/150. 

Since 1998, how many more than “150” individual are being killed yearly by seclusion, restraint and abuse now that some “snake pit” institutional practices have entered the realm of schools? And what will the public and the government do if, say, that number became “1,000” a year? Would it no longer be considered genocide if the same numbers of disabled children are killed per year in the US as were murdered during the Nazi reign simply because there are now so many more disabled children? 

Does a dying child suffer less because their individual death is diminished relative to a per capita count? 

No Schindler for the Disabled

Very few disabled children managed to escape their fate in the killing centers once drawn into the children’s euthanasia program in Nazi Germany, since their only champions might be their parents. Like today’s parent advocates for children with autism, parents of disabled patients under Nazi rule—no matter their affiliations— were put in a weakened position to advocate for their children, not simply because their objections threatened authority and threatened the system but simply because they were biologically related to victims of the deadly caste system.  As my friend Cassandra told me, not even wealthy families have much clout regarding school policies, arrests of children with autism who “act out”, seclusion, restraint and other abuses. Dr. Kamat, for instance, wasn’t able to prevent his son from being initially abused (notice the other child in a wheelchair left confined in a darkened room with the “dangerous” autistic child at the beginning of the video, here http://tinyurl.com/qdqdmv ). 

Thank God we aren’t living in Nazi Germany. Thank God we can still make ourselves heard and that advocacy organizations exist. But we had better take advantage of the freedoms we now possess and keep from “falling asleep in the snow” before this kind of corruption spreads further.  It’s still going to be mainly parent-run organizations and parents such as Lori McIlwain, Phyllis Musumeci  and others who burn the midnight oil to enforce change and we would do well to join them for the sake of our children.  Once an abusive machine like this gains momentum, it takes coalitions to stop it. I can only hope that what’s happening now and what happened in the past century is not a match, though to the children who died, what’s the difference?  

Adriana Gamondes lives in Massachusetts with her husband and is the mother of twins who are currently recovering from vaccine-induced GI disorders.

Comments

nhokkanen

Thanks, Adriana, for another informative article -- albeit painfully so. Just the photo was wrenching enough, literally, with that boy's arms yanked by two adults who should instead be clothing and comforting him. Ugh.

Brutality existed when the earth was less educate and less populated. Nowadays we have six billion people using exploding communications technology, but still basic respect for human dignity is wanting.

In the 1960s former U.S. Vice President Hubert H. Humphrey famously stated, "It was once said that the moral test of Government is how that Government treats those who are in the dawn of life, the children; those who are in the twilight of life, the elderly; and those who are in the shadows of life, the sick, the needy and the handicapped."

I wonder whether The Happy Warrior believed that after the Holocaust's horrors were revealed, the impact was such that eternal vigilance was no longer necessary.

Maggie

Powerful and true post. Thank you.

stop the abuse

Please note that restraint, seclusion and abuse is not only happening within public schools, but is happening on a regular basis at some of the best private schools for children with autism (and I am sure other disabilities as well) in the nation. The people who run some of these schools are convinced that because a child has behaviors and can not speak for themselves then every behavior they have seems to simply be pure aggression which they feel calls for restraints or time out. Nothing is further from the truth. Typically behaviors are a result of really bad programming, giving the child no means of communication and/or underlying G/I medical problems that no one is picking up on. The sad fact is that no one ever really gets to the bottom of the "WHY" of behaviors, which they are actually required to do through comprehensive FBA's. It is simply easier to restrain-truly sickening.

Maria

To moonbatchelder-

In regards to the last line of your post-
Most cases of abuse happen in self-contained Sp Ed classes not in the Gen Ed population.

In general the disabled are most vulnerable when segregated. There is a lot of research in this regards and the laws reflect this in their insistence with inclusion.

Phyllis M.

Dear Adriana,

Thank you so much for the powerful article you wrote. I was very moved by everything you said.
It's terrifying to think about how disabled children were treated during the "T4" time of yesterday and also the way they are treated today.

On a smaller scale restraint and seclusion is what's happening today in some of our public schools to children with disabilities. Children with autism are at risk the most. When did it become acceptable for our children to be treated this way. And if it is acceptable how come most of us find out by accident and not from the school staff.

Many of our children cannot talk or have difficulty with expressive language and become very frustrated when school staff do not understand them. When children use behaviors to communicate they often get restrained, the behaviors escalate, they get restrained again and longer, the behaviors escalate more, they get restrained again, they fight back to protect themselves, they get restrained again and on and on and on. In some cases you can break the child so when you are done with him he will become a child like mine that was restrained for 2 years without our knowledge and we were left with the broken pieces of a child that is now afraid to go to school, has regressed in all areas, is depressed and lost interest in life. Restraint and seclusion should no longer be viewed as treatment options but rather as treatment failures because they risk lives, escalate behaviors and inflict emotional and physical trauma.


Your friend from Florida,

Phyllis
Christian's mom

moon batchelder

grateful for the article and the useful links...my son, who has autism but is high functioning, went to preK a few weeks...in that time the I.E.P. was never followed..our concerns about sensory issues were never taken into consideration while 'dealing' with him...and after two grievances, two additional 'meetings' to discuss the fact that the I.E.P wasn't being followed in the third week of him attending i walked out of there with him, never to return...
i am in a very fortunate position....i don't work and can afford to stay at home and teach him...he is doing quite well in his first grade subjects, excellently really...but not a week goes by free of a report somewhere in the u.s. (and quite a few from right here in florida) of what is nothing less than assault on a child...
it is hard for the teacher, no doubt, to have to 'deal' with our special children, with their special needs, but the americans with disabilities act and other such legislation demand that the schools try!

it is hard enough to be a teacher with a classroom full of 'normal' kids (usually about 35 per class) and help them to learn the curriculum...but with the new autism rates of 1 in 100 or even at the old rate of 1 in 150, it is folly not to have 'special' programs in place, whether that be an 'interpreter/advocate/client assistant' for our children (the way a deaf child has an interpreter) in main stream schools, or specialized schools being established with specially trained staff to help our children learn with others who share a lifelong commonality.
i know that sometimes it seems politically incorrect to suggest that our children would be better off in that special setting, but until the mainstream adjusts to the reality of autism in the u.s. and includes special training for teachers, and others in the schools, such horror stories that we so often read of will continue to be all too real for the victim...an innocent child!

bensmyson

Are there some classes with camera, webcams, anything for parents to monitor what's going on?

Benedetta Stilwell

On Age of Autism it keeps coming up about abuse of students in schools. All I have ever seen in the five school systems that I have worked in, nothing but kindness!
So I conclude???? That I am very lucky to have lived in rural America where people are still kind to one another.

Maria

Thank you Adriana for such an insightful piece that will help save many children from days of torment in their schools.

A parent truly needs to understand the thinking behind school districts insistence on use of these methods to be able to fight for their children. Your piece helps greatly in this regard. Do the schools believe what they are doing is wrong,possible even criminal? That is a tough question in my mind to answer. From what I have heard from teachers and staff they are taught these methods almost immediately. If you are going to be with the disabled, especially kids with autism, you better get "trained" in this! I am pretty certain the initial conversations go something like this:"You need to protect your selves" "These kids are aggressive" "You can't rationalize with them" "The parents have done nothing to discipline them"- The fear alone probably puts most new Sp Ed teachers/staff on edge. Add to that the "martyr" aspect which Adriana mentions in her first piece. We are the ones "dealing" with these kids-"At least let us protect ourselves" Give us what we need at least for that with what we do!"

Next, the teachers probably learn about the so called "sensory issues" a child may have. A parent may be offer the information that their child likes some weight on them to calm them down- a tight hug or other item possibly placed on them. Parents are often told to tell schools everything to "help" their unique child. These ideas of a sensory diet that Adriana mentions here ring true. First it may be a weighted vest- "Oh we use this for a short while to help calm your child down" They probably put it somewhat softer than this- A parent actually believes that the school is being compassionate. When in really in many cases the vest is being used as a restraint, not a therapeutic device under the watchful eye of a properly trained OT. Or owrse yet, they put the weighted vest on a child who simply cannot tolerate weight just because they believe kids with autism like weighted object. All the time without parental consent.

Next, why try positive behavior interventions such as ABA techniques known to work -that may take too long ans who has time for data-Let's just strap the child to the chair so he/she doesn't move. They like the "pressure" anyways right? Now the child's behaviors begin to worsen- what child wants to go to school every day to such an environment. Parents don't understand why this is happening as the school is doing everything they can - Next comes the seclusion room - then more physical restraints. I can go on and on with what many parents and advocates have told me.

If the child's IEP is not good things only worsen. Our children need to be kept busy in a thoughtful and meaningful way. I believe strongly that in the school environment if their needs are being met behaviors greatly diminish.

As parents, we need to observe their child in their classrooms and places where the behaviors have been reported to occur. Many times we can figure out the problem and provide information. Also, check the surrounding area of your child's room- Look for closets, or other areas that can prevent your child from leaving. Walk down the hallway- is there a room that is almost empty?

As if we don;t have enough battles to keep us consumed here is another but after knowing what we know this is probably THE battle. The one to save our kids lives yet again.

Thanks Adriana!

Maria

Thank you Adriana for such an insightful piece that will help save many children from days of torment in their schools.

A parent truly needs to understand the thinking behind school districts insistence on use of these methods to be able to fight for their children. Your piece helps greatly in this regard. Do the schools believe what they are doing is wrong,possible even criminal? That is a tough question in my mind to answer. From what I have heard from teachers and staff they are taught these methods almost immediately. If you are going to be with the disabled, especially kids with autism, you better get "trained" in this! I am pretty certain the initial conversations go something like this:"You need to protect your selves" "These kids are aggressive" "You can't rationalize with them" "The parents have done nothing to discipline them"- The fear alone probably puts most new Sp Ed teachers/staff on edge. Add to that the "martyr" aspect which Adriana mentions in her first piece. We are the ones "dealing" with these kids-"At least let us protect ourselves" Give us what we need at least for that with what we do!"

Next, the teachers probably learn about the so called "sensory issues" a child may have. A parent may be offer the information that their child likes some weight on them to calm them down- a tight hug or other item possibly placed on them. Parents are often told to tell schools everything to "help" their unique child. These ideas of a sensory diet that Adriana mentions here ring true. First it may be a weighted vest- "Oh we use this for a short while to help calm your child down" They probably put it somewhat softer than this- A parent actually believes that the school is being compassionate. When in really in many cases the vest is being used as a restraint, not a therapeutic device under the watchful eye of a properly trained OT. Or owrse yet, they put the weighted vest on a child who simply cannot tolerate weight just because they believe kids with autism like weighted object. All the time without parental consent.

Next, why try positive behavior interventions such as ABA techniques known to work -that may take too long ans who has time for data-Let's just strap the child to the chair so he/she doesn't move. They like the "pressure" anyways right? Now the child's behaviors begin to worsen- what child wants to go to school every day to such an environment. Parents don't understand why this is happening as the school is doing everything they can - Next comes the seclusion room - then more physical restraints. I can go on and on with what many parents and advocates have told me.

If the child's IEP is not good things only worsen. Our children need to be kept busy in a thoughtful and meaningful way. I believe strongly that in the school environment if their needs are being met behaviors greatly diminish.

As parents, we need to observe their child in their classrooms and places where the behaviors have been reported to occur. Many times we can figure out the problem and provide information. Also, check the surrounding area of your child's room- Look for closets, or other areas that can prevent your child from leaving. Walk down the hallway- is there a room that is almost empty?

As if we don;t have enough battles to keep us consumed here is another but after knowing what we know this is probably THE battle. The one to save our kids lives yet again.

Thanks Adriana!

bensmyson

Positional asphyxia, is also known as postural asphyxia, is a form of asphyxia which occurs when someone's position prevents them from breathing adequately.

Research has suggested that restraining a person in a face down position is likely to cause greater restriction of breathing than restraining a person face up. Many law enforcement and health personnel are now taught to avoid restraining people face down or to do so only for a very short period of time.

PHYSICAL Restraint is defined as one or more human beings applying their hands (and other of their body parts) to an individual's body, for the purpose of preventing that individual's freedom of movement.

Clinical asphyxia studies have shown that airway obstruction causes a variable period of physically-forceful muscular hyperactivity and reposition attempts, while the conscious Victim struggles to alleviate or escape the position that is interfering with his breathing. If the victim is unable to regain the ability to breathe, he rapidly becomes unconscious. Once unconsciousness ensues, a portion of the Victim's brain involuntary cues his body to continue performing muscular activity, in an unconscious effort to alleviate or escape the position that is interfering with breathing. Thus, the Victim's muscular struggle does not stop even after loss of consciousness occurs. In fact, struggle to alleviate or escape the position that is interfering with breathing does not stop until after the Victim dies.

A child struggles with a teacher(s), the meltdown escalates and the teacher becomes more and more desperate to control the subject. The child is sweaty, breathing hard, struggling, the teacher wraps her arms around the child, (if small enough) positions him into her lap, and holds him tightly, "hugging" him, or if dealing with a larger or more threatening child, sits on him (it's happening more often than you think) pinning him to the floor.

The chest wall is restricted, the diaphragm can not expand and contract as it should to pull in and exhale air properly. The child becomes more agitated, now it becomes a fight for his life, the teacher applies more pressure, more restraint.

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What to Do if Your Child Is Restrained or You Suspect Was Restrained

1. Take pictures of any visible injuries and document those injuries.

2. Take your child to his/her Pediatrician or the Emergency room for a complete physical examination.

3. Call the child abuse hotline and report it.

4. File a police report.

5. Send a "No Restraint" letter to the school principal, the district superintendent and/or members of the school board. You may want to either hand-deliver this or send it certified mail. A sample letter can be found here:

http://www.bridges4kids.org/IEP/NoRestraintLetter.html

You can change the "No Restraint Letter" to fit your needs. Make sure you add that that school staff are not to call the police also. Make it clear that you want them to contact the family members you have listed and that restraint, seclusion and the police are not necessary.

Note: This form may not stop the schools from restraining children but they will not be able to come back later on and say that you were aware that your child was being restrained and never objected.

6. File a complaint with your state Department of Education:
http://www.ed.gov/about/contacts/state/index.html?src=ln

7. File a complaint with you state Disabilities Rights Network (aka Protection and Advocacy):
http://www.napas.org/aboutus/PA_CAP.htm

8. Contact Families Against Restraint and Seclusion at http://www.blogger.com/familiesagainstrestraint@yahoo.com and share your experience.

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