It’s been said that a parent is only as happy as their least happy child. That saying should probably be reworked for autism parents. We will be obsessed to the degree of impairment of our least recovered child.
I’m fortunate that my son Ben had a complete recovery with the quick implementation of the gluten/casein free diet after his 18 month vaccination, but after seven years of bio-medical treatments my daughter Jacqueline is still severely affected with autism and seizures. It is for her and the parents of other children like her that I write this article.
About four years ago I started tracking my daughter’s toxic metal excretions using the Doctor’s Data lab. The woman who answers the phone at the lab knows me as the guy who asks if the latest UTM has been completed on “my lovely daughter.” I’ve got close to 50 of these tests on her and thanks to Jacqueline’s doctor they’ve been charted on graphs.
From the beginning aluminum showed itself to be a problem. Her excretions have ranged from 8-13 times normal. In August of 2006 when we were going after strep her aluminum excretion hit a high of 80 times normal. Her aluminum excretion has ebbed and flowed since that time, but it’s still usually somewhere between 5-10 times normal. The other metals have also ebbed and flowed, but aluminum has been the most dramatic.
WHAT THE DOCTORS SAY IS THE REASON FOR THE CONTINUED HIGH TOXIC METAL EXCRETION
When I’ve asked her various autism doctors the reason for this continued high toxic metal excretion they tell me to think of my daughter as having a vast, toxic pool inside her which needs to be drained. Metals sequestered deep in her tissues are now able to be released. I understand that this explanation may be exactly right.
But something about the explanation seems wrong to me. Regardless of the amount of metals which she's retained it seems we should have gotten it out by now. In addition, for all of the metals she’s excreted over the past years I haven’t seen a corresponding increase in cognitive function. At the age of eleven she’s still in diapers, her speech is very apraxic, and she still has seizures.
I understand that many DAN doctors claim it’s only when they get near the end of chelation that they see dramatic changes in the kids, but that also raises some additional questions I’ll get to later.
A POSSIBLE EXPLANATION?
I’m part of a weekly conference call on stem cells moderated by Donna Gates (“The Body Ecology Diet”). Jacqueline went to Costa Rica in August of last year for stem cell treatments. The treatment didn’t work for her, but I’m aware it has worked for some other children. (In much the same way the gluten/casein free diet worked for my son, but not my daughter, I’m always interested in new treatments.)
Donna often brings interesting people onto these conference calls whom she thinks might be able to help with autism recovery. A few months ago she brought on a man named Mark Squibb, a former engineer who now has a web-site which seeks to promote the latest products and ideas in alternative medicine.
I found Mark to be intriguing because he claimed there were some simple tests which could be performed on autistic children to determine their problems, and there were some relatively simple treatments which could help.
I was skeptical because when I’ve put my daughter through medical tests, either in the traditional medical world, or with DAN practitioners, they never find much. There are no obvious genetic problems, she doesn’t show high in pathogens or other infections, and even the French urinary porphyrin test shows she has only mild mercury toxicity. I'm out of luck in both worlds!
Mark’s theory was fairly easy to grasp, even if it went far beyond what’s currently accepted in scientific thinking. It was his claim that the metals suppressed the immune system, let various pathogens use them, and then the pathogens themselves were proceeding to make their own supply of toxic metals, leading to oxygen deprivation.
The bugs are making metals!
That’s why kids like Jacqueline were having such long periods of chelation and little recovery. We were taking metals out, but the bugs (viruses, bacteria, fungi, and molds) were making them faster than we were removing them! We needed to reach a tipping point where we were getting the metals out faster than the bugs were making them.
Aside from the fact that current scientific thinking would say this was an outlandish theory, it got me thinking. Was it any crazier than claiming that four years of chelation would still fail to remove sizable amounts of toxic metals from my daughter’s body? And does the available evidence on my daughter suggest this theory might be right?
Mark also claimed the bugs were using the metals, specifically aluminum, to do something which was essential to their survival. It let them hunt. Aluminum is used in treating waste water in order to make particles clump together in a process called flocculation. (Yes, I did ask, what the flock is that?) By causing the particles to clump together, it’s easier for the bugs to get their food.
This “clumping” would have system-wide effects which could be measured if you knew where to look. One of the first places to look was blood-pressure. These kids would tend to have low blood-pressure, even though their pulse rate would be quite high. Extremely low blood pressure would also probably result in a seizure. As a corollary, an extremely high pulse rate could also set off a seizure.
After one of my daughter’s seizures I took her blood pressure and it was 68/44 with a pulse of 95. (Normal blood pressure is about 120/80 with a pulse of somewhere around 60.) Mark said that in the kids he’s tested that very few of them start out with a blood-pressure level above 100. (I used the Omron HEM-650 Wrist Blood Pressure Monitor – About $43 on Amazon)
Another place to look for signs of this clumping would be temperature readings from various parts of the body. Using an infrared thermometer (Exergen Temporal Scanner - $35 and can be found at Walmart or Toys R Us or on-line) I was supposed to take temperature readings at her temple, her bicep, and the tip of her middle finger. If the blood was truly “clumpy” it would have trouble moving through the small capillaries found in many parts of the body. When I measured myself I found my head had a toasty temperature of around 99 degrees, my bicep about 98, and my finger somewhere around 96 degrees. It was similar for most people I tested.
By contrast, while my daughter had a similar head and bicep temperature, the tip of her finger registered around 70 degrees. (I know, that pretty much sounds like dead!) Perhaps that explains why she can’t hold a pencil in her fingers and for years has liked me to hold her hands and clap them together. Any person who’s ever been freezing knows that by slapping them together you get a little blood flowing into them.
Mark went on to say that this clumping would’ve led to what’s known as “micro-strokes” in the small vessels of Jacqueline’s brain and other parts of her body, a theory pioneered by Dr. Andrew Moulden. In preparing this article I watched Dr. Moulden’s six-hour DVD “Tolerance Lost” about the issue of micro-strokes throughout the body. The DVD was enlightening and thought-provoking.
While Jacqueline has had many blood tests the most they’ve revealed is a slight tendency towards anemia. Mark looked at her blood under a microscope and posted the videos on-line for me to see. He was most interested in the condition of her red blood cells and I checked out some images of healthy red blood cells to better understand what I was looking at. My daughter's blood looked like something out of a science fiction movie.
The majority of her red blood cells were collapsed, meaning they were incapable of carrying oxygen (glad I hadn’t yet tried HBOT), they were clumped together, and there were particles in her blood suggesting leaky gut. Upon closer inspection of the collapsed blood cells there was evidence of parasites and viral and bacterial infections.
In addition, the pH level between her saliva and urine was inverted, and the surface tension of her urine was lower than anything Mark had ever seen. When he finished going over the results with me he said, “I hope you don’t mind me saying this, but you’ve got a very sick little girl.” I replied it was better for him to tell me she was very sick, rather than having both traditional and DAN doctors tell me they couldn’t find anything wrong with her even though she was severely impaired.
Anybody is free to check out Jacqueline’s results, including the narration at www.wholehealthnetwork.com. You can go to “Research Publications Site” and click on “Autism Cascade” and go to “Case Experiences – By Permission” and click on either “Jacqueline Care Portal” or the other child listed, “Matthew Care Portal”.
If I was to summarize Mark’s belief it’s that the vaccines and their toxic metals give a boost to the body’s bad bugs which then begin to synthesize these metals. As a result, the blood gets “clumpy” and this presents as a significant problem in the small veins and capillaries as the white blood cells which are so much bigger than the red blood cells, begin to “roll” along the small vessels, blocking off the oxygen-carrying red blood cells, which would in turn take away toxins.
These kids are “cold” in their extremities, and more importantly, their brains and bodies are deprived of the oxygen necessary to develop.
From my own standpoint it’s a plausible explanation for why Jacqueline’s biggest metal pulls have been when we’ve been going after bacteria, fungi, and viruses, as well as why despite getting out lots of toxic metals it still seems like there’s so much more inside her. I swear, we’re not feeding her aluminum!
Doing these tests costs money of course, but it’s similar, if not less than what I’ve spent on numerous bio-medical tests which haven’t given me much useful information. There are some supplements he suggested to increase blood flow, a magnetic mat, and when I went over this with Donna Gates she suggested I also use a Bio-Mat (an infra-red heating pad which costs about $500 dollars.)
The Bio-Mat has been quite interesting as Jacqueline went from being on it for a few hours, to sleeping on it through the whole night. She loves it! More importantly, though, when I check the temperature of her middle finger in the morning it’s a toasty 98 or 99 degrees. I get a warm feeling just imagining all those hours of good blood flow!
Five days into Mark’s protocol I did another UTM on Jacqueline and got a huge aluminum pull (1350, reference range 60), while 4 days later after an EDTA push the aluminum excretion was 250. The first test was a week and a half away from an EDTA push while the second was mere hours after one. (Did I just do a big bug-kill? Did I get to that tipping point?) Her most recent test after an EDTA push showed aluminum finally down to a near normal level (78), an elevation of lead (3x times normal) and a surprisingly high uranium level (1.7, ref. range .2, or 8.5 times normal).
With her high uranium levels I know some will wonder if I’m secretly hiding Saddam Hussein’s WMDs.
But in truth, this pattern of excretion is following a similar pattern after Jacqueline did a protocol designed to go after strep in the summer of 2006. We may have been close to getting the bugs at that point, but they came back. In that summer her aluminum peak was 4850 (ref. range 60 or 80 times normal) and her uranium was 4.2 (ref. range .2, or 21 times normal).
I’ll continue to do the EDTA and glutathione pushes and monitor. Hopefully, this will make the chelation period much shorter. If the next couple tests come up with low excretions I’ll be considering that Mark was right and the metal-making bugs have been defeated. Maybe it will finally be time to consider HBOT, especially if her red blood cells show an increased ability to carry oxygen.
If all of this falls apart for some reason, I’ll look for another protocol.
In closing I want to share something my father-in-law said about my wife and I at a recent dinner. A few days earlier he'd been to the funeral of a Stanford professor and at the reception he got into a conversation with some retired engineering professors who were in their 80s or 90s. They were extremely animated and lively as they told stories about building the BART train system when people said it couldn’t be done in an urban area with earthquake faults and an already developed infra-structure.
But these engineers had done it, and the BART system wasn’t the only example of their ingenuity and determination. They went on to describe how California engineers had built bridges others said couldn’t be built, and how so many “firsts” in engineering had been done here. My father-in-law then likened that to how Linda and I were so open to trying new things, and then if it doesn’t work we shrug our shoulders and look for the next idea. He thought our efforts with Jacqueline were an example of that “California spirit.”
I hope that’s how people read these articles. I’ve written about HHV-6 viruses, high testosterone levels, stem cells, stealth viruses, and God knows what else. But I've done so in an effort at open inquiry. It’s never my intention to be the “last word” on a treatment. If I’m lucky, for many people these articles might be the “first word” on something which might help their child.
Good luck in your own research. Let me know if you find anything interesting. I’m always ready to listen.
Kent Heckenlively is Legal Editor of Age of Autism