Olmsted on Autism: Travolta, Kawasaki, Acrodynia
By Dan Olmsted
Kawasaki's Disease, according to the American Osteopathic College of Dermatology: Kawasaki's Disease (KD) is an acute febrile illness of infants and children in which redness of the mucous membranes, skin and tongue are associated with swelling of the hands and feet and subsequent desquamation (peeling of the skin) of the hands and feet. Other signs include swollen lymph nodes of the neck (cervical lymphadenitis), redness and swelling of the eyes (conjuctival congestion), sores in the mouth (stomatitis) and swollen lips (chelitis). After a week or two the skin of the hands and feet begin to peel starting around the nails. Upwards of 20% of patients develop coronary artery complications, however most patients have uneventful recoveries without any long term problems.
The peak age of incidence is 1 year of age with a mean of 2.6 years and it is uncommon over 8 years of age.
Acrodynia, or Pink Disease, according to Donald Cheek, Australia, 1953: "The physician is consulted because of a sudden change of well-being on the part of the infant. There may be a history of a cold, or of recent infection associated with rhinitis. Irritability is present and the little patient, usually age 5 or 6 months or older, refuses to take his food. Teething is in progress, and the mother often ascribes the state of her infant to this. [Rashes] … spread across the trunk of the body. …. The muscles are soft to the feel, and the hands and feet previously pink some of the time become pink, swollen, edamtous, cold, and moist most of the time. … There is always the potential danger of shock."
From TMZ.com, 7:10 p.m. Jan. 2, 2009: Rand Memorial Hospital in the Bahamas tells TMZ the son of John Travolta died today.
We're told 16-year-old Jett was vacationing with Travolta and wife Kelly Preston.
There have been reports that Jett was autistic, though Travolta has denied it, saying he suffers from Kawasaki Syndrome, a condition which often leads to heart disease.
From Wikipedia.org: Initially, the cause of the acrodynia epidemic among infants and young children was unknown; however, mercury poisoning, primarily from calomel in teething powders, began to be widely accepted as its cause in the 1950s and 60s. The prevalence of acrodynia decreased greatly after calomel was excluded from most teething powders in 1954.
From Kawasaki's disease, acrodynia, and mercury. Mutter J, Yeter D.; Department of Environmental and Complementary Medicine, Salusmed Medical Center, Berlingen, Switzerland. (HERE), December 2008:
A superantigen or autoimmunity has been hypothesized to be the main cause of the Kawasaki's Disease but the etiology is unknown. Medical literature, epidemiological findings, and some case reports have suggested that mercury may play a pathogenic role. Several patients with Kawasaki's Disease have presented with elevated urine mercury levels compared to matched controls. Most symptoms and diagnostic criteria which are seen in children with acrodynia, known to be caused by mercury, are similar to those seen in Kawasaki's Disease. Genetic depletion of glutathione S-transferase , a susceptibility marker for Kawasaki's Disease, is known to be also a risk factor for acrodynia and may also increase susceptibility to mercury . Coinciding with the largest increase (1985-1990) of thimerosal (49.6% ethyl mercury) in vaccines, routinely given to infants in the U.S. by 6 months of age (from 75microg to 187.5microg), the rates of Kawasaki's Disease increased ten times, and, later (1985-1997), by 20 times. Since 1990 88 cases of patients developing Kawasaki's Disease some days after vaccination have been reported to the Centers of Disease Control (CDC) including 19% manifesting symptoms the same day. The presented pathogenetic model may lead to new preventive- and therapeutic strategies for Kawasaki's disease.
From CNN.com: Jett Travolta had a developmental disability that his parents, John Travolta and Kelly Preston, have linked to Kawasaki disease, an inflammatory disorder of the artery walls that most commonly occurs in young children and can lead to heart disease.
In 2001, John Travolta told CNN's Larry King that his son had a near brush with death related to the condition.
"I was obsessive about cleaning -- his space being clean, so we constantly had the carpets cleaned. And I think, between him, the fumes and walking around, maybe picking up pieces or something, he got what is rarely a thing to deal with, but it's Kawasaki syndrome," Travolta said of his then-2-year-old son. ….
"It was that the immune system overreacts, because they have almost the equivalent of metallic chemical," Travolta said.
From Brian Clark Howard at The Daily Green.com: As celebrity actors John Travolta and Kelly Preston mourn the death of their 16-year-old son Jett, they raise questions about the potentially lethal effects of past exposure to toxic chemicals in carpet cleaners, as well as about the mysterious Kawasaki Disease -- which their son reportedly suffered from. … Three additional studies did find an association between exposure to freshly cleaned carpets within 4 hours of the cleaning process and Kawaski disease -- however, the results were the same if the carpets or upholstery were cleaned with chemicals or simply plain water. Four studies found no associations at all. When researchers tried to follow up and determine if the causative agent might be disturbing of dust mites, which they reasoned might harbor disease agents, that lead did not pan out."
From EPA.gov: Never use a vacuum cleaner to clean up mercury (but see the "What to Do if a Fluorescent Light Bulb Breaks" section below for more specific instructions about vacuuming broken fluorescent light bulbs). The vacuum will put mercury into the air and increase exposure.
From me -- We don't know why Jett Travolta died, but we do know that our environment is making more and more of our kids sick while the medical community and public health officials deliberately avoid investigating "the equivalent of a metallic chemical," whether it's found in commercial products, vaccines or carpets with spilled mercury. Our kids are paying the price.
Dan Olmsted is Editor of Age of Autism.
Sadly you werent wrong Dan thank you.
Parents of baby who died from rare coronavirus linked disease Kawasaki have saved at least 12 others
She added: "When things started he was quite miserable in himself, he had a high temperature and the next day he had a pinprick rash and it quickly spread.
"It looked like he had sunburn all over his body.
"Then he had a lump that came up in his neck, that was really large and we queried if it could be mumps to begin with.
"Then he had sickness and diarrhoea and he was admitted to hospital, then he got really dry, cracked bleeding lips.
Pharma For Prison
"His palms of his hands and soles of his feet were bright red, and you could feel how fast his heart was racing.
"Alex was eight and a half months old when he passed away, he was our first child. It was devastating."
Pharma For Prison
Posted by: Angus Files | July 25, 2020 at 07:29 AM
I appreciate the concern which is been rose. The things need to be sorted out because it’s not about the individual but it can be with everyone.
Posted by: MichaelRoger | June 06, 2009 at 03:00 AM
26 years ago, during the fourth of July, I found myself sitting in the hospital room at the University of Kentucky Medical Center by my two year old daughter's bedside. She was uncouncious, running a fever of 105,were the sun had hit her in her bathing suit the skin had turned bright red, her eyes were red, inside her mouth and lips were red. The boy in the the bed next to us had menigitius and their parents felt sorry for us! After two weeks the head of the Pediatic Department came in sat down with her and looked her over really good, left the room and later told me it was Kawaskais. Another young doctor came in and sat down with us and told me about a survey they took out in Oregon asking parents with Kawasaki children thousands of questions. One thing came out that a lot of people cleaned their carpet. I would say that most people with small children clean carpet, GEEEEZZZZZZZZZZZ most people clean thier carpet from time to time. BUT she had had a DPT shot one and half months ago? A few years went by and when she went to get her last DPT shot at five years old, we just got when she passed out on my bed, heavy labored breathing, temperature soared to 105. I sponged her off, fearful that if I got her up to take her to the emergency room that extra stress would cause her to have a seizureor die. The fever passed in 15 minutes she got up and went out to play! Two months later I took my six month old son in to get his second DPT shot and the same thing happened. I am ashamed to say that my son received another DPT shot three months later (The doctor and I had a long heated discussion and he won) MY son had a stroke 6 hours after receiving his third DPT shot. He was walking he stopped, became very quite, In a month and a half he started running a temperature of 104 and had long hard seizures for two days. The fever lasted eight days and it reminded me so much of kawaskis yet not nearly as bad as my daughter's. THe fever finally broke and they put him on phenolbarbitol because he showed seizure activity on his EEG. The seizure medicine did not stop that funny high fever from returning a month and half later and causing him to have seize again. He has aspbergers,and is epileptic - He will soon be 23 years old and I can't get him out of his room. My daughter is now a nurse, she had a recent checkup on her health and she has high cytokines or what ever it is called that is a alert warning that she could have heart disease, or vascular disease. We have all had to guess on everything, no really good studies have been done. The guess on mercury is a good one but I am sure it is not the right guess and it is only mudding the waters causing more confusion. Both my children had their MMR shots and had not a second of problems. MMR and DPT shot would both have had mercury.
Posted by: Benedetta Stilwell | May 01, 2009 at 10:52 AM
P.S. Not only Depokote but all the statin drugs (cholostrol controlling drugs) This includes Welco an oil that binds all the fats in the intestines can kill or sicken them too.
I've had 28 years experience with my three.
Posted by: Benedetta Stilwell | April 27, 2009 at 07:53 PM
Depokote or Valporic Acid should not be given to a child that has had a reaction to a DPT shot or autistic epileptic, or mitochondrial disorder or oxidation phosphoraltion or kawaskis or have had kawaskis. It is all related. My three daughter, husband, son have all or some of these. They all have low L Carnitine levers and Depokote/valporic acid depletes the body futher of L-Carnitine. I had to fight the neurologists in 2002 and again in 2006 to not give it to my epileptic son. When they asked me why not - I did not know at the time why except my mother-in-law took a turn for the worst and died a little after she was given Depokote. Please pass this on. I know I am right.
Posted by: Benedetta Stilwell | April 27, 2009 at 05:03 PM
Seizures are seen in Kawasaki Disease, but I've never heard of a child with KD dying from this. Those who die from KD do so from a result of cardiovascular complications.
Posted by: Deniz | March 23, 2009 at 07:55 PM
I am so sad for the Travoltas and for Jett no matter what you call his illness his system was hurt. My heart goes out to them. I agree with commentators who say that the label of autism is merely a bundle of about 25 symptoms and if you are deemed to have a certain number of them [anywhere from 3 to 10 depending on who is judging] you are deemed to have autism spectrum disorder.In reality it is damaged Central nervous system [CNS] due to environmental toxicity. The mercury in shots and the gaggles of diseases clustered in single shots are two excellent forms of environmental toxins. Psychopharmocological drugs are another form of toxin for the CNS and the rest of the body. Antiseizure medicines like depakote do really have more adverse side effects than any help they give. Our children and our elderly are truly the canaries in the mine-shaft warning us to clean up our diets, food processing, shots and environment.
Posted by: Kathleen Woody | January 14, 2009 at 12:48 PM
I am a mother of a sweet boy who has autism( He is 5 )Autism ,seizures,mercury,poison....what a crualty towards the humanity.instead of criticizing the Travoltas,why don't we blame the pharmaceutical companies,the government. How many kids are in good health here in the USA? NONE!!!
If it is not ADD,ADHD,Bipolar,Depression, Asthma,Diabetes,....
Name all kinds of disorders we have!
They are killing us slowly by poisoning our precious children ! I can't sleep since I heard about Jett's death.
Jett had autism ,he was obviously having a problem,of Eye contact, being disturbed by the media...
The suffering of a parent( or parents) who lost a child ( no a young man) is hurtful,hard...
Can ou imagine what it took the Travoltas to raise Jett for 16 years ..with seizures?
God bless them!
Have some sympathy and empathy.
It is about time to punish all the creators of these diseases.
The health of our children is unfortunately not that important,shame on them! Sometimes I am thinking deserting this nasty(and poisonnous) environment.
My hardest feelings with the Travoltas!
My love To Jett!
God will have in his mercy
Posted by: Mariame Boujlil | January 07, 2009 at 12:53 AM
D. Lee - Thanks for the additional info on Kawasaki's disease. Interesting that "proinflammatory cytokines are elevated in serum and CSF" because that has been found among people with autism as well.
Posted by: Twyla | January 06, 2009 at 03:28 PM
I'd like to clear up one major misconception. The notion that Kawasaki's disease is not linked to seizures is simply false. In Japan it is WELL KNOWN that KD and seizures are related.
Here is one study I found on Pubmed by searcing for Kawasaki and seizures.
"It is well known that convulsions may occur in clinical course of Kawasaki disease. However, the features of such seizures remain unclear. Recent reports have hypothesized that pro-inflammatory cytokines may contribute to the genesis of febrile convulsions (FC). In the acute phase of Kawasaki disease, proinflammatory cytokines are elevated in serum and CSF. If cytokines play a role in seizure phenomena in patients with Kawasaki disease, FC and seizures in Kawasaki disease might share some clinical features. To clarify the clinical features of convulsion in Kawasaki disease, we investigated 7 patients with Kawasaki disease with convulsions who were diagnosed and treated from November 2003 to November 2005. We found several features of the seizures, as well as the onset age, were diffrent among these clinical entities. The onset of Kawasaki disease was characteristically before six months of age in all patients. Seizure clustering was seen in 5 patients and partial seizures in 4. Prolonged unconsciousness after seizures was seen in one patient, syndrome of inappropriate secretion of ADH (SIADH) in one other. One patient had markedly elevated IL-6 in CSF. These observations led us to speculate that the convulsion of Kawasaki disease may be attributable to an encephalitis. The results of this study suggest that seizure pathophysiology differs between FC and Kawasaki disease."
Why is it that so many in the US are promoting the false notion that this disorder is not linked to seizures? In my opinion, many in the Autism community are being divisive by suggesting that Jett Travolta had Autism vs. XYZ. Brain damage can occur in many different ways. Any disease that can impact a child in such a serious manner, is certainly not exempt from causing harm to the brain.
That said, I think the theory about mercury is very interesting. Is it possible that some people hire carpet cleaning companies to clean various mercury spills, and the companies unknowingly spread mercury from home to home? Might this be one avenue to Kawasaki's Disease?
Posted by: D Lee | January 06, 2009 at 02:35 PM
This article reports on key presentations at the 5th International
Conference on Human Herpesvirus (HHV)-6 and -7, organized by the
HHV-6 Foundation. New assays for HHV-6 and -7 promise to be more
accurate and better able to distinguish between HHV-6A and B or
differentiate active from latent infection. Nevertheless, more research
is needed to enhance the sensitivity and specificity of these assays.
Cellular receptors for both HHV-6 and -7 have been identified. Both
viruses have in vitro tropism for neurons and dendritic cells of the
central nervous system (CNS), and their role in producing CNS disease
in the immunocompromised (particularly transplant recipients and the
HIV-infected) is well established. HHV-6 may enhance the progression of
simian immunodeficiency virus in monkeys, as suggested by in vivo
data. In immunocompetent children and adults, HHV-6 and/or -7 may
play a role in triggering and perpetuating several diseases of the
nervous system, namely encephalitis, multiple sclerosis, chronic fatigue
syndrome and epilepsy.
V K Singh Research
More recently, I conducted a study of measles virus (MV) and human herpesvirus-6 (HHV-6) in autism. This was done by two types of laboratory analysis: (a) virus antibody levels of MV and HHV-6; and (b) brain autoantibody titers in the same samples as those assayed for virus antibodies. This study showed two things in particular: first, that the virus antibody levels in the blood of autistic children were much higher when compared to normal children; and secondly, the elevated virus antibody levels were associated with the brain autoantibody titer. Interestingly, the viral antibody and brain autoantibody association was particularly true of MV antibody and MBP autoantibody (i.e., 90 percent of autistic children showed this association). This observation led me to hypothesize that a measles virus-induced autoimmune response is a causal factor in autism, whereas HHV-6 via co-infection may contribute to pathophysiology of the disorder. Although as yet unproven, I think it is an excellent working hypothesis to explain autism, and it may also help us understand why some children show autistic regression after the measles-mumps-rubella (MMR) immunization.
Serological Association of Measles Virus and Human Herpesvirus-6 with Brain Autoantibodies in Autism
Vijendra K. Singh, Sheren X. Lin and Victor C. Yang
College of Pharmacy, University of Michigan, Ann Arbor, Michigan, 48109-1065
Received 17 June 1998; accepted 24 June 1998. ; Available online 12 April 2002.
Considering an autoimmunity and autism connection, brain autoantibodies to myelin basic protein (anti-MBP) and neuron–axon filament protein (anti-NAFP) have been found in autistic children. In this current study, we examined associations between virus serology and autoantibody by simultaneous analysis of measles virus antibody (measles-IgG), human herpesvirus-6 antibody (HHV-6-IgG), anti-MBP, and anti-NAFP. We found that measles-IgG and HHV-6-IgG titers were moderately higher in autistic children but they did not significantly differ from normal controls. Moreover, we found that a vast majority of virus serology-positive autistic sera was also positive for brain autoantibody: (i) 90% of measles-IgG-positive autistic sera was also positive for anti-MBP; (ii) 73% of measles-IgG-positive autistic sera was also positive for anti-NAFP; (iii) 84% of HHV-6-IgG-positive autistic sera was also positive for anti-MBP; and (iv) 72% of HHV-6-IgG-positive autistic sera was also positive for anti-NAFP. This study is the first to report an association between virus serology and brain autoantibody in autism; it supports the hypothesis that a virus-induced autoimmune response may play a causal role in autism.
Author Keywords: autism; autoimmunity; autoantibodies; developmental disorders; virus serology; measles; HHV-6; child behavior; brain disorders
Posted by: Raymond Gallup | January 06, 2009 at 07:34 AM
My heart goes out to the Travolta family. Loss of a child must be unendurable for any family, and to go through this in the public eye adds a whole additional layer of stress.
I do not judge the Travoltas for any decisions they made regarding their son. I don’t know them, I didn’t know Jett, and it is so hard to make decisions regarding treatment even for those we do know – even for my own son.
Based on the little I read in the news, it seems likely that Jett had autism. But even if his parents had embraced an autism diagnosis, they could have taken him to leading autism “experts” without anyone ever recommending treatment for mercury poisoning. Currently there is no general consensus on treating autism as a medical condition. And anti-seizure meds are often ineffective with serious side effects.
I don’t know whether their son was vaccinated. But if he was, he was born at a time when he would have received a lot of thimerosal (mercury) in his vaccines. If his condition was caused by mercury in vaccines – which is plausible – this is an example of a tragedy that could have been prevented if our agencies in charge had been doing their jobs, instead of "asleep at the switch", allowing hep B with thimerosal at birth followed by multiple additional vaxes containing thimerosal. And this is an example of a condition that could have been treated if our doctors and scientists were doing their jobs to investigate and treat mercury poisoning from vaccines. Instead, denial is the strategy, and tragic stories such as this one are the result of this denial. I don’t judge the parents. I do judge the CDC, FDA, AAP, and pharma companies.
A few additional interesting pieces of information:
- Kawasaki disease affects boys more than girls.
- Intravenous immunoglobulin (IVIG) is the standard treatment for Kawasaki disease (also effective for some people with autism).
- John Travolta grew up in the state of New Jersey – which has high mercury levels from the resident pharma companies’ dumping – and exceptionally high autism rates.
May Jett Travolta rest in peace, and may his love live on in his family, and may his family feel that his life was complete and as it was meant to be, and that their love for him and his love for them was what mattered the most.
Posted by: Twyla | January 06, 2009 at 12:48 AM
I am glad I didn't hear of this before last summer.
My son suffered from seizure disorder since he started having tics (half hiccups- just the intake) at age 4.
After experiencing side effects of seizure med.s for almost 2 years (5 different kinds) we were referred to a surgeon who prescribed a final EEG. We had given up on MRI's and EEG's because, regardless of the results, any intervention other than med.s (surgery) would only be considered if the patient experiences painful symptoms.
This neurosurgeon was terribly objective and mentioned that if my son's tics did not bother us, he was going to recommend taking him off seizure med.s. We happened to really like his thinking!
He did the EEG off all med.s to increase his seizure activity and...
he had 2 tics during the recording AND HE HAD no matching EEG irregularities. They let him stay off medication and said that the hiccups were simply vocal tics and NOT seizures. After that day, his tics terminated. Almost 2 years of tic activity and everything ended for my son. It was like a dream, he never had a tic again after he stopped taking his medication SO....PLEASE don't ever judge because seizure disorders are mysterious and so painful that a parent worries about it to the exclusion of all else.
My son still struggles with reading in first grade at age 7 (held back a year), but has shown huge improvements in fine motor skills, his OCD tendencies have disappeared, and the tics have been gone since June 23rd, 2008.
The Travolta's could have been as lucky as we were, quitting the med.s. There are no easy answers.
Looking at the picture at the top of the page, it's painful to imagine the hopes and dreams the Travolta's had for their son (at that early age) that has so tragically been taken away.
Posted by: Patrick | January 06, 2009 at 12:47 AM
In my opinion this isn't the time to pick on John & Kelly for how they chose to handle their situation. Not that it matters - but they were privately doing many things that the readers of this board would have approved of.
This is a time to show our support for a family in need of it.
Posted by: Steve | January 05, 2009 at 09:20 PM
The situation is a tragedy regardless of what Jett had or didn't have.
There are tons of people - I'm sure some famous too - that are in denial about what their kids have - regardless of label. Heck many now in the ASD community don't like to use autism, instead vaccine injured, etc.
It also brought me back to a prior Dan column on where are all the autistic adults? While we all know that the rates have sky rocketed - I can't help but think that many died prematurely (particuarly in adolescents and young adulthood) - this keeps me up at night!
Posted by: Diane | January 05, 2009 at 05:23 PM
Regardless of the child's label this situation is a tragic beyond words. Heart felt condolences go to the family for their loss.
No death so young seems justifiable or right. It is tragic and sad.
My hope is that we can learn from this situation to prevent future deaths. Perhaps the autopsy will provide answers and because of the high visibility of this family - other families will seek help to prevent this horrific situation from reoccuring.
My other hope is this family - regardless if the child had autism or not - can find some healing from this incredible loss.
Posted by: Lisa @ TACA | January 05, 2009 at 05:20 PM
Elucidatus, that was one of the nicest comments I've ever read. And now I'm teary. Kim
Posted by: Stagmom for Elucidatus | January 05, 2009 at 04:28 PM
Dear John Travolta,
I just want to tell you that you were a good father and friend to your son. You did the best you could and thats all that matters. Kawasaki, Autism or whatever the diagnosis was never mattered because the love you gave your son made him perfect!
Posted by: Elucidatus | January 05, 2009 at 04:26 PM
This piece of news really got to me in a lot of ways. It made me feel sad to the core.
One thing I keep thinking is that stripped down, autism is just a word describing symptoms. So they didn't use the word; but their child was exposed to toxins and suffered physically and neurologically. In that way, they are no different than any other parent going through the same thing. From what I read briefly, Mr. Travolta was quoted as saying they ate "90% organic" among other things. So obviously, they did know something had happened. He and his wife also spoke about being very careful when they brought their second child home. They wanted to make the environment as safe as possible.
Posted by: Michelle | January 05, 2009 at 04:17 PM
Chemist Boyd Haley, PhD reported on finding extremely high levels of mercury in the heart tissue of "young people who died from idiopathic dilated cardiomyopathy while under physical stress in athletic events."
Dr. Haley stated that scientists have found 178,400 ng/g mercury -- "22,000 times more than the quantities measured in the heart and muscle tissue of individuals with other forms of cardiac disease." Sources of ingested or injected mercury include amalgam tooth fillings and preservatives used in vaccines and testosterone injections.
I once asked a doctor at a heart clinic whether mercury played a role in cardiac malfunction. He said no, because other Hg toxicity symptoms would be detected first. Yeah, right. He failed to realize that many of those symptoms either mimic other diseases, or are given misleading names. And of course, too often the prescription is a pill -- to add another chemical, rather than remove one.
Posted by: nhokkanen | January 05, 2009 at 03:06 PM
The reason for the death of their son assumes paramount importance if they find something that implicates something from the vaccines in his brain and CNS - such as the vaccine type measles virus for instance. Even though a pepto-bismal Gerberding might come out and say it does not mean that all kids have the measles virus in their brains and CNS and that Jett Travolta is a rare and unique case.
Do you think Larry King might have Generation Rescue on now? He was looking much troubled last night over the fact that the boy had seizures and subsequently died. Gee, who would have thought that could happen?
Posted by: The menace of experts | January 05, 2009 at 02:13 PM
As a parent of two, one with seizures, I dread any event like this in my lifetime. I have had plenty episodes, not so fun, of my child going through a plate glass table in the kitchen, falling off the bed etc. It is hard to be with them 24 7, and you are cautious, but things happen.
As to the autism or not...so what right? Autism is not autism? Autism is a collection of symptoms and syndromes wrapped up all together-no one child expresses the same with autism. When I did a google scholar search, mercury/pollution was thought to initiate Kawasaki. I am sure Kelly Preston had exposures like everyone else has, or thought tuna was ok to eat etc. Even if he did not get vaccinated, think of the locale (high pollution LA)? All the exposures our kids accumulate, could cause autism WITHOUT a vaccine. Sometimes parents vaccines initiate autism by virtue of persistence of SV-40. Also, I looked up the infections thought to cause this, and if you look on VAERS, there are a number of incidences of autism and or KAWASAKI occuring after a vaccine reaction (specifically HEP B). Other infections such as coronovirus (common cold), EBV has also been suspected. I ask this one thing? How many kids like ours have HIGH TITERS to such infections? Answer, MOST OF THEM. *(especially lyme disease folks)...another email...
So, whether or not he had autism, is not really the key here, rather, that as loving parents, they demonstrated that autism is not going to devastate your family, and you just move on. I was moved by Travoltas picture with his son, he is quite loving, just like my little guys..constantly kissing me. I am sure they treated him with anti seizure meds, and as a parent, I can tell you, sometimes meds wear off their effectiveness, and you are constantly hopping from one med or another and or questioning them all together. I am sure they tried IvIG and Hbot, and all the things we all have tried, and or wish they could because they had the funding to do so. I am sure they sought out the best experts at their disposals.
The point being, let's not paint the travoltas as denialist, but rather, paint them as loving parents trying to do what is best for their child. The autism community would do well to back off, and not become pyrias like the media has...and have a lot of compassion on this family.
And lastly, if you go on the blogs, they are ripping their religion, and or that autism is labeled MENTAL ILLNESS according to scientology. We all know, that is a fallacy statement, for, autism is biomedical developmental. This has nothing to do with drugging your kids, it's about changing diets, and getting them healthy with things that build their immune system. Still, I have to pour down AED's everday in my son, and if I didn't, he would probably go into status seizures. I am sure, that the Travoltas tried every modicum of treatment there is, and even more than I.
So let's wish them peace, and comfort during this tragic time.
Of course, as a parent with a keen eye, I know he had autism...but that doesn't change what I feel about the Travoltas...everyone of our kids are mysteries...they have not just autism, they sometimes have immune dysfunctions, mitochondrial disorders, seizures, Landeu Kleffner, Kawasaki, Colitis and Celiac, Common Variable Immune Deficiency, Fragile X, Toxic Shock, actual brain damage by birth processes etc. AUTISM IS A JUNKYARD TERM...and unfortunately it has stuck in the minds of people like the RAIN MAN movie, that our kids rock all day, and or memorize number patterns. We have to put out more education what autism really is..and it appears, we still haven't gotten the message through, which is very surprising....
I don't have to dig that this child had autism, it's just apparent...but as a PARENT, I wish people would identify me less as the "parent with those two autistic kids", and more like a "normal person dealing with a life situation"...I am sure if the Travoltas said autism, they would be hounded constantly for money for some organization or another...it's just part of the territory of celebrity hood.
I wish him peace, and also release from the prisons that held him so sick in this life, and the Arms of God are now holding him, totally and completley healed of earth's burden of Kawasaki and or Autism and or Seizures.
Posted by: Kathy Blanco | January 05, 2009 at 02:13 PM
I've been through seizures with my oldest daughter*. My God - they are horrible to witness. I feel nothing but sympathy and concern for the Travolta family. God bless that young man who looked so much like his handsome father. I'm not sure what's worse, losing a child at a young age like Jett or dying yourself as an old person and leaving your disabled children behind in this dreadful world of ours. Both keep me up at night.
* She has been seizure free following years of natural treatments, GI detox (parasites galore) chiropractic, Reiki, CST and more. Seizure FREE. But sure, I should just leave her alone. Seizures are part of her beautiful natural God given autism. (Insert sneezing sound: "Bullshit!")
Posted by: Stagmom | January 05, 2009 at 02:12 PM
Thanks Andrea for the info.
The autism label *DOES* matter -- not because we want to slam John or Kelly -- rather because PEOPLE NEED TO REALIZE THAT AUTISM CAN BE DEADLY!
Quirky vs. Deadly. Which one is going to get the attention of the public faster???!!!
Posted by: Kelli Ann Davis | January 05, 2009 at 02:03 PM
This tragedy seems so strange to me?? John & Kelly has been denying that Jett had autism for years and nothing was wrong with him which was total B.S.!! Scientologists believe mental illness is psychosomatic, that people who suffer from it are defective human beings, and teach that it should be treated through spiritual healing. They reject the use of drugs to treat mental conditions. It seems to me that John & Kelly were ashamed of Jett.
Now, Jett ends up dead in the "Bahamas" at 16 years old!!! A lot of so called "convenient accidents" happen in the "Bahamas" and no one cares. I guess John Travolta will not have to deny anymore rumors about Jett except this one. Very sad John
Posted by: carl | January 05, 2009 at 02:03 PM
I remember that when the speculation about our son's diagnosis hinted at the "A" word, we were reticent to label him.
We decided to take the pro-active road and intervene, discounting any formal diagnosis. My reasoning was that it did not matter what you call it, the intervention is the same.
The death of a child is an unspeakable tragedy. How can we articulate the pain that the Travoltas feel.
Whether or not their son had autism is almost irrelevant now. The message remains that we simply have to take care of our kids, and procure the best possible approach to help them.
Posted by: RobinHausmanMorris | January 05, 2009 at 02:03 PM
Thank you Dan!
Jett's death has really shaken me.
I used to think shame on them for not admitting he had autism. But, now I realize that doesn't even matter. Jett obviously was a very sick young man. Jett had an environmentally induced illness. That is what most of our kids labeled with "autism" have- environmentally induced illnesses.
I've read so many people criticizing the Travolta's for denying Jett's autism and denying him appropriate autism treatment. Please can someone tell me what "the" appropriate autism treatment is? Have we reached a consensus on this? Many of us are usually told "your kid has autism, good luck and have a nice life".
This tragedy will sadly probably become all about Scientology and how it made John Travolta deny his son's autism because of their beliefs on psychiatric illnesses.
Maybe John realized his son didn't have a psychiatric illness and he wasn't going to settle for a label that didn't fit his son's condition like many of us have, myself included?
BTW, Kelli Ann
Joey Travolta did think Jett had autism.
Posted by: Andrea | January 05, 2009 at 01:03 PM
My son just turned 9 and redeveloped absence seizures too just this last year. He had them right after MMR for a long while too. I also have been petrified at all of these stories. His worst one was at school 2 days after I read the two seizure chapters in Jenny's new book. I'm quite scared now.
Excellent piece!! Autism label doesn't really matter, the toxic trigger does and so does the fact that this beautiful boy had to suffer all of those years with immune dysfuction and seizures. I'm so terribly sad for the Travolta's.
Posted by: Allison | January 05, 2009 at 12:51 PM
In addition to losing their son the Travolta's have to endure all the media speculation.
I hope the press will let this family grieve in private.
This is just so sad.
Posted by: karenatlanta | January 05, 2009 at 12:51 PM
My heart breaks for the Travolta family. To be in such a public debate of did Jett have autism or not ... I wondered if the topic would be touched on here. Does it matter? The bottom line is this boy had seizures and many of our vaccine injured children have seizures as a result ... how many of our "environmentally injured" children must die for the people in charge of our public health system to give a damn? My son only suffered one seizure and it was enough for me to be traumatized for life. My heart goes out to this family and all families who live with seizure disorders however they developed, vaccines, carpet cleaners etc ... it's a toxic world and we all need to give a damn, especially the people in charge of public health.
Posted by: Kathy | January 05, 2009 at 12:33 PM
This story makes me very sad because my 9 year old son with autism started nocturnal seizures a week ago. Because I never had to deal with seizures, I was shocked to learn that seizure medication rarely works and often makes things worse. It's haunting to watch your child gasp for air while his eyes roll in the back of his head. And again there is no help. Yes, Dr. Chew is not not "desirable" to cure autism. Chew is a nut.
I am so sad for Jett Travolta and his family. Regardless of what they want to call his disorder, the whole situation is very, very sad.
Posted by: maggie | January 05, 2009 at 12:33 PM
J G Dathan *, C C Harvey **
1 May 1965 British Medical Journal
Since pink disease was described by Swift in 1914 there has been no unanimous view concerning the causation of this disease. Warkany and Hubbard (1948) first suggested that the cause might be chronic metallic poisoning, incriminating mercury, particularly that administered to infants in the form of
teething powders. This view received support from Bivings (1949) who found mercury in 28 out of 31 consecutive cases of pink disease and was reinforced by Gainsford (1949) in Manchester. 3 years later, however; in a reply to a question in the House of Commons, Miss Hornsby-Smith (1952), for the Minister of Health stated:
“Inquiries are already in progress at various children’s hospitals and, although the indiscriminate use of teething powders is clearly undesirable, there is not yet definite evidence to justify general publicity.”
The deaths of 2 infants in 1953 were reported to H M Coroner in Stoke-on-Trent and the verdict at each inquest showed that the death was from bronchopneuumonia due to pink disease resulting from chronic mecurial poisoning from teething powders. On 10 December 1953 the attention of the Home Secretary was drawn to the first of these inquests and he was asked whether, in view of the evidence, action should not be taken to prohibit the use of these substances. During the course of his reply the Home Secretary stated that “inquiries were not yet complete.” Thus his reply differed little from that made on behalf of the Minister of Health some 20 months earlier.
However, as a direct result of these 2 inquests which received wide publicity, the manufacturers of the teething powders concerned, ceased production and subsequently advertised “new and improved powders”, made to a formula which did not include mercury. The “British Medical Journal “ 1954 commenting upon the paper incriminating mercury that appeared in the same issue (Dathan, 1954) stated that “there will be a good opportunity for investigating the residual cases which occur after the present supply of powders containing calomel have disappeared from the chemists’ shops.” This opportunity is now taken after 10 years and results show how correct earlier authors had been in their belief that chronic mercury poisoning was the main, if not the only, cause of pink disease…
Posted by: Fed Up | January 05, 2009 at 12:33 PM
Wow. Best article yet on the subject. Ben and I lit a candle for Jett in St Patricks in NYC yesterday, along with offering our prayers for the Travolta family. Hopefully the rest of the media can come around to asking what is making kids sick, and Jett's tragic death can help lead to change.
Posted by: Ben's Dad | January 05, 2009 at 12:22 PM
I've been thinking along the same lines over the last few days!
Interesting enough, I had lunch over the holidays with several of my best friends from high school and one of them lives in Tarzana and is good friends with Joey Travolta. I've been thinking about e-mailing her to ask if Jett had autism and now I’ll add this link!
Ever since this story broke and I’ve seen pics of Jett, it seemed to me he had autism. Your *digging* confirms what I suspect to be true.
Posted by: Kelli Ann Davis | January 05, 2009 at 12:07 PM