Alison Singer No Longer Speaks for Autism Speaks
FOR IMMEDIATE RELEASE
AUTISM SPEAKS WITHDRAWS SUPPORT FOR STRATEGIC PLAN FOR AUTISM RESEARCH, DECRIES UNEXPECTED CHANGE IN FINAL APPROVAL PROCESS
Calls for New Administration to Restore the Intent of Combating Autism Act to Respect and Value Community Input
NEW YORK, NY (January 15, 2009) – Autism Speaks today decried a vote by the Interagency Autism Coordinating Committee (IACC) to reverse a previously voted-on decision to approve objectives relating to vaccine safety research as part of its deliberations for the Strategic Plan for Autism Research. The decision to debate removing these objectives was not posted on the meeting's agenda, nor were the public members given any forewarning that this section of the plan – which was resolved at the previous IACC meeting in December -- would be revisited. As a result, Autism Speaks is withdrawing its support for the Strategic Plan.
IACC met yesterday at the NIMH in Bethesda, MD, to finalize the Strategic Plan. As mandated by the Combating Autism Act of 2006, IACC must develop and annually update a strategic plan for the conduct of, and support for, autism spectrum disorder (ASD) research, including proposed budgetary requirements.
“We are angered and disappointed by this last-minute deviation in the painstaking process of approving the Strategic Plan. Members of the autism community have worked tirelessly during the last two years to develop a plan that would set the stage for significant progress and discoveries for autism research over the next five years,” said Bob Wright, co-founder of Autism Speaks. “In a matter of minutes, the Federal Members of the IACC destroyed much of the good will that had been established during the course of this process. Because of this surprise tactic, we now have a plan that is tainted and cannot be supported by the autism community.”
Five of the six public members voted against this revision. Autism Speaks Executive Vice President Alison Tepper Singer was the sole public member to cast a vote in support. The evening prior to the vote, Singer submitted her resignation to Autism Speaks – which was accepted – based on her intention to vote on certain Strategic Plan vaccine safety matters in a way that diverged from Autism Speaks’ position on this issue. Thus, in casting votes on January 14, she was acting as an individual public member of IACC and no longer as a representative of Autism Speaks.
“We are hopeful that the new administration will fulfill the intent of the Combating Autism Act and truly value and respect the input of the autism community,” added Wright. “It is imperative that we move forward and ensure that there is a Strategic Plan that meets the needs of the autism community. Autism Speaks is committed to being part of that process.”
About Autism
Autism is a complex brain disorder that inhibits a person's ability to communicate and develop social relationships, and is often accompanied by behavioral challenges. Autism spectrum disorders are diagnosed in one in 150 children in the United States, affecting four times as many boys as girls. The prevalence of autism has increased tenfold in the last decade. The Centers for Disease Control and Prevention have called autism a national public health crisis whose cause and cure remain unknown.
About Autism Speaks
Autism Speaks is dedicated to increasing awareness of autism spectrum disorders, to funding research into the causes, prevention and treatments for autism, and to advocating for the needs of individuals with autism and their families. It was founded in February 2005 by Suzanne and Bob Wright, the grandparents of a child with autism. Bob Wright is Senior Advisor at Lee Equity Partners and served as vice chairman, General Electric, and chief executive officer of NBC and NBC Universal for more than twenty years. Autism Speaks merged with both the National Alliance for Autism Research (NAAR) and Cure Autism Now (CAN), bringing together the nation’s three leading autism advocacy organizations. To learn more about Autism Speaks, please visit www.autismspeaks.org.
Alison Singer-where she's at now, info updated in July 2020.
https://www.youtube.com/watch?v=KydnL1AI4eQ"
This interesting info on the health care provider (using that term loosely) in the video as well.
https://doctor.webmd.com/doctor/carol-baker-ba0c9b74-52f9-48cb-9e8c-0c5c9435e720-overview
Posted by: b | July 06, 2020 at 02:06 AM
Scott -
There seems to be quite a few people who love to state repeatedly that studies have proven vaccines don't cause autism, but that is not the case. If you would like to cite some specific studies we would be happy to discuss them.
Read J.B. Handley's article at http://www.ageofautism.com/2009/01/alison-singer-feeds-the-hungry-lie-twice.html . Go to www.putchildrenfirst.org for a discussion of some of the studies, such as the Verstraeten study and the 2001 and 2004 IOM studies. Read David Kirby's book "Evidence of Harm".
We thought long and hard -- much longer than "half a second" -- and read and studied -- before concluding that vaccines can and often do cause autism.
This is consistent with studies showing that inflammation in the brain as well as other immune system abnormalities are factors in autism, and is also consistent with a long history of encephalitis as an adverse reaction to vaccines. As our vaccine schedule has expanded, more children are affected.
And don't tell me that means that coming down with measles would cause autism. I grew up at a time when everyone I knew got measles, but the rate of autism was much much lower than today. I don't know a single person who suffered lasting effects from measles, mumps, German measles, chicken pox, or flu. But now we are told that these diseases are so incredibly dangerous that any adverse effects of the vaccines should simply be ignored.
It appears that the more live viruses given at the same time, the more adverse events occur such as seizures and/or autism and/or IBD -- sometimes caused by inflammation from an ongoing measles infection. And when toxins such as mercury and aluminum are added to the mix, the combination is that much more hazardous.
There has never been a study comparing vaccinated and unvaccinated kids.
There also have not been studies of kids who suffered adverse reactions to vaccines. As Dr. Bernardine Healy (former head of NIH) stated, those kids are not being studied because the authorities are afraid of what might be found. See http://www.cbsnews.com/stories/2008/05/12/cbsnews_investigates/main4086809.shtml
The CBS interview of Dr. Healy is quoted below:
_______
In an exclusive interview with CBS News, Healy said the question is still open.
"I think that the public health officials have been too quick to dismiss the hypothesis as irrational," Healy said.
"But public health officials have been saying they know, they've been implying to the public there's enough evidence and they know it's not causal," Attkisson said.
"I think you can't say that," Healy said. "You can't say that."
Healy goes on to say public health officials have intentionally avoided researching whether subsets of children are “susceptible” to vaccine side effects - afraid the answer will scare the public.
"You're saying that public health officials have turned their back on a viable area of research largely because they're afraid of what might be found?" Attkisson asked.
Healy said: "There is a completely expressed concern that they don't want to pursue a hypothesis because that hypothesis could be damaging to the public health community at large by scaring people. "First of all," Healy said, "I think the public’s smarter than that. The public values vaccines. But more importantly, I don’t think you should ever turn your back on any scientific hypothesis because you’re afraid of what it might show."
As an example, Healy points to the existing vaccine court claims.
CBS News has learned the government has paid more than 1,300 brain injury claims in vaccine court since 1988, but is not studying those cases or tracking how many of them resulted in autism.
The branch of the government that handles vaccine court told CBS News: “Some children who have been compensated for vaccine injuries…may ultimately end up with autism or autistic symptoms, but we do not track cases on this basis.”
Posted by: Twyla | January 31, 2009 at 12:20 PM
Did any of you people think for half a second that maybe Ms. Singer wanted to see the money spent to find a real cure/cause for autism and not waste it on yet another study that proves that vaccines are not the cause? Anyone? Open your eyes.
Posted by: Scott | January 31, 2009 at 09:02 AM
There are numerous false flagg organizations and web sites, Autism Vox and Autism Speaks total BS. Please stop wasting your time with this and move forward on the agenda of getting the vaccines stopped until they are proven safe, which by the way will never happen as they are not safe in children and we have already proven that havent we?
Posted by: Willie | January 20, 2009 at 03:03 AM
Ant Bethany wrote:
"Maybe Offit can make a vaccine for stupidity."
I think he and others have already made several vaccines, that badly affect neurodevelopment and general physical and mental health. If he were to come up with a vaccine against "stupidity", I wish he would try it out on himself first, before inflicting anyone else with it.
Posted by: Aasa | January 19, 2009 at 11:09 PM
I posted this AM: "I awoke this morning expecting to see emails from other autism organizations in support of Autism Speaks' position that the New Administration restore the intent of the CAA. Nada...not a single one did I find."
Well the day has indeed turned out better with SafeMinds and TACA following Autism Speaks' lead by removing their support of the strategic plan for autism. Hopefully there will be more by morning. Good going SafeMinds and TACA!
Posted by: Charlie | January 16, 2009 at 09:04 PM
I'm with you, Garbo.
There are new people here all the time, including soon-to-be parents who will soon be making irreversible decisions on behalf of their infants.
They deserve to see the news that really affects them--because (as discussed elsewhere)--our government is willing to go to any length to tell parents how "safe" our vaccination program is.
The Big Lie, indeed, with new victims daily.
Terri Lewis
Posted by: Terri Lewis | January 16, 2009 at 01:17 PM
I hope that this heads them in the right direction. So many news reports about A.S., much to do with riding the fence and occasionally falling on either side of it. Awareness is important and most importantly equality on choice of research. ALL potential causes need to be looked in to. I hope that this lingering fence goes away for them and that there is a permanent stance on their beliefs and intentions. This looks like this could potentially be heading them in that direction. And thank you again Katie for all of your caring and reporting on this issue... You are making waves that are washing the shore.
Shauna Layton-Founder
Together In Autism
www.togetherinautism.org
[email protected]
Posted by: Shauna @ Together In Autism | January 16, 2009 at 12:24 PM
what a shocker. more of the same. ho hum, nothing to see here, move along, zzzzzzzzzzz.
Posted by: Fed Up | January 16, 2009 at 11:38 AM
Three things:
1) So what happened at the meeting? Did the vote cause a change in the plan? If so, this is incredibly evil.
2) I agree with Louis Conte's comment. This is entirely out of order and the vote should never have happened. We need to figure out how this happened and try to get the process fixed.
3) Wasn't Ms. Singer's position on the committee granted because she was a representative of AS? I read elsewhere that she'll still be on the committee until 2011!? How do we get her off of this committee now???
Posted by: ObjectiveAutismDad | January 16, 2009 at 09:58 AM
You know, I was on that call and left early because I was at work and had a meeting. Unbelievable. Just unbelievable.
Posted by: Kevin | January 16, 2009 at 08:06 AM
Charlie, a bridge to Dr. Minshew, who denies an epidemic? A bridge to Dr. Shih? Alison was the face of the iceberg. Time will tell where this leads for our children. KIM
Posted by: Stagmom | January 16, 2009 at 07:53 AM
I awoke this morning expecting to see emails from other autism organizations in support of Autism Speaks' position that the New Administration restore the intent of the CAA. Nada...not a single one did I find. I'm definitely no fan and have agreed with many (especially with JB's very critical remarks) who have spoken out against AS and their stances. But it's time to speak up in their support as they have done something right for a change. We have an opportunity here to build bridges.
Posted by: Charlie | January 16, 2009 at 07:40 AM
It is time for some people to be interviewed by a special prosecutor. These (millions of) dollars for autism research belong to the citizens of the USA. They should be spent in a manner that reflects the over-all good of the country and not be held captive to special intrests. The United States deserves to know if vaccines trigger autism - Mrs. Singer's personal beliefs have nothing to do with answering this vital question. Ms. Singer was not voting for prom queen here. One could easily vote for this research expenditure just to rule vaccines out as a cause.
For some reason, Mrs. Singer couldn't do that.
I am concerned that some federal rules regarding public meetings have been broken. All of a sudden, an issue previously voted on, is put back on reconsideration without appearing on the agenda? And it just happens to be the decision to spend money on researching the vaccine/autism connection? WHO CAUSED THAT TO HAPPEN? We should DEMAND to know how this went down. We should DEMAND an investigation!
Posted by: Louis Conte | January 16, 2009 at 12:26 AM
Can't help but think this whole thing is part and parcel of the Big Lie, designed for distraction. These people don't deserve to be on the top of the page here. Olmsted's report on MMR is damning in the extreme. How about bumping it back up to the top here and putting the AS morons down where they belong? I'm sure they'd love for us to waste time kvetching about internal politics and what it all means, instead of focusing on finding the truth and getting it out there. Don't give them the satisfaction. They aren't worth the time.
Posted by: Garbo | January 15, 2009 at 11:50 PM
Politics ahead of children, suffering, DYING and suffering for years, because these people deny the obvious. Nice...
Should I sing that song from the Wizard of Oz? Ding dong the witch is dead..or is she???
Perfect idiology for research, HIRE ALL PARENTS OF VACCINE INJURED CHIDREN WHO SIT AT THEIR COMPUTERS TRYING TO FIND THE BIOMED CURE TO AUTISM...bottom line, cure within ten years, prevention in one.
Posted by: Kathy Blanco | January 15, 2009 at 11:08 PM
I agree with *sickened* that this sounds like a collusion that involves more than only Singer. Drama to say the least. Plus she walks away with the *hero* role as the scienetist that couldn't go against her beliefs....blah...this is digusting and disturbing. One day up, next day down...today...not so positive.
Posted by: kathleen | January 15, 2009 at 10:58 PM
Kim said:
So she resigned her position at AS because she felt so strongly against the research on vaccines? SERIOUSLY, she left a high paying job so that she could vote against vaccine research? Surely she's going to get money elsewhere (or already has been) for holding this position? I can't imagine leaving this job for this reason unless pharma's got her in their pocket.
********
I second that Kim. I was wondering the same thing myself. At first I was a bit confused as to how her vote would count and why she resigned but the "devil is in the details" here. Why would she give up that kind of job to make ONE vote??? Against vaccine research??? Something stinks here.
Posted by: rileysmom | January 15, 2009 at 10:20 PM
I like to represent the part of Autism Speaks that is for the WHOLE Autism Community and ALL research into ALL causes and treatments. I am pleased that this has taken place, especially if her involvement was impairing the critical work that needs to be done.
Diana A. Yeisley
Posted by: Diana Yeisley | January 15, 2009 at 09:39 PM
time out "...effective next month." What the?
"The evening prior to the vote, Singer submitted her resignation to Autism Speaks – which was accepted – based on her intention to vote on certain Strategic Plan vaccine safety matters in a way that diverged from Autism Speaks’ position on this issue."
What is the point of dramatically resigning the night before you stab the lobbying group that employs you in the back, only to make it effective one month later? Why did AS speaks allow the one month time period given what they knew? I was wondering why her name was still listed. Why is she not removed effective immediately?
Please be prepared to disclose any parting gifts AS. That month sounds awfully generous. You should send a letter to each person who donated $20 up to the amount of the severance, if any, explaining what their money went for.
Posted by: jruch | January 15, 2009 at 09:24 PM
It has been an honor and a pleasure to help to build this
organization into the preeminent autism advocacy group -- the group that has, in fact, elevated the word "autism" to the global
vocabulary."
I am sorry people but...I cannot help but feel that this was PLANNED and not just by Alison. I have a hard time believing that AS did not know what has been going on. It seems like they have planned to take as much money as they can and give out just enough kibbles and bits to keep people wondering. It is a great strategy dont you think? I mean really, isn't it working? How can you be sure Paul Offit and "The Offiteers" are not behind this?
Are we to be duped into pouring our hearts and money into the the "new and improved" AS now that, "the mole is gone?" I am not so sure that was not the plan all along. Who is next in line? Do they play the game again and again too and then depart at the last minute after "taking care of things" for several more years? Ya know, time IS MONEY! Gotta clear out the warehouse.
Why are we so sure that AS is now sincere and has been cleansed free of sin? In my opinion, if there is any chance for AS, it needs an HHH (high, hot and a helluvalot) enema NOW to clean out all the *#(%.
I cannot help but think of the saying..." fooled me once shame on you, fooled me twice...."
Posted by: sickened | January 15, 2009 at 09:02 PM
I heard Eric London is no longer with Autism Speaks.
If true that would be a plus.
Hopefully Shih goes too and all three of them can get jobs at the CDC in Atlanta, GA.
Posted by: Raymond Gallup | January 15, 2009 at 08:52 PM
I don't understand how AS can conitnue to contend that Vaccine have no link to Autism. It boggles my mind...
Maybe Offit can make a vaccine for stupidity.
Posted by: Ant Bethany | January 15, 2009 at 08:16 PM
From Vaccination News, which links to RPM Report (Regulation Policy Market Access):
"Are the manufacturing and commercial development subsidies that the vaccine companies learned to count on from the Bush Administration likely to continue? Probably not; but they may be replaced by a different, and more timely, form of incentive – enhanced government-stimulated markets for vaccine products.
The Obama Administration will be beneficiary-oriented, looking for ways to provide more health services to people not now receiving adequate services. Vaccines fit that bill perfectly and vaccine companies have well-identified target segments for many different types of vaccines. There are plans (and improved technology) for vaccinating the elderly and adolescents.
Key Democratic health figures (such as the top health figures on Capitol Hill, Sen. Ted Kennedy (D-Mass.) and Rep. Henry Waxman (D-Calif.) are already on record as supporting vaccination programs for the forgotten adult segment of the population. There will be challenges about the payment and distribution systems for reaching the new markets, but the stage looks set for making use of the corporate expansions into vaccines during the last administration."
Then there's this from AP:
"Barack Obama's choice for Secretary of State, Hillary Rodham Clinton, said that contributors to her husband's foundation, Clinton Global Initiative, would not influence her in her new role. Merck has been a member since 2006, during which time Hillary Clinton wrote a letter to the Health and Human Services Secretary Mike Leavitt asking him to approve the HPV vaccine. She also wrote letters on behalf of Barr Laboratories and Plan B."
Sadly, sounds to me like she's a perfect fit.
Posted by: Garbo | January 15, 2009 at 07:55 PM
One piece of trash gone, one to go.
Posted by: steve | January 15, 2009 at 07:47 PM
"Obama wouldn't dare make her an autism czar under these conditions"
Not so sure about that, especially if he and Daschle are supporting the status quo. She punk'd AS for 3 years, surely she can punk a few under-informed Obama vetters long enough to be appointed! I seem to recall that her vote didn't swing things either way; she could have voted safely with AS and kept her position as a mole, so I agree with Kim she must have gotten a better offer from somewhere else. Fingers crossed, it isn't anywhere within the new administration. But with Merck and Sanofi laying people off, who's hiring besides the new admin?
Posted by: Garbo | January 15, 2009 at 07:22 PM
So when will Andy Singh leave?
Posted by: Keith | January 15, 2009 at 07:15 PM
Amen, Richard.
Lots of interesting things happening on the eve of a new administration...
Call me bitter or vindictive or whatever, but I sincerely hope there is a special place in hell for the people who have put and continue to put so many children and families through hell on earth.
Posted by: biomedmom | January 15, 2009 at 07:03 PM
"However, for some time I have had concerns about Autism Speaks' policy on vaccine research. Dozens of credible scientific studies have exonerated vaccines as a cause of autism. I believe we must devote limited funding to more promising areas of autism research."
DOZENS of studies now? Good God, can the apologists please pick one number to spew incorrectly? The Hungry Lie does indeed need to be fed.
Posted by: Julie Obradovic | January 15, 2009 at 06:51 PM
Fascinating times at Autism Speaks. Seems there has been a covert mole operating independently of her organization (espionage and autism--who knew). Kudos for the Wrights standing up to it's infiltration. Perhaps this is a good thing to galvanize AS along with the other autism groups to unite with common goals.
Recall the letter from Congressman Brad Miller to Sec Leavitt 7/08 clearly stating his expectation about research goals to include vaccine research. Perhaps this will tick off his committee enough to launch a full scale investigation of the IACC. http://autism.freedomblogging.com/files/2008/07/iacc-letter.pdf
This IACC nonsense will be water under the bridge if another Omnibus VICP case goes for the children (where are those decisions by the way). It will be like Singer and Offit re-arranging the deck chairs on the Titanic!
Posted by: Disgusted and Elated (at the same time) | January 15, 2009 at 06:45 PM
This is truly amazing and shows the quality of the character of the pro-mercury militia.
This shows that Singer is a two faced evil clown who has been totally biased for years,working behind the scenes in a stealth like manner to undermine help for disabled children.
At least now she is exposed.
Posted by: Richard | January 15, 2009 at 06:40 PM
according to kevin's release, Singer's position on the IACC was a personal spot, not related to her job. So she resigned her position at AS because she felt so strongly against the research on vaccines? SERIOUSLY, she left a high paying job so that she could vote against vaccine research? Surely she's going to get money elsewhere (or already has been) for holding this position? I can't imagine leaving this job for this reason unless pharma's got her in their pocket.
Posted by: kim | January 15, 2009 at 06:32 PM
Do we know whether Alison Singer's vote swung it? It has not been said either way.
It looks as if the committee's December vote - if I read aright from this distance - was tactical, and therefore corrupt. It would also show how much they now fear the parent lobby.
Posted by: John Stone | January 15, 2009 at 06:16 PM
Charlie, remember, the Hydra has many heads.... Only one is gone and who knows to where?
Michael, no you're wrong. ALL of the money has gone into genetics, boobies, TV, etc. with no results. The one stone scientists are afraid to turn over is vaccinations. And we're going to push for that until we get it.
KIM
Posted by: Stagmom | January 15, 2009 at 06:03 PM
So, will Ms. Alison Singer be working under Paul Offit now??
Posted by: She sucked!!! | January 15, 2009 at 05:55 PM
I can't find a link to this online.
ALISON SINGER ANNOUNCES HER RESIGNATION AS EXECUTIVE VICE PRESIDENT OF AUTISM SPEAKS
Disagreement on Vaccine Research Prompts Departure
NEW YORK, NY (January 15, 2009) – Alison Tepper Singer, executive vice president of communications and awareness for Autism Speaks, today announced that she has resigned from her position with the advocacy organization, effective next month.
"It has been an honor and a pleasure to help to build this
organization into the preeminent autism advocacy group -- the group that has, in fact, elevated the word "autism" to the global
vocabulary," said Singer. "I am grateful to Autism Speaks founders
Bob and Suzanne Wright for their leadership, insight, commitment and for the tremendous support and love they have shown to my family and me."
"However, for some time I have had concerns about Autism Speaks' policy on vaccine research. Dozens of credible scientific studies have exonerated vaccines as a cause of autism. I believe we must devote limited funding to more promising areas of autism research."
Singer resigned prior to the January 14th Interagency Autism
Coordinating Committee (IACC) meeting, at which the discussion of vaccine research was to be continued from the December meeting, at the request of one of the public members. Knowing she might cast a vote with which Autism Speaks might disagree, she resigned from Autism Speaks prior to the meeting. Singer serves as a public member of the IACC and will continue to serve until 2011. She was appointed to the IACC by outgoing HHS Secretary Michael Leavitt in 2007.
The IACC, created via the Combating Autism Act of 2006, is responsible for coordinating all efforts within the Department of Health and Human Services (HHS) concerning autism spectrum disorder, including drafting a Strategic Plan for autism research with budgetary requirements. At the January meeting, the IACC voted to seek input on two proposed studies of vaccines and autism from the National Vaccine Advisory Committee Safety Working Group (NVAC), an HHS group specifically charged with undertaking and coordinating scientific review of the federal vaccine safety system, prior to including the proposals as
specific objectives in the strategic plan. Singer voted in favor of
this motion.
Singer was the first professional hired by Autism Speaks when it
launched in 2005. She served as interim CEO for three months, then as senior vice president and later as executive vice president. She also served as a staff member of the board of directors until her resignation. Singer has been responsible for directing the
organization' s award-winning awareness and strategic communications programs, including its work with the Ad Council which was awarded a prestigious "Effie" award in 2008 in recognition of the 43 percent increase in overall autism awareness directly attributable to the campaign. She also serves on the Executive Committee of the Yale Child Study Center and on the board of directors of Autism Spectrum News, as well as on numerous state and local autism advocacy committees. She has appeared on Oprah, The Apprentice, NBC Nightly News, Good Morning America, CBS Early Show and numerous other news
programs discussing autism issues.
"My work with Autism Speaks and within the advocacy community has been exceptionally rewarding, and I will continue to advocate on behalf of my daughter, my brother and the millions of others affected by autism spectrum disorder," said Singer.
Posted by: Kevin Barry | January 15, 2009 at 05:48 PM
We must unite behind Autism Speaks. Let's go NAA, GR, and the rest of you. We have the opportunity to fix the CAA for good.
Posted by: Charlie | January 15, 2009 at 05:34 PM
Let me get this straight. Allsion Tepper Singer is appointed to the IACC because of her association with Autism Speaks. She attends the meetings for several months as a representative of the public on behalf of Autism Speaks. Then one day before the most crucial day of the IACC, in which they vote on specific language that will influence how monies are allocated, she resigns from Autism Speaks because her voting will conflict with Autism Speaks official positions. Unbelievable.
Unless legal action is taken by Autism Speaks against Ms. Tepper-Singer, they will lose any credibility they may have had. I can not think of a better example of employment not being in good faith.
Maybe this will finally give Mr.Wright the impetus to clean house, or take his money elsewhere.
Posted by: Tim Booton | January 15, 2009 at 05:31 PM
"Five of the six public members voted against this revision. Autism Speaks Executive Vice President Alison Tepper Singer was the sole public member to cast a vote in support."
So does this mean that the change is going through anyway, or did they reject the last minute proposal? I'm curious as to what was actually voted on and what research they are going to do.
I know part of the original plan was the vax vs. unvaxxed study. Was this what was voted against?
Posted by: Craig Willoughby | January 15, 2009 at 05:30 PM
Nice job autism speaks. Finally.
Posted by: Lisa | January 15, 2009 at 05:25 PM
I'm confused - was AS given the seat (ability to vote) or Singer herself? If the seat was to AS - she should have been barred from the meeting, let along voting. If it was for her personally, it should not have referred to her AS position??
Posted by: Diane | January 15, 2009 at 05:12 PM
"The evening prior to the vote, Singer submitted her resignation to Autism Speaks – which was accepted – based on her intention to vote on certain Strategic Plan vaccine safety matters in a way that diverged from Autism Speaks’ position on this issue. Thus, in casting votes on January 14, she was acting as an individual public member of IACC and no longer as a representative of Autism Speaks."
Forgive me if I'm missing the boat here, but as the AS representative on the IACC, by resigning her position within AS, would she not also then forfeit her seat at the table (and therefore her vote as well)? It was not Alison Singer who was invited to participate - it was AS - if she's no longer associated with AS, then someone else should step in, as the AS rep, in that role. She should be out the door.
This has the same kind of sleazy stench as that 11th hour crayola-copy Pharma-get-out-of-jail-free addendum to the Homeland Security bill. This time Alison Singer is the proverbial Trojan horse.
Sorry, folks, no items of inconvenience on the agenda. Thanks, public members [pat on the head] - we'll take it from here - didn't really take any of you or your concerns seriously anyway. Have a nice day...
Dr Jay Keys (from another thread) - are you still tuning in? Nice end run, don't you think? Please feel free to follow the politics around these parts for a while - when you see how some of the most intelligent, diligent, caring parents imaginable are treated (note that their only crime is standing up and working their collective a$$es off in the name of open honest research and discussion), I think maybe you'll get a bit of a different perspective. Or not. Up to you.
Posted by: Randy | January 15, 2009 at 05:08 PM
RJ, nice to know you still lurk every day... Maybe you're working on that vaccine already? I have three kids with autism to care for, a blog to run, a husband to (none of your business) and many other ventures that take my time. Narcissist? I'm not sure I washed my face this morning.
KIM
Posted by: Stagmom | January 15, 2009 at 05:03 PM
"Don't worry, Dr. Offit is working on a vaccine for pathological liars. It makes everyone else in the universe believe them."
Oh, you're so funny.
Maybe he can work on one for narcissists. You should look into that one.
Posted by: RJ | January 15, 2009 at 04:54 PM
This is great news that AS is standing up to this, and that Singer is gone. Obama wouldn't dare make her an autism czar under these conditions.
It doesn't sound like anyone is asking was asking to repeat science that has been done. I hope this vote is fully investigated, and the scandal of a former senior representative of AS working going against AS positions fully covered in the media.
Posted by: jruch | January 15, 2009 at 04:53 PM
It would seem to me that Singer's resignation should have disqualified her from representing Autism Speaks the following day.
Was it AS's intent to say one thing and act another, or was there some bureaucratic-red-tape-comittee-rule that forced this lack of "representation?"
Posted by: JenB | January 15, 2009 at 04:51 PM
Don't worry, Dr. Offit is working on a vaccine for pathological liars. It makes everyone else in the universe believe them.
Posted by: Stagmom | January 15, 2009 at 04:45 PM
I hope the IACC meeting transcript indicates that Alison Singer announced she was no longer Executive Vice President of Autism Speaks. Can anyone who attended or listened in verify?
If the vote on the vaccine language was a last-minute surprise and not on the agenda, why would Alison resign the night before?
Pathological Liar
A pathological liar is usually defined as someone who lies incessantly to get their way and does so with little concern for others. Pathological lying is often viewed as coping mechanism developed in early childhood and it is often associated with some other type of mental health disorder. A pathological liar is often goal-oriented (i.e., lying is focused - it is done to get one's way). Pathological liars have little regard or respect for the rights and feelings of others. A pathological liar often comes across as being manipulative, cunning and self-centered.
Posted by: AutismSpeaksForkedTongue? | January 15, 2009 at 04:43 PM
Funny this happens the week of the NYT push for Offit's book. Bet she ends up in Philly. What autism org could pay her six figures and what does she really care about autism anyway? Maybe she can build group homes and make her fortune.
Posted by: Disgusted | January 15, 2009 at 04:32 PM