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More Startling Autism Science from Yale!

Money_down_the_drainYale Child Study strikes again. Yawn. Anyone know who funded this one?

Yale University (2008, September 26). Toddlers' Focus On Mouths Rather Than On Eyes Is Predictor Of Autism Severity. ScienceDaily. Retrieved September 27, 2008, from http://www.sciencedaily.com­ /releases/2008/09/080926143751.htm.

Comments

Teresa

What severity?-

you posted-
"to state that everything is hunky dory the moment you step into a DAN's office is false, misleading, and incorrect. There are a bunch of folks who have been struggling for years. Many many lives have been lost and are continually being lost each day."

what are you saying here? who is struggling and which people are losing their lives? I want to comment but cannot until you clarify.

jill

i didn't need this study to know that my son didn't look me in the eye when i talked to him . i agree with knowing every aspect, but this was a waste of time and money. i just emailed someone to try to get my son in thier gfcf diet study. and guess who is doing the study? not a big medical school. two OT's in grad school!!! i am so glad i am doing all of this biomedical stuff for my son. IT IS WORKING!!!! he is getting better. it is truly amazing. he just started asking me for things and trying to communicate this week with me. why aren't more schools studing this? my son was going no where fast before the biomedical approach. i am so grateful.

Cherry Sperlin Misra

To those who dont yet understand- The Yale study enrages us because we know we are being bamboozled. It took 14 long years for the Minimata disaster to conclude, 20 years to settle with Big Tobacco and we know that some people are hoping and praying (Im tempted to write preying) that vaccine poisoning and autism will take many many more years,because the consequences are going to be so grave and so far reaching. Once autism is pinned on vaccines, there are plenty of other disorders to follow ( dyslexics, hyperactive kids , the ones who died of Kawasaki disease, and many more)and everyone , in true justice should be compensated. And then, someone is going to have to take the rap and WHO is going to have to figure out how to vaccinate the third world because they wont be able to pretend any longer that they dont know that kids are being poisoned with vaccine ingredients. So many problems- worthy of a Dr. Seuss book. That's the big fat delaying game and it makes people angry. Hey, its already been about 20 years since the Swedes and the Merck Co. figured out that mercury in vaccines posed a danger to babies, and the U.S. is still injecting pregnant women and babies with mercury.

SDTech

In addition to the horrible inhumanity of our Autism epidemic being possibly manmade, look at the cost in dollars. Dr. Jepson, in his book “Changing the Course of Autism”, references a report, by Michael Ganz in 2006, that the lifetime cost per person for Autism is estimated at 3.2 million dollars. So 25,000 children (estimating annual new cases using the CDC estimate of one in 150 children and then using the rate of 4 million newborns per year in the US) times 3.2 million dollars per child is 80 billion dollars of additional costs each year the epidemic continues. Since 2000 that is 640 billion dollars of additional cost. What part does Congress not get? CDC needs new leadership and fast!

What severity?

"Really? Because my child, along with MANY children who have experienced the DAN protocol, have gone on to be completely different children."

There is no denying that kids do improve on the DAN! protocol. Some do go on to be recovered as well. However, the definition of recovery is nebulous and varies according to what each individual parent's perception of recovery is.

To my mind, improvement or being completely different is not a cure. You might think it is, but that's not where I am coming from. And I would appreciate being given the chance to express my opinion without having my head bitten off in the process.

Any child (who ought to have been neurotypical) who is taking 100 + (or 50+ or 20+) supplements a day, is on a special diet, and regresses on exposure to environmental toxins is still living a life akin to being in a bubble that is hard to maintain in this very toxic world. I'll take it when I get there (its not like I have any other choice now do I), but it does not make the picture of what's happening to the kids acceptable, and to state that everything is hunky dory the moment you step into a DAN's office is false, misleading, and incorrect. There are a bunch of folks who have been struggling for years. Many many lives have been lost and are continually being lost each day.

To come on here and state that that's not so just because you happen to be in a good place is also misleading. From my perspective there have been very few *cures* out there. That's the only point I was trying to make.

SDTech

Sign Lady:
Thank you for calling Autism what it is – a tragic epidemic.

What should to be taken from the Verstraeten study by all these esteemed institutions is that kids with higher mercury doses had higher rates of autism than kids with lower doses. And they didn’t show their earlier comparison to kids with ZERO doses of mercury even though it looks like they had between 1530 to 2324 children that received ZERO thimerosal/mercury.
These results scream “Take out all mercury!!!”

We don’t need another study on mercury; just take it all out of vaccines for children, pregnant women and all human beings.

Tanners Dad

I was excited to read the headline of this article... I thought naively that the critical mass of last Wednesday's meetings and programs was coming true....
First ladies gather to raise autism awareness

The Associated PressPublished: September 26, 2008
http://www.iht.com/articles/ap/2008/09/26/news/UN-UN-Autism-Awareness.php
Then I get to the part about...

Autism has always been diagnosed by making judgments about a child's behavior. For decades, the diagnosis was given only to children with severe language and social impairments and unusual, repetitive behaviors.

But in the 1990s, the autism umbrella was expanded and now includes a group of milder, related conditions.

And I realize they let everybody off the hook and the status quo can keep being the status quo... I am very very angry at the world this morning... I am glad I have my new blog to vent...
http://www.causecast.org/member/tanners-dad

Julie Swenson

" All that apart, by 2 years its too late anyway. All those vaccines, all those neuro-toxins, all that gut damage, and all that brain damage has already been done. By then severity is a moot point. The child is *gone* for good."

Really? Because my child, along with MANY children who have experienced the DAN protocol, have gone on to be completely different children.

My child at 2 could not talk, could barely walk, could not hold a crayon, could not look me in the eye ( or in the mouth, as YALE would have you believe), could not say Mama or Dada, or do any of the myriad of things a 2 year old is supposed to do. That changed with a visit to a local DAN.

After 2 years with our DAN, he can talk, walk, run, jump, sing, dance and can finally BE the 4 year old he should be. THANK GOD for that crazy, alternative medicine.

In the future, please don't bother commenting on things of which your have no knowledge. Oh, and reading Offit's books don't count as being informed.

Jenny W

I love to poke at stupid studies as much as the next person... but...

What is the problem here?
They didn't say watching TV causes autism... they didn't say that wearing a black lace bra when you get knocked up causes autism...

They are talking about brain function, they are talking about the way our kids process info, and that is important.
We have to look at everything.

It's great to have all this new info lately, to be able to say with much confidence that there is some kind of metabolic disorder going on here --it's better than being called a refrigerator mother --it's better than being told you child is "hard-wired" this way, but other than that it's a mystery! But we are not there yet.

We need to know EVERYTHING!! You can sit back and say, "It's the vaccines, stupid" but we need to know at every level, how?

I remember when Gavin was being dx'd. I remember seeing the "team" at Children's Hospital and running down the list of all his ailments --immune, digestive, cognitive, etc. I gave them the complete, unabridged medical history --from ear infections to allergic reactions. They translated that as a sad mom, feeling guilty, trying to toss out anything to take some of the guilt off myself...

I told them off.

The point was we need to take everything into consideration. Later as I talked with more parents, as I met you all I found out our kids all have similar histories, why ignore that?
We won't figure out the WHOLE CLEAR picture until we know everything...

So if a study comes along that says Dads who drink beer while watching baseball games are more likely to father children with autism then dads who drink wine while watching football, then by all means, feel free to puke.

But consider the importance of learning how our kids think. When we know what is different, we can look at those areas of the brain to see how they are effected --we can look at everything we know to try to figure out what we don't.

This is not bad science.

Twyla

Wow, what a brilliant, useful, and ground-breaking study! (haha ROTFLMAO)

Laughing to keep from crying...

Janice

I guess they're trying to show that since autism can be detected in newborns, it can't be caused by vaccines. They don't want people to realize that newborns have already been exposed to 25 mcg of mercury through the prenatal flu shot, then aluminum in the Hep B shot at birth.

karenatlanta

Expect waters to get muddy. Maybe by design.
Hg loaded flu shots to pregnant women then 2X a year starting at six months.
Needless Hep B 2nd day of life, still!
Yeah you are seeing signs earlier!
They are getting the toxins in before they even get out of the gate!

It's like ethnic cleansing, only those genetically susceptible are purged.
The "non-sense" science is particularly insulting as you see families disintegrate for lack of answers and services but some bimbo scientist gets 3 million to study
how asocial Autistic children are.

Terri Lewis

To What Severity?,

I read your comments with a different perspective, and I think I know what you mean.

It's important to keep in mind that there are children who are very, very, very unwell with "autism"--really, why don't we just call it poisoning, no matter what the source?

These kids are overcome with toxins.

Some of them will suffer greatly even after years of chelation (though the chelation may help), some have parents who just don't know what all to do (until it's too late, if ever).

Yes, I believe in healing and in recovery over time, and I believe in full recovery, but in very real, practical terms--there are children who will suffer greatly and for the rest of their lives.

I welcome your perspective.

Terri Lewis

rileysmom

They could have came to my house and done this study for free.

sign lady

SDTech,
Thank you for your observation about conflicting data in the Verstraeten report as regards Thimerosal and relative risk of autism.

Unfortunately, when researchers at important universities mingle at cocktail parties, they'd much rather chit-chat about their cool eye-tracking technology or their robots that blow bubbles to engage children with autism than upset everyone at the party with bad news about the government's role in the autism epidemic.

Let's face it, whistle-blowing is not fun. It's certainly not lucrative. And it doesn't get you invited back to university cocktail parties. I hope Age of Autism will continue to highlight the pointless autism studies (in addition to the valuable ones) so that these esteemed institutions know how the autism community feels about their "contributions" during this tragic epidemic.

It'sRegression

Well-said Anne. Even when a child regresses they are often described as "born with autism" Maybe we need a t-shirt 'I have Autism but I wasn't born this way.' I too am so sick of studies that look at our kids as "interesting anomalies". Is it really ethical to look at our children as interesting when they are in such pain and discomfort?
In a just world we would have thousands of well-funded studies looking at the gut, the biofilm, lyme, viruses, yeast, bacteria, parasites, methylation, probiotics, metals, toxins, antioxidants and chelators ... because our kids are so worth it and they need and deserve to be saved.

Anne Dachel

It's beyond belief that these scientists express no serious alarm over so many kids lacking the most basic of communication skills.

Studying these children as interesting anomalies to 'enable the detection of vulnerabilities for autism in infancy,' doesn't nothing to stop this disorder from affecting more children and it sends the not-so-subtle message that children are born with autism.

Anne Dachel
Media editor

Jeanne

What Severity?,

"...by 2 years its too late anyway. All those vaccines, all those neuro-toxins, all that gut damage, and all that brain damage has already been done. By then severity is a moot point. The child is *gone* for good."

Excuse me? Perhaps I took what you said the wrong way. I have a bit of a head cold and my brain feels like it is not functioning at 100%. Having said that...

I beg to differ. My son was not diagnosed until he was 4 years old. It was not "too late" for him, he was not completely "gone." After three years of intense biomedical intervention, my son is almost completely recovered (I say "almost" because I have not had him reevaluated, so I cannot officially call him "recovered"; but, he is medically better, which in turn took care of 99.9% of those "autistic behaviors").

According to what I've seen, it is NEVER too late to start healing your child. There are thousands of kids who have recovered from "autism." Obviously, the sooner you begin the intervention, the better; but it's NEVER TOO LATE to step in and help these kids feel better (and in a lot of cases, recover).

I know some of you have heard me say this again, and again; but, prior to biomedical interventions, my son was nonverbal, wearing diapers (with severe diarrhea 5-10 times per day), a runner, had severe sensory issues, daily nosebleeds, serious behavioral problems, migraines, seizures, very high pain tolerance, no sense of danger AT ALL, non-responsive most of the time, and didn't much care whether anyone paid attention to him or not - definitely didn't care about having friends.

Today my son talks nonstop. He's potty trained (has been since just before kindergarten last year). Diarrhea is GONE. We do the, "look at that beautiful poop" dance many times per week now. His sensory issues have all but disappeared. Nosebleeds are a rare occurrence. He no longer darts away from us in public spaces, and hasn't attempted to escape the house for years. Migraines are gone. Seizures, gone. My son responds to everyone and everything. He is completely aware of his surroundings. He expresses fear. He feels pain. He feels cold and hot. He cares about what people think of him. He walks up to kids at school he does not know to talk with them. He wants friends. He wants to start having sleepovers.

Do you hear me? It was not too late for my son at age 4. It is never too late. That kind of attitude will only hurt your child. You will rob him or her of any chance they have at a better life by taking a defeatist attitude and not taking the bull by the horns and doing what needs to be done.

As far as DAN! docs not knowing what will help one child or the other, I don't understand that comment. If your doc is doing appropriate testing, then your doc knows exactly what to do for your child to help him or her improve. Our doc started treating the severe vit/min deficiencies reflected in my son's testing, then we tackled other issues (when the body was healthy enough to do certain treatments). There are plenty of DAN! docs out there who know exactly what they are doing - they are forging new ground every day - but they are basing treatment on laboratory testing, not guessing (which I imagine would result in one treatment working for one kid and not for the other).

And let us not forget what we have all learned (a point made by David Kirby time and time again), we are not looking at one kind of autism, but many different types of autisms.

Okay, going to do some deep breaths now. Sorry. Nothing makes me more angry than apathy and the irresponsible spreading of misinformation! Arg!

If I have misunderstood the point of that comment, again, sorry.

What severity?

"These results may offer a useful biomarker for quantifying the presence and severity of autism early in life and screen infants for autism. The findings could aid research on the neurobiology and genetics of autism, work that is dependent on quantifiable markers of syndrome expression."

I have found that the severity of autism has nothing to do with the severity of the physical disease. A very severe non-verbal child can be more clued in to his environment as demonstrated by what he can hammer out on a keyboard, whilst a supposedly functional talking child can be completely clueless even about how to get dressed in the morning. The eye contact is not the most valuable indicator of severity IMO. If anyone can point to the best marker of severity of autism I would like to hear about it since I don't even know what it is.

As far as I have been given to understand, even the DAN docs who see hundreds of kids do not know if a particular treatment is going to work for one kid versus the next, so how are these people going to figure out the neurobiology and genetics of autism? The only thing that helps ALL kids across the spectrum the MOST is chelation. But oops, they don't want to study chelation. Because then people might find their kids dumping all that lead, mercury and aluminum. Can't have that happen can we?

All that apart, by 2 years its too late anyway. All those vaccines, all those neuro-toxins, all that gut damage, and all that brain damage has already been done. By then severity is a moot point. The child is *gone* for good.

karenatlanta

Everyday I scan Pubmed for Autism research, it's amazing how many "nonsense" studies you have to wade through to get to anything meaningful. Juxtaposed to the NIH canceling the chelation study - that parents when surveyed said helped over 50% of ASD children (ARI data).
It's hard (as a parent who lived through nursing a very sick child back to health) to see money spent on things that wouldn't advance a mouse, much less a chronically ill child with Autism.
You want to talk about "side tracking issues" talk about eye/mouth focus instead of bleeding gastrointestinal tracts.

karenatlanta

Everyday I scan Pubmed for Autism research, it's amazing how many "nonsense" studies you have to wade through to get to anything meaningful. Juxtaposed to the NIH canceling the chelation study - that parents when surveyed said helped over 50% of ASD children (ARI data).
It's hard (as a parent who lived through nursing a very sick child back to health) to see money spent on things that wouldn't advance a mouse, much less a chronically ill child with Autism.
You want to talk about "side tracking issues" talk about eye/mouth focus instead of bleeding gastrointestinal tracts.

Gatogorra

The problem here is priorities. We're in the middle of an epidemic like the world has never seen and these monied institutions are focusing on how often the thalidomide babies flap their fins.

sdtech

Sign Lady:

Yes, instead of bubbles, which our granddaughter loved as well, look at the 2000 report on pages 11 and 21 of the 2.29.2000 Verstraeten report. There should have been between 1530 to 2324 children that received ZERO thimerosal/mercury (using the frequency chart on page 21). So what happened to those kids on the graphs for relative risk of autism? They are not there!

sdtech

http://www.nomercury.org/science/documents/ThimerosalVSDstudy_2-29-00.pdf

Pamela

Marcus,

That poor eye contact is a symptom of autism is not news. Not only is this common knowledge to anyone who knows a child with autism, eye contact is evaluated by any prefessional who diagnoses autism as a part of the official diagnostic criteria.

Let's put the money where it can be of greater use.

sdtech

Kim:

No doubt, the cart is before the horse. We should first conduct more studies to prevent autism and treat children with autism.

And regarding heavy metals, how many more studies do the CDC and the FDA and the medical community and the pharmaceutical industry require to immediately take all mercury out of vaccines?

Looking back to 2000, a report by Dr. Verstaeten (CDC) stated “As for exposure evaluated at 3 months of age, we found increasing risks of neurologic developmental disorders with increasing cumulative exposure to thimerosal” (See page 7 at http://www.nomercury.org/science/documents/ThimerosalVSDstudy_2-29-00.pdf).

The report also said on page 9 that “In conclusion, we can state that this analysis does not rule out that receipt of thimerosal-containing vaccine in children under three months of age may be related to an increased risk of neurologic developmental disorders. Specific conditions that may warrant more detailed study include autism...”

Today, eight years later, thimerosal with mercury is still in some children’s vaccines! And in vaccines given to pregnant women! Reading the package insert is the only way to tell. And “trace levels” are not trace quantities by any means. Calculating the number of these massive atoms contained in so called "trace levels" or "below detectable levels" such as a level of 25 nanograms (a nanogram is 1/1,000 of a microgram) – still gives trillions of molecules injected into the bloodstreams of babies.

sign lady

This reminds me of a blog I read recently about a major university's study of ASD kids and Bubble-Blowing Robots:

While real medical breakthroughs in autism treatment are taking place in private practices around the country, what are some of the big name universities giving us? Bubble-blowing robots. Yes folks, the geniuses at USC have decided that we should tear our children away from their video games so they can interact with robots.

They report: “ASD children in many cases interact more easily with mechanical devices than with humans.” Do we need to pay people in white coats to tell us these things? They claim this experiment is “confirming what has been widely reported anecdotally.” So they built a robot to confirm suspicions that our kids play more easily with a Gameboy than with a real boy.

If USC is looking to confirm something that has been widely reported anecdotally, I have a clue for them...

continue reading at http://theblog.autisticliving.com/

Stagmom

Marcus, these "let's see how early we can find a sign" studies to me are like trying to gauge when the first hacking cough of a lung cancer patient happened. Not much help. Moms know the signs. We don't need a pricey study in a hallowed hall to tell us when our kids are not developing typically. Yes, I'd prefer studies on treatment and prevention. Thank you.

Kim

LOL

Must have been Autism "Speaks."

Marcus

Just curious what your objection to this study is, since the objection is implied yet not explained. Is it that you prefer autism research dollars to go to treatment/cure research rather than things like severity prediction?

If that's the objection, I see why that might seem like a waste. However, although the study focuses on prediction, the eyes/mouth connection they feel they have uncovered could help other researchers understand the nature of the condition, and perhaps help move us towards better autism education methods. I am not familiar enough with this study to know how well it was done, etc., but I do many research angles contributing to our understanding over time.

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