My Semester With an Asperger's Syndrome Student*
By Allen A. Oldham*
*I am not a psychologist or otherwise professionally qualified to say for certain that “Fred,” the name I am using as a pseudonym for one of my students, has Asperger’s Syndrome. He never identified himself as such in any way, including by seeking any accommodation. I have not even been a teacher that long, having recently become an assistant professor after a 30-year career outside of academia.
Before meeting Fred, I had, however, read the popular media’s coverage of the seemingly swift rise in the reported incidence of autism-related disorders, including the controversy over whether the phenomenon was related to childhood vaccinations. After meeting Fred, I took it upon myself to do some reading. From that reading, and from my four months of interaction with Fred, I now feel comfortable that my lay diagnosis has at least some accuracy. I also recognize that there are infinite degrees of variation in the characteristics and abilities of those with autism-related disorders.
Week One
I completely miss the first clues that something is different about “Fred” during the first class of the semester in an undergraduate class when he comes up after class and fires off several questions. He is a 20-something man with shaggy hair, and wearing all gray including a gray ski jacket.
I do take notice the very next day, however, when I log on to the Blackboard site for the class and see that a student has sent me five or six e-mail messages in rapid succession following class the evening before. I usually receive only one or two e-mail messages a day from students for this class, and rarely so early in the semester and not related to an examination.
I answer the first two or so questions, with responses like “no, but see page __ of the textbook.” By the third question, however, I respond back, “Fred, you can get the answers to these questions yourself by reading the book and you should not be sending me questions unless you cannot find the answer there.” His response: a quiet, “OK.”
That same day, I start some research. First, I consult my department chair, who refers me to a seasoned professor in the same department. He tells me that Fred had enrolled 10 years or so before. My colleague volunteers that the university likely would not admit someone like Fred today, referring him instead to a community college.
My department colleague also tells me that Fred has taken my course before. That night, thinking that Fred seems to fit the profile of someone with autism and Asperger’s Syndrome, I start surfing the Web for information on those topics.
The next day is an office hours day. For non-private meeting with students, I often hold my office hours in the student lounge, bustling with other students not paying the slightest attention to others’ conversations, and located at the entrance of the school. Fred is waiting for me and holds the front door open for me. He holds a print-out of the first class’s slides, about 15 pages’ worth. While normally such a stack of paper might be about 1/16-inch thick, Fred’s stack is a fluffy one-inch tall, full of pencil marks and several highlight colors and obviously well-thumbed.
Fred wants to review most of the slides but mainly wants me to repeat back to him the points made in the slides. I recall the word I had learned from my Internet surfing on Asperger’ss the night before: “echolaic.” Several times, he says things like, “I already knew that.” If he ever makes eye contact with me, I do not see it.
During this first visit, Fred is clearly pleased with the results of the online extra credit assessment for the first chapter. In an effort to encourage students to review course material immediately after class, I make available on Blackboard, for 48 hours after each class, an online test consisting of five true-false or multiple choice questions on the chapter just completed. If every single extra credit assessment is taken and every single question answered correctly, a student can raise his or her final grade by ten percentage points. The catch is that a student must attend at least 75 percent of the classes to get the credit.
Fred has gotten four out of five correct on the first assessment and wants to make sure that I know that. I say, “Good work!.” His response is no response – he just moves on to his next clarifying question. After 30 minutes or so, I tell him I think we are done and that others ought to have a chance to ask questions. He looks quickly around the room to see if anyone else from the class is waiting, and quickly jumps up and says “OK.” I notice in class that evening that he has not signed the seating chart I pass around, but had sat in the same seat as he had in the first class: front left corner several seats removed from the next student.
Week Two
In the weekend following the first class I do more reading, including checking out of the library Ann Palmer’s “Realizing the College Dream with Autism or Asperger’s Syndrome” (2006). This is an excellent resource for confirming Fred’s symptoms but is clearly aimed more at parents than teachers. One helpful anecdote is the author describing how her son, who is autistic, had received a D+ in a college course for which he needed to earn at least a C-. The professor had turned down a request for extra credit because the student seemed disinterested during the course term.
Fred asks one question after the next class. His reaction to my answer is that he “already knew that.” Coincidentally, after that same class another student hands me an official disability accommodation form, advising me that she might need to get up and leave during classes, might need more time to take exams and might need a peer note-taker. I wonder if Fred would benefit from such accommodations.
Fred sends off three e-mail questions after class, either not requiring a response or at most requiring a response of “That’s right.”
During office hours that week, he finds me quickly and we review the class slides. Taking a verbal cue from me that we were about done after reviewing each and every slide, he quickly stands up and leaves the table. Later, I pass him in the computer lab, ski jacketed, staring at the next class’s slides just a few inches from the PC monitor.
Week Three
In the previous two weeks, I had posted my class slides on Blackboard several days in advance. I fail to get the slides up by 24 hours before a class this week, however, and Fred calls that to my attention by e-mail. He also wants me to recognize that he had scored a100 percent on an extra credit assessment.
Week Four
I am not able to have in-person office hours this week, so I experiment with the real-time “Chatboard” feature of Blackboard. There is only one student online, Fred.
Week Five
This is the week of the first exam. Fred has more than his usual four or five e-mail messages that week in advance of the exam, asking questions like “What do I need to know about…?.”
After the exam, for which I use a Scantron form, I can pick Fred’s form out of the other forms even if he had not put his name it, because he has darkened the answer bubbles with ferocity. With trepidation, I immediately run the forms through the scoring machine after class. My heart sinks when his form zips through with a score below a “C”.
Week Six
During office hours in the student lounge, Fred is not the first to see me. However, after spending 30 minutes or so with two other students I notice out of the corner of my eye that he is sitting behind me several feet away, and facing away. When it is Fred’s turn, he wants to review his exam. He is clearly disappointed in his results, but brightens when I note that he has gotten all of the questions right on a particular topic. I ask him what he had done differently on that chapter, and he seems puzzled. Still, it gives me something positive to talk about with him.
Weeks Seven and Eight
I am still receiving about 15 e-mails per week from Fred. Most do not require a response, or are in the nature of “What do I need to know about….” He does not participate in the second Chatboard substitute for office hours.
Week Nine
Fred greets me at the front door of the school for office hours this week, immediately before the second exam, but tells me that he does not have any questions for me “right away.” He sits a few feet away from me while I talk to other students (but out of earshot, I think). I notice that he is reading a review book for the subject of the course (not used by me in the course), in preparation for the second exam.
I am relieved to see that he scores better on the second exam than he had on the first. Perhaps not surprisingly, he does not miss the same questions most often missed by the other students. Even as a new teacher, I know how predictable it is that the same questions will be missed most often, even in different classes taking the same exam. When I do not have the results posted as quickly as I did for the first exam, Fred asks me via e-mail when I will have them posted.
After the results are posted, Fred immediately advises me of what his class average is, and asks me what he can be doing over Spring break to prepare for the classes after the break. This saddens me to think that he does not see the vacation as a respite but rather as an annoying deviation in routine.
Week Ten
I read “Thinking in Pictures” by Temple Grandin, a Ph.D in Animal Science, who is autistic but also a recognized expert on livestock behavior and facility design. I wonder if my use of pictures and other visuals are helpful to Fred. Grandin’s book is inspirational but a bit depressing in its coverage of most of the author’s experiences as a student.
Week Eleven
Fred sends me a reminder e-mail that the slides for a particular class are not ready when they normally are. During office hours, he sits within sight but out of earshot while I talk to a spirited student about a wide variety of topics some of which are not related to the class. He pronounces the student preceding him a “piece of work!”. He also is perplexed by a prior class’s discussion involving a gay man serving as a dressing room attendant at a women’s undergarment apparel chain. I detect both some hostility as well as puzzlement.
Week Twelve
In e-mails, Fred seems to challenge the answers to several of the extra credit assessments that he gets wrong. He defiantly asks how he was “supposed to know” the meaning of a word (“adjudicate”) that I had not defined. I wonder what the reason for his irritability is.
I catch a teaser on a morning news program on autism in college. The program describes a program at Marshall University where autistic students are provided with a hands-on disability coordinator and an organization called Higher Education and Autism Spectrum Disorders, Inc., dealing with all aspects surrounding the experience for students with autism spectrum disorders in higher education settings.
Weeks Thirteen and Fourteen
I get a reminder from Fred when I am late in posting class slides, although one other student also does so. He scores a 100 percent on an extra credit assessment and I say “Great work!” in an e-mail to him. During office hours, he asks me if on the final exam I will test on a concept that is taught at the post-bachelor degree level only, and I say simply, “No”, and he moves on. Mentally, I am trying to remember the concept myself.
Last Week of Class and Final Exam
Fred has his usual questions during office hours, based on well-worn copies of class slides. He tells me that he has gone to a Web site to do his own reading, even though I had never suggested doing so. He also tells me that his “advisor” had given him a particular piece of advice about test-taking. Intrigued, I ask him the name of his advisor. I consider calling the advisor, but decide to wait to see what Fred’s final grade turns out to be. I look him up and see that he is a “general studies” advisor.
I am out of town for the final exam, given in the late afternoon during finals week, and have it proctored by a student assistant. At 8:44 am the following morning I have an e-mail from Fred asking me when the results of the exam will be available.
After returning from out of town, I gather up the exams and head toward the Scantron machine, with Fred’s grade top of mind. Again, I notice that his form is heavily marked. I am somewhat relieved to see that his score is slightly above the second exam score. I head to my office to see how the math works out after taking into account his extra credit assessment points. With those points, Fred’s final grade works out to be … in the interest of further protecting Fred’s privacy, let’s just say it was respectable.
Lessons Learned and Observations – About Fred
Asperger’s individuals often are sensitive to touch and wear loose-fitting clothing. Fred never did vary his clothing much.
Fred did not tolerate changes in routine, including last-minute posting of class slides, another classic Asperger’s symptom.
He did not want confrontation, even if his tone or behavior might indicate otherwise.
Fred wanted to be treated like every other student. Hence, my decisions not to ask him if he has Asperger’s and never to let on to him that I knew this was his second shot at the course were probably wise decisions.
Fred never indicated that he “thought in pictures” or otherwise relied on my pictures and other visuals to remember the material. During office hours, however, he did recall my examples used during class.
The extra credit assessments were a benefit to Fred, I believe. He could take them anonymously immediately after class (indeed, I suspect he raced to the school’s computer lab immediately after class, because he never asked another question following class, after the second class). He scored better on these exams than he did on the regular exams, thereby boosting his grade from one level to another. The exams’ immediate testing of materials covered just hours or even minutes before might have appealed to his desire to echo back what he has learned.
Fred craved clarification. His questions constantly sought the key to his knowing the right answers. Even his last e-mail to me upon reading his final grade and my congratulatory note revealed his desire for certainty: “It looks like I got __% on exam 3 and a __ for the class?” My response: “That’s correct – good work!”
And one more thing: Fred had perfect attendance.
Lessons Learned and Observations – About the Teacher
My experience demonstrated several limitations we as teachers face with learning-disabled students: lack of knowledge about the disability itself; restraints arising from privacy rules; and lack of time to fully meet the student’s needs.
Fred’s failure to self-identify his condition put me in an uncomfortable box: asking him about his situation could mean offending him and violating his privacy, but not asking him would also mean not being able to direct him resources that might help him.
We all must make adjustments for our students’ particular needs in each class. Just as an eager non-English speaking student in the front row makes us realize that we cannot use too many colloquialisms and local examples, so too did I realize that much of what Fred needed was simple repetition of key concepts.
If the incidence of autism is indeed rising, all college teachers might need to learn to make adjustments for these students, who undoubtedly will seek higher education.
Allen A. Oldham is the pseudonym of an assistant professor at a large research university.
What a touching post. As a mother of a doctoral student w/Asperger's, my heart aches for "Fred"--AS persons are quite varied, and each handles situations differently, but, to me, watching the frustration and social isolation of my son throughout his academic career has been a painful journey.
As a teacher and sometimes adjunct professor, I have had students who displayed similar idiosyncrancies, and have hurt for them and tried to work with them--and the system certainly does NOT encourage that! The worst case was a gifted young man in a private and exclusive high school--I could do nothing but encourage him in his studies and talk to him about his "projects" because he was isolated by the other students who labeled him "weird". Yet, he had so much to offer. And, he was not "afforded" the compensation--extra time on tests, etc.--as the ADHD/ADD students who had diagnosis in hand.
As an AS mother, I thank you for being so observant to the needs of your students. I wish more would be that way.
Posted by: j. | August 24, 2008 at 09:50 AM
Hi, Appalachia. I'm Kim, I run Age of Autism. Your comment really touched me. Thanks so much for coming in.
Kim
Posted by: Stagmom | August 23, 2008 at 09:25 AM
As I read about Fred, I recognized myself as I was many years ago when I was in college, never quite fulfilling my own or others' expectation. I was fortunate in that I attended a college where there were never more than 15 students in a class and close personal attention by the faculty was the norm. AS a voice major I could master the intellectual aspects of any vocal piece, but the emotional meaning was never reflected in performance and the feel of the voice. Why would I choose such a public major as vocal performance? Because I had the gift of a voice. While I struggled, other students with lesser voices performed with warmth and understanding of the text and music. I recall performing a Brahms Ballade on the piano at student recital. I got every note exactly right, but was perplexed when I found out that my teacher was not pleased. I could talk about feelings but not reflect them or feel them.
I put much time and effort into concentrating and focusing. I found that I could overcome my inability to retain the details of class lectures and readings by writing and rewriting notes many times. I could write but not organize more than a paragraph or two into the paper as a whole. Too many ideas were swirling around in my head. Yet I was considered a bright if a bit unconventional student by my fellows and other students. I have spent a lifetime dealing with these and other symptoms of AS, but never got the diagnosis until last year. I was variously described and treated for bi-polar disorder and anxiety disorder. It was not until a psychiatrist spotted my ADHD which I had cleverly covered up in my life by dint of a great deal of effort, and added it to the other signs to give me the diagnosis when I asked him to re-consider my diagnosis. I'm not sure he would ever have volunteered if I had not asked because at least some patients would have been upset at this diagnosis coming at 70 plus years of age. It does not bother me that I have AS because that diagnosis explains so much about both my travails and triumphs.
I congratulate Allen for noticing that Fred was different and undoubtedly helping him to better himself as a student. An understanding and patient teacher can do nearly as much, sometimes more, than a therapist in my opinion. I had one such teacher in high school and three or four in college who were willing to deal with a person who was considered at that time to be highly individualistic or eccentric many years before the diagnosis of AS was known outside of Germany.
Posted by: Appalachia | August 22, 2008 at 11:18 PM
From "across the pond":- Dear Allen, For your student with possible eyesight problems it might make a world of difference to your student if somehow a standard eyesight test could be arranged. Additionally, some ASD children have difficulty reading black letters on white paper because they "wobble". I know that Irlen lenses can help some ASD children, polarised sunglasses others and a specialist optician (?American equivalent) can prescribe coloured lenses on an individual basis (would you believe some ASD children see better through pink lenses?). A special needs teacher of my acquaintance informed me that coloured plastic file folders made a good, if makeshift, test for what might work with an individual child.
Also, there is a condition called "hyperlexia" where an ASD child can read anything you give it (excellent decoding skills) but has great difficulty comprehending the ideas behind the words, that is, subtexts and "reading between the lines" to infer meanings.
One thing that commonly bugs ASD children on supermarket visits is the overload of sensory input from the bright colours, high light levels and fluorescent lighting (some ASD children can see the individual flickers and hear the noise of a faulty fluorescent tube). So many schools use fluorescent tubes yet they can really upset ASD children. The general term now being used in the UK (and I think also the USA) is "sensory issues" which also covers sensitive hearing (hyperacusis), sensitive skin (itchy/scratchy clothing), taste and texture issues with food and no doubt other things other people can tell you.
Please forgive me if, to use an old English saying, I'm "teaching my grandmother how to suck eggs".
Posted by: ElizaCassandra | August 21, 2008 at 06:52 PM
From "across the pond":- Dear "Get Over Yourself", for starters please choose another name, that's a most unpleasant user-name.
My ASD daughter is now nearly eighteen but, sadly, although reasonably intelligent, has been unable to tolerate any form of academic pressure. Her school career has been acknowledged by them to have been a learning process for all the teachers who've had the task of teaching her (I'm grateful to them for all their efforts). I'm also grateful to Allen A. Oldham for taking the time and trouble to conscientiously observe this student so carefully rather than take the easy way out and allow him to fail again. With the movement of Asperger's teenagers into further education, caring teachers like this one will be essential for their academic survival.
In our small community my ASD daughter was one of the first "autistic cluster" to be identified in the early 90s. This cluster hasn't diminished in any way and is causing concern to teachers and other professionals in the caring professions. I've recently advised a friend whose teenage daughter plans to become a teacher that there will be a job for her teaching autistic children if she cares to specialise in special needs children.
My ASD daughter attends a specialist boarding school which is now planning what I suppose you'd call "group homes" to cater for those students whose parents can no longer (through age/illness/whatever) care 24/7 for their ASD children in adulthood. If the need wasn't there then they wouldn't be doing it, would they?
On a personal note, for the past who knows how many years I've tried to get through to my dear, dear daughter that Mum is slightly deaf and can she please turn her face to Mum so the sound waves come to me. In this I've failed, I now have a hearing aid but my dear, dear daughter still won't/can't turn her face to me. That is one measure of her autism.
Posted by: ElizaCassandra | August 21, 2008 at 05:17 PM
I find it irritating that this teacher treats "Fred" like a specimen under a microscope. What exactly did "Fred" do that was so freakish? There are lots of different types of people in the world and, yes, some even have Asperger's Syndrome. Oh my...stop the presses!
Since this teacher is not a physician, I suggest he stick to teaching and stop publishing hurtful, nitpicking "studies" of his hard-working students. What is the point of trying to decide if "Fred" has AS? Who cares. Just teach your class and keep this kind of junior sleuthing to yourself. Otherwise, I wait with bated breath over the next piece: "My Semester With a Deaf Student (At Least I Think She Was Deaf, Because She Was Pretty Weird and I Think I Saw A Little Plastic Thing In Her Ear)."
Posted by: Get Over Yourself | August 21, 2008 at 04:27 PM
Great story. You sound like a GREAT teacher.
Thank You, I wish all Fred's had a teacher like you.
Posted by: Jeff | August 21, 2008 at 02:27 PM
Allen,
Very impressed by your inquisitiveness in trying to help and understand your student. Its a catch-22 when he hasn't identified himself as needing accomodations.
From some of your comments - I'm wondering if he has vision problems (close to compueter) - does he wear glasses - certainly woudn't know if he has contacts. Or perhaps, he can't read (dyslexia?) and relies on class and verbal changes to learn?
Just my .02
I'm glad colleges are beginning to deal with ASD - lord knows there's a whole tidal wave of kids coming - hopefully in 12 years my kiddo will be there!
Diane
Posted by: diane | August 21, 2008 at 12:09 PM
This professor has a natural ability to see a students difference and accept it. Is it something you have to be born with or can we teach future teachers how easy it is to do? Reading this article I felt that he found his experience to be rewarding. What a great thing.
Posted by: Karen Fuller Yuba City | August 21, 2008 at 12:01 PM
This is so good to read as it shows that there are teachers out there who are willing to take the extra step, even if a diagnosis is "uncomfirmed". I just wish that teachers would do this all the time!
Posted by: Krystal | August 21, 2008 at 10:46 AM