THE NAKED AUTHOR STRIPS AUTISM BARE
Thank you to Cornelia Read of The Naked Authors and mother of a 14 year old daughter who is profoundly affected by her autism. By profoundly, I mean in ways I can not fathom. And I have three girls with autism. Even if you only scroll down to the bottom of the post - take a look at that beautiful young girl. And think hard. The post parallels the vaccine/autism controversy with the history of drugs and products long removed from the market or given stark warning labels. I warn you, this post is long. It's intense. It's the work of a creative, talented mother who loves her child. If you want the CODE for it so you can run it on your own blog, email me at kim stagliano at gmail.
By Cornelia Read There's a topic I've wanted to blog about here for a long time, but it's pretty heavy stuff--not exactly the bright and breezy fare most people want to skim through online while sipping their morning beverage of choice. Over the last year or so, every time I said to myself, "hey, maybe this week, if I can just get my head around a way to make the info meaningful and compelling... to personalize it somehow so that it's not a complete drag to ingest, but yet not so bereft of necessary info that it's easy to blow off..." I'd end up scuppering the whole thing as impossible to convey. I'm still not sure I can make a blog post out of this that won't put you to sleep, but something happened this month that makes me feel like it's really, really important that I give it my very best effort right now, okay?
I'm going to do my damnedest not to make this boring, or strident, or "you can save this child or you can turn the page"-esque. In fact, I'm not going to start off with the topic itself. I want to just loosely float two ideas first--kind of a warmup. Anedoctal stuff. The first thing is a story I read some years ago. I don't remember exactly when or where (the New Yorker? The Sunday New York Times?) It was just a snippet from an article about something else, but it's really stuck with me for a lot of reasons. The gist of it is that there was this guy--a journalist--who happened to be friends with an astonishingly successful investor. This investor had made serious BOATLOADS of money in the stock market, and one day his buddy, the journalist dude, got curious about the way his own line of work might be tied into his friend's success, so asked him which news outlets he'd relied on for accurate information on which to base his buying and selling decisions. Newspapers? Magazines? Television news reports? Here's what the investor said (I'm paraphrasing more, from here on out), "None." How can that be? asked his friend, to which the gazillionaire dude replied, "I realized a long time ago that there are two subjects in the world about which I know a great deal. One is sailing, and the other is cabbage varieties. And about twenty years ago, it occured to me that every time either sailing or cabbages were discussed in the mainstream press, the writers got nearly everything wrong. Well, after a while, I started to wonder why I believed them about things I didn't know about. I mean, what was the likelihood that they were conveying accurate, well-researched information on everything but boats and cabbage? So that's when I stopped relying on journalists' information as a basis for my business decisions. And I've made a great deal of money ever since." So, my Nakeds, do me a favor and think about a subject you really know by heart--I don't care what it is: your hometown, your favorite breed of pet, or classic muscle-car engines or ham radio... ...or a medical condition that you or someone near and dear to you has battled for a long time--something you have a bone-deep, working knowledge of. Got it? Now ask yourself... when there's an article on that topic in Time or Newsweek, or even the New York Times or the Wall Street Journal, do they get it right? Or do you, like me, tend to read those pieces expecting to be disappointed, and sometimes skip them altogether because even the headline is idiotic, because it's just such a goddamn drag to read the fulminations of some J-school grad who skimmed the clips file and/or gave the topic a desultory Google before banging together a cursory overview of same by deadline? Yeah, I thought so. Please file that feeling away for a bit. Which leads us to... Which can basically be summed up: the older I get, the less faith I have in "Miracle Medical Breakthroughs!" I mean, let's just look at the info propounded by "the experts" on the subject of diet and nutrition since I was in my teens: low-fat one decade, low-carbs the next...eggs will kill you, eggs will save you...Italians don't have heart attacks because they eat olive oil, French people don't have heart attacks because they drink red wine... blueberries are God, dark chocolate may save your life, monkeys live twice as long if you cut their calorie consumption in half, people in the Caucausus live to be 150 because they eat yogurt, salmon will make you smarter, pregant women shouldn't eat tuna sandwiches because they have too much mercury in them... And does anyone else remember those ubiquitous Seventies ads in the back of Cosmo and Seventeen about the kelp/B-6/cider vinegar/fourth-ingredient-I-can't-remember miracle weightloss program? That one sounded about as good as eating I remember one stepfather in the mid-seventies who dumped wheat bran on whatever he ate, because it was supposed to cure everything. Then after that he wouldn't eat salt. Then it was red meat. The year following was his swiss-chard period, I think. I was thank GOD away at school when he discovered high colonics, because he was also fond of lecturing all of us at the dinner table on the importance of whichever new thing he'd become a devotee of. He was incredibly boring--not to mention cranky--most of the time. And guess what? He died anyway, having arrived at the exact median age of life expectancy for an American male that year. So, you know--all those medical breakthroughs! pronouncements! miracles!...? I tend to reserve judgment. I'm not against western medicine--I love my penicillin and Excedrin and Motrin and Celexa and suture scars as much as the next person, and it's seriously wonderful that we've got smallpox on the run and don't have a whole lot of use for iron lungs anymore. But... I also keep in mind the fact that western medical practitioners spent several centuries touting the benefits of leeches and "a good bleeding," while pooh-poohing the radical idea that one might want to wash one's hands (or one's saw) before performing, say, an amputation. Let's take a look at another health issue that's seen a great deal of "expert" see-sawing over the course of, say, the last seventy years. Anyone remember these ads? I'm a little young to have run across them first hand: How 'bout we zero in on smoking for a minute, okay? I'm going to cite some stats and a bit of a timeline, briefly (click here if you want backup) The first study linking cigarettes to lung cancer was published in 1939. The first statement from the Surgeon General on the topic was published in the Journal of the American Medical Association in November, 1959. On June 7, 1962, another Surgeon General announced that he was establishing an "expert committee to undertake a comprehensive review of all data on smoking and health." On January 11, 1964, after some 15 months of intensive study, this committee--half the members of which were smokers-- issued its unanimous report stating that "cigarette smoking is a health hazard of sufficient importance in the United States to warrant, appropriate remedial action." The government recommended that a warning label be printed on all packs of cigarettes sold in this country as of January 1, 1965, and in all cigarette advertising six months later. The tobacco industry then prevailed upon Congress to change the proposed wording from "Caution: Cigarette 'Smoking is Dangerous to Health. It May Cause Death from Cancer and Other Diseases" to "Cigarette Smoking May be Hazardous to Your Health," with the passage of the Cigarette Labeling and Advertising Act of 1965. This act also prohibited the Federal Trade Commission and state and local governments from requiring any other label on cigarette packages and any warnings at all in cigarette advertising before 1969. Okay, got that? A reputable, peer-reviewed study links cigarettes to lung cancer in 1939, no official statement was issued by federal health officials until 1959 AND the words "may be hazardous to your health" couldn't be included in cigarette ads--newspaper, magazine, radio, and television--until 1969. A New York Times editorial called Congress's cigarette labeling and advertising act "a shocking piece of special-interest legislation--a bill to protect the economic health of the tobacco industry by freeing it of proper regulation." An article in the Atlantic Monthly described the political maneuvering behind the legislation under the title "The Quiet Victory of the Cigarette Lobby: How It Found the Best Filter Yet--Congress." Now let's take a look at current tobacco-based revenues, campaign contributions, and lobbying expenditures of America's three biggest tobacco companies (citation):
Altria Group (Philip Morris) 2006 Tobacco Revenues: $66.7 billion 2008 Election cycle political contributions by Altria Group PAC: $986,500 2007 Lobbying expenditures: $7.2 million Reynolds American (RJ Reynolds) 2006 Revenues: $8.5 billion 2008 Election cycle political contributions by RJ Reynolds PAC: $770,500 2007 Lobbying expenditures: $1.95 million Loews Corp (Lorillard) 2006 Tobacco Revenues: $3.9 billion 2008 Election cycle political contributions by Lorillard PAC: $175,250 2007 Total Lobbying expenditures: $1.96 million Overall Tobacco Industry Political Contributions since 1997: more than $34.7 million
Here endeth the second intro topic-- a recap: medical experts often reverse themselves over time, and it took the U.S. Government nigh on thirty years after the first study linking cigarette smoking to lung cancer to officially warn citizens about the dangers of smoking. Enter topic the third... If you think the tobacco companies spend a lot of money on lobbying and campaign donations, let's do a little comparison on how they rate compared to the pharmaceutical industry, in this country...
Tobacco (between 1997 and 2007): $34.7 million Pharmaceuticals (for same period): $675 million
Oh, wait, those figures aren't exactly comparable... that second amount is for lobbying alone--it doesn't include the drug companies' political campaign contributions, in the United States. Here's another figure that might give a small idea of the pharmaceutical industry's global clout --the amount spent on marketing (and "administrative costs") by the 11 biggest drug companies in 2004:
And here's what they reported spending on research and development that year: $50 billion. When Dr. Marcia Angell stepped down from her post as the edtior-in-chief of the New England Journal of Medicine last year, she published therein a scathing parting-shot takedown of the pharmaceutical industry's impact on contemporary medical practice. My favorite paragraph is the following, in which she says of the pharmaceutical companies' marketing budgets:
The industry depicts these huge expenditures as serving an educational function. It contends that doctors and the public learn about new and useful drugs in this way. Unfortunately, many doctors do indeed rely on drug-company representatives and promotional materials to learn about new drugs, and much of the public learns from direct-to-consumer advertising. But to rely on the drug companies for unbiased evaluations of their products makes about as much sense as relying on beer companies to teach us about alcoholism.
It's not just doctors and consumers who may be lead astray by these expenditures, however, but the very state and federal regulatory agencies we rely upon to safeguard the public health. Quoting from government transcripts obtained via the Freedom of Information Act, Robert F. Kennedy Jr. wrote in a 2005 article published in Rolling Stone that:
In June 2000, a group of top government scientists and health officials gathered for a meeting at the isolated Simpsonwood conference center in Norcross, Georgia. Convened by the Centers for Disease Control and Prevention, the meeting was held at this Methodist retreat center, nestled in wooded farmland next to the Chattahoochee River, to ensure complete secrecy. The agency had issued no public announcement of the session -- only private invitations to fifty-two attendees. There were high-level officials from the CDC and the Food and Drug Administration, the top vaccine specialist from the World Health Organization in Geneva and representatives of every major vaccine manufacturer, including GlaxoSmithKline, Merck, Wyeth and Aventis Pasteur. All of the scientific data under discussion, CDC officials repeatedly reminded the participants, was strictly "embargoed." There would be no making photocopies of documents, no taking papers with them when they left. The federal officials and industry representatives had assembled to discuss a disturbing new study that raised alarming questions about the safety of a host of common childhood vaccines administered to infants and young children. According to a CDC epidemiologist named Tom Verstraeten, who had analyzed the agency's massive database containing the medical records of 100,000 children, a mercury-based preservative in the vaccines -- thimerosal -- appeared to be responsible for a dramatic increase in autism and a host of other neurological disorders among children. "I was actually stunned by what I saw," Verstraeten told those assembled at Simpsonwood, citing the staggering number of earlier studies that indicate a link between thimerosal and speech delays, attention-deficit disorder, hyperactivity and autism. Since 1991, when the CDC and the FDA had recommended that three additional vaccines laced with the preservative be given to extremely young infants -- in one case, within hours of birth -- the estimated number of cases of autism had increased fifteenfold, from one in every 2,500 children to one in 166 children.
Verstraeten wasn't alone in expressing concern. The transcripts record Dr. Bill Weil, a consultant for the American Academy of Pediatrics, as saying, "You can play with this all you want,... [The results] are statistically significant." Dr. Richard Johnston, an immunologist and pediatrician from the University of Colorado whose grandson had been born early on the morning of the meeting's first day, said "My gut feeling? Forgive this personal comment -- I do not want my grandson to get a thimerosal-containing vaccine until we know better what is going on." But the conversation didn't then turn to ways to ensure public safety. Dr. Robert Brent, a pediatrician at Delaware's Alfred I. duPont Hospital for Children was more worried about the possibility that, "We are in a bad position from the standpoint of defending any lawsuits. This will be a resource to our very busy plaintiff attorneys in this country." Dr. Bob Chen, head of vaccine safety for the CDC, chimed in with the assertion that, "given the sensitivity of the information, we have been able to keep it out of the hands of, let's say, less responsible hands." Dr. John Clements, vaccines advisor at the World Health Organization, declared that "perhaps this study should not have been done at all," adding, "the research results have to be handled," that the results of the study, "will be taken by others and will be used in other ways beyond the control of this group." Adds Kennedy, at this point:
In fact, the government has proved to be far more adept at handling the damage than at protecting children's health. The CDC paid the Institute of Medicine to conduct a new study to whitewash the risks of thimerosal, ordering researchers to "rule out" the chemical's link to autism. It withheld Verstraeten's findings, even though they had been slated for immediate publication, and told other scientists that his original data had been "lost" and could not be replicated. And to thwart the Freedom of Information Act, it handed its giant database of vaccine records over to a private company, declaring it off-limits to researchers. By the time Verstraeten finally published his study in 2003, he had gone to work for GlaxoSmithKline and reworked his data to bury the link between thimerosal and autism. Vaccine manufacturers had already begun to phase thimerosal out of injections given to American infants -- but they continued to sell off their mercury-based supplies of vaccines until last year . The CDC and FDA gave them a hand, buying up the tainted vaccines for export to developing countries and allowing drug companies to continue using the preservative in some American vaccines -- including several pediatric flu shots as well as tetanus boosters routinely given to eleven-year-olds.
Former Senate Majority Leader Bill Frist, who received $873,000 in contributions from pharmaceutical companies, slipped a "rider" into a Homeland Security bill in 2002, protecting vaccine manufacturers from lawsuits brought by those who suffer vaccine injury--this despite the fact that any vaccine-injury cases ALREADY have to be brought to trial in a special federal Vaccine Court. Eli Lilly, the company that manufactures Thimerosal, contributed $10,000 to Frist's campaign fund the next day, then bought 5,000 copies of his book on bioterrorism. Kennedy adds:
The measure was repealed by Congress in 2003 -- but earlier this year, Frist slipped another provision into an anti-terrorism bill that would deny compensation to children suffering from vaccine-related brain disorders. "The lawsuits are of such magnitude that they could put vaccine producers out of business and limit our capacity to deal with a biological attack by terrorists," says Dean Rosen, health policy adviser to Frist.
But wait, there's more... On five separate occasions, Frist has tried to seal all of the government's vaccine-related documents -- including the Simpsonwood meeting transcripts. But what do we read about all of this in the mainstream press? Let's see, there was the study claiming that "autism is caused by drinking during pregnancy" this week, that got global play. Last year it was "autism is caused by watching television." And there are countless articles in the New York Times and Wall Street Journal assuring readers that "all reputable studies prove there's no link between vaccines and autism," that "autism rates have not gone down since ALL thimerosal was removed from ALL vaccines in 2001" and a great many characterizing concerned parents of autistic children as desperate for someone or something to blame for their children's condition or as lawsuit-hungry money grubbers. Have autism rates gone down since thimerosal was phased out of vaccines, starting in 2001? Nobody knows. Can you believe that? Seriously, there's been no effort on the part of the CDC or any other federal agency to gather national data on that front. California is the only state that keeps records of those receiving developmental disabilities services which are categorized by specific disability. It was California's numbers, in fact, which first confirmed what parents had long suspected---and "experts" long denied--that the rate of autism among young children in this country started skyrocketing in the 1990s. If California's rates went down, that might be an indicator that removal of thimerosal was making some kind of a difference, right? Let's just ignore the Associated Press article published in 2005 that announced "The number of new cases of autism in California has fallen for the first time in more than 10 years in what may be a bellwether for autism rates nationwide, according to new data compiled by the state Department of Developmental Services." Everyone else ignored it, after all. And any parent who tries to bring it up is branded a crazed Luddite, or worse. Michelle Malkin, with whom I don't always see eye-to-eye politically except on this topic, blogged "In defense of parents with informed vaccine skepticism" on March 24th: The New York Times published a piece today about parents choosing not to expose their children to certain vaccines. This prompted blogger condemnations of those parents as “Bobo sociopaths” and a recommendation from Glenn Reynolds that “we should make clear that parents who, with no genuine medical reason, forego vaccinating their kids are bad parents, and bad citizens.”
Look, I could run you through the flaws in the studies routinely cited in that type of article (the Danish one, the Israeli one, etc.), or the differences in the way ethyl and methyl mercury break down in the body (not many), or the still-toxic and untested preservatives that have replaced thimerosal in multi-dose vials of vaccines, or the study performed at Columbia on the aberrant behaviors of infant mice injected with thimerosal, or the similarities in symptoms between autism and mercury poisoning, or the fact that among thousands of Amish people in Pennsylvania (virtually non-vaccinated, as a population) only a handful of kids were found with any form of autism--one who'd been adopted in China and three who'd received vaccinations--when the expected number per that population would be around 130 affected individuals, or the hypothesis that autistic kids may lack the proper metabolic apparatus to excrete heavy metals as quickly as "typically developing" kids, or statistics on how much mercury is still in a number of shots administered routinely to infants and children and pregnant women (flu, tetanus, Rhogam, etc.)--because that's my version of the genius investor's "cabbages and sailing," these days.... (please run your mouse over the text of the previous two paragraphs to click through to studies cited--for some reason the hyperlinks aren't highlighted) But I don't want to bore you any more than necessary, and besides, as a "bad parent and bad citizen," I'll let Kennedy speak to the history of the issue instead:
The New York Times published a piece today about parents choosing not to expose their children to certain vaccines. This prompted blogger condemnations of those parents as “Bobo sociopaths” and a recommendation from Glenn Reynolds that “we should make clear that parents who, with no genuine medical reason, forego vaccinating their kids are bad parents, and bad citizens.”
During the Second World War, when the Department of Defense used the preservative in vaccines on soldiers, it required Lilly to label it "poison." In 1967, a study in Applied Microbiology found that thimerosal killed mice when added to injected vaccines. Four years later, Lilly's own studies discerned that thimerosal was "toxic to tissue cells" in concentrations as low as one part per million -- 100 times weaker than the concentration in a typical vaccine. Even so, the company continued to promote thimerosal as "nontoxic" and also incorporated it into topical disinfectants. In 1977, ten babies at a Toronto hospital died when an antiseptic preserved with thimerosal was dabbed onto their umbilical cords. In 1982, the FDA proposed a ban on over-the-counter products that contained thimerosal, and in 1991 the agency considered banning it from animal vaccines. But tragically, that same year, the CDC recommended that infants be injected with a series of mercury-laced vaccines. Newborns would be vaccinated for hepatitis B within twenty-four hours of birth, and two-month-old infants would be immunized for haemophilus influenzae B and diphtheria-tetanus-pertussis. The drug industry knew the additional vaccines posed a danger. The same year that the CDC approved the new vaccines, Dr. Maurice Hilleman, one of the fathers of Merck's vaccine programs, warned the company that six-month-olds who were administered the shots would suffer dangerous exposure to mercury. He recommended that thimerosal be discontinued, "especially when used on infants and children," noting that the industry knew of nontoxic alternatives. "The best way to go," he added, "is to switch to dispensing the actual vaccines without adding preservatives."... Rep. Dan Burton, a Republican from Indiana, oversaw a three-year investigation of thimerosal after his grandson was diagnosed with autism. "Thimerosal used as a preservative in vaccines is directly related to the autism epidemic," his House Government Reform Committee concluded in its final report. "This epidemic in all probability may have been prevented or curtailed had the FDA not been asleep at the switch regarding a lack of safety data regarding injected thimerosal, a known neurotoxin." The FDA and other public-health agencies failed to act, the committee added, out of "institutional malfeasance for self protection" and "misplaced protectionism of the pharmaceutical industry."
And now I'd like to quote some numbers recently put forth by a toxicologist named Michael F. Wagnitz, in a rebuttal letter to the editors of Pediatrics, the journal of the American Academy of Pediatrics. Wagnitz introduced his list by writing, "Parents get angry when they see the following numbers listed on the internet. These numbers have been out there for everyone to read for years." Here are the numbers he cited:
0.5 parts per billion (ppb) mercury = Kills human neuroblastoma cells (Parran et al., Toxicol Sci 2005; 86: 132-140). 2 ppb mercury = U.S. EPA limit for drinking water http://www.epa.gov/safewater/contaminants/index.html#mcls 20 ppb mercury = Neurite membrane structure destroyed (Leong et al., Neuroreport 2001; 12: 733-37). 200 ppb mercury = level in liquid the EPA classifies as hazardous waste. http://www.epa.gov/epaoswer/hazwaste/mercury/regs.htm#hazwaste 25,000 ppb mercury = Concentration of mercury in the Hepatitis B vaccine, administered at birth in the U.S., from 1990-2001. 50,000 ppb mercury = Concentration of mercury in multi-dose DTaP and Haemophilus B vaccine vials, administered 4 times each in the 1990's to children at 2, 4, 6, 12 and 18 months of age. Current "preservative" level mercury in multi-dose flu (94% of supply), meningococcal and tetanus (7 and older) vaccines. This can be confirmed by simply analyzing the multi- dose vials.
Oh yeah, I forgot to mention that Wagnitz has a conflict of interest: he's the father of an autistic child. Way back near the beginning of this post, remember how I said that something happened this month which made me feel it was necessary to at long last write a blog post on, as it turns out, thimerosal? Here's the event I spoke of: the government decided in favor of the plaintiffs in one of the first Vaccine Injury Court autism test cases to go to trial. That's right, folks, a judge representing the United States government decided that the family of an autistic girl was entitled to a monetary award, because it indeed seems evident that her condition was caused by "routine childhood vaccinations." The anti-vaccine-hypothesis gang got started on spinning the verdict immediately--most by claiming that the girl, Hannah Poling, wasn't "typical" of autistic children, in that she had a metabolic disorder exacerbated by vaccines, and that therefore the metabolic disorder is itself responsible for her "autistic symptoms." There are still nearly 5,000 such cases pending in the special court. I would be cynical if I thought that might have something to do with the intensity of the spin. And yet... the online version of Time magazine had the courage to look at the facts of the case without the disimissive attitude so many of us have come to expect from the "mainstream" media, in an article titled “Case Study: Autism and Vaccines.” The piece opened as follows:
What happened to little, red-haired Hannah Poling is hardly unique in the world of autism. She had an uneventful birth; she seemed to be developing normally-smiling, babbling, engaging in imaginative play, speaking about 20 words by 19 months. And then, right after receiving a bunch of vaccines, she fell ill and it all stopped. Hannah, now 9, recovered from her acute illness but she lost her words, her eye contact and, in a manner of months, began exhibiting the repetitive behaviors and social withdrawal that typify autism. “Something happened after the vaccines," says her mom, Terry Poling, who is a registered nurse and an attorney. “She just deteriorated and never came back."
Hannah Poling's father, by the way, is a neurologist. Here's one official's response to the court's ruling in the Poling case:
"Our message to parents is that immunization is life-saving," Dr. Julie L. Gerberding, the CDC's director, said at a hastily convened conference call with reporters.
"There's nothing changed. . . . This is proven to save lives and is an essential component of protection for children across America and around the world."
Gerberding further commented:
“Let me be very clear that (the) government has made absolutely no statement indicating that vaccines are a cause of autism. That is a complete mischaracterisation of the findings of the case, and a complete mischaracterisation of any of the science that we have at our disposal today.”
The Time article, however, went on to say:
...there’s no denying that the court’s decision to award damages to the Poling family puts a chink--a question mark--in what had been an unqualified defense of vaccine safety with regard to autism. If Hannah Poling had an underlying condition that made her vulnerable to being harmed by vaccines, it stands to reason that other children might also have such vulnerabilities.
As blogger Kent Heckenlively wrote in response to the article "I found myself nodding along as I read, saying, 'Yes! Yes! They’re getting it!'” "One of the final paragraphs [in the article] is a statement which shouldn’t be controversial," he continues, "but when our community has said similar things we’ve been treated like we were primitives who wanted to take public health back to the nineteenth century." (And/or "bad parents," "bad citizens," "Bobo Sociopaths.") Here's the paragraph he's referring to:
It’s difficult to draw any clear lessons from the case of Hannah Poling, other than the dire need for more research. One plausible conclusion is that pediatricians should avoid giving small children a large number of vaccines at once, even if they are thimerosal-free. Young children have an immature immune system that’s ill-equipped to handle an overload, says Dr. Judy Van de Water, an immunologist who works with Pessah at U. C. Davis. “Some vaccines, such as those aimed at viral infections, are designed to ramp up the immune system at warp speed,” she says. “They are designed to mimic the infection. So you can imagine getting nine at one time, how sick you could be.” In addition, she says, there’s some evidence, "that children who develop autism may have immune systems that are particularly slow to mature.”
"It’s stunning to read a paragraph like the one above in a major publication like TIME magazine," says Heckenlively, "when it’s been part of the catechism of our movement for years. It’s as if we’ve been secret believers in God in some totalitarian state and the ruler just announced he’s considering a conversion." He also cites a report titled, "Vaccine Case - An Exception or a Precedent," from the CBS Evening News broadcast that aired on March 6, 2008, in response to the CDC having stated that Hannah Poling's case is "a singular event": While the Poling case is the first of its kind to become public, a CBS News investigation uncovered at least nine other cases as far back as 1990, where records show the court ordered the government to compensate families whose children developed autism or autistic-like symptoms... including toddlers who had been called "very smart" and "impressed" doctors with their "intelligence and curiousity" . . . until their vaccinations.
But even if all those remaining cases pending in the Vaccine Court are ruled in favor of the plaintiff families, it doesn't mean that the families of the other estimated 500,000 kids with autism in this country will be able to sue for damages, under existing legislation. The federal government has set a three-year statute of limitations, dating from the first incidence of autistic symptoms in a child.
While the Poling case is the first of its kind to become public, a CBS News investigation uncovered at least nine other cases as far back as 1990, where records show the court ordered the government to compensate families whose children developed autism or autistic-like symptoms... including toddlers who had been called "very smart" and "impressed" doctors with their "intelligence and curiousity" . . . until their vaccinations.
In light of that, I'd like to close this post with one more quotation from Dr. Marcia Angell's "farewell" editorial in the New England Journal of Medicine: The pharmaceutical industry is extraordinarily privileged. It benefits enormously from publicly funded research, government-granted patents, and large tax breaks, and it reaps lavish profits. For these reasons, and because it makes products of vital importance to the public health, it should be accountable not only to its shareholders, but also to society at large.
May that sentiment go from Angell's lips to God's ears. And possibly Julie Gerberding's. And look, maybe it's not the vaccines or the thimerosal that made the rate of autism go from one kid in 15,000 to one kid in 116. It could be some new additive in peanut butter, or exposure to wheat bran and Sea Monkeys. I mean, until the mid-Seventies the "experts" claimed it was caused by overly intellectual, emotionally distant "refrigerator mothers." We know, at least, that that last hypothesis is a load of crap. But we don't know anything else. Isn't it time we expended a little more effort trying to really figure this thing out, and a little less of same calling the parents who are doing their best to make sense of and cope with the horrors of this disorder idiots? I can't speak for anyone else, but I'm pretty fucking sick of being told how stupid I am. I won't hold my breath waiting for that to change any time soon. Meanwhile: smoke 'em if you got 'em. Oh, yeah... conflict of interest: I'm the mother of a child who has autism
The pharmaceutical industry is extraordinarily privileged. It benefits enormously from publicly funded research, government-granted patents, and large tax breaks, and it reaps lavish profits. For these reasons, and because it makes products of vital importance to the public health, it should be accountable not only to its shareholders, but also to society at large.
Beautiful and breaks my heart at the same time. Sending this to everyone I know. The anger I still have 16 years later is palpable.
I am presently trying to convince a 23 yo mom not to vaccinate her 14 mo son with the mmr and god knows what else. who is the poster child for future autism. male cousin just diagnosed. mom has ADD. maternal grandfather alcoholic with mental illness. sister has asthma. has ear infections since 3 months just had tubes put in. has delayed vaccines but doc wants her "to catch up" now that " he is all better" can anyone else see where this train wreck is going? she is at least puttin him on probiotic , clo and agreed not to give him tylenol but she really "likes" her doctor.
Sometimes I just want to weep. Do they think we are all crazy and were just trying to ruin their day?
Posted by: quiet in the south | February 07, 2010 at 12:25 AM
This is the best, articulate and factual, not to mention artistic article I have ever come across. Thank You so much. I agree with Dan, in the mean time I will forward to all I know.
It pains me deeply about Simpsonwood, thankfully that information made it out to the public.
So much unnecessary damage... to our children, our marriages, our sanity... and all intentional in the name of ego and profit.
Posted by: Ron Petruccione | May 12, 2008 at 11:31 PM
Thanks for a truly excellent article.
In Australia, the vaccination schedule now includes about 40 different treatments, and many of the vaccs are bundled together.
My 3 year old is showing autistic behaviours, and we are starting the autism diet (dairy, gluten-free) immediately. Because we had concerns about the huge number of vaccs, we have chosen NOT to vax our 14 month old daughter - and now are very glad! She is developing normally and well, and all signs good.
There is SO much pressure to vaccinate our kids. My maternal nurse made me feel like the Evil Mum Of Doom for not continuing my son's schedule, and choosing not to vaccs my daughter. I couldn't believe how much she pretty much tried to abuse/threaten me! Luckily I'm a pretty tough customer, and told her to mind her own business, but a more gentle woman than me might have been very upset and cowed by such treatment.
We also had to obtain 'consciencious objector' forms for not vaxing, and get them signed by our general practitioner, who also questioned us. If we didn't, various tax breaks would have been eliminated, totaling over $1000. So they really pressure parents in Australia to vax kids. We're the only ones we know who haven't. And we still get letters in the mail regularly about the schedule, and have to present our objector forms!
So the US is not alone. Should we have another child, I would NEVER vaccinate. I have gone from being very mainstream and ignorant on this issue to being very informed and very anti-vax. Those who are pro-vax simply have not researched the issue, and are (understandably) swayed by big business medical interests, and the governments which are lobbied hard by them.
My take on the vaccinations on the schedule is I will vaccinate independently for life-threatening illnessess such as polio IF AND WHEN there is a local outbreak. As for chickenpox, mumps and measles - well, I had them all and I'm still here!
Posted by: Leanne | May 10, 2008 at 05:40 AM
"So what happens if the govt takes over healthcare?"
You are witnessing it now.
It will get worse before it gets better. But even now, as more and more of us start to refuse what they offer, and educate others, the tide is turning.
"Would they force all children to have vaccines or not allow them to be covered?"
Good question. While they don't do that yet, at least not legally, the following occurrences take place all the time: babies vaccinated against their parents' wishes (usually right after birth), terrible lies told to deceive parents into accepting unsafe vaccines, parents otherwise intimidated into vaccinating (e.g., being "dismissed" from many pediatric practices completely if you refuse to vaccinate).
Also, as you may know, the most effective treatments for autism are rarely covered by health insurance.
Many of us here (possibly most of us here) actually vaccinated our children, and then they became autistic.
"Is there data on increases in autism correlated to introduction and/or increased use of vaccines in developing countries?"
Autism is increasing in other countries along with increased vaccine use. I will leave the unearthing of this particular data to those who may already have more information.
We are here to learn, educate, help and empower others.
May I ask what brought you to Age of Autism? We can all learn from each other's experiences. It would be nice to know more about you, if you care to share that here.
Posted by: Terri Lewis | April 20, 2008 at 01:39 PM
My wife and I rejected this for a long time. Thank you for opening our eyes - painful as it was. So what happens if the govt takes over healthcare? Would they force all children to have vaccines or not allow them to be covered? Also, Vaccines were not always available globally. Is there data on increases in autism coorelated to introduction and/or increased use of vaccines in developing countries?
Posted by: Mark Kumicich | April 16, 2008 at 12:08 PM
Thank you so much for writing and posting this piece. I am so tired of hearing how "parents are wrong", "parents are just looking for a scapegoat", blah, blah, blah. There is a saying that my high school history teacher had posted in his room that I think you highlighted very well- Those who forget the past are condemned to repeat it. The FDA, CDC, and others haven't learned anything from past drug mis-judgements. It's just heartbreaking that it is our children who have to pay the price for their ignorance and willful overlooking of the evidence. I pray daily that the day will come when there is no "holy grail" in the effort to find the cause(s) of autism. I hope that your writing will serve as a wake-up call to those who insist on a "one size fits all" mentality towards vaccines with no thought for the children who don't neatly fit into their paradigm, like my son.
Posted by: Laura Frigstad | April 03, 2008 at 11:15 PM
Excellent piece, a work of art, craftfully presenting such important imformation! I have long considered the connection - the time it took to convince the government to inform the public regarding the dangers of smoking, consuming alcohol or drugs while pregnant, drinking and driving, wearing seatbelts, even the wrongness and extent of domestic abuse.
As much resistence as I have encountered from physicians and other professionals regarding the vaccines, I always marveled at the ability of human beings to actively participate in their own ignorance, preserving and even spreading its poison.
Thank you for being such a formidable voice in the slaying of this monstrous dragon who has damaged the brightness and potential of so many babies and young children. Thank you, too, TACA, which has supported and spread the word, giving realistic hope to our children and their families. So many of these children can be hepled if the government and the world will just listen!
Posted by: Nancy Speer | April 01, 2008 at 01:46 PM
Holy crap this was an AMAZING article. I agree with Dan. this needs to be picked up by mainstream media. How can we facilitate that?
Thank you for your beautiful artful article.
Posted by: Julia -Baxter's mom | March 31, 2008 at 09:31 PM
Gorgeous...simply...gorgeous. Thank you so much for writing this. You have spoken for thousands of us parents.
Posted by: Becky Estepp | March 31, 2008 at 08:34 PM
What a wonderfully written and researched article. Thank you so much. The pharmaceutical companies are indeed privileged, they can peddle drugs with impunity that are more dangerous than any you can buy on the street corner.
Posted by: keaauwahine | March 30, 2008 at 09:13 PM
This is a wonderful piece of writing and graphic commentary. To your enlightening list of old ads, you might reference "The Heartbreak of Psoriasis" ads in the late 60's. The active ingredient was ammoniated mercury. That product was withdrawn as a result of my case, although my mercury poisoning was caused by a prescription. The most commonly prescribed prescription treatment for psoriasis at the time was ammoniated mercury. With severe chronic mercury poisoning (275 times the then toxic level in my first urine test), total amnesia, central and peripheral nervous system damage, virtual inability to speak or understand spoken language, my case was buried by a decision of the dermatologists in the AMA. There was no public mention. A white paper was sent out to dermatologists, and they voluntarily stopped prescribing it. 20 years later, my case appeared in the toxicology section of medical school textbooks. As far as I know, no one else who was treated for psoriasis back then even knows.
Posted by: Rosi | March 30, 2008 at 06:15 PM
Absolutely brilliant commentary. Thanks Cornelia!!! This is perhaps the best thing I ever read on the topic and I have a "sneaking suspician" that this will continue to be the case. I share your opinion of being totally sick of the bullshit.
Posted by: Maria Ryan | March 30, 2008 at 11:56 AM
"Have autism rates gone down since thimerosal was phased out of vaccines, starting in 2001? Nobody knows. Can you believe that? Seriously, there's been no effort on the part of the CDC or any other federal agency to gather national data on that front."
Anyone who has been following the thimerosal trial knows full well that the rates have not gone down because:
1. thimerosal was never recalled
2. manufacturers have never entirely removed thimerosal, it still remains in vaccines in "trace" forms (we guess its trace since the FDA has not really checked and the federal agencies keep passing the buck on that)
3. flu shots were added to the schedule for pregnant women and infants when the old thimerosal vaccines were nearing the end of consumption
4. flu shots laden with thimerosal have been added to the childhood schedule to inject kids with mercury every year
5. vaccines now have more aluminum making the toxic cocktail even more potent and dangerous
ALL THIS for justification of the fact that it was never the thimerosal and that it isn't really the vaccines, ALL THE WHILE knowing it to be patently true, ALL THE WHILE hiding information from the public, and ALL THE WHILE performing mass poisoning of innocent children.
Posted by: Sandy | March 29, 2008 at 03:02 PM
A classic in the “pick up line” department if I ever saw one:
“Blow in her face and she’ll follow you anywhere”
Wow….we’ve definitely come a “long way baby” in regards to the ads, but unfortunately we still have a long way to go if this history lesson on cigarettes teaches us anything about what we’re up against.
Crud. My hair will be completely gray when that grand ole' day finally rolls around!
Posted by: Kelli Ann Davis | March 29, 2008 at 02:39 PM
Thank you. If only the bad guys could read. Maybe they can make sense of some of the pictures. Given how they can spin just about everything or just ignore it as news, I know we have a long way to go. I am trying not to get my hopes to high. It is a long way from a ground swell to some sort of help in downstate Illinois. I will keep fighting!
Posted by: Tim Welsh | March 29, 2008 at 01:12 PM
Adding to my previous post-
Thank you to Cornelia Read ! I missed the intro. Beautifully done.
Posted by: Teresa Conrick | March 29, 2008 at 12:48 PM
The link from the last sentence on the post takes you to Cornelia Read's review of a Bruno Bettelheim book appropriately titled "Satan in Drag" and she says:
"And I know that I am a lesser person for it, but I hope that Bruno Bettelheim is rotting in hell."
Actually I read somewhere that the most evil of evil souls are sent to Saturn to cook. I believe its because its really really hot over there. And lonely too. For people like Hitler for instance.
Posted by: Carl | March 29, 2008 at 12:18 PM
Dan is sooo right! This is art in every sense. It beautifully pulls it all together. Worth every nano-second of reading and then some and I will definitely be sending this one out. When I get my support group for military parents up and running I'd like to have it there too. It's amazing and so thorough.
Thanks you Cornelia Read! And Thank you Age of Autism!
Posted by: Angela Warner | March 29, 2008 at 11:24 AM
Wow Kim! Absolutely loved reading this. Your facts, thoughts, and pictures made it a myriad of emotions for me. The craziness of it all can be unbelievably heart piercing. Please send a copy to Gardiner Harris with my regards ~
Posted by: Teresa Conrick | March 29, 2008 at 10:45 AM
Kim, thank you for sharing another priceless resource with us.
Posted by: biomedmama7 | March 29, 2008 at 10:27 AM
My God. That was one of the best pieces I've read in a long time. I'm sending it to everyone I know. And thank you for including the picture of the bad guys from Batman to illustrate the Simpsonwood attendees! I literally spit my coffee out when I scrolled down and that one popped up!
Posted by: Jeanne | March 29, 2008 at 08:53 AM
This is one of the very best treatments of this topic I've ever seen. It's not just commentary, it's art in every sense. Someone with some big bucks ought to print it up in a worthy format and distribute it for free to Congress, pediatricians and the press.
Posted by: Dan Olmsted | March 29, 2008 at 07:34 AM