AUTISM, SERIOUS SCIENTISTS AND THE WACKOSPHERE
IS THE AAP LOSING CREDIBILITY WITH PARENTS AND PEDS?

TRIPLE THREAT

Ttiple

By Cathy Jameson


Things usually happen in threes, so I’m told. You hear about a death of a famous celebrity and before week’s end two more keel over. With autism, the three things that made me go ‘hmmm’ was learning about the gut-brain-immune system relationship. In those early days of wondering what happened to my child, I realized that Ronan had a messed-up gut, lived in a brain fog daily and went between hyper- and hypo-immune responses.  Initially, I would read almost three hours each night and finally the day came when I linked my son’s issues to his vaccine injury.  It was the triple vaccine, the DTaP, which contributed to the roller coaster ride from hell we’ve been on the last three years. Add Hep B and the flu vaccine, and well, there you go, that’s three environmental triggers, the shots that wounded Ronan and blindsided us.

We’ve seen three neurologists in the last three years. All three wanted to do oodles of tests and ultimately pushed prescriptions on us.  I asked, begged, no, PLEADED, “Aren’t there vitamins, supplements or a diet that can help my child?” Nope, toss those three useful alternatives to prescriptions drugs out the window, these docs said.  One neurologist shook his head, looked me in the eye and said, “Just fill the script, Mrs. Jameson.” Walking quickly out of the exam room, he left me crying my eyes out. How do you like that for modern medicine?


It took three tries to find a DAN! doctor that fit our son’s mold. We know that old phrase, “When you’ve seen one person with autism, you’ve seen one person with autism.”  Until I figured out what my child needed (yes, little ol’ me had to do the majority of the research), I knew we had to leave the two practices with the cookie-cutter one-treatment-fits-all kids-on-the-spectrum.  We had to find someone who could meet our child’s needs and not the other way around.

 

The third doctor finally saw Ronan as an individual who had made some progress already.  From the beginning of Ronan’s third year doing biomedical intervention, we have seen improvements, and we remain more hopeful that this third physician walks with us, not doing circles around us.


In the meantime, family life goes on. When my busy day is just about done, and I’m about to collapse, there’s more to check off on my to-do list.  I have to grab the kids’ jammies, lay out tomorrow’s school clothes and get two school meals ready for Ronan.  He’s just turned five and is lighting up our evenings more and more which leaves me little time to goof off.  Now, Ronan wants attention, seeks me or Daddy and actually plays again.  He spoke three times last week saying ‘aa-waaa’ for “water.” He also said “owl” while watching a Winnie the Pooh movie with Owl in it.  Oh, and Ronan said the letter “T” as he attempted to say Thomas!  The child who used to flick my light switches on and off incessantly now attempts to make the Sign of the Cross as we begin evening prayers. He lays down without a fight to get his diaper changed and even gives me kisses on the cheek WITH a hug before it’s time for bed.  Don’t pinch me yet, I’m more nervous than excited that my son is actually recovering!


Nightly, I peel myself off the floor from sheer exhaustion; trying to get one last hug or snuggle from the kids, we get the little ones ready for bed. We start the bedtime routine while changing diapers. Ronan wears the largest size diaper we can find, plus a diaper insert and a pull-up. We call this the triple threat as it one of the most important parts of nighttime security for us.  We’ve always said if you look at Ronan, he’ll pee.  At night, the kid is a faucet, and we find a well-soaked boy each morning.  The triple threat relieves the nighttime waking to change a fully soaked diaper, boy and bedding. 

I hope one day, that Ronan figures out that a wet diaper is uncomfortable and that the stinky poo diapers are just not fun to hang out in.  He still doesn’t ‘own’ the potty training cues yet, but hey, the kid is just now coming back into our world. He’s got awareness of others and is attempting to talk so maybe potty training can be that third ‘happening in three’ thing for him down the road.


Ronan is working the hardest. He’s putting in the most effort as I revel in this wide-awake time.  As a new five year old who seems to be acting like a typical two and almost three-year old, I’ll give him a few more months to catch up to his peers.  He’s got three years of serious catch-up time to do.


Three cheers for Ronan, you keep on inspiring those closest to you!


Cathy Jameson and her husband have 4 children and one more “waiting in the wings.”  They get all kinds of giddy watching Ronan and his three siblings interact. The siblings get as much encouragement as Ronan lately as they have quickly become his teachers and cheerleaders as Ronan is more aware of his family!

Comments

Megan Ergo Baby Carrier

Such a sad story. I am so sorry you had to go though this. We've met a mom while buying our ergo baby carrier and she was telling us almost the same story. We hope you son will feel better soon. Courage www.lastellablu.com

Kelli Ann Davis

Jesse’s Mom:

The first time I heard Martha Herbert talk (SM/NAA/NIH Symposium) about “the white matter” in the brain and what happens in regards to swelling, etc -- I LITERALLY left the room, went upstairs to my hotel room and cried for 2 hours.

Reading how you felt as you looked through your notes….All I can say is I know that feeling – like someone punched you hard right in the middle of your stomach!

And people wonder why we fight as hard as we do?

I NEVER WANT ANOTHER PARENT TO FACE THAT GUT-WRENCHING PAIN AND I WILL DO WHATEVER IT TAKES TO MAKE SURE IT HAPPENS.

Best to you,

Kelli

PS...Cat, loved this story. You Rock!

MacGoddess

So, that's what that awful six-hours of inconsolable crying and high-pitched screaming was all about... "screaming baby syndrome." I breast-fed my son for two and a half years, and I always kept a log of feeding times--I had tons of those yellow lined miniature legal pads filled. Not long after my son's diagnosis at 3-1/2 years old, I came across a full-size legal pad single page that contained both my writing and my husband's writing. The comments on this paper were those of frightened first-time parents (which we were) noting failed attempts at feedings, and things like one in my husband's writing, "...screaming, arching back, PAIN, bad pain..." This went on for over six hours until my four-month old child finally fell asleep out of sheer exhaustion. For about 45 minutes. As I was reading this with horror, I started remembering the event. We didn't call the doctor, I remember that much. We thought could this be what his pediatrician meant by "irritability" as a possible side effect from the vaccine? I noticed the paper was dated, and I compared that date to his vaccination schedule and realized that the inconsolable crying and high-pitched screaming began just a few hours after returning from a well-baby visit where he had been given the HIB vaccine. Twenty-eight days prior to that, he had been given the DTP and oral polio vaccines. So, I discovered some four years later my son obviously had a vaccine reaction at four months old, and probably should not have had any more of those vaccines, but you know what's funny? Inconsolable crying and high-pitched screaming used to be listed as a vaccine reaction, but is no longer considered a reaction to contraindicate further vaccination...nor a valid one for the Vaccine Compensation program. Can you say encephalopathy?

Jesse's Mom

Cathy Jameson

Dan,

Thanks for the comment. I'm one to dissuade my friends with young children to vaccinate according to the 'recommended' schedule especially when it comes to the combo vaccines. I can say, "I wish I'd known...." for only so long with my own sons' injuries. Now, I can help educate other families and pray that they make their own informed decisions. For those that do want to vaccinate, it only makes sense to space the injections and to wait until a child can handle the toxin load.

Cathy

Mama Bear

Cathy, the more you educate me about vaccines and "big medicine," the more I cringe for the future of our most vulnerable citizens: our children.

Just read a poignant letter [www.ergobabycarrier.com/ask-the-doctor/2007/10/chicken-pox-and-vaccinations] from a mom of two kids (4 and 2) whom she had vaccinated against chicken pox. She is discovering that today's varicella vaccine may cause multiple minor outbreaks of chicken pox. Plus her kids very probably will need a booster at kindergarten age because immunity "wanes" by that time.

The doctor's response tore me up: "The main reason that the varicella vaccine was developed by Merck Laboratories is that if working mothers could keep working instead of taking time off to care for their sick children, businesses would save hundreds of millions of dollars."

At what point do MOMS & DADS wake up? When will we say ENOUGH!

I am so glad that you said enough - keep it up!

Amy

Cat,
I'm so happy to hear of Ronan's recent progress! Way to go, buddy!
Love to you all,
;)a

Elizabeth Jane

Dan, The doctor said, "Oh, don't worry, that's just 'screaming baby syndrome.'

If I were a baby and received a vaccination that made my brain swell, even just a little bit, then I'd scream because I'd have an extremely painful, thumping headache. It's my understanding that the original MMR with the Urabe mumps component was withdrawn from the UK in 1992/3 following cases of mumps meningitis. I'm a non-medical person but isn't the physical effect of brain inflammation/meningitis much the same in that the brain swells causing severe pain?

Over the past fifteen years I've read more pages of information about autism and vaccination than I care to recall. One thing I found appalling was to read about the American practice of pushing as many as nine different vaccinations into a child at one "well child" visit to the doctor's office. In the UK we're starting to see vaccinations administered in this way (our schedule isn't anywhere near as crowded as the USA's). I agree with your suggestion for vaccines to be given singly for preference. I would strongly recommend that the MMR be split up into its separate components - why? - because the records show that the singles didn't have the number of adverse vaccination reactions found in the triples. As for adding V for varicella to the mix - bah! humbug! is the politest term that springs to mind.

P.S. My very best wishes to Cathy and her family especially Ronan.

Sonja

Cathy,

You give the rest of us hope through Ronan. Keep up your amazing work and please continue to share it...it inspires all of us (esp me) to keep going even when it seems ridiculously hard. Thank you Cathy and thank you Ronan!

Sonja

Truman A. Moore

We are delighted to hear about Ronan's progress and the delight of his family at his recovery! Thanks Cathy and for the future keep up these three: amazement, thanksgiving and the hard work of doing what needs to be done. TAM

Dan Olmsted

Cathy,
This is a delightful story as well as a reminder that good things don't always come in threes -- a friend of mine's baby got the DTaP recently, went to sleep and woke up screaming for three hours. The doctor said, Oh, don't worry, that's just 'screaming baby syndrome.' I wonder if a parents' campaign to unbundle these combo vaxes, and make sure they don't get more than two shots on any one visit, might be worth launching. The motto could be, "Bad things come in threes -- demand your pediatrician give vaccines one by one."

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