Treatment Feed

Autism, Learn To Live With It.

White-flagNOTE: Seems like since Mrs. Wright's death last year, Autism Speaks has changed its mission from "It's time to listen," to "It's time to give up." What a sin. Let's live with autism. Cancer. Alzheimers. Diabetes. MD. Raise money and live with it. Disgusting in the extreme.

By Ginger Taylor, MS

Just saw a new Autism Speaks commercial. The message...

"Learn to live with it."

I kid you not. 

(Let's just skip past the horrid imagery of a child with autism on a boat in the water with no supervision for the sake of time and trauma.)

For the few people who don't see a problem with this or understand why so many of us are so angry, please contrast compare two possible positions here.  The first has been espoused by our community for more than a decade, the second is espoused by Autism Speaks.

1. Autism is preventable and medically treatable.

2. Autism, learn to live with it.

The first is accurate and appropriate, as there are medical treatments for people diagnosed with autism that will alleviate the symptoms of autism (some of which are life threatening...  re: children in a boat in the water with no supervision). This will make their lives better without them having to spend hours and weeks and years combating a terribly debilitating condition. If there is medical treatment available for a debilitating condition, is ethical to tell people that there is medical treatment available for their debilitating condition.

Continue reading "Autism, Learn To Live With It." »


Autism Research Institute Presents Research Updates: Immunological Issues in ASD - Gestational Influences, with Dr. Judy Van de Water

ARI 50Autism Research Institute is presenting a Webinar tomorrow, 4/12 titled:  Immunological Issues in ASD - Gestational Influences. Register here. From ARI:

Join Judy Van de Water, PhD to learn about gestational influences on neurodevelopment.

Dr. Van de Water joined the faculty in the Department of Internal Medicine at the University of California, Davis in 1999. In 2000, she also joined the faculty of the newly formed UC Davis M.I.N.D. Institute when she began her research on the immunobiology of autism. Dr. Van de Water’s laboratory pursues research programs pertaining to autoimmune and clinical immune-based disorders including the biological aspects of autism spectrum disorders. The application of Dr. Van de Water’s immunopathology background has been instrumental in the dissection of the immune anomalies noted in some individuals with autism, and in the differentiation of various autism behavioral phenotypes at a biological level. Most notable of these is the investigation of the maternal immune system as it relates to autism spectrum disorders, with particular emphasis on the presence of highly specific maternal autoantibodies to fetal brain proteins.

Continue reading "Autism Research Institute Presents Research Updates: Immunological Issues in ASD - Gestational Influences, with Dr. Judy Van de Water" »


Generation Rescue Personifies ACTION with Rescue Grant Medical AutismTreatment

GR Rescue Grant
Our friends at Generation Rescue are changing the lives of individuals with autism every single day. And that means changing life for entire families, for the better.  I especially love that the grants are not limited to youngsters. Many of us have older kids, my oldest is 22. And they can still benefit greatly from treatment. Thank you to Jenny McCarthy and the entire GR team. XOX

Rescue Family Grants provide autism treatment to families in financial need. The grant provides financial support, products and services for auditory listening therapy, dietary intervention training, dietary supplements, two doctor visits, and lab testing. To date, more than 700 individuals have participated in the program and report a better quality of life and improvement in speech, language, behavior, health and wellness, and social interaction. The grant is available to individuals of all ages who meet the eligibility criteria below. 

To see if you qualify for a Rescue Grant, which provides medical treatment for autism, click here.

 


Blood Test that Predicts Autism has Implications for Treatment and Prevention.

TACA actionNOTE: We excerpted this article by Lisa Ackerman of TACA. Please visit and bookmark TACA as a top resource for your loved one with autism's well being, growth, safety and success.

A recent study demonstrated that a blood test might be able to differentiate children with autism spectrum disorder (ASD) from typically developing children.1 The study examined one carbon metabolism and its related pathways. These pathways are of the upmost importance in ASD and are essential for many critical processes in the cells of the body, including methylation which regulates turning genes on and off, producing the precursors to genetic material and producing the major antioxidant in the body known as glutathione.2

This news is not really new, however the dataset’s potential predictive ability is intriguing. Over a decade ago, Dr. Jill James, demonstrated that children with ASD have abnormal one carbon metabolism and suggested that these metabolic markers define an endophenotype (subgroup) of children with ASD.3  Furthermore, Dr. James demonstrated that several common variations in genes which provide the instructions for cellular proteins and enzymes result in an increase in the risk of developing ASD with these variations interacting in complex ways.3  This suggests several “kinks” in these metabolic pathways may add up to predispose a child to develop ASD.

Continue reading "Blood Test that Predicts Autism has Implications for Treatment and Prevention." »


Register for The Autism Education Summit for just $49!

We're excited to share this offer from our friends at Generation Rescue!

Registration (for all three days) for the Autism Education Summit is just $49 until Sunday! 

PLUS, when you register this weekend, you’ll also be entered to win a complete set of the BIORAY Kids line of natural detox products. 

Just use promo code: AGEOFAUTISM at autismeducationsummit.com


Therapy House LLC Clinical Trial Enrolling Participants in Pittsburgh for IonCleanse

IonCleanseMany our of friends are using the IonCleanse system from A Major Difference.  If you are near Pittsburgh, PA, and have a child age 3 - 7, you can enroll the child in a clinical trial.

CLINICAL PROTOCOL  # SAIRB-16-0010
Measuring the effects of the IonCleanse® by AMD on children with autism spectrum disorders
Sponsored by A Major Difference, Inc.

1.    Study Synopsis
A Major Difference, Inc. (“AMD”)1 in partnership the Therapy House, LLC,2 have created an investigational study looking into the efficacy of using the IonCleanse® by AMD total body detoxification system for children with Autism Spectrum Disorders (“ASD”).  The study is a prospective study that will be using a currently marketed product in treatment of symptoms of ASD in children.   There will be no costs incurred by participants in the trial.  
This study is planned and budgeted for 60 days and 30 children. Children who meet the inclusion criteria will be randomly selected either to receive the therapy (described next) or to be entered into the control group and receive no therapy. The group will be split evenly. For those receiving therapy, they will use the IonCleanse system for the recommended time and frequencies (based primarily on age). All participants will be evaluated pre and post by professional occupational therapists who will utilize the Battelle Developmental Inventory, Second Edition3 and the Sensory Profile 24 as the measure for gauging effectiveness. Complete details are in IonCleanse Clinical Trial Information File.


Arizona State U Autism Treatment Effectiveness Survey

ASU logoAutism Treatment Effectiveness Survey

You are invited to evaluate the effectiveness of treatments for autism. Those include medications, nutritional supplements, diets, therapies, and education.

Our goal is to learn which treatments are most effective.   Survey results will be posted on our website. The information can then be used by families and clinicians to help those with autism.

For more information, go to http://autism.asu.edu

Thank you for your consideration!

Sincerely,

Prof. James B. Adams, Ph.D.

Director, ASU Autism/Asperger’s Research Program


Autism Research Institute Presents Webinar of Medical Problems in Children With Autism

ARI logo FebWednesday, July 29th, 1:00 - 2:00pm EDT:

Medical Issues in Autism

Part 1 of a two-part series: Dr. Mumper provides an evidence-based overview of medical problems often found in children with autism, so that parents and clinicians can collaborate on assessments and treatment strategies.

Learn more here.

REGISTER HERE
 
Dr. Mumper received her M.D. from the Medical College of Virginia and is board-certified in pediatrics. Prior to joining ARI as Medical Director for five years, she held a clinical faculty appointment at the University of Virginia for sixteen years. In 2000, Dr. Mumper founded Advocates for Children, her general pediatrics practice. Advocates for Families is designed to care for children with autism. In 2007 Dr. Mumper founded The Rimland Center in Virginia, to mentor clinicians and conduct clinical research.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Autism Education Summit: Dallas, Texas Offers Two Medical Tracks for Parents

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There's still time to plan your trip to Dallas, Texas for the inaugural Autism Education Summit.  There are two medical tracks; one for parents who are new to treatment, the other for parents with experience under their belts.

 Join friends old and new at The beautiful Fairmount hotel in the heart of downtown Dallas  - share your experience and take home medical expertise for your loved one on the spectrum.

Registration is only $79 and includes:

Access To All Summit Lectures

Complimentary Coffee and Tea Throughout the Event

Gift Bag with Products, Conference Program Guide and Vendor Coupons

Admission to the Friday Night Welcome Party and the Saturday Night Spectacular Event! Includes one alcoholic drink per event.

Regular Registration - July 1 - October 16, 2014 $79 for one person, $139 for two people

Onsite Registration - This rate begins on October 17, 2014. $99 for one person, $199 for two people

The Summit is created by parents (that's the "experience") and physicians you've known and trusted for years (that's the medical expertise.)    You'll recognize the companies who are helping to bring you this event too.

Sponsors AES

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.




Win Enhansa Curcumin Supplement from Lee Silsby

Enhansa


Congrats to Michael Bailey, Brooke Gorham, Real Tanner's Dad and Andrea Keller.

Contest is closed. Thank you.


###

Our generous sponsor Lee Silsby is offering four free bottles of Enhansa to AofA readers.  Choose from 150 mg 150 cap bottle or Enhansa REPAIR anti-inflammatory support, 60 cap bottle.

Enhansa is a proprietary blend of curcuminoids derived from the rhizomes of Curcuma longa (Curcumin). It is the specific ratio of curcuminoids, along with the specialized method of extraction, which allows for the unique benefits of Enhansa as compared to other Curcumin products.

Some of the positive results have been mentioned in a recent 20-patient study on Enhansa and concurred by hundreds of practitioners that prescribe it on a daily basis to their patients. Take a look at some testimonials here.

Enhansa has been tested to be very low in oxalates and phenols. Each batch of Enhansa is tested for heavy metal content. The results of the testing show that most heavy metals are below the detectable limit, and those that are detectable exist at extremely low concentrations.

 A large and growing body of research has been dedicated to the study of plant polyphenols and their anti-inflammatory properties. The findings have been very promising so far. As a result of this, Lee Silsby Compounding Pharmacy has developed Enhansa-Repair™, a proprietary blend of specialized extracts that aims to harness the significant potential of plant polyphenols to alter the inflammatory response.* Each ingredient used in Enhansa-Repair™ was chosen based on the following criteria:

A large body of research on the anti-inflammatory effects of the plant
A long history of medicinal use in humans, with low side-effect profile
The extraction process must yield an extract with high potency, absorption, purity, and standardization


Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

Meet Top Autism Treatment Docs At the Autism Education Summit In Dallas

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We're blessed in the autism biomedical community to have a range of choices in conferences. Old friends gather in the Windy City each Spring, on the sunny West Coast of Florida each November and now, in Dallas, Texas beginning this October with the inaugural Autism Education Summit.  You'll see plenty of familiar faces and meet new friends and providers dedicated to helping every person on the spectrum achieve the best health and functioning.

Here's the schedule.  Here is the current list of speakers including AofA's Mark Blaxill (stay tuned for more.)

Register with a friend or partner to save. (See registration rates below) Better yet - take advantage of the special group rate savings for TEN attendees who register together. This rate is for any group of ten and includes special bonus recognition at the conference. What a great way to acknowledge a local organization, school program, town support group or even a local treatment center in your area! Email info@autismeducationsummit for more info about creating your own group.

Join the Age of Autism team at The beautiful Fairmount hotel in the heart of downtown Dallas - meet old friends, make new friends - share your experience and take home medical expertise for your loved one on the spectrum.

Registration includes:

Access To All Summit Lectures

Complimentary Coffee and Tea Throughout the Event

Gift Bag with Products, Conference Program Guide and Vendor Coupons

Continue reading "Meet Top Autism Treatment Docs At the Autism Education Summit In Dallas" »


Announcing The Autism Education Summit: Where Experience Meets Medical Expertise

Banner-H

We're blessed in the autism biomedical community to have a range of choices in conferences. Old friends gather in the Windy City each Spring, on the sunny West Coast of Florida each November and now, in Dallas, Texas beginning this October with the inaugural Autism Education Summit.

Register with a friend or partner to save. (See registration rates below) Better yet - take advantage of the special group rate savings for TEN attendees who register together. This rate is for any group of ten and includes special bonus recognition at the conference. What a great way to acknowledge a local organization, school program, town support group or even a local treatment center in your area! Email info@autismeducationsummit for more info about creating your own group.

Join the Age of Autism team at The beautiful Fairmount hotel in the heart of downtown Dallas - meet old friends, make new friends - share your experience and take home medical expertise for your loved one on the spectrum.

Registration includes:

Access To All Summit Lectures

Complimentary Coffee and Tea Throughout the Event

Gift Bag with Products, Conference Program Guide and Vendor Coupons

Continue reading "Announcing The Autism Education Summit: Where Experience Meets Medical Expertise" »


Assurance of Things Hoped for, Evidence of Things Not Seen

Sword in the stone
By Brooke Potthast

It has been almost one year since our son James had the opportunity to use the RPM method of communication with Soma Mukhopadhyay.  James is verbal but not conversational, and his speech is best described as being very “unreliable” as well as hard to understand. James has gone from almost no real communication to total communication in 6 months.

Needless to say it has changed everything for him and for us. I tell people it is bigger than marriage, childbirth or winning the lottery. It seems as though every day we learn something really big about James and his heart and mind.

When I first realized that a lot of what we thought about James was wrong, I called Dan Olmsted. Over coffee I told him, “I think mercury toxicity creates silent geniuses.” I’ve always been certain that thimerosal and my dental amalgams caused James’ regressive autism and I am now fairly certain that a huge percentage of children or young adults with autism are not intellectually disabled, not even learning disabled, but so severely sensory-motor disabled they can’t show us.

We thought James, who is 14, was around 2nd grade in his academic understanding and that was spotty. When we decided to homeschool and let him use the letter board fo spelling answers, he was able to do 9th grade work in just a few months. We thought he couldn’t add and he easily does algebra and recently asked to learn about cube roots.  I am not writing this out of pride for our son. I am telling you this because I don’t think he is the exception, I think he is the rule. In the last year I have seen this over and over again in teens and children who are in life skills classes and who educators and doctors have said are cognitively disabled. When given the opportunity to use RPM or something like it they show us that they have not just been taking it all in, but assimilating it in a typical and functional manner. One day early on our homeschool teachers gave James a vocabulary test. They gave the word “gullible” he spelled “easily fooled." Those examples are endless.

But the most remarkable thing we have learned about James and what I wanted to share in this piece is that despite having suffered in ways unimaginable he (and I think so many of his peers) has great hope for the world and for forgiveness and understanding. It is hard to even put into words what life would be like trapped in your body. Thinking and understanding just like everyone else but not being able to join in a conversation, tell a joke, verbally express love or anger or sadness. To not have friends, have education be limited; the list is long and painful.

But here is a “legend” written by James this week. When I read it my first thought was to put it on Age of Autism because I thought it summarized so much of what this community experiences and it gives us some hope. James said in another conversation that he remains hopeful and I’d like to think we all can. The background is that he is doing Medieval literature in school right now and they have read Beowulf, Sword in the Stone, etc. After discussing (on the letter board) the Sword in the Stone he was given this assignment: (his writing is in Caps)

Why was it so hard for people to believe that Arthur pulled the sword from the stone?

BECAUSE PEOPLE CANNOT BELIEVE THINGS THAT THEY DONT UNDERSTAND.

Continue reading "Assurance of Things Hoped for, Evidence of Things Not Seen" »


Autism Research Institute Live Webinar Ask The Clinician with Dr. Nancy O'Hara

ARI logo FebWednesday 10/23, 2:00pm  Eastern.

Ask the Clinician - with Nancy O'Hara, MD Register HERE.

Please note: Because this is live Q&A and not a presentation in lecture format, certificates of participation will not be offered for this event.

Have questions you'd like to ask a physician? Struggling to navigate evidence-based treatment for yourself or your loved one on the autism spectrum? Here's your chance to pose questions for free in real time.

Dr. Nancy O'Hara is a board certified Pediatrician. Until January 2010, she was the Assistant Medical Director for Defeat Autism Now!® Physican Training and the Physican Mentoring Director for Defeat Autism Now!® in Europe. Prior to her medical career, Dr. O'Hara taught children with autism. She graduated with highest honors from Bryn Mawr College and as a member of the Alpha Omega Alpha Honor Society from the University of Pennsylvania School Of Medicine. She earned a Master's degree in Public Health from the University of Pittsburgh. After residency, chief residency and general pediatric fellowship at the University of Pittsburgh, Dr. O' Hara was in private practice for 7 years. Dr. O'Hara has worked with Dr. Sidney Baker and other practitioners in the research and care of children with Autistic Spectrum Disorder for many years. Since 1999 she has dedicated her practice to the integrative and holistic care of children with neurodevelopmental disorders and Autistic Spectrum Disorder.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

Contest: Taste-Free Enhansa Curcumin Supplement from Lee Silsby

Enhansa_tf_header_image1
We have three bottles of new "Taste-free" Enhansa to give to three lucky readers. Leave a comment and include your email address in the email line so we can contact you if you win. Thank you to Lee Silsby for always seeking new ways to ensure nutrional support for our families.

The same original Enhansa in a water-dispersible powder form that is nearly taste-free.

Enhansa Taste-Free also has less scent, is less staining and easier to mix than the original formula.

Enhansa is a proprietary blend of curcuminoids derived from the rhizomes of Curcuma longa (Curcumin). It is the specific ratio of curcuminoids, along with the specialized method of extraction, which allows for the unique benefits of Enhansa as compared to other Curcumin products.

Some of the positive results have been mentioned in a recent 20-patient study on Enhansa and concurred by hundreds of practitioners that prescribe it on a daily basis to their patients. Take a look at some testimonials here.

Enhansa has been tested to be very low in oxalates and phenols. Each batch of Enhansa is tested for heavy metal content. The results of the testing show that most heavy metals are below the detectable limit, and those that are detectable exist at extremely low concentrations.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

CEASE Therapy Overview – How it Helps Children with Autism

CEASEBy Sima Ash, CHom, CEASE Certified Practitioner, C.N.C.

CEASE therapy was developed by Dutch physician Tinus Smits who was looking for a way to help children with autism. CEASE stands for Complete Elimination Autism Spectrum Expression and Dr. Smits helped well over 300 children with Autism prior to his death in 2010. While his method was originally designed for children with autism, Dr. Smits and those that he trained have experienced success treating a number of conditions including MS, Chronic Fatigue, allergies, ear infections, hyperactivity, and detoxificat

CEASE utilizes several holistic elements to form a systematic approach that helps people detox from physical and energetic blockages while bringing balance to the mind and body.  The elements used in CEASE are:

Homeopathy – the use of remedies in different potencies.  The remedies are produced by dilution and succession and are labeled according to their potency.  Dr. Samuel Hahnemann, the founder of homeopathy noted that if a certain potency had an impact, but had not yet finished healing the problem, often times a higher potency was needed to continue the healing process. 

Isotherapy – the use of pathogenic substances that have been prepared in homeopathic potencies.  For instance if a particular medication such as Prednisone is suspected to play a part in an illness, the homeopathic version of Prednisone will be used to help the body rid itself of the physical and energetic imprints that it has left on the body. 

Continue reading "CEASE Therapy Overview – How it Helps Children with Autism" »


STX209 Families Send Open Letter To Roche About Drug Trial

Roche

We recently reported on a drug trial that had been discontinued do to lack of funding when Roche Pharmaceuticals terminated its agreement with Seaside Therapeutics.  The STX209 families who were in the trial published an open letter to the CEO of Roche and received a response via Twitter.   The trial was for a drug known as STX209/Arbaclofen. The study was to include both Fragile X Syndrome and autism.  We realize that Fragile X is a very different diagnosis from autism in that it is testable and confirmable. There is some overlap in presentation and there were autism families in the study. While we tend to be leery of pharmaceutical options, for those families for whom this drug was improving their children's lives in the short term - we hope they find a way to continue the study.

Here is an excerpt of the letter:

An Open Letter Regarding STX209 to Dr. Severin Schwan, Roche Pharmaceuticals


Dr. Severin Schwan
Chief Executive Officer
Roche Pharmaceuticals
F. Hoffmann-La Roche AG
Konzern-Hauptsitz
Grenzacherstrasse 124
CH-4070 Basel
Schweiz

June 10, 2013

Dear Dr. Schwan:

Behind every drug Roche Pharmaceuticals makes are the personal stories of patients and their families. You must hear these stories everyday, and we cannot imagine the pressures you face determining where to put your resources and whose lives – whose children’s lives – you will try to save. We understand you cannot support every drug and every trial, but you are a father, so surely you will understand our desperation and need to reach out to you directly to help our children. Like most parents, we are certain you would go to any lengths – contact any person – if your children needed help; so you’ll understand why we are writing you this letter.

Recently, Roche Pharmaceuticals was involved with a Cambridge, Massachusetts-based pharmaceutical company called Seaside Therapeutics, Inc., which has been developing a drug called STX209 (Arbaclofen).  This compound has been in Phase III trials for children with fragile X syndrome.

When Roche pulled back on its R&D, it ended its involvement and financial support for STX209. We understand there have been issues with the therapy’s trial results, but it had statistically relevant improvements to secondary outcome measures. Luca Santarelli, head of neuroscience research at Roche has been quoted as saying “We concluded that arbaclofen wasn’t going to provide that real difference for patients.” Dr. Schwan, we respectfully disagree, the improvements we have seen in our children have changed the lives of our families.

Continue reading "STX209 Families Send Open Letter To Roche About Drug Trial" »


Roche Backs Out on Seaside Therapeutics Drug Trial for Fragile X. Parents Dismayed.

Roche-seasideManaging Editor's Note: The drug in question called arbaclofen, was in clinical trials for both Fragile X and autism. To learn more and to read about family stories, please visit stx209.com and read A Plea for Help: Fragile X Stories.

By Melissa Welin

Most pharmaceuticals represent years of research, millions of dollars of investment, and the tacit promise made by the government that what is in the bottle is safe and effective.

Most pharmaceuticals also represent the personal stories of patients and their families; stories that are often filled with suffering, struggle, but most importantly hope.

Of course, we understand the responsibility of the FDA to protect the public.

Of course, we understand that pharmaceutical companies are responsible to shareholders and have a complex formula to determine how they allocate resources. 

But sometimes, amidst shareholder meetings, bottom lines and risk aversion, our personal stories are lost.  Sometimes, we have to remind those who control access to promising treatments that there are lives at stake… that balanced against their ledger is our precious, fragile hope. 

Recently, Roche Pharmaceuticals was involved with a Cambridge, Massachusetts-based company called Seaside Therapeutics, Inc., which has been developing a drug called STX209 (arbaclofen).  This compound has been in Phase III trials for children with fragile X syndrome (the most common known single gene cause of autism) and Phase II trials for children with ASD (which has had positive results). 

When Roche pulled back on R&D investment, it ended its involvement and financial support for STX209.  Without Roche’s backing, Seaside Therapeutics was forced to issue the following statement on May 15, 2013 to the clinics involved in the administration of arbaclofen:

We regret to inform you that Study 209FX303 [An Open-Label Extension Study to Evaluate the Safety, Tolerability, and Pharmacokinetics of STX209 (Arbaclofen) in Subjects with Fragile X Syndrome] is being terminated immediately.  The closure of the study is due to resource limitations at Seaside Therapeutics, Inc., and is not related to any known safety issues in patients dosed with STX209.

As of June 7, 2013, Phase III trial participants will no longer have access to STX209.  The abrupt end of the study will leave our children in danger of significant regression. 

For many of us in the study, arbaclofen has been that miracle for which we had hardly dared hope.  A child, who had never wanted to be touched, opened his arms for a hug.  For the first time, a five-year-old said, “Mommy”; a ten-year-old said, “I love you.”  Children were making friends, learning to read and write.  We started to believe in the possibility of a “normal” normal.

Continue reading "Roche Backs Out on Seaside Therapeutics Drug Trial for Fragile X. Parents Dismayed." »


Autism Action is Year Round: Generation Rescue Grant Success

Ao Holland
We've finally left April and its namby pamby feel good (not that we don't like feel good stories at AofA) blue lit "awareness" behind. It's fitting that May first was MAY DAY - the call of distress. Here's a story from Generation Rescue, our sponsor, and provider of the Rescue Family Grant. This grant program puts dollars into familes' hands and medical treatment.  And it is quietly changing lives for the better. Thank you to Jenny McCarthy, Candace MacDonald and the entire GR team.   You can meet Jenny and bask in the GenRescue Lounge at the Autism One Generation Rescue conference in Chicago later this month.  The cost is just $50 for a five day conference if you register by May 6.

Listen to what a Mom said about what the grant has done for her son:

Less than a month into starting biomedical treatment, the Generation Rescue grant recipients are making amazing progress!

"P's teachers were thrilled today when I came to pick him up from school. They said it was the best day he's had in a long time. P's expressive and receptive language is just taking off. He is able to express anything he wants. We're over the moon! Seeing these positive changes makes us so grateful for this opportunity."

-V, Mom to P

To find out more about the Generation Rescue Family Grant program and to apply to start treatment, please visit Gen Rescue.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


OurKidsASD Contest for Enhansa Curcumin or ASD Autism Spectrum Supplement

Enter to winOur friends at OurKidsASD have a contest for you. No Luck of the Irish Lee SIlsby needed, just leave a comment to enter and you can choose from one bottle of Enhansa Curcumin 150mg, 600mg or powder or ASD Vitamin and Mineral Powder any version.

OurKidsASD is the in-house brand from our sponsor Lee Silsby Compounding Pharmacy in Cleveland, Ohio. Lee Silsby is one of the largest and most respected compounding pharmacies in the country.

Our pharmacy offers a:

  • Class 100 certified clean room for preparing sterile products
  • Dedicated capsule room
  • Large compounding facility
  • Pharmacists always available to speak with practitioners and patients

We use only the finest quality chemicals and equipment to prepare our patients’ compounded medications and nutritional supplements. Customizing medication and nutritional supplements for our customers allows them to achieve their unique health goals.

Continue reading "OurKidsASD Contest for Enhansa Curcumin or ASD Autism Spectrum Supplement" »


Leucovorin Study for Autism

Lee SIlsbyManaging Editor's Note:  We are proud to share with you that  Lee Silsby Compounding Pharmacy in Cleveland, Ohio, is supplying the Leucovorin for this study below. Alan Israel, lead pharmacist, has been a leader in our community to ensure safe, effective biomedical treatments for our children. On a personal note, Lee Silsby was the first pharmacy I ever used for girls' back in 2001 and I've never forgotten their customer care and attention.  Thank you, Alan and the staff at LS.  KRS

A Folinic acid intervention for ASD

Dr. Richard Frye is conducting an exciting study on the impact of a daily treatment of folinic acid on ASD-related symptoms. The hypothesis is that an folinic acid will improve folate metabolism in the brain, oxidative stress and mitochondrial function in children with autism, resulting in specific health improvements for patients with autism, a discovery that would be very welcome by the autism community.

Lee Silsby Compounding Pharmacy has been selected as the sole supplier of Leucovorin (folinic acid) for the study. Alan Israel, R. Ph., the lead pharmacist at Lee Silsby, stated that the biomedical community can benefit greatly from more research and that he is willing to help out as much as possible. To his credit, Lee Silsby Compounding Pharmacy has agreed to provide folinic acid for both the double-blind placebo-controlled portion of the trial as well as the open-label portion of the trial at no cost to the patients in the trial.

Dr. Frye’s current proposal can potentially provide strong evidence for a folinic acid intervention and will provide insight into the subgroups of children with ASD who would benefit from folinic acid.  The primary goal is to improve language for those with ASD (which is measured by the receptive and expressive CELF language index). Preliminary studies have suggested that a folinic acid intervention is associated with receptive and expressive language improvements. For example, in a case-series of 44 children with ASD and the folate receptor alpha autoantibody, treatment with high-dose folinic acid (2 mg/kg/day divided twice a day; maximum dose 50mg / day) improved communication, attention, and stereotypical behavior in many children with ASD.

Folate is an essential B vitamin required for normal neurodevelopment.  Defects in folate metabolism can cause secondary physiological abnormalities, some of which have been associated with ASD.  In this study, Dr. Frye and his team aim to study several physiological mechanisms associated with folate abnormalities in children with ASD: the folate receptor alpha autoantibody that reduce folate transport across the blood-brain barrier, low glutathione redox status, mitochondrial dysfunction and genetic polymorphisms. Most importantly, ASD patients with these physiological mechanisms have shown improvement in ASD symptoms with a folinic acid intervention.

Continue reading "Leucovorin Study for Autism " »


The Worms Crawl In The Autism Crawls Out

Retro mom worms in fridgeAw come on, who hasn't sung that childhood tune? Seems even Mainstream Medicine is giving a serious look to a treatment posed at Autism One several years ago - and has a study to review the efficacy of parasite treatment for autism. Yes, creepy crawlies. 

Fox News has a report that Dr. Eric Hollander, at Albert Einstein College of Medicine is conducting a study using TSO, "whipworms" for autism.  Honestly, the report looks like we could have written it right here at Age of Autism. It's encouraging to see mainstream docs looking beyond psych medications as treatment. The article has a link to volunteer for the study.

“There’s some evidence with autism that some individuals may have had an activation of the maternal immune system – the inflammatory response is activated during pregnancy,” Hollander told FoxNews.com. “The TSO is a naturally-occurring drug delivering device that can dampen the inflammatory response and decrease pro-inflammatory cytokines, which is something that keeps the inflammatory process going. And, that’s associated with certain symptoms we see in the autism disorder.”

Hollander said his patient failed to respond to typical treatments like Risperdal or Abilify, which is marketed for severe disruptive behaviors. Incidentally, the teenage patient also has a history of allergies and food allergies – and his family has a history of autoimmune diseases.

The family noticed their son’s autism behavior improved when he was having an allergic reaction or fever, leading them to believe there was a problem with his immune response – so they got the idea to treat him with TSO, an immunotherapy biologic agent.

Read more: http://www.foxnews.com/health/2013/01/21/study-looks-at-worm-therapy-to-treat-autism/?test=latestnews#ixzz2Inmlgcjz


Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

Register For Fall Autism Research Institute Conference in Orange County

ARI sidebar logoThe Fall 2012 ARI Conference is set for October 11-14th at the Hyatt Regency Orange County near Disneyland in Garden Grove, CA. The Autism Research Institute has negotiated a block of special discounted room rates of just $119 per night. You must reserve your room by next Monday to take advantage of this special rate.

REGISTER HERE

Don't Miss Our Free Special Event with Ken Cook October 12th Hear Environmental Working Group President Ken Cook's 10 Americans presentation in person at the Hyatt Regency Orange County at 7:30 p.m. Friday, Oct. 12th.

Enter to Win an iPad and See "Stories in a Snapshot" at ARI's Networking Party Sat., Oct. 13th  

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

Age of Autism Contest: OurKidsASD Autism Supplements

Enter to win Congrats Trina and Carly, our winners. Contest is Closed.

Our good friends from Lee Silsby Compounding Pharmacy and OurKidsASD are offering you a chance to try two popular and useful products for back to school for free in this latest contest.

Trina and Carly won a bottle of Kensho Nutritional Support (powder) for the hyperactive child and a jar of  GabaMag cream with NO formaldehyde releasing preservatives. 

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Meet The Medical Academy of Pediatric Special Needs: MAPS

ListenMapping the way forward, with Dr. Dan Rossignol and Shannon Kenitz

On the VoiceAmerica Health & Wellness Channel
AutismOne: A Conversation of Hope<
Tuesday, August 7, 12 noon Eastern/9 am Pacific
Listen HERE

MAPS:  Mapping the way forward, with Dr. Dan Rossignol and Dan_rossignol Shannon Kenitz

The Medical Academy of Pediatric Special Needs (MAPS) has been developing an ASD Fellowship for physicians and other medical professionals. Under the guidance of Daniel Rossignol, MD, FAAFP, and David Berger, MD, FAAP, this evidence-based course of study has been uniquely designed by clinicians for clinicians. The MAPS Spectrum Standard of Care Conference is coming up September 27-29 in Orlando, FL, with CME units available.  Dr. Dan Rossignol, MAPS president and head of the Rossignol Medical Center, and Shannon Kenitz, executive director of the International Hyperbarics Association (IHA), join Teri to talk about MAPS and the road forward for kids on the autism spectrum.  Visit www.medmaps.org.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Win Dr. Martha Herbert's The Autism Revolution Whole Body Strategies for Making Life All It Can Be

Autism RevolutionWe have contests frequently at Age of Autism. But this one is special. Dr. Martha Herbert, MD, who is an assistant professor of neurology at Harvard Medical School and a pediatric neurologist at Massachusetts General Hospital has kindly given us a signed copy of her book The Autism Revolution Whole Body Strategies For Making Life all it Can Be. Please leave a comment to enter.

After years of treating patients and analyzing scientific data, prominent Harvard Medical School researcher and clinician Dr. Martha Herbert offers a revolutionary new view of autism. Autism is not hardwired into a child’s genes and destined to remain fixed forever, as parents are often told. Instead, Dr. Herbert approaches autism as a collection of challenges, many of which can be tackled in a deliberate and methodical way. Her recommendations aim to provide optimal nutrition, reduce toxic exposures, shore up the immune system, reduce stress, and open the door to learning and creativity—all by understanding and truly meeting your child’s needs.

Drawing from the newest research, technologies, and insights, as well as inspiring case studies of both children and adults, Dr. Herbert guides you through small changes that can create a substantial difference in your loved one with autism. A paradigm-changing book that offers hope and healing for the millions of people with autism in their lives, The Autism Revolution shows that there’s plenty you can do every day to reduce vulnerability, feel better and live life to its fullest.

Read the Table of Contents and Introduction.

Read Preventing and Dealing with Autism Problem Behaviors.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Free Two Day Event As Talk About Curing Autism Philadelphia Chapter Welcomes Dr. Richard Frye to Speak

Dr. Richard Frye**FREE EVENT** Save the date! TACA 160

Don’t miss this special two-day event where you can hear the latest on Autism research and treatments from one of the top ASD specialists in the country! Come with questions and hear Dr. Frye speak on…

Location:
Saint Alban’s Episcopal Church
3625 Chapel Road
Newtown Square, PA 19073Dr. Richard Frye is coming to TACA PA!!
www.tacanow.org

Friday, August 3, 2012, 7:00 - 9:00 PM

• Neurological Abnormalities in ASD

Children with autism have been found to have many neurological abnormalities. These include differences in brain function, structure and connectivity, neurotransmitter and metabolic abnormalities and electrical disturbances in the brain including seizures. This talk will review some of the important aspects of these neurological abnormalities and their treatments.

Saturday, August 4, 2012, 10:00 AM - 12:00 PM

One Talk Covering Two Common Issues

• Mitochondrial Disorders in Autism Mitochondria

There is strong evidence that many children with autism also have a mitochondrial disorder, which means that the mitochondria produce less fuel for the body and for the brain. This talk will discuss the challenges of how to test for mitochondrial disorders, as well as the current treatments available for them.

• Seizures in Autism

A New National Survey on Treatments: Approximately 25% of children and adults with autism have seizures, and another 50% have sub-clinical seizures that are often undetected but may affect their intellectual functioning. This presentation will briefly review seizure issues in autism, and then present the new results of a national survey of over 500 children and adults with seizures, with a comparison of the benefits and possible side effects of many medical, dietary, and nutritional treatments.

Dr. Richard Frye, M.D., Ph.D., who is the Director of Autism Research and Associate Professor of Pediatrics at The University of Arkansas for Medical Sciences, speaks across the country on pediatric neurological disorders. He specializes in pediatric neurology disorders including learning disabilities and dyslexia, autism and developmental delay, speech and language delay, attention deficit, tics and Tourette’s syndrome, sleep disorders, and epileptic encephalopathy. Dr. Frye is board certified in Pediatrics and in Neurology and completed fellowships in behavioral neurology and psychology.
Nationally Renowned Speaker from Autism One, ARI & more!

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Autism Research Institute Spring Conference April 26 Newark NJ

ARI sidebar logoWe're fortunate to have conferences year round from organizations seeking to provide the best in treatment, education, living, employment and other pressing topics in autism. Traveling isn't always easy for us though - goodness knows.  This year, the Spring 2012 ARI conference is in Newark, NJ at Liberty International Airport. That means you can hop onto AMTRAK from almost anywhere on the Eastern seaboard and chug chug right to the conference. No airlines, no taxis, no hassle.

Register HERE

From ARI:

We've brought back our popular "Buddy Pass" rates exclusively online. Pre-register a group of two or more online to attend a General, Science or Diet Session, then add as many friends as you want for the sessions they want, and you'll all save 25% on your registration.

Note: 25% Discount does not apply to practitioner seminars, fees for continuing education credits, printed books or special events. Discount is automatically applied at checkout when you register online.

FRIDAY GENERAL SESSION - APRIL 27TH
7:30-8:15
       
Registration, Exhibit Viewing, Hosted Coffee, Cash Breakfast
8:15-8:30
       
Welcome Announcements
SPEAKER  Stephen Edelson, Ph.D.
8:30-9:30
       
The Time Is Now
SPEAKER  Andrew Levinson, MD
9:40-10:30

Continue reading "Autism Research Institute Spring Conference April 26 Newark NJ" »


Nobel Laureate Luc Montagnier, M.D To Present at Autism One Generation Rescue Conference

AO-con-graphic-2011

YOU WON'T WANT TO MISS THIS -- IN PERSON -- AT THE AUTISMONE/GENERATION RESCUE 2012 CONFERENCE ON FRIDAY, MAY 25, 11:30 AM

The Westin Yorktown Lombard, IL (outside Chicago)

Go to Autism One Generation Rescue Conference to register ($25 processing fee, conference is free.)

AUTISM: The Microbial Track    
Presented by Nobel Laureate Luc Montagnier, M.D., and the group CHRONIMED

Health authorities in many countries are concerned - and rightly so - of the significant growth in the number of children with a specific neuropsychiatric syndrome, autism. The most recent CDC US statistics give an estimate of 1 child in 88 affected by an autism-related syndrome. The sociopsychological aspects of this complex syndrome should be treated as such, but we researchers and doctors believe it necessary to go further by looking for organic causes and from this, derive a policy of both treatment and prevention. The observed increase may come from genetic factors -- real factors to be sure -- but factors that have not changed in the various populations affected in less than a generation. On the other hand, we must consider environmental factors as they have changed considerably our biosphere: infant nutrition, air pollution and pesticides, increased exposure to electromagnetic radiation of all frequencies associated with the globalization of human communication, and changes in our microbial flora.

Continue reading "Nobel Laureate Luc Montagnier, M.D To Present at Autism One Generation Rescue Conference" »


Winner Lee Silsby OurKidsASD Autism Treatment Contest

Enter to win  CONTEST IS CLOSED. We'll have another soon from our good friends at Lee Silsby Compounding Pharmacy and OurKidsASD.

Congrats to RONDA and MANDY who've each won a bottle Enhansa (150mg/150 capsules or 30gm powder) and a bottle of ASD vitamin and mineral powder (30 scoops, any variety).

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Age of Autism Contest: Lee Silsby OurKidsASD Enhansa and ASD!

Enter to win  Our good friends from Lee Silsby Compounding Pharmacy and OurKidsASD are offering you a chance to try two popular and useful products free in this latest contest.

Leave a comment to win a bottle Enhansa (150mg/150 capsules or 30gm powder) and a bottle of ASD vitamin and mineral powder (30 scoops, any variety). We'll have 2 winners.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Mending Autism Webinar on Managing Stress of ASD with Pediatrician Dr. Jerry Kartzinel

Mending AutismDr. Jerry Kartzinel will speak regularly on topics related to the care and management of autism for parents of children with autism.  You're invited by  Dr. Jerry to email mendingautism@gmail.com to sign up for this Wednesday night's (March 14, 2012) webinar on Managing The Stress of Autism which runs at 9PM Eastern, 6pm Pacific.

Dr Jerry Kartzinel is a Fellow in the American Academy of Pediatrics. He specializes in the recovery of neurodevelopmental, chronic neuro-inflammatory diseases, and hormonal dysfunctions. After receiving his medical degree at St Louis University School of Medicine, he completed his residency in pediatric medicine in the Air Force. Following Desert Storm, Dr Kartzinel practiced general pediatrics in private practice for 10 years until his fourth boy was diagnosed with Autism. A nationally recognized speaker and New York Times Best Selling Author, Dr. Kartzinel has presented medical interventions that work to improve the lives of his patients who suffer from many types of medical conditions that include: autism, allergies, inflammatory bowel disease, chronic constipation, chronic diarrhea, sleep cycle disruptions, and hormonal imbalances. He regularly teaches Continuing Medical Educations courses on children’s health issues to physicians and other health professionals. His clinical approach is to treat the whole patient by carefully obtaining a full and complete history and based on this history, obtaining very detailed laboratory evaluations. Individualized plans are implemented integrating the very latest medical interventions that include both traditional and complimentary medicine approaches.

Continue reading "Mending Autism Webinar on Managing Stress of ASD with Pediatrician Dr. Jerry Kartzinel" »


Autism File Presents Article on Camel Milk by Christina Adams

Autism file logoThank you to Christina Adams and Autism File Magazine for allowing us to share this article on Camel Milk and autism with  you.  Published bi-monthly, Autism File is available nationwide at Barnes & Noble, Books A Million, and several other retail outlets, and by subscription.  For more information, visit www.autismfile.com .

Mother/Author’s Six-Year Camel Milk Quest Revealed

New Article Reports Significant Results for Autism, Diabetes and Machado-Joseph Treatment

Los Angeles, CA -- In an article published today, author Christina Adams reveals for the first time her secret six-year struggle to import raw camel milk from Israel to treat her son who was diagnosed with autism at the age of two.  Reporting that treatment with camel milk greatly improved her son’s autism symptoms, Ms. Adams, featured Autism File contributor and author of A Real Boy: A True Story of Autism, Early Intervention and Recovery (Berkley/Penguin), also points out scientifically documented information showing treatment potential for a range of diseases and conditions including diabetes, hepatitis, and food allergies. The article, appearing in the April/May issue of the Autism File magazine, breaks the news that camel milk is reportedly reversing symptoms in some patients with Machado-Joseph disease--a fatal inherited disorder with no previously known treatments.

In the article, Ms. Adams, a former NPR Day to Day commentator, explains the science behind the use of camel milk for treatment of various diseases.  She also shares her personal story of being a newly single mom who reached across the world via Skype and telephone to form a bond with two Israelis, one an esteemed Israeli-American scientist, the other a camel milk producer.  According to Ms. Adams, “They sent milk for my son, who showed remarkably better speech, attention and emotional connection the morning after drinking a half-cup of milk at bedtime.”  Adams also contacted California camel farmer Gil Riegler of Oasis Camel Dairy, as seen on “Dirty Jobs,” “Larry King Live” and “Bizarre Foods” (upcoming), who brought her frozen bottles of milk in suitcases from Israel after she introduced him to her Israeli contacts—one of whom turned out to live next door to Gil’s brother.

Ms. Adams will give the first known US public lectures on camel milk’s healing properties in May at Oasis’s first “camel dairy” seminar in California and at the Autism One conference in Chicago, in her new “Practical Magic” lecture series.  She is the first known person to get federal government permission to import camel milk for autism.  “My son has been drinking camel milk for the last five years, making him probably the longest continual user of camel milk for autism treatment,” said Ms. Adams.

You can read the full article at Got Camel Milk? Anecdotal Evidence Suggests It May Improve Autism Symptoms But Getting it From the Desert to Your Door Isn't Easy. Excerpt below:

Nomads in Algeria have long said, “Water is the soul, milk is the life.” They may be proved right
by emerging reports that camel milk, the drink of nomadic peoples from Mongolia to India, may have a healing effect on various diseases.

Continue reading "Autism File Presents Article on Camel Milk by Christina Adams" »


Introducing MAPS: The Medical Academy of Pediatric Special Needs

ASD04 - thumbnail coverBy Teri Arranga

An important movement has been initiated that holds great promise for the future of autism prevention and recovery. The Medical Academy of Pediatric Special Needs (MAPS) has as its mission to “provide education and long-term support for practitioners, ensuring the quality and consistency of medical care for children with autism and related chronic conditions.”

Although much of the focus will be on autism, MAPS will deal with all things pediatric, including allergies, asthma, attention-deficit/hyperactivity disorder, immune dysfunction, and more.

Prolific author, researcher, and clinician Daniel A. Rossignol, MD, FAAFP, serves as president, and holistic, board certified pediatrician David Berger, MD, FAAP, serves as vice president. I interviewed Dr.

Berger, who has a superb track record of preventing autism and other chronic illnesses in his pediatric population, and I was excited and encouraged by what he told me of MAPS.

I first asked Dr. Berger why there was a need for MAPS. Dr. Berger began by telling me why MAPS is unique, exemplifying the need: “This is a program developed by physicians, organized by physicians, and taught by physicians for physicians. Clinicians will need to go through a series of requirements before obtaining the level of Fellowship.”

The MAPS curriculum will center on conferences that consist of two levels of training. MAPS will offer several levels of affiliation. Anyone who works with individuals on the autism spectrum can be a member of MAPS and attend MAPS conferences; however, only prescribing practitioners who can implement pharmacological strategies can move to the Candidate and then the Fellow levels of MAPS. The reason for this is that individuals with an autism diagnosis often have underlying conditions—what some people call “comorbid”—that may benefit greatly from some prescription medications.

Continue reading "Introducing MAPS: The Medical Academy of Pediatric Special Needs" »


From Truth to Treatment: Autism One Generation Rescue 2012 Conference Registration Opens This Week

ChicagoUse your Hanukkah gelt or stocking stuffer cash for a trip that's sure to make Chicago "your kind of town." Autism One is a whirlwind of friendship, support, knowledge, partying (what, you think we're all business?) and energizes attendees to seek answers for loved ones throughout the year.

• 100+ SPEAKERS/PRESENTATIONS
• 20+ TRACKS
• 5 DAYS
• 3 KEYNOTES
• 5 FEATURED

How did you know that your child could be helped? Someone told you the truth. After a decade of AutismOne's service to you, your child, and your family, that is what the AutismOne/Generation Rescue 2012 Conference continues to do -- present you with the truth . . . the truth that leads to treatment. It's the dawn of a new decade for AutismOne. It's the dawn of a new era for your child.

This year's proceedings include Nobel Laureate in Physiology or Medicine Dr. Luc Montagnier, best-selling author David Lender, and a major announcement we hope to make later this week. The conference registration fee has again been waived. There is a minimal processing/materials fee of $25, and those registering through February 15, 2012, will receive a coupon for three free digital lecture downloads from the 2011 video selection. There will be affordable childcare spots available to conference registrants on a first come, first served basis.

AutismOne is also pleased to announce the opportunity for you to make tax-deductible, year-end donations through our new donation button starting December 26, 2011. Please help us continue to help children and families far and wide through the many educational and advocacy initiatives of AutismOne, including the conference, Autism Science Digest, AutismOne Radio, and much more. Many thanks for your kind support. www.autismone.org.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Join Dr. Amy Yasko of Holistic Heal Live (From Your Home!)

Yasko autism oneIf you've met Dr. Amy at Autism One, you know she packs the house for her sessions.  Putting families first, she also offers free consultation and support online.  Since 2003, Dr. Amy, the mother of three, has worked with thousands of families of children with autism. She has earned a doctorate in molecular biology and immunology, and certifications in Alternative Medical and Holistic Health practice.  Visit DrAmyYasko.com to learn more about her practice.

Join Dr. Amy Yasko in the beautiful mountains of Maine for a Question & Answer session with Erin Griffin, SuperMom and moderator of our www.CH3nutrigenomics.com chat group. Watch via videochat as she answers your questions, handpicked by Erin from the Discussion Group forum.

All Q&A sessions will be archived and available for additional viewing after the premiere at www.DrAmyYasko.com/Resources/QandA

Answers will also be provided in written format and posted on the www.CH3nutrigenomics.com chat group for additional reference.

Please note that the Q&A Session will not replace Dr. Amy's Webisode Series every other Sunday at 8PM EST, but is an additional resource we provide towards your Pathway to Recovery.

We hope that you enjoy this new feature from Holistic Health International

The next airtime will be this Sunday, Dec. 18th at 2pm EST and will continue there after on the 1st Sunday of every month at 2PM EST.

Dr. Amy comments on questions posed by families using the Yasko Protocol in the Online Discussion Group.
Learn more about Dr. Amy.

The Nutrigenomic Test used in our program is based on Dr. Amy’s extensive research, and clinical experience—working with both children with autism, and adults with neurological ailments.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Prescribing Zoloft and Other Antidepressants to a Fetus

Pregnant drugsBy Deborah Merlin

Dr. Tinus Smits the founder of CEASE-therapy for autism, believes that:

 Autism is an accumulation of different causes:

  • about 70% is due to vaccines
  • 25% to toxic medication and substances
  • 5% to some diseases

According to a study in the Archives of General Psychiatry, women who took Zoloft or other selective serotonin reuptake inhibitors (SSRIs) were twice as likely to give birth to a child with autism spectrum disorder.

A review of medical records of more than 1,800 children, including 298 who have autism, found the risk of having a child with autism spectrum disorder was about twice as high among women who took SSRIs in the year before giving birth.

Mothers who take Zoloft in late pregnancy can “pass along” side effects to their baby.   Side effects include:  persistent neonatal pulmonary hypertension, neonatal serotonin syndrome and a neonatal withdrawal syndrome. Neonatal abstinence syndrome (NAS) is a group of problems that occur in a newborn who had been exposed to drugs while in the mother’s womb.

Suicide, worsening of depression and mania (especially in undiagnosed bipolar disorder) are among the psychiatric serious Zoloft side effects. For example these two tragic cases were attributed to Zoloft. 

1.      Brynn Hartman, wife of comedian Phil Hartman, shot and killed her husband and herself while on Zoloft.

2.      Christopher Pittman at age twelve shot and killed his grandparents. He claims a voice inside his head told him to kill his grandparents on November 28, 2001.Christopher had recently started to take Zoloft to treat mild depression.

My personal experience with Zoloft:

When my twins were young, I was seeing a behavior specialist to assist me in how to deal with ADHD children. Although I was not clinically depressed she suggested that I try an antidepressant. She said it would help take the edge off the stress of raising ADHD-diagnosed twins. I was prescribed Zoloft. The one positive thing I had going on in my life was a happy marriage. Within three days of taking Zoloft, my sex drive disappeared, my emotions felt as though they were trapped in a cave inside my brain and I was numb and emotionally disconnected from my family. The medicine actually made me depressed. I stopped Zoloft after a month.

In experiencing adverse symptoms while taking Zoloft, it made me wonder how much damage SRRI’s are causing to a fetus’ developing brain. There are many safe effective alternative ways to treat depression. And we should start by addressing the root causes of depression.  Some of the most common reasons for depression are:

Hypothyroid (low thyroid):  When the thyroid gland is underactive, your metabolism slows down and you may suffer from depression along with many other health conditions. To learn more go to Hypothyroidism and Depression. 

Continue reading "Prescribing Zoloft and Other Antidepressants to a Fetus" »


Dr. Amy Yasko to Live Stream 2 Autism Treatment Conference Sessions

2011.conference.shuffle
Can’t make it to Los Angeles for the Yasko Protocol Conference this weekend? We are excited to announce that HHI will be live streaming two segments of the conference HERE..

  • Sat, Oct 8th @ 8am Pacific Time “Mutations & Methylation”
  • Sat, Oct 8th @ 12:30pm Pacific Time “More Pieces to the Puzzle”

 

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby  , the leader in quality compounded medications for autism.


Age of Autism Contest: OurKidsASD Lee Silsby Supplements for Back to School

Enter to win  The contest is CLOSED. Congrats to Casie L. and Heather C.! I've sent each of you an email. Kim

Our good friends from Lee Silsby Compounding Pharmacy and OurKidsASD are offering you a chance to try two popular and useful products for back to school for free in this latest contest.

THE CONTEST IS CLOSED.

Leave a comment to win a bottle of Kensho Nutritional Support (powder) for the hyperactive child and a jar of  GabaMag cream with NO formaldehyde releasing preservatives.  We'll have TWO winners. Good luck!

 

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Get on the (MB12) Stick! revitaPOP is on GROUPON!

RevitaPOP_grid_6
Click here to see our friends at revitaPOP with a great deal on Groupon!


Recent studies show that using nutritional supplements can maximize workouts, allowing exercisers to run the 40-yard dash in only 20 yards. Garner your fitness efforts with today's Groupon from revitaPOP. Choose between the following options:

    * For $12, you get a one-month supply of revitaPOP, plus shipping and handling (up to a $39.99 value).
    * For $25, you get a three-month supply of revitaPOP, plus shipping and handling (up to an $88.98 value).

revitaPOP, lauded by VegNews in 2010, packages a bioavailable form of vitamin B12 into scrumptious lollipops to help patrons supplement their diets. The methylcobalamin, or mB12, inside each pop is a neurologically active, quick-acting form of the vitamin that travels through the tongue’s trigeminal nerve to reach all destinations in the body, including omniscient third eyes. The confection’s effects travel swiftly through the system, providing bodies with extra energy, potentially improving focus, and upping infection-beating ability. Organic, evaporated, and unrefined cane juice partners with delectable goji flavor to surround each lollipop’s 3.6 milligrams of nutritious cargo, allowing each vitalolly to clock in at only 5 grams of sugar. Each month’s supply comes packaged in a neat bag of 30 pops, safe to suck on daily for a rejuvenating lift, and can be safely bequeathed to kids to help boost their grades, mood, and spontaneous declarations of amalgamated career choices.

revitaPOP also supports communities with disabilities, employing and enabling workers operating with brain injuries, developmental disabilities, and autism, among others, to generate independence and self-sufficiency in their lives.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Pathways To Recovery The Yasko Protocol Conference Los Angeles This October

2011.conference.shuffle

Holistic Health International is proud to host Dr. Amy Yasko’s conference in Los Angeles, CA- October 7-9, 2011. Our conference in Boston last summer was a resounding success for both newcomers and veterans of the protocol. This year we look forward to meeting again and have a great event planned in sunny Los Angeles this coming Columbus Day weekend. We invite you to join us for a weekend of learning, science, hope and recovery. For more details call 1-800-768-8744 or log onto www.HolisticHeal.com  We look forward to seeing everyone there!

Lee Silsby logo 09The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Dr. Amy Yasko To Host Autism Treatment Conference in Los Angeles in October

2011.conference.shuffle

Holistic Health International is proud to host Dr. Amy Yasko’s conference in Los Angeles, CA- October 7-9, 2011. Our conference in Boston last summer was a resounding success for both newcomers and veterans of the protocol. This year we look forward to meeting again and have a great event planned in sunny Los Angeles this coming Columbus Day weekend. We invite you to join us for a weekend of learning, science, hope and recovery. For more details call 1-800-768-8744 or log onto www.HolisticHeal.com  We look forward to seeing everyone there!

Lee Silsby logo 09The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Autism Science Digest August Issue: ADHD Treatment, Thyroid and More

Autism Science Digest
Get your 160-page August edition of Autism Science Digest -- the magazine that gives you the value of a book!  See what subscribers around the world are reading. Subscribe HERE.

The August issue's articles include:

  • Cerebral folate deficiency in autism spectrum disorders
  • Biofilm: A Cause of Chronic Gastrointestinal Issues in ASD
  • Mitochondrial dysfunction and autism spectrum disorders
  • Hope through Hyperbaric Oxygen Therapy
  • Current Trends in ADHD/ADD Treatment
  • The Thyroid-Autism Connection
  • And much more!

AutismOne brings you your favorite authors and information you can share with your family, friends, physicians, patients, coworkers, and colleagues but -- most of all -- your kids!

A one-year subscription is just $24.95 in the US/Canada and $45.00 USD around the world.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Win Two Free Tickets to the AMAB Cleveland Autism Conference!

Free ticket By Kim Stagliano

THE CONTEST IS CLOSED. We'll alert the winners by email.

We have ten sets of two free tickets (one for you and a friend) to the AMAB conference in Cleveland, Ohio on Friday July 22 and Saturday July 23rd compliments of the conference organizers and our wonderful sponsor Lee Silsby Compounding Pharmacy. Leave a comment to enter. Winners announced on Monday.Go to www.asdboards.org to learn more.

I'll be speaking and signing books on Friday afternoon and would love to meet you!

Speakers include Raun Kaufman of Son Rise, Dr.Patrick Elliot, a surgeon with twin boys on the spectrum, Dr. Derrick Lonsdale, a pioneer in Defeat Autism Now! (and our daughter Mia's first physician for autism treatment) and many others. The therapy panel on Sunday includes top speech, OT and cranio-sacral experts from the area. Click HERE for the complete list of speakers.

Lunches and refreshments are included each day

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


New Study: Traditional & Non-Traditional Treatments for Seizures with Autism

Eeg Countless families are rocked by the combination of autism and seizures.  More research is welcome indeed. What has been your experience with anti-epileptic drugs for your child's seizures? Click HERE to  read the full document.

Traditional and non-traditional treatments for autism spectrum disorder with seizures: an on-line survey. Richard E Frye Swapna Sreenivasula< James B Adams BMC Pediatrics 2011,37doi:10.1186/1471-2431-11-37

Abstract (provisional)

Background

Despite the high prevalence of seizure, epilepsy and abnormal electroencephalograms in individuals with autism spectrum disorder (ASD), there is little information regarding the relative effectiveness of treatments for seizures in the ASD population. In order to determine the effectiveness of traditional and non-traditional treatments for improving seizures and influencing other clinical factor relevant to ASD, we developed a comprehensive on-line seizure survey.

Methods

Announcements (by email and websites) by ASD support groups asked parents of children with ASD to complete the on-line surveys. Survey responders choose one of two surveys to complete: a survey about treatments for individuals with ASD and clinical or subclinical seizures or abnormal electroencephalograms, or a control survey for individuals with ASD without clinical or subclinical seizures or abnormal electroencephalograms. Survey responders rated the perceived effect of traditional antiepileptic drug (AED), non-AED seizure treatments and non-traditional ASD treatments on seizures and other clinical factors (sleep, communication, behavior, attention and mood), and listed up to three treatment side effects.

Continue reading "New Study: Traditional & Non-Traditional Treatments for Seizures with Autism" »


Your Healing Retreat: Education & Hope for Autism and ADD

  Me-time The "Your Healing Retreat" conference is this June 3-5 at the Kanuga Conference center in Henderson, NC.  

Carve out a few days for yourself and spend time with Elizabeth Mumper MD, Julie Buckley MD, FAAP, Maureen McDonnell RN, Nancy O'Hara MD and Stephanie Cave MD, MS, FAAFP, true leaders  of the autism treatment community. This is a unique conference designed with treating Mom and Dad to a gentle retreat that will also help your child.

Visit Your Healing Retreat today to learn more. 

Your Healing Retreat:
June 3rd – June 5th 2011
Sponsored by Hopewell Pharmacy and Compounding Center

By Maureen McDonnell RN

Parents Can’t Keep Going Without Hitting the “REFRESH” Button

Parents of children with autism are on a constant quest to discover all they can to improve the behavior, speech, cognitive function and general health of their children.  However in the midst of their ever-escalating activities and pursuits, they need to stop once in a while and take care of themselves. 

When I joined four of the top medical experts in the biomedical field (Drs Stephanie Cave, Liz Mumper, Nancy O’Hara and Julie Buckley)  for a weekend last year after Julie Buckley (a pediatrician and mother of a child with autism)  developed breast cancer, it wasn’t to compare power points or fill each other in on the latest research, it was to stop and acknowledge that with Julie’s diagnosis and surgery,  the early passing of Jo Pike and the general high level of stress and illness in the autism community,  something needed to shift.    

The concept that was born out of the five of us coming together for that weekend was not only our name (sisters in science, spirit and spunk), but a new model of education, hope and rejuvenation we call Your Healing Retreat.   Yes, all four of these docs (and I) realized that in addition to fulfilling our mutual  desire  to teach physicians and parents methods for improving the children’s health and behavior, we also  wanted to address the  very real needs of the caregivers.   

So, instead of doing what we had always done and renting a hotel where we would breathe re circulated air, eat processed food and ask every researcher and clinician we knew to present, we decided to do something more in alignment with our new vision.  We searched for a serene, resort-type setting and found such a place in North Carolina.  The Kanuga Conference Center has hiking trails, a beautiful lake, 100 year old cottages with fireplaces and to add some proverbial icing on the cake, we will be serving all local and organic food.   

Yes, there will be lectures on mitochondrial dysfunction, immune dysregulation, and GI distress as well as talks for parents and primary care providers on practical solutions for reversing and repairing these conditions.  But there will also be a lakeside wine reception,  massage, yoga and dance sessions in the morning,  whole food cooking classes,  workshops on toxin-free dentistry and ways to create a healthy home or office,  sessions on stress management, healing relationships and meditation as well as a chance to sample  low pressure hyperbarics.  

Will parents and clinicians who attend learn cutting edge treatment strategies to help their children heal?  Absolutely!  But in addition, those who come to the healing retreat will leave feeling rejuvenated by both new perspectives on, and practical tools for, achieving healthier more balanced lifestyles.   

Spring is a time of renewal and Your Healing Retreat is an opportunity to experience this new model for learning and healing….. Press that REFRESH button and register today!

 

Register at a discounted rate for the month of April at www.YourHealingRetreat.com

The sisters will not let finances get in the way of parents and clinicians attending.   Any questions call or email Maureen McDonnell, RN at MauraHealth@aol.com or call 609-240-1315 and we will assist you.

Continue reading "Your Healing Retreat: Education & Hope for Autism and ADD" »


CharmTracker for Female Autism Issues

By Teresa Conrick

If you have a preteen or teen daughter(s) with autism - Please Read!


A group of parents who have daughters with an autism diagnosis are networking to form a group for researching the similar health issues our precious girls are having to endure.  We want to see the common patterns or differences so that we can gather data to help pinpoint valuable information.  A website for this has been developed, a treatment tracking system for autism called ChARMtracker (check it out at http://www.charmtracker.com). It is free to families and there are over 2,000 users worldwide now, all tracking histories, interventions, diets, medications, supplements etc. of their children. The pre-teen/teen girls would be done in a similar fashion but kept together as a group for data and specific age/sex similarities.  This is parent-driven and has no connections to any government or pharmaceutical companies.  We will be in communication with each other and the researchers as we journey.  This will not take the place of a doctor or a medical plan but will hopefully aid in determining any correlations in our girls thus, guide treatment planning.

As I had discussed with my own daughter, Megan, just recently (Autism Estrogen and Seizures)  about hormones and seizures, there seems to be some unique and challenging issues that may affect females diagnosed with autism.  We would like to explore these ideas by using innovative data-gathering and parental involvement.  What better way to the answers than looking at the affected children?

It is our hope that by systematic gathering of testing, data collection and a good source of researchers, we can find the missing answers to health issues that many of our daughters and loved ones suffer with so that treatments can be matched and health outcomes changed for the positive. As seizures seem to represent a very scary reality for our teen girls, we will also be reaching out to parents of girls injured by the Gardasil vaccine http://truthaboutgardasil.org/ to join us in our quest.  Please wish us luck as we start on this innovative and trailblazing journey.

Please email me if you are interested:

tconrick@gmail.com

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.


Twenty Age of Autism Readers to Win Cutting Edge Therapies for Autism!

Cutting edge 2012 The First Winner is Americo Rodriguez! Nineteen more chances!

Our friends at Skyhorse Publishing have given us TWENTY copies of Cutting Edge Therapies for Autism 2011-2012 Edition. That's one a day through the end of this autism ACTION month! Leave a comment on this post to win!  We track commenters on each contest post, don't worry!

Information for every parent of a child with autism, updated and revised with the latest developments.

The parents of children with autism know that research is a full-time job. For parents with limited time, ability, or resources to do this, Ken Siri and Tony Lyons have compiled the latest in autism research and treatment. Cutting-Edge Therapies for Autism contains contributions from more than eighty experts on a variety of therapies, models, and multifaceted evaluation and treatment centers. Each contributor provides readers with an easy-to-understand description of the topic, including its scientific rationale, development, risks, and benefits. Siri and Lyons include the therapies of the future, focusing on current clinical trials, ongoing research, and the researchers who are striving to better understand autism and find new treatments.

Revised and updated to reflect the new developments in the last year, the 2011–2012 edition explains possible causes of autism, including food allergies and gastrointestinal diseases in children. An extensive variety of therapies is discussed, from dietary interventions that reduce sugars and remove gluten to animal assisted therapies that place a dog or cat in the care of the autistic individual to help enhance social and developmental skills. Filled with numerous case studies and more than seventy distinct subjects, Cutting-Edge Therapies for Autism is a detailed and informative guide for anyone affected by autism. 94 black-and-white illustrations.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.