RESEARCHERS AT RUSH MEDICAL CENTER CREATING NATIONAL DATABASE TO STUDY AUTISM Sunday, December 18, 2016
∗ Autism is one of the fastest growing developmental disorders in the United States. It now affects one in every 68 children and on in every 42 boys.
∗ That's one reason why there is an intense push to try to find treatment and a possible cure. There is a major research study taking place at Rush Medical Center in Chicago.
∗ a ground-breaking research study, which is now gathering genetic information on autistic individuals. They're creating a national database.
∗ Every day we struggle with it and every day we hope that, in the back of your mind, that studies like this are going to help us," said Tony Belmonte, Jack's father.
∗ Nation-wide they are hoping to register 50,000 individuals on all levels of the autism spectrum. There is a concentrated effort now to get more minorities to sign up for this research.
At the bottom of the article, you'll read this: For more information about the Rush autism study, visit www.sparkforautism.org/rush. There you will go to a website which is not RUSH Hospital. To find out more, click on About SPARK on the bottom of that page. There you will see that, SPARK stands for ‘Simons Foundation Powering Autism Research for Knowledge,’ and the mission is simple: we want to speed up research and advance our understanding of autism to help improve lives. If you or your child has a professional diagnosis of autism spectrum disorder, learn more about SPARK here . If we keep following them, we can read even more about this plan - SPARK aims to build a research community of tens of thousands of individuals with autism and their families, who will be asked to share medical and genetic information with scientists and to agree to be contacted about future research studies.
For the person who knows little about the who, what, when, where and why of AUTISM, this could look to be promising BUT for most of the rest of the world, people are not accepting this approach anymore. The search for genes is NOT, nor has it EVER been helpful "to find treatment and a possible cure." Autism Speaks did this same thing, came up with a gene depository to look like they are using their money for something helpful. Sadly, this approach has done NOTHING for the tens of thousands of families who have children and now, young adults, who suffer with painful GI disease; seizures; inability to speak or communicate in a meaningful manner or, at all; extreme sensory disturbance; executive functioning disability; debilitating obsessions, compulsions and tics; heartbreaking self-injurious behaviors; and the daily struggles with social cues. This type of genetic research is going in the WRONG direction.