Meet the New Boss

Sebelius out, Burwell in. With the latter's Gates Foundation background, maybe she'll reach out to have people concerned about vaccine injury silenced. Oh wait, that already happened. What next? -- Hey April! Be aware of THIS, from 2003: "The Autism...

How Mercury Triggered The Age of Autism

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139 posts categorized "Sponsor News"

Active Healing: Creating a Healthy Neurological Foundation for your Child

Active Healing LogoPlease join us in welcoming Sargent Goodchild and his neurological Sarge Goodchild reorganization program called Active Healing to the AofA family.    Sargent was the very first provider I met who told me about biomedical treatments, diet, and a wide range of therapies that could help my girls improve their functioning. He has presented at Autism One and across the country at conferences.  Kim

Neurological re-organization (NR) honors and integrates the natural order of human development. NR uses a prescribed set of repetitive movements to remap your child’s neural pathways. Just as traffic is rerouted around damaged sections of road, NR strengthens existing neural pathways around damaged or underdeveloped parts of the brain.

Learn more about our our program or discover more about neurophysical development.

 

Video: Dr. Albert Enayati Petitions IACC to Include Regressive Autism

IaccPlease take 7 minutes to listen to Dr. Albert Enayati passionately petition IACC to include regressive autism and vaccination in their work. Their blithe response? "You've used up two minutes of your time."  Thank you to Canary Party for posting this video link.

From the Safeminds site:  Albert Enayati is one of the original founding board members of SafeMinds and an author of the original Auitsm and Mercury paper. He is a Principal Research Engineer with 33 years experience in R&D/mechanical testing of over 100 orthopedic devices maxillofacial, trauma and spine systems.

Coalition for Community Choice: Home is Where the Heart Is

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Managing Editor's Note: Please support our sponsor VOR and consider attending their conference in June in Washington DC., to ensure appropriate care and housing choices for YOUR child in the future.  "Making it Happen: Reforming Policy and Law in Support of Person-Centered Quality and Choice."  VOR is the ONLY national, nonprofit advocacy organization supporting residential choice from small to large housing options.

By Desiree Kameka, Director of Community Education & Advocacy, Madison House Autism Foundation and Tamie Hopp, Director of Government Relations & Advocacy, VOR

Originally published in EP Magazine; excerpts posted here.

Did you know…

ü  In the next decade, over 800,000 on the autism spectrum will transition to adulthood.

ü  Almost all states have waitlists for accessing adult support services, yet the average growth of funding nationally is only 3.2%. 

ü  Almost one million individuals with intellectual and/or developmental disabilities (I/DD) are still living with caregivers over the age of 60.

VOR 1

In response to these staggering statistics, there is a movement of families and local organizations working together to create sustainable solutions to this national housing and support service crisis. VOR 3They are gathering information at conferences, many have joined together for advocacy as the Coalition for Community Choice, and are sharing solutions at the new Autism Housing Network.  

This collective energy and collaboration is in direct response to efforts by some government officials and even advocacy organizations to limit and eliminate certain options based solely on residence or workplace size and location, without assessing the smiles, laughter, sustainability, job security and true empowering sense of community and belonging that is alive and well in these residential and vocational opportunities.

What does policy have to do with housing, employment and service choices?

     Federal and state policy and laws are largely responsible for how long term support services (LTSS)­­­­­­­­ are regulated and funded.

     In one recent, significant example, the Affordable Care Act of 2010 required that the Centers for Medicare & Medicaid Services (CMS) modify their regulations. On January 10, 2014, CMS released the long-awaited final version of the regulations, CMS 2249-F and CMS 2296-F. The new rule defines what CMS considers to be characteristics of “home and community” settings and the new person-centered planning requirements.

Continue reading "Coalition for Community Choice: Home is Where the Heart Is" »

Heroes! Chili's Supports Safety For People with Autism: Thank you!

UPDATE: Wow - Chili's CAVED to media pressure and cancelled their support of NAA. What a tragedy - from now on when a child wanders and dies you can Tweet and FB Chili's and remind them.

Chili's Grill & Bar 54 minutes ago Chili's is committed to giving back to the communities in which our guests live and work through local and national Give Back Events. While we remain committed to supporting the children and families affected by autism, we are canceling Monday's Give Back Event based on the feedback we heard from our guests. We believe autism awareness continues to be an important cause to our guests and team members, and we will find another way to support this worthy effort in the future with again our sole intention being to help families affected by autism. At Chili's, we want to make every guest feel special and we thank all of our loyal guests for your thoughtful questions and comments.

Chilis donate

PLEASE dine at Chili's on April 7  to support NAA. There is a  bot-based campaign to ATTACK NAA - a great org - started at the kitchen table of real autism Moms a decade ago and protecting, loving and supporting real families EVERY DAY - these attackers have branded NAA falsely - and viciously in social media - to protect an industry.  NAA SAVES LIVES with their wandering program. Eat. At. Chili's.

We'd like to thank Chili's restaurants for their support of the National Autism Association and their many programs that help keep children, teens and adults with autism spectrum disorders safe and in many instances, can save their very lives.

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SafeMinds: Top Ten Things to Know about the CDC Report on Autism Prevalence

Safeminds 2014 LogoA 29% increase in two years. Not Just Genetics. Not Just Increased Awareness and Better Diagnosis!

On March 27, 2014 the CDC published "Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2010" (MMWR Surveillance Summaries / Vol. 63 / No. 2). The study finds the rates of autism spectrum disorders (ASD) of children born in 2002 have increased to 1 in 68, up from 1 in 88 of children born in 2000. With males five times more likely to develop autism, the prevalence rate increased from 1 in 54 in boys born in 2000 to 1 in 42 in boys born in 2002.  SafeMinds is in the process of reviewing the most recent report but has these comments based on preliminary data presented to the autism community.  A more detailed analysis will be available soon at www.safeminds.org.

Problems with the ADDM Data

1. No Unified Process:  After a decade, the CDC has still not unified the review process among ADDM sites as it pertains to access to school-based health records, meaning there are site to site differences in the study. CDC notes that the lowest prevalence rates were found in states in which little or no access to education records was available (Alabama, Colorado, Missouri, and Wisconsin). When these four states are removed, total prevalence is 1 in 58, not 1 in 68.  Read more and download the full statement at the Safeminds site.

Early Bird Registration Ends 4/1 for VOR Conference on Person Centered Disability (Including Autism) Choice

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VOR 2014 Annual Conference, Legislative Briefing and Dinner Event

Making it Happen: Reforming Policy and Law in Support of Person-Centered Quality and Choice

Have you registered yet? 

When Sunday, June 8, 2014 arrives we hope you will be by our side. Great speakers have been confirmed and include attorney Bill Choslovsky, advocate and author Kim Stagliano, and Kathy Brown, President of the Developmental Disabilities Nurses Association.  

VOR’s Washington Initiative, which includes Congressional visits, will occur the week of June 9, 2014.  For more information, including registration opportunities, visit VOR’s website.

What are you waiting for?

 Here is an online registration form.

 If you prefer to respond by mail, here is a print form with conference details and registration form to mail.
From our sponsor: VOR

VOR 2014 Annual Conference and Initiative

"Keep up the good work! I found this Conference to be very educational and encouraging! Thanks for all you do!" ~ 2013 Conference Participant

Continue reading "Early Bird Registration Ends 4/1 for VOR Conference on Person Centered Disability (Including Autism) Choice" »

Another Smoking Gun for Environment/autism Link

Safeminds 2014 LogoAn analysis of 100 million US medical records reveals that autism and intellectual disability rates correlate with genital malformation incidence in newborn males, an indicator of exposure to harmful environmental factors. The study also finds that Autism and intellectual disability incidence decreases dramatically in states with stronger regulations on diagnosis.  Read article

An innovative methodology from researchers at the University of Chicago was used to detect the role of environment on population level for autism risk. The study shows the strong contribution of non-genetic, i.e., environmental factors driving autism rates. Our only quibble is the author’s supposition that vaccines play a weak role. This inference is due to the methodology not incorporating time trends but only single time point geographic differences. Since vaccines are given across geographies, this methodology would not be able to detect any effect of the burgeoning vaccination schedule over time. Nevertheless, a much needed and welcomed study.

Read the full post at the SafeMinds site.

Action Alert: NJ DDD Chris Christie Action Will Cause Disabled to Lose Their Homes

Action alertAttention New Jersey Constituents! VOR logo sidebar

Urge your Legislators to Protect New Jerseyans with I/DD From Eviction

The New Jersey Department of Human Services' Division of Developmental Disabilities (DDD) is moving ahead, with the blessing of Governor Chris Christie, on two initiatives that will result in hundreds of New Jersey's most fragile citizens with intellectual and developmental disabilities (I/DD) losing their homes.

The Governor recently announced a new, aggressive timeline for the closures of the North Jersey (by July 2014) and Woodbridge (by Jan 2015) Developmental Centers. These closures, being pursued by DDD, come at the same time as DDD is aggressively pursuing its "Returning Home New Jersey" initiative which seeks to move New Jersey citizens now receiving quality supports in other states (for lack of supports in New Jersey), back to New Jersey.

The vast majority of the hundreds of affected individuals with profound I/DD and their families/guardians OPPOSE these transitions. Woodbridge, North Jersey, and the targeted facilities in other states (including Woods Services, Melmark and Devereaux) are HOME to the affected residents, and have been for years, even decades. Many residents have experienced failed "community" placements and will predictably suffer if transitioned to unprepared, unlicensed smaller settings. 

These proposals are dangerous and cruel. They are being pursued with a goal that money will be saved, but even that goal is highly questionable if adequate, life-sustaining services are provided.  With a waiting list of more than 8,000, what makes New Jersey think they can safely serve individuals with profound I/DD with complex medical and behavioral challenges in already over-saturated, underfunded "community" system. And why? The affected individuals are already receiving great care.

Taking action is easy – just click here  for a ready to send letter that will be sent directly to your legislators. Then share this alert with all your New Jersey family and friends on email lists and social media. (New Jersey residents only please.)

We believe strongly that a position in support of person-centered needs and choice is not only morally correct, but also legally justified by the Supreme Court's Olmstead decision.  These individuals are already home. Please help by taking action today.

 

VOR Advocates for Disabilty Rights: 2/20 Newsletter

VOR logo sidebarHere are the highlights from the latest VOR newsletter.  To subscribe please fill out this form. Thank you.

Table of Contents

1. Facebook 500! Help VOR reach 500 Likes

2. 2014 Speaker Feature: Meet Kathy Brown, President of the Developmental Disabilities Nurses Association

Just a Good Editorial on Person-First Language

3. The Problem with Person-First Language: What’s Wrong with This Picture?

In the News

4. Kentucky: Adult abuse registry bill heads to House

5. National: Too many intellectually disabled are still excluded from the world of work, study says

Quality in the Community?

6. Washington, D.C.: 25 charged in largest Medicaid fraud bust in D.C. history, feds say

Quotable, by Samuel R. Bagenstos


VOR Newsletter Highlights

VOR logo sidebarHere are the highlights from the latest VOR newsletter.  To subscribe please fill out this form. Thank you.

Table of Contents
VOR and You
1.  Be a Sponsor. Get a Sponsor!

2.  VOR 2014 Annual Conference and Initiative Speaker Feature:  William Choslovsky –Brother, Lawyer and Advocate

3.  Using Social Media More Effectively

FEDERAL NEWS

4. H.R. 831:  The Fair Wages for Workers with Disabilities Act of 2013

Continue reading "VOR Newsletter Highlights" »

Conference, Congressional Initiatives About Choices For Adults with Autism & ID

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From our sponsor: VOR

VOR 2014 Annual Conference and Initiative

"Keep up the good work! I found this Conference to be very educational and encouraging! Thanks for all you do!" ~ 2013 Conference Participant

"The entire program was well thought-out, inspiring and interesting." ~ 2013 Conference VOR logoParticipant

2014 VOR Annual Board Meeting, State Reports, and Conference

Saturday, June 7, 2014
•Annual Board meeting
•State Reports
•State Networking and Hospitality Reception

Continue reading "Conference, Congressional Initiatives About Choices For Adults with Autism & ID" »

VOR Advocates for Disability Rights including Autism Specific

VOR logo sidebarVOR is our newest sponsoer.  Please  like the FaceBook page and follow them on Twitter @VOR_net.

VOR is a national, nonprofit organization advocating for high quality care and human rights for people with intellectual and developmental disabilities, including autism (I/DD). We're delighted to have this opportunity to share with you information about the work VOR does and the news and issues of importance to our constituency with I/DD. 

If you ever have any questions about our organization, please contact Julie Huso or Tamie Hopp at info@vor.net.

This week's newsletter included:

1.  Facebook 500! Help VOR reach 500 Likes

2.  Introducing Ellen Laurence, VOR’s new Colorado State Coordinator

3.  Annual Conference Speaker Feature:  Meet  Kim Stagliano – Mother, Advocate, Speaker and Author (See more and REGISTER HERE.)

STATE NEWS

4. Kentucky: State Senate Judiciary Committee approves bill that would create an adult protection registry

5. California: Developmental Center families are worried

6. Kansas: State Becomes First to Outsource Disability

Continue reading "VOR Advocates for Disability Rights including Autism Specific " »

Meet VOR: Refuses to Redefine Choice Imposed by Autism Self-Advocates

VOR logoManaging Editor's Note: We are pleased to welcome VOR as a new sponsor of Age of Autism. As our children are growing older, we are looking a a plethora of new issues related to aging out and beyond. VOR will help us navigate Community Resources, Special Education Resources, Legal Resources, Medical Resources and offers a Toolkit for Families. Please like VOR on Facebook, follow them on Twitter, bookmark their YouTube page and follow them on LinkedIn.

By Tamie Hopp, VOR Director of Government Relations & Advocacy

I am delighted to have this opportunity to introduce you to VOR, an organization that is really like none other.

VOR is a national, nonprofit organization advocating for high quality care and human rights for all people with intellectual and developmental disabilities.

We are the only national organization that has not redefined terms that other disability advocates have hijacked, like “choice,” “community,” and “self-advocacy.”  

Does Ari Ne'eman, a self-proclaimed self-advocate really speak for you?

For 30 years, VOR has remained true to the families we represent by putting their seasoned insights and perspectives first. To us and them, “choice” really means choice. Our advocacy is driven and guided by an undeniable truth: Families know best.

To get to know VOR even better, we are offering a complimentary e-subscription to our publications through June 2015, no strings attached, including our weekly VOR E-News Update and our newsletter, The Voice, published three times a year.Just send your email address to info@vor.net with your request. Your email will never be shared or sold.

You will find VOR unique and refreshing in this day and age of advocacy. We respect individual differences, and reject “broad brush” policies that apply to most individuals with disabilities, but not all.  In our view, such an “all or nothing” approach is not person-centered or individualized and imposes an ideology on the most disabled members of our society and places them at risk.

Continue reading "Meet VOR: Refuses to Redefine Choice Imposed by Autism Self-Advocates" »

New Disclosures on Vaccine Safety Data Link

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The U.S. Centers for Disease Prevention and Control (CDC) recently revealed, as a result of oversight requests by Congress, a research paper written by Thomas Verstraeten, MD titled Increased risk of developmental neurologic impairment after high exposure to thimerosal-containing vaccines in the first month of life that documents statistically significant adverse health outcomes associated with exposure to the mercury-based preservative thimerosal. The announcement of yet another thimerosal paper that was written by CDC officials, but not publicly made available until now, is sending ripples throughout the autism community and elsewhere.

According to the newly released document, CDC epidemiologic surveillance officers utilized the Vaccine Safety Datalink (a large linked database from four health maintenance organizations in Washington, Oregon, and California) containing demographic, medical and immunization data on over 400,000 infants born between 1991 and 1997 to conduct the investigation.  The data was categorized according to cumulative exposure to ethylmercury (thimerosal) after the first month of life and the subsequent risk of the infant developing degenerative, neurologic or renal disorders. In the paper the authors found an elevated relative risk (RR) for the following disorders: Autism 7.6, nonorganic sleep disorders 5.0 and speech disorders 2.1.  In a court of law, a relative risk of 2.0 typically implies cause and effect.

The newly released document mirrors an earlier analysis obtained by SafeMinds through a Freedom of information act request filed in early 2000.  This is when SafeMinds obtained hundreds of emails, minutes to the now famous Simpsonwood meeting and the “Generation Zero” data, the first computerized run of the Vaccine Safety Datalink investigation into thimerosal containing vaccines and adverse neurodevelopmental outcomes.

Continue reading "New Disclosures on Vaccine Safety Data Link" »

SafeMinds 2013 Reseach That Focuses On Need To Know Science

FutureManaging Editor's Note: Last week Katie Wright wrote about the paltry assortment of research conducted by Autism Speaks. Here, SafeMinds shares their research from 2013.  Thank you, Safeminds.

A look back at Safe Minds Research in 2013 – “Research that focuses on need to know science.”

It is now widely accepted that environmental factors play a huge role in the etiology of autism. Yet, even with this fact, most autism research continues to be diverted into less fruitful areas. To date, the autism community has very little government-funded research that helps us to understand why some children are more vulnerable to environmental exposures and what those exposures might be so they can be avoided and individuals with autism successfully treated. That is why SafeMinds has been laser focused on environmental research and the gaps that exist in our knowledge of causes, treatments, recovery and ultimately, prevention.

Over the past decade, SafeMinds has funded approximately $1.5 million in research with the help of supporters like you. This research has lead to the publication of over 20 research articles / and a greater understanding of the mechanisms that underlie autism spectrum disorders. Below is a list of projects that SafeMinds funded in 2013, so be on the lookout for several new publications soon. We are proud of our research accomplishments but there is so much more we need to know to help those suffering with autism now. If you would like to help us fund more of these kinds of studies please visit www.safeminds.org and click on the “donate now” button to support our research efforts.  All donations are tax-deductible.

Lyn Redwood, RN, MSN and Laura Bono

SafeMinds Research

1. There is emerging evidence supporting the hypothesis that autism may result from a combination of genetic susceptibility and exposure to environmental toxins at critical moments in development. Recent research identified a much higher prevalence rate of autism among grandchildren of Acrodynia (pink disease) survivors, which supports the hypothesis that mercury susceptibility may be a risk factor for autism.  SafeMinds is currently funding additional research in an effort to identify genetic idiosyncratic sensitivity to mercury in an effort to be able to identify infants who are more vulnerable to mercury exposure so preventive treatments can be started early and efforts made to avoid unnecessary exposures. 

2. Vaccination is inherently an immune activating process and many parents of children with ASD report episodes of regression after vaccination. While vaccines have been tested for efficacy in protecting against pathogenic infection, there have been no studies investigating whether immune challenge through vaccination in early infancy could negatively affect neurodevelopment. Therefore, SafeMinds is funding studies in an animal model to determine if immune challenge through vaccination can affect the various cell populations in the developing brain, including purkinje cell number, hippocampal cell size and microglia.

Continue reading "SafeMinds 2013 Reseach That Focuses On Need To Know Science" »

WINNERS! Enhansa Curcumin From Lee Silsby

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Congrats to our five winners: Stephanie, Weiss, Valerie Carson, Shelly Sharpless, Alison MacNeil, Heather Stafford. Check your email for instructions from Kim. 

Also, Lee Silsby wants you to know that they now accept MEDCO health insurance.  They are always seeking ways to serve families affordably.

The same original Enhansa in a water-dispersible powder form that is nearly taste-free.

Enhansa Taste-Free also has less scent, is less staining and easier to mix than the original formula. Enter to win

Enhansa is a proprietary blend of curcuminoids derived from the rhizomes of Curcuma longa (Curcumin). It is the specific ratio of curcuminoids, along with the specialized method of extraction, which allows for the unique benefits of Enhansa as compared to other Curcumin products.

Some of the positive results have been mentioned in a recent 20-patient study on Enhansa and concurred by hundreds of practitioners that prescribe it on a daily basis to their patients. Take a look at some testimonials here.

Enhansa has been tested to be very low in oxalates and phenols. Each batch of Enhansa is tested for heavy metal content. The results of the testing show that most heavy metals are below the detectable limit, and those that are detectable exist at extremely low concentrations.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

Congressional Briefing on Vaccine Injury Compensation Program

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The Canary Party presents: (Watch at YouTube.)

National Autism Association Teams Up with WeCare for iPads

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Our friends at National Autism Association are yet again -- putting tangible tools into the hands of autism families. This time it's iPads through their .Give a Voice program. 

REGISTER HERE and your dollars will help support the iPad program. You don't NAA Give Voiceneed to donate a penny - just SHOP retailers you already love!

From the MommyTechBites blog:

During the month of December, We-Care.com has teamed up with The Gwendolyn Strong Foundation (theGSF)  and the National Autism Association to empower children with SMA and Autism by granting them iPads. But they need our support. We can help by shopping online this holiday season through We-Care.com and selecting iCan: Empowering Kids with Autism and SMA as our Cause of the Month.

iPads have changed the lives of children with disabilities. With the help of therapists and parents, kids with special needs can communicate basic needs and wants, perform activities of daily living and even draw or write for the first time.

Gina Navani is the Director of Operations at We-Care.com, a unique, online shopping mall that incorporates donating into people’s everyday lives. Mommy Tech Bytes caught up with her to learn more about how readers can support this cause. Read the interview HERE.



Ben Swann On America's Government Run Vaccine Court and Autism

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Note:  Ben Swann interviewed our own Mark Blaxill.  Please comment at the YouTube video as well as here.  Thanks.




The claims that autism is caused by vaccines have been completely disproven, right? We have all heard that claim, maybe most famously by actress and model Jenny McCarthy.

But is the claim untrue? What if I told you that while HHS says there is no link between autism and vaccinations, the federal government has quietly awarded families of autistic children damages as a result of vaccine injuries?

The first step toward truth is to be informed.

The story we are talking about today is something that just doesn’t get attention from the mainstream media, and on the rare occasion when it does, the story is predictable. Scandal surrounding a doctor who claims autism and vaccines are linked. The bizarre parents who believe that their child has autism because of a vaccine, a claim clearly not based in science.

But is there more to this story than what the media has told you?

The real story behind vaccines begins in 1986...

Read more: http://benswann.com/truth-in-media-vaccine-court-and-autism/#ixzz2mSbkSlAo
Follow us: @BenSwann_ on Twitter

Important Autism Survey from ARI: Please Participate

ARI logo FebDear Readers, we ask if you could take some time this holiday weekend to please assist ARI with this important survey. It might be more fun than spending an hour with Aunt Edna and Uncle Frank! And you can win an iPad for your time.  Thanks.

Help Research That Makes a Difference: Complete Updated ARI E-2 Survey to Identify Autism Subtypes by Nov. 30 

Who: Chief Investigator Steve M. Edelson, Ph.D., Executive Director, Autism Research Institute.

What: Comprehensive, consent-based online survey. The survey is lengthy and may take up to two hours to complete - you can start the survey and then save it, and return and complete it another time. The survey is online at: www.AutismResearchSurvey.com.  

Purpose: (1) To corroborate previous research on subtyping autism and (2) to determine, based on parent responses, possible underlying causes and the effectiveness of various interventions in relation to each subtype.

Compensation: Participants who complete the entire survey will receive a complimentary one-year subscription to ARI's science newsletter, the Autism Research Review International.  

Complete the survey this month for a chance to win

In addition, participants will be entered in a contest to win an Apple iPad. Must complete the form by 10 p.m., PST Nov. 30th. Note: one entry per individual with ASD. Drawing is Dec. 1, 2013.

Where: International - this study is open to participants worldwide.  

When: Starts November 1, 2013 - data collection is ongoing, but the iPad drawing will take place on December 1st, 2013. The winner of the drawing will not be announced publicly.

Take the survey here.

SafeMinds Weighs In On VICP Hearings Delay

Action alertFrom SafeMinds.

Unfortunately for those waiting for justice, the Committee on Oversight and Government Reform has been postponed (likely until next year) due to the Chairman’s desire to obtain more official information and background from CDC and HHS prior to the hearings.

This delay in the hearing timing gives everyone a few more days to send SafeMinds your stories.  Make sure you tell Congress your experiences with the VICP, even if you never filed a case.  In addition to those who filed vaccine injury cases, SafeMinds is interested in knowing what prevented or deterred people from filing cases.  We know from conversations with parents of autistic children, that many of you have not filed but have vaccine injured children.  Be sure to include things like a lack of information on what to do from your doctor, lawyer or health department; discouragement from anyone – including medical staff; or concerns including failure to provide timely information or to document or corroborate your child’s problems from physician’s offices, staff or insurance companies.

BUT FIRST — Please let your member of Congress know you still want to see these hearings happen as soon as possible. Phone: 202-224-3121 and ask to be connected to them.

OGR Chairman Issa "Delays" Hearings on Vaccine Injury Compensation Program. Affected Families Stunned.

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Yesterday The Canary Party and her partners who have worked for a year on getting hearings on vaccine injury in Congress were informed that the hearing on the VICP that was set for December 4th has been postponed until next year.  We had a call this morning with the staff of the House Committee on Oversight and Government to get more clarity on their decision, and were informed that while the community of vaccine injured families is eager to testify, they were finding "reluctance" from others to participate in the hearings. 

Our response?  Of course they don't want to participate in these hearings!  Those both inside and outside of government who are involved in the Vaccine Injury Compensation Program and the monumental injustice that is being inflicted on untold thousands of vaccine injured children do not want to have to show up and explain what they have done under oath!

One thing is clear... Vaccine interests have been fighting this hearing in a way we have never seen before. 

Boiling down the message we received from OGR... they still want to work with us on things, and they might reschedule the hearings for next year.  Do they mean it or is it just a stall tactic?  We don't know.

We STRONGLY encourage you to take time today and call the Committee on Oversight and Government Reform and let them know how disappointed you are with their decision to pull the plug on hearings for our injured children a mere two weeks before the event.  Feel free to share with them your story.

Phone: (202) 225-5074

And call your Congressional representatives and tell them you want hearings on vaccine injury.

Chairman Darrell Issa
Oversight and Government Reform Committee
2157 Rayburn Building
Washington DC

Dear Chairman Issa,

Thank you for the opportunity to discuss recent developments with your staffers. On behalf of the many dedicated advocates who have been working so hard on the VICP hearing, we must express our great disappointment over your decision to defer hearings into the National Vaccine Injury Compensation Program (NVICP).

When you first raised the prospect of hearings with some of us last April, you raised the hopes of thousands of families who have experienced vaccine injury, many of whom have encountered mistreatment, abuse and outright fraud at the hands of the NVICP. As we discussed privately on numerous occasions, comprehensive hearings into the many faces of malfeasance within the VICP offer a unique opportunity to shine a light on how wildly the reality of the National Childhood Vaccine Injury Act of 1986 has veered from the original intent of Congress. We believe the path forward you have chosen--delaying the hearing into 2014 in order to receive an update of the 1999 Government Accountability Office (GAO) report on the VICP as well as an update of the 2006 NVICP strategic plan from HHS—is well-intentioned. But for the community of vaccine injured families, it represents a retreat into more of the same and only delays a true investigation of the failures of the NVICP. These involve the neglect, abuse and suffering of thousands of American families, including painful injury, lifelong disability, economic devastation and death. Congress’1986 Act and its VICP are what enable these tragedies to continue every day. “Strategic plan updates” prepared by HHS officials will only give the NVICP the opportunity to stonewall, while the kind of GAO report that would really hold the NVICP accountable would take more than a year not just a few months. As we said to your staffers, we’re interested in providing input to the scope of a GAO project, but we’re pessimistic at what it can accomplish in the time available.

Continue reading "OGR Chairman Issa "Delays" Hearings on Vaccine Injury Compensation Program. Affected Families Stunned." »

Vaccine Injury Exposed in Not A Coincidence Gardasil Video From Canary Party

GardasilBy Allison Chapman

Today The Canary Party is launching their new “Not a Coincidence” campaign through the release of a compelling video of stories involving girls, and Mothers of girls, whose  lives have been shaken after  receiving Merck’s HPV Vaccine, Gardasil.  To date there have been an astounding 31,741 adverse events, 10,849 hospitalizations and 144 deaths following HPV vaccines.  We are honored to be able to help these beautiful girls in any way we can and we thank all of them for taking the time to share their accounts, their feelings and their needs with us through this video. Gardasil Not A Coincidence Video from The Canary Party



How can you help?

Please take time to watch and share this video with everyone you know.  Share it with your Congressional representatives and ask them to attend the Vaccine Injury Compensation program hearing in the Oversight and Government Reform Committee in December. Tell them that the system is broken and these girls should not be left behind.  They are our future mothers and they are worthy of being heard, worthy of funding for treatments and worthy of action.  Also ask them to push for individual HPV vaccine hearings.

“Not a Coincidence” is a campaign started by The Canary Party to address the medical community’s repeated excuse that the symptoms,  too many experience after vaccination, are just coincidental.   Seizures, fainting, rashes, allergies, GI dysfunction, loss of speech, etc, etc, all labeled a coincidence.  It’s time to end the excuses and start to listen to the injured and the parents of the injured.  They deserve a forum to be heard, they deserve a voice, respect, attention, hearings and answers.  They need a medical discovery process that uses their symptoms and their progression, of illness in the process of finding treatments.  All injured are worthy of being treated individually instead of disregarding their many medical maladies because of a vaccination program that is not allowed to be questioned.  It’s time for the government, the medical community and the media to start taking into account the many affected.  Please take the time to hear from these beautiful, well-spoken girls and Moms tell their stories of injury after Gardasil. And share far and wide!

Allison Chapman is the Mother of 2 girls and 1 son who has regressive autism, seizures, apraxia and gastrointestinal dysfunction. She currently is on the board of the Canary Party


National Autism Association in NYT on Wandering, Avonte Oquendo

Avonte New FlyerManaging Editor's Note: Thank you to Lori McIlwain and all of our friends at National Autism Association for this urgent message to the American public about wandering, autism and tragedy.

By Lori McIlwain

The Day My Son Went Missing Wandering Is a Major Concern for Parents of Children With Autism

NOW in its sixth week, the search for Avonte Oquendo, a 14-year-old boy from Queens with autism, is shining a light on the issue of wandering among people with autism. On Oct. 4, Avonte managed to slip away after lunch from his school in Long Island City — even though he was known to wander during classroom transitions.

While most people associate wandering with elderly sufferers from Alzheimer’s or other types of dementia, a recent study published in the journal Pediatrics found that 49 percent of children with autism were prone to the behavior. Given the prevalence of autism — at one in 88 children, or one in 50 school-age children — it’s clear this is an everyday concern for many thousands of parents.

The day Avonte went missing, a Friday, a 12-year-old boy with autism was in a medically induced coma in Oakland, Calif. According to reports, he had wandered from his mother in a parking lot and entered eastbound traffic on I-580, where he was struck by at least one vehicle. By Sunday, another child with autism had gone missing: 5-year-old Devonte Dye wandered from his grandparents’ home in southeast Missouri. Tragically, he was found the next day, drowned, in a slough near the St. Francis River.

Since 2011, 41 American children with autism have died after wandering, or “bolting,” from caregivers. Water is often a fatal draw for these children. Since April of this year, 14 out of 16 deaths were from drowning.

Even as a campaigner, I did not appreciate the full magnitude of the issue until my own child went missing in 2007. Connor was 7 years old when he left his schoolyard, unnoticed, through an unlocked gate and made his way toward a four-lane highway.

Many children with autism have particular fascinations, and Connor’s is with highway exit signs. For our family, driving up and down the interstate was a fun day out. We never suspected he’d attempt to get there on foot.

Luckily, a passing driver noticed our son; the driver turned around, just in case. When Connor failed to answer a few basic questions, he was taken to another nearby school. That school called the police. The police had no idea how to deal with Connor: An officer mistook our mostly nonverbal child for a defiant rule-breaker who needed some “tough love.”

Finally, a staff member at the school reached me, but exactly how long Connor had been missing by the time I got to him, no one could tell me. Connor was hysterical, shaking. I scooped him up in a hug, whispering through my own tears, “You’re O.K.”

That was our big wake-up call, but it didn’t end there. Connor’s wandering had started in day care and continued through school. He slipped out during classroom transitions, as Avonte did. We found ourselves keeping Connor home on days we feared it might be easier for him to slip away. Here I was, an advocate for others, yet I could not keep my own child safe.

Continue reading "National Autism Association in NYT on Wandering, Avonte Oquendo" »

Tell Congress Your Vaccine Safety Concerns Pre-Hearing

Canary final logo
Can’t attend the hearing on the National Vaccine Injury Compensation Program?

You are not alone!  The program created by congress to “swiftly and generously” provide compensation to care for those individuals harmed by vaccines is badly broken.  Vaccine safety advocates continue to expose malfeasance within the NVICP, and on December 2013 the Congressional Committee on Oversight and Government Reform will investigate this dysfunctional program.  Sadly, most of us who live with vaccine injury can ill afford the time or expense of traveling to Washington, DC.

But you can still have a voice in this historic proceeding!

The Canary Party has provided two methods by which you can tell congress your story:

1.    Complete a brief questionnaire

We have created a survey that can be completed within a few minutes.  Answers will be tabulated to provide the OGR committee an overview of how the NVICP worked or did not work for families affected by vaccine injury and death.  You will have the ability to provide short comments for some of the questions.  Click HERE to access the survey.

2.    Submit written testimony

Tell congress what happened to you or your loved one.  In your own words, describe how vaccines caused damage or death.  What was your child like before the vaccine(s)?  What were your own beliefs about vaccines?  Did your experience with the NVICP help you or your child in any way?  Report how your journey with vaccine injury has brought you to where you are today.  You can write a paragraph, a page, or more.  Email your story to pcarroll@canaryparty.org.

Deadline for submissions is November 27th.  Survey data and testimonials will be submitted to the OGR Committee for inclusion as hearing exhibits.  All submissions MUST include your name, email address, state and zip code.  We may contact you if clarification is needed, and will redact your personal data before submitting your testimony to congress, if you prefer.

Feel free to complete the survey AND submit your full story.  Excerpts from both methods may be used in oral testimony provided to congress.  Thank you!

Generation Rescue How Mommy Likes Her Wine Photo Contest is On!

Mommy Wine Contest Kim

Our friends at Generation Rescue are sponsoring a photo contest for Moms who might enjoy a glass of wine (or in the case of the photo above, Scotch, but I swear it was a prop!) to unwind after a day of Warrior'ing.  (Yeah, I made up that word, I'm a writer, I'm allowed to do that kind of fancy stuff.)

Here are the details:

Last month, we hosted a Kids Halloween Costume Contest and this month it’s all about the Mommy Warriors! Continuing our season of giving, we are hosting a How Mommy Likes Her Wine photo contest on our social media pages, November 11th-17th.

We’re asking Moms to have fun, get creative, and send in photos of how you like to drink your wine for your chance to win! Must use hashtag  #MommyLikesHerWine. 
 
How to Enter:

To enter, you can:

    Post your photos to our Facebook wall,
    Tweet them to us @GenRescue,
    Or post them to your Instagram account and tag us @generationrescue.  

Must include hashtag #MommyLikesHerWine in order for your submission to be counted.
 
Must be 21 and over to enter.

National Autism Association Conference is Next Month in St. Pete Beach, FL

NAC cabana chairs

Are you planning to attend the National Autism Association Conference in St. Pete Beach, FL November 14 - 17? Featuring special guests Jac and Chris Laurita, the conference is just $150 for 4 packed days of learning, friendship and support.  And you can bring a friend for just $100. Childcare is available - and The Tradewinds Resort boasts a family oriented staff TRAINED TO BE AUTISM FRIENDLY. (Most schools can't say that!)

This conference feels just like a vacation - the warm sands, cold cocktails and friendly faces at every turn will recharge your batteries. NAC is a single track format, so you can attend every session - or as many as you'd like.

Register and learn more at the National Autism Conference website.

Are You Reading the Generation Rescue Blog?

Gen Rescue HalloweenOur friends at Generation Rescue have a blog on their website. It's loaded with usable info for autism families from coast to coast.  And there's still time to enter the Halloween costume contest. Be sure to add GR to your favorites. Follow them on Twitter at @GenRescue and on Facebook

Here's an excerpted post on special needs planning - an important topic.

Q&A with Ryan Platt, Founder of A Special Needs Plan

We are proud to highlight Ryan Platt, founder of A Special Needs Plan. In this feature Ryan will discuss Special Needs Planning and will explain how planning for your child’s future does not mean that you are giving up hope or giving up on your vision of your child’s independent future. Parents are the best advocates for their children and work tirelessly to ensure they have the brightest and best possible future. Hope for our children is important to our belief system as parents.

GR:        What is Special Needs Planning and where should I as a parent focus regarding my child’s lifetime needs?

RP:        Special Needs Planning is a process to identify the financial, legal, and lifetime needs for you, your family, and your loved one with special needs. Special needs planning does not end with the identification of these needs, but includes the necessary action steps that you need to take to ensure a bright future for everyone in your family while you’re alive and well, while you’re alive but are no longer able to be your loved one’s primary caregiver because of your own health issues, and when you pass away.

Continue reading "Are You Reading the Generation Rescue Blog?" »

Surviving The Fall Autism Halloween Tips

Lucy-football

By Zack Peter

Surviving the Fall!

Is it fall already? I could’ve sworn I was just going broke buying last year’s Christmas gifts and here we are again. (I guess that’s what happens when your parents both like to keep busy and give you an abundance of siblings.)

With a young brother on the spectrum following a biomedical treatment plan (and living my own life gluten- and dairy-free), the holiday season can often be one of the most challenging times of the year. There’s all the food, the family members that lack respect for the GFCF diet, the relatives that don’t quite understand Ethan, all the food, the ever-changing schedules, and then there’s all the food. Not to mention all the dirty looks from family when Ethan slips some sweets and then goes nuts (when yeast and hyperactivity become his two best friends). 

I opened it up to you guys, via social media, asking for suggestions for beating the holiday Gen Rescue Halloween pandemonium. Some said to skip the family gatherings and go on vacation. That certainly sounds nice, but who has the extra money? Some of you suggested passing out handouts to family members on autism. Please. My family believes Ethan just needs a “spankin’” and you want me to give them a handout?

Reality is, going out of town for the entire holiday season is just too expensive and reasoning with the family is likely going to end with aunt Gerald punching another hole through the wall. So you always want to come prepared.


The best thing to carry with you this holiday season is a survival bag. And in that bag make sure to pack:

-    Digestive enzymes for all that food! (My favorite is Digest Spectrum by Enzymedica - covers everything!)

Continue reading "Surviving The Fall Autism Halloween Tips" »

Australian Researcher Finds Mercury Poisoning Symptoms Eerily Mirror Autism

SafeMinds banner
SafeMinds proudly announces the launch of its new documentary: From Acrodynia to Autism:
Mercury Across Generations, More Evidence of Harm. This heartbreaking story about the forgotten childhood illness, acrodynia, has lessons for us today as we face an eerily similar disorder, that of autism. As the acrodynia epidemic disappeared from the earth through scientific truth, so can the autism epidemic end in our own lifetimes.



Acrodynia, more commonly called Pink Disease, ravaged children in Europe, North America and Australia in the first half of the 20th Century. Besides developing bright pink hands and feet, common symptoms included social withdrawal, lack of eye contact; loss of language; repetitive and self-injurious behaviors; body-rocking; toe-walking; sensitivity to light, noise and touch; low muscle tone; immune disorders and respiratory problems.

Continue reading "Australian Researcher Finds Mercury Poisoning Symptoms Eerily Mirror Autism" »

New Film: From Acrodynia to Autism: Mercury Across Generations

Listen carefully to the older adults who are speaking at the start of this video. Do you hear your own voice describing your child?   From Safeminds.


Winners: Enhansa Taste-Free Curcumin Supplement from Lee Silsby

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Three winners of either the powder or capsule form of Enhansa Curcumin supplement from Lee Silsby are Lauren Harris, Joe P and Dave Kornbleth.  I'm sending you each an email so you can contact LS for your shipment. CONGRATS!

The same original Enhansa in a water-dispersible powder form that is nearly taste-free.

Enhansa Taste-Free also has less scent, is less staining and easier to mix than the original formula.

Continue reading "Winners: Enhansa Taste-Free Curcumin Supplement from Lee Silsby" »

Contest: Taste-Free Enhansa Curcumin Supplement from Lee Silsby

Enhansa_tf_header_image1
Three winners of either the powder or capsule form of Enhansa Curcumin supplement from Lee Silsby. Leave a comment to enter.

The same original Enhansa in a water-dispersible powder form that is nearly taste-free.

Enhansa Taste-Free also has less scent, is less staining and easier to mix than the original formula.

Enhansa is a proprietary blend of curcuminoids derived from the rhizomes of Curcuma longa (Curcumin). It is the specific ratio of curcuminoids, along with the specialized method of extraction, which allows for the unique benefits of Enhansa as compared to other Curcumin products.

Some of the positive results have been mentioned in a recent 20-patient study on Enhansa and concurred by hundreds of practitioners that prescribe it on a daily basis to their patients. Take a look at some testimonials here.

Enhansa has been tested to be very low in oxalates and phenols. Each batch of Enhansa is tested for heavy metal content. The results of the testing show that most heavy metals are below the detectable limit, and those that are detectable exist at extremely low concentrations.

Lee Silsby logo 09 The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.

Hollywood Night! Taylor Hawkins Headlines Benefit Bash for Age of Autism, Generation rescue

Event playing

By Dan Olmsted

"We're the fun part," Taylor Hawkins said at Saturday Night's benefit concert in Hollywood for Age of Autism and Generation Rescue. "But we know why we're here."

And oh, the fun part! Hawkins and his two Chevy Metal bandmates threw down a seriously jambalistic 90-minute set of 70s-ish rock at the Sayers Club. (Taylor said in a local radio interview on Thursday it's the kind of stuff that would have appealed to a meth dealer in 1974. Actually it appeals to anyone with a rock bone in their body.)  Rolling Stone covered the showi n an article that ran yesterday.

Rolling stone taylor

Taylor is the drummer, a gig he also performs in a side group called the Foo Fighters. Actually, no! This is the side group, and the Foo are freaking world famous. But calling Chevy a side project or a cover band does nothing to capture the wild authentic energy at the heart of it all. The heart is Taylor's insane drum licks, which cause his long straight blond hair to mop his face in the manner of an Afghan hound shaking off a pesky fly.

For the encore, Taylor leapt from the drums to the main mike and wailed like a one-man Led Zeppelin. There was a whole lotta love.

And that was just on stage. People boogied In place and the Grey Goose flew, with bottles delivered with sparklers and some sort of internal illumination that made them look like lamps for library desks. But not.

Event GR Crew
The Generation Rescue Wonder Team
And wasn't that a Jonas brother over there taking it all in? "It very much is Nick Jonas," GR's exec director Candace McDonald, who knows all, and everyone, told me above the din. "It very much is." A drummer himself, he must have been truly gobsmacked.

All power to Candace, who pulled all this together with her GR staff after Taylor's sister in law, Tara, who has an affected child, got in touch with AOA about Taylor's offer to do an autism benefit if Tara handled the logistics.

AOA's Kim Stagliano pulled in GR, Sayers made a generous agreement with us, and the rest was a rockin' blast. Tara brought it all back home when she briefly told the crowd about the need to put "the CDC under pressure" to produce a vax-unvax study and end the autism nightmare.

Continue reading "Hollywood Night! Taylor Hawkins Headlines Benefit Bash for Age of Autism, Generation rescue" »

Natural News Endorses Life-protecting Platform of the Canary Party

Canary square(NaturalNews) Today is a milestone day for Natural News because it is the first time we are officially endorsing the platform of a political party. However, the Canary Party is really more of an activism group right now with the aim of influencing elections. You are not likely to actually see Canary Party candidates any time in the very near future (although you might a few years out).

What is the Canary Party? It's a group of moms, dads, concerned citizens and scientists who recognize the severe harm being caused to our world and our children by toxic heavy metals and synthetic chemicals found in vaccines, medicines, foods, personal care products and even products for the home. Their published mission statement is:

The Canary Party is a movement created to stand up for the victims of medical injury, environmental toxins and industrial foods by restoring balance to our free and civil society and empowering consumers to make health and nutrition decisions that promote wellness.

The Canary Party recognizes, as I do, that neither Republicans nor Democrats are ever going to deal with these issues. Both parties have been wholly compromised, bought off and hijacked by corporate interests. The democrats feign a belief in "environmentalism" but utterly fail to talk about GMOs, mercury in vaccines or toxic additives in everyday foods. Republicans, for their part, want virtually zero regulation on drug companies, food companies and chemical manufacturers, allowing them all to continue poisoning our world with no regulatory oversight whatsoever. Both of these parties fail to recognize how our world, our food and our children are being systematically poisoned by destructive corporations and failed regulatory policies.

Continue reading "Natural News Endorses Life-protecting Platform of the Canary Party" »

Age of Autism Generation Rescue Sayers Club Exclusive: Chevy Metal Benefit Concert

Chevy Metal TaylorCONGRATS TO CLARISSA! CONTEST IS CLOSED.

We'd like to thank  rock icon Taylor Hawkins of Foo Fighters and Chevy Metal (and a devoted uncle to a youngster with autism) for his generous offer to play  a benefit concert for Generation Rescue and Age of Autism.

This exclusive event is by invitation only at The Sayers Club in Hollywood.  Sponsorship opportunities are available. Contact Candace McDonald for details.

The event is Saturday, September 28.

The contest is for tickets only - you must provide transportation and/or accommodations.

Chevy Metal 9.28.13

Generation Rescue Family Grant Application Period Open

GR faceApply for the Rescue Family Grant

When a parent hears the words “your child has autism” everything changes. Generation Rescue is here for that change and the many more to come throughout their lifetime. Many individuals with autism suffer from treatable conditions like gut issues, sleep disorders and mitochondrial dysfunction which directly impact speech development, behavior and focus. Our grant program provides the opportunity to pursue treating these underlying symptoms of autism.

We understand that financial costs is often times the prohibitive reason from pursuing treatment, therefore, our grant program is available to individuals of ALL ages with an economic need.

Each grant recipient receives:
◾Two doctor visits with a medical physician specially trained in treating autism
◾A 90-day supply of vitamins, minerals and supplements
◾Comprehensive Stool Analysis Lab Test
◾Urine Porphyrins Lab Test
◾A Generation Rescue Parent Mentor
◾Dietary intervention Training
◾The Listening Program®
◾Ongoing discounts on supplements and programs provided by our partners after completion of grant program

AofA Science Summary: A Review of Traditional and Novel Treatments for Seizures in Autism Spectrum Disorder: Findings from a Systematic Review and Expert Panel

Science post imageWe would like to thank our friends at AutismOne for providing this paper to Age of Autism and supporting this type of scientific progress

A review of traditional and novel treatments for seizures in autism spectrum disorder: findings from a systematic review and expert panel

(Click HERE to download the pdf.)



Richard E. Frye1*, Daniel Rossignol2, Manuel F. Casanova3, Gregory L. Brown4, Victoria Martin4, Stephen Edelson5, Robert Coben6, Jeffrey Lewine7, John C. Slattery1, Chrystal Lau1, Paul Hardy8, S. Hossein Fatemi9, Timothy D. Folsom9, Derrick MacFabe10 and James B. Adams11
1Arkansas Children’s Hospital Research Institute, Little Rock, AR, USA
2Rossignol Medical Center, Irvine, CA, USA
3University of Louisville, Louisville, KY, USA
4Autism Recovery and Comprehensive Health Medical Center, Franklin, WI, USA
5Autism Research Institute, San Diego, CA, USA
6New York University Brain Research Laboratory, New York, NY, USA
7MIND Research Network, University of New Mexico, Albuquerque, NM, USA
8Hardy Healthcare Associates, Hingham, MA, USA
9University of Minnesota Medical School, Minneapolis, MN, USA
10University of Western Ontario, London, ON, Canada
11Arizona State University, Tempe, AZ, USA

Despite the fact that seizures are commonly associated with autism spectrum disorder (ASD), the effectiveness of treatments for seizures has not been well studied in individuals with ASD. This manuscript reviews both traditional and novel treatments for seizures associated with ASD. Studies were selected by systematically searching major electronic databases and by a panel of experts that treat ASD individuals. Only a few anti-epileptic drugs (AEDs) have undergone carefully controlled trials in ASD, but these trials examined outcomes other than seizures. Several lines of evidence point to valproate, lamotrigine, and levetiracetam as the most effective and tolerable AEDs for individuals with ASD. Limited evidence supports the use of traditional non-AED treatments, such as the ketogenic and modified Atkins diet, multiple subpial transections, immunomodulation, and neurofeedback treatments.

Although specific treatments may be more appropriate for specific genetic and metabolic syndromes associated with ASD and seizures, there are few studies which have documented the effectiveness of treatments for seizures for specific syndromes. Limited evidence supports l-carnitine, multivitamins, and N-acetyl-l-cysteine in mitochondrial disease and dysfunction, folinic acid in cerebral folate abnormalities and early treatment with vigabatrin in tuberous sclerosis complex.

Continue reading "AofA Science Summary: A Review of Traditional and Novel Treatments for Seizures in Autism Spectrum Disorder: Findings from a Systematic Review and Expert Panel" »

Tampa Fundraiser for Canary Kids Documentary on Pediatric Health Recovery

Canary Kids screen


You are cordially invited to ‘A Night Out... For Our Canaries’ to benefit the making of Canary Kids [A Film For Our Children] at Maestro's Restaurant, Straz Center in Tampa, FL.

About the Canary Kids Project

We are taking seven children with a diagnosis of autism, ADHD, asthma or other chronic illness and providing them with FREE healing and recovery services for 18 months. The children’s recovery journey will be documented on film and made into a feature-length movie. To view the trailer of Canary Kids, please click here.

Some of the many benefits of attending this amazing event include:

Guests will have the opportunity to learn about and support the making of a game-changing/paradigm-shifting documentary film, Canary Kids.

Continue reading "Tampa Fundraiser for Canary Kids Documentary on Pediatric Health Recovery" »

Canary Party Video Highlights US Vax Injury Compensation Program Failures

Canary final logoThe Canary Party Highlights the Failures Reported by Families of the U.S. Vaccine Injury Compensation Program to Perform its Intended Role
 
Why do 1 in 50 U.S. children have autism? Do vaccines cause autism? What is the VICP? How does the U.S. government really treat children injured by vaccines?

Those questions are answered in a compelling video from the Canary Party, a political group that stands up for victims of medical injury, environmental toxins and industrial foods. Though dozens of published studies show that vaccines are linked to autism, and tens of thousands of reports per year of post-vaccinal regression continue to roll in to the CDC, according to The Canary Party, the U.S. government and pharmaceutical companies routinely deny it – and prevent vaccine injury victims from receiving treatment and justice.

The new video is narrated by actor/comedian/activist Rob Schneider, a parent concerned about government intrusion into families’ healthcare choices for their children, and the increasing reports of vaccine-injured children. When the SNL alum was approached about the project, he was eager to sign on, saying, “This fight is like the Civil Rights fight. I only hope this is 1963... not 1953!” Schneider does not have a vaccine injured child, but was disturbed by what he learned about the vaccine program while looking in to vaccinating his own baby, “What upset me the most is the inequity in this system. Parents vaccinate their children after being told that it will keep their child healthy. Then when some suffer devastating disability instead, the system abandons them and sweeps the damage under the carpet. No one is accountable, these families are left devastated and it’s wrong."




The video illustrates The Canary Party's understanding of how the current autism epidemic is rooted in the 1986 National Childhood Vaccine Injury Act, which Congress passed to shield vaccine manufacturers from liability for injuries and deaths caused by vaccines. “Reports of adverse reactions to the diphtheria, tetanus, pertussis (DTP) vaccine had caused consumers to question its safety, and manufacturers lobbied for relief from potential lawsuits,” said Ginger Taylor, Vice President of The Canary Party. “With that financial obstacle removed, pharmaceutical companies then pushed government agencies to add more and more vaccines to the recommended childhood schedule.”

Continue reading "Canary Party Video Highlights US Vax Injury Compensation Program Failures" »

Science As Social Control

ObeyExcerpted from the SafeMinds website:

By Lyn Redwood

For years now I have been trying to understand why the huge focus and investment on genetics in autism research when to date the findings have been dismal. I also could not understand why promising research investigating environmental factors have been dismissed or worse yet, conducted in a manner to purposefully manipulate significant finding away from their connection to certain risk factors (like mercury or vaccines). Then I came across this article, Science as Social Control Political Paralysis and the Genetics Agenda, which explained perfectly what I instinctively knew, science is being used as a means of exonerating industry and/or government for culpability by blaming the individual for having the poor luck of bad genetics.

The author of the article reviews recent publication in the prestigious journal Science which investigated whether variations in individual “educational attainment” (essentially, whether students complete high school or college) could be attributed to inherited genetic differences. According to the research, fully 98% of all variation in educational attainment is accounted for by factors other than a person’s simple genetic makeup.  But nowhere in the title of the paper, the accompanying press release or in the summary was this important fact even mentioned!  The focus was on the identification of three gene variants that each contributed 0.02% to the variation in educational attainment.  And instead of calling for effective ways to help all children to reach their full potential, the 200 plus authors called for more genetic research to follow-up on these “promising candidate SNPs”.  Read the full post at the SafeMinds site.

Join Jacqueline & Chris Laurita at the National Autism Association VaConference

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Summer has ended and it's time to launch into Fall (insert HUGE cheer here.)  That means it's time to start planning your vaconference with National Autism Association. If vaconference isn't a word, it should be, because that's what NAA has created for attendees.

Held each November at the family owned Trade Winds Resort in St. Pete Beach, Florida, the NAC is the perfect mix of beach vacation for you and your child(ren) and chock a block informative autism conference.   The cost is only $150 and scholarships are available.

Learn more and register HERE.


Join us in beautiful St. Pete Beach for this family-friendly event featuring the country's leading experts on Autism Spectrum Disorders.

NAC cabana chairs

TradeWinds Island Resorts are two resorts, just steps away from one another on the white sands of St. Pete Beach, overlooking the Gulf of Mexico. With 14 dining and entertainment options, 7 pools, full service salon and spa, activities center for the kids and more, TradeWinds is the perfect location for a relaxing and fun getaway.


In November of 2010, TradeWinds Island Resorts was designated an Autism Friendly business by the Center for Autism and Related Disabilities (C.A.R.D.). TradeWinds employees underwent C.A.R.D.’s training program, which taught employees how to better meet the needs of guests who have autism and their families. Employees who have been through the training are easily identified by the puzzle piece pin on their nametags.

At TradeWinds, you can rest assured that they will take all your needs into consideration so you can “just let go”.

During your visit you can request a “Safety Kit” available for your room, which includes a hanging door alarm, corner cushions for tables and outlet covers.

For those with special diets, they have gluten free offerings available in our dining outlets. As a special treat they also have our Snack Attack amenity available, which includes a TradeWinds lunch bag and gluten free snacks.

For children, the KONK (Kids Only No Kidding) has special sensory activities available as well as selected drop-off programs for kids. Please call KONK at 727-363-2294 in advance to speak with a counselor about your child’s needs and so they can staff appropriately.

Call 800-808-9834 today to speak to one of their friendly reservation agents about how they can best accommodate you and your family during your stay.

Review and print the TradeWinds Social Stories Book to fully anticipate the resort’s offerings before your visit.

Science Summary: Ischaemic heart disease, influenza and influenza vaccination: a prospective case control study

Science post imageFrom Heart and Education in Heart, An international peer-reviewed journal for health professionals and researchers in all areas of cardiology. Read the full study HERE.

Competing interests Professor CR Macintyre has received grant funds and/or support for investigator-driven research from GSK, CSL, Sanofi Pasteur, Merck and Pfizer. Dr Anita Heywood has received grant funds for investigator-driven research from GSK and Sanofi Pasteur. Dr Holly Seale has received grant funds for investigator-driven research from GSK, CSL and Sanofi Pasteur. The other authors have no conflicts of interest to declare.

Abstract

Background Abundant, indirect epidemiological evidence indicates that influenza contributes to all-cause mortality and cardiovascular hospitalisations with studies showing increases in acute myocardial infarction (AMI) and death during the influenza season.

Objective To investigate whether influenza is a significant and unrecognised underlying precipitant of AMI.

Design Case-control study.

Setting Tertiary referral hospital in Sydney, Australia, during 2008 to 2010.

Patients Cases were inpatients with AMI and controls were outpatients without AMI at a hospital in Sydney, Australia.

Main outcome measures Primary outcome was laboratory evidence of influenza. Secondary outcome was baseline self-reported acute respiratory tract infection.

Results Of 559 participants, 34/275 (12.4%) cases and 19/284 (6.7%) controls had influenza (OR 1.97, 95% CI 1.09 to 3.54); half were vaccinated. None were recognised as having influenza during their clinical encounter. After adjustment, influenza infection was no longer a significant predictor of recent AMI. However, influenza vaccination was significantly protective (OR 0.55, 95% CI 0.35 to 0.85), with a vaccine effectiveness of 45% (95% CI 15% to 65%).

Conclusions Recent influenza infection was an unrecognised comorbidity in almost 10% of hospital patients. Influenza did not predict AMI, but vaccination was significantly protective but underused. The potential population health impact of influenza vaccination, particularly in the age group 50–64 years, who are at risk for AMI but not targeted for vaccination, should be further explored. Our data should inform vaccination policy and cardiologists should be aware of missed opportunities to vaccinate individuals with ischaemic heart disease against influenza.

Autism Free Brain
Putting an End to Autism
by Fighting Brain Immunity Storms™

The science category is sponsored by AutismFreeBrain, Inc. was created to fund innovative research to develop a cure for Autism Spectrum Disorders (ASD). Our studies have identified inflammatory processes in the brain, we called Brain Immunity Storms, that are much like an allergic reaction, releasing surges of molecules that disrupt areas of the brain responsible for emotion and language.

National Autism Association Video for First Responders on Wandering

Big red box
Our friends at NAA are the community leaders in exposing the life and death problem of wandering and autism; and proactively educating families, providers and, in this video, first responders. Please share this video with your local first responders. You coud save a life.

http://www.youtube.com/watch?v=auJvlpWhb5E

If you have child who wanders - no matter what his or her age - contact NAA to learn about their BIG RED SAFETY BOX program. And if you can donate $35? You'll buy a box for a family who needs it.

Call on Your Congressperson to Support HR1757 Vaccine Study Safety Act

Start-your-enginesSAFE MINDS ACTION ALERT! – Support Passage of HR1757 on Capitol Hill

Date: 31 Jul 2013

By: Eric Uram

What is HR1757? – Also known as “The Vaccine Safety Study Act,” this bill, introduced by Rep. Bill Posey (R-FL) and Rep. Carolyn Maloney (D-NY), directs the National Institutes of Health to conduct a retrospective study of health outcomes, including autism, of vaccinated-versus-unvaccinated children, and to determine whether exposure to vaccines or vaccine components is associated with autism spectrum disorders, chronic illnesses, or other neurological conditions.

Currently before the US House Committee on Energy and Commerce, the bill, if implemented, “should bring an answer to this decades-long question,” Rep. Posey stated on the House floor.

Why is this important? Nearly all drug-safety and toxicological studies include investigations of exposed and unexposed populations in order to determine negative health outcomes and degrees of risk. Every 7th grader knows you cannot do a proper experiment without a rigorous control group that can be compared with the exposed group. Yet this most basic science has not been done when considering the totality of the US vaccination program, only with individual vaccines or combinations of certain vaccines. No study of vaccinated-vs.-unvaccinated children and autism has ever been attempted anywhere in the world. Without this basic data, no one can say with certainty whether or not the current vaccination schedule is associated with a greater risk of autism and other chronic health outcomes.

Why hasn’t this been done before? Everyone concerned about autism and vaccine safety should be asking this question. Some studies have looked at high thimerosal exposures versus lower and zero exposures, including one CDC analysis obtained by SafeMinds through the Freedom of Information Act. It showed risks of autism, ADD, sleep disorders and speech/language delay were consistently elevated in the more exposed group: Increased autism risk in one-month-old infants with the highest exposures ranged from 7.6 to 11.4 times higher than zero-exposure infants.

Another study published in January found that unvaccinated children (due to parental choice), had significantly lower emergency room and outpatient visits without any increase of in-patient visits.

Is it feasible? Yes. Dr. Julie Gerberding, former director of the CDC and now head of Merck’s vaccine division, said on CNN that, “this is the study that could and should be done.” It would be unethical to conduct a prospective study in which some children were vaccinated and others were given placebos, but that is not what this bill calls for. Several populations routinely exempt their children from immunizations for religious, medical or other beliefs. These individuals offer access to a control group for comparison with exposed children in retrospective research.

Continue reading "Call on Your Congressperson to Support HR1757 Vaccine Study Safety Act" »

Welcome To AutismFreeBrain.org

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Please join us in welcoming Autism Free Brain to the AofA family.

"AutismFreeBrainTM is a non-profit organization established to generate support and funding for research of specific molecular mechanisms contributing to focal brain inflammation leading to Autism Spectrum Disorder (ASD), and how it may be diagnosed, treated, prevented and reversed.

AustimFreeBrainTM was initiated and is maintained by doctors, scientists, and families with ASD children hoping to enable an in-depth scientific and clinical exploration of the inflammatory cause of ASD primarily based on the findings of Professor Theo Theoharides, MS, PhD, MD working in Boston, MA. He has published evidence of increased levels of unique neuroinflammatory markers in the blood of young children with ASD, and proceeded to develop a novel, patented, formulation containing a highly pure chamomile extract of the flavonoid Luteolin, formulated in olive kernel oil to maximize oral absorption.  Two clinical trials and numerous anecdotal reports indicate significant benefit in attention and sociability with reversal of gastrointestinal and allergic ASD symptoms in over 50% of children and verbal gains in about 20% in 4-6 months."

Thank You from SafeMinds to IACC Public Commenters

Thank you typeBy Lyn Redwood

I want to personally thank everyone who responded to the SafeMinds action alert to submit written public comments to the IACC regarding their child’s medical conditions this past month. And a huge thanks to Eileen Nicole Simon, Jill Rubio, Albert Enayati, Jeanna Reed, Nicholas, Carolyn, and Andrew Gammicchia, Brooke Potthast, Clinton Potocki on behalf of Dawn Loughborough, and Wendy Fournier who came in person to share directly with the committee their struggles to get appropriate medical care for their children and recommendations for what can be done to make things better. 

Historically, medical problems in children with autism have been completely denied by the medical establishment and the IACC committee. And, although the response from the committee after the panel discussion regarding co-morbidities was lackluster, the outcome at the very end of the day when discussion finally took place resulted in a unanimous vote by the committee to create a working group to focus on these conditions.

This was not the first time that the IACC has heard of co-morbidities. Parents have been meeting with Tom Insel and his staff as far back as 2002 telling him our stories of sick children and recovery with appropriate medical treatments. But just because we said autistic children had multiple underlying debilitating medical conditions didn’t make it so. Many impassioned discussions (like the one below pulled from IACC transcripts in 2009) couldn’t bring the committee around. The sad fact is that government moves at a snail’s pace, but passionate participants can speed up progress and make a positive difference for all those who can’t be there to speak for themselves.

Ms. Redwood: “For those of you who don't know me, I am one of the public members of IACC. And I just wanted to share with you a story about a little girl in Georgia who was 12 years old. She was being taken care of by her grandparents and they could no longer control her behaviors and she was admitted to a state psychiatric institute. And within a matter of months, she deteriorated. She became very ill. She writhed in her bed all night long. She vomited and by the morning she was dead. When an autopsy was done, this little girl was obstructed and she had infarcted her bowel. And that was never treated and never acknowledged. And I am sharing this story with you because I feel so strongly that these children have many, many underlying medical problems that are being completely overlooked because the focus has been on the brain and not the body. And I think it is an area where we can make so much difference. There is not any amount of behavioral therapy, or speech therapy, or assisted communication devices that is going to help with a child who is impacted and has infarcted their bowel. And we are missing so many opportunities to improve the health of these children. Oftentimes when we these underlying medical conditions are addressed and treated, their behaviors get better. Some kids have even lost their diagnosis. So we know they have immune system abnormalities. We know they have ulcerative colitis. They have metabolic stress. They have low levels of glutathione. They are under methylated. And there is so little focus on addressing those medical issues. We have protocols in place now for treating inflammatory bowel disease. But it is not anything that is even considered. And I know {another IACC member] mentioned yesterday that the pediatricians are so stressed, they don't have time to really look at these children medically and it is an area where we could make a tremendous amount of improvement and it is not anything that requires a genetic test or an MRI or anything except a good physical exam and some laboratory work. So I just want to put in a plug to please look at the children's bodies as well as their brains.”

After the comment above a developmental pediatrician on the IACC took “offense to this description of children with autism as being ill and sick” and I was actually accused by a Federal member of the IACC in a handwritten note passed to another committee member of “pushing autism as a multi-system disorder in order to feed into the vaccine injury awards”
See Dr. Story Landis Resigns from IACC.

Continue reading "Thank You from SafeMinds to IACC Public Commenters" »

National Autism Association Give a Voice iPad Grant Period OPEN

NAA Give VoiceOur friends at NAA have a new grant program called "Give A Voice."  If you can help fund hte program, please consider making a donation. If you need an iPad for your son or daughter, the application period is open. 

From NAA:

The intent of this program is to provide communication devices to individuals with autism who are non-verbal or minimally verbal, and whose communication challenges put them at increased risk of injury or harm.

We have very limited funding to begin this program and will provide communication devices to only fifty applicants during this initial round.  Every application will be carefully reviewed and all information submitted will be verified by NAA staff.   This program is intended for families who are in dire need of financial assistance and are otherwise unable to attain a communication device.

NAA’s Give A Voice Program will provide qualifying individuals with an assistive communication device including:

Grant applications must be postmarked by July 31, 2013.

For full program details and eligibility requirements, click here to download our Give A Voice Grant Application.


Funding is desperately needed for this program.
To make a tax-deductible donation, please click here.

 

Call to Action As Minnesota Vaccine Safety Advocates Fight Proposed Rule Changes

Canary Party Action AlertA call to action from our sponsor, The Canary Party:

By Patti Carroll

Several months ago, it was brought to the attention of vaccine safety groups in Minnesota that the Minnesota Department of Health (MDH) was proposing to add more shots to their recommended schedule, and lower the recommended age for other shots on the schedule.  Luckily, we have a really strong group of advocates here, and representatives from several groups came together to plan what to do. We knew we would have a battle on our hands, as attempts to fight changes a decade ago were unsuccessful.  In fact, MDH’s recommended changes to the vaccine schedule have never been successfully stopped.  But that would never stop us from trying.

The rule in Minnesota is that if at least 25 people write in to oppose the changes, then a hearing before an administrative law judge must occur.  If not, MDH can simply adopt the changes that they themselves have recommended.  So step one was to get at least 25 people to write in to the administrative law judge, opposing the rule changes.  We sent out an action alert, and about 100 people wrote in contesting the rule changes.  So a hearing was set up for June 27, 2013.

Next step for the team – what could we actually fight here?  The administrative law judge’s job was to determine:

1.    Did the MDH have the authority to make these changes?
2.    Did the MDH follow all the required procedures when making these proposals?
3.    Were the proposed changes necessary and reasonable?

Knowing they had the authority to make these recommendations (whether or not we believe this authority is justified in the first place), and knowing they had followed the necessary steps to propose the changes, we knew our strongest argument would be on whether these changes were needed and reasonable.  As we pored over the lengthy SONAR document (Statement Of Need And Reasonableness) put together by an advisory group appointed by MDH, it became clear that their arguments were shaky.  They made these proposals in order to bring Minnesota into alignment with the CDC recommended schedule, but of course the CDC schedule has never been proven to be safe, and has come under intense scrutiny recently by members of congress.  And there is no need to mandate some of these vaccines, since the number of people getting the diseases is actually DECLINING in Minnesota in the age ranges for which they are recommending the new requirements.

Which begs the question – why?  And why now?  As we all know, there are fights heating up in many other states to take away individuals’ rights to opt out of vaccines.  Minnesota Commissioner of Health Ed Ehlinger has publicly stated that he supports removing the rights of Minnesotans to choose when and how to vaccinate their children.  Perhaps these changes are simply a way to get more vaccines on the schedule before MDH then tries to remove our rights to refuse them.

So for the past several months, our little band of advocates worked tirelessly  to hone our arguments, get the press involved, reach out to medical professionals to submit testimony, fact-check the SONAR document, write and submit our own testimony, and contact parents to urge them to attend the hearing.  We had multiple meetings and conference calls, with representatives from several Minnesota groups attending when they could, including The Minnesota Natural Health Coalition, Vaccine Awareness Minnesota, DAMS (Dental Amalgam Mercury Syndrome), BEATMN (Biological & Educational Autism Treatments MN), The Minnesota Natural Health Legal Reform Project, The Canary Party and the  Vaccine Safety Council of Minnesota.  We were contacted by concerned individuals from all over the country.  Minnesotans I had not met before reached out to me through CP and VSCM, asking if we were involved and what they could do.  Two of them came and testified. 
We had two parents of children who were killed by vaccines (but were unable to travel here) submit powerful testimony that was read to the judge by members of our group.  And when I called my friend Karen Kain to ask if she would come and testify, she did not even hesitate. 


Karen Kain

We reached out to attorneys with the National Health Freedom Action group, asking if they could analyze the legal aspects of the proposed changes, and I was excited to find out a few days before the hearing that Ann Tenner would come and testify for us on behalf of that group. 


Ann Tenner

Friendly groups sent out our action alerts to their readership.  And several knowledgeable doctors sent in their comments.

The day of the hearing we had two people planning to testify for us that had to leave before they were given an opportunity to speak.  One of them had to rush home to take care of his severely vaccine-injured son with autism.  I was afraid we would be outnumbered and overwhelmed.  But surprisingly, there were more people testifying against the rule changes than for them.  And we had far stronger arguments.

Continue reading "Call to Action As Minnesota Vaccine Safety Advocates Fight Proposed Rule Changes" »

Celebrate July 4th and Support Autism Families

NAA Star



Designs by Ja9 is supporting The National Autism Association through the sale of these beautiful exclusive patriotic star pendants.  Order yours here for $30 and support our sponsor AND families facing the challenges of autism. NAA spends every dollar wisely and our families reap the benefit.

Shimmering silver puzzle pieces float above stripes of red, white and blue. It measures 1 ¼” overall and has a sliver plated hanging loop. Necklace is not included. Due to the rainbow-like properties of the glass, colors and patterns will vary. No two are ever alike! A $10 donation will be made to The National Autism Association for each piece that is purchased. Included with each piece is a card acknowledging your donation. Handcrafted in the USA by Glass Artist Janine Stillman. Please allow 2 weeks for delivery.